Lyme and scleroderma

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godlives38
New Member


Date Joined Jul 2012
Total Posts : 16
   Posted 10/30/2012 11:19 AM (GMT -6)   
I have been battling Lyme and Ehrlichiosis for almost a year now. Have been on many antibiotics for 5 months. Now new blood test by my Lyme doc are showing positive antibodies to autoimmune, expecially high for scleromerma. Real scared. This is a fatal disease. anyone out there have several positive antibody test for auto immune and scleroderma. My only symptoms right now of any kind are extreme chest pain and fatigue. My feet are cold all the time(thyroid is normal) all heart test are normal. Pulmonologist said my xrays are normal. My lyme doc is trying to find me a rhumotologist but the wait is too long. my insurance runs out in 1 and a half months. My husband has lost his job and is trying to find another one. My life is a mess right now. I am so scared that I may have this terrible disease on top of another terrible disease(Lyme). any suggestions or help would be appreciated.

aquaholical
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 10/30/2012 12:36 PM (GMT -6)   
I have had positive ANAs with a nucleolar pattern (suggesting scleroderma) for 2 years now. And I also have Raynauds, SIBO, chest pain, back pain and low white blood cell count. Even with all of that my rheumatologist does not suspect connective tissue disease.

Before you worry yourself too much, keep in mind that it is a rare disease and that (from what I've read) Lyme itself can cause positive ANAs. I'm not a doctor obviously, but I imagine since your xrays and heart tests are normal that a rhemy likely won't suspect scleroderma, either, but there are other specific blood tests for it that they will likely run.

I suspect my chest pain is most likely anxiety from all this being sick/ unable to hold a job/ unable to digest food/ potential additional scary dx's/ etc etc. Try your hardest to take a few steps back, a few deep breaths and think as positively as you can. Being unable to even eat food right now, believe me, I know how hard that is. But stress/worry/anxiety is only going to amplify all the problems. I try to distract myself by hanging with friends or family as much as possible. I've found that my thoughts don't slip slide down the negative paths as easily when I'm with good company. Cute overload .com is also amazing for quelling anxiety ;)

Hang in there and vent on here when you need to. All of us here know exactly how you feel. <3
aquaholical.blogspot.com

godlives38
New Member


Date Joined Jul 2012
Total Posts : 16
   Posted 10/30/2012 12:48 PM (GMT -6)   
That is what I needed to hear right now. I am a strong Christian who relies on our Lord for comfort and strength. He helps me the most but I have to let him. People like you who are suffering more than me saddens me but also encourages me. I will pray for you and all those who have it worse off than I. God Bless
 
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