I think I have pneumonia :(

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Lymer
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Date Joined Sep 2012
Total Posts : 510
   Posted 12/14/2012 2:35 AM (GMT -6)   
So I've had pneumonia once before, and I remember this same "sinking" feeling in my chest, along with chest pain, brown phlegm (throat & nose), night sweats, extremely achy, zero energy...kinda like the symptoms I already have, just exaggerated and with a few new ones to boot...hooray for me :'(

I've been kind of just dealing with it because I assumed it was just the Lyme talking, but now I'm on day 3 of not being able to get out of bed and my chest pains are getting worrisome.

I don't see an LLMD until Feb. I don't like my new GP and won't go back to him...he says I'm "just tired" because I "just" had a baby...19 months ago?!?! Grrrr....

My Rheumy is an hour away and impossible to get in to on such short notice. Should I try a walk-in clinic?? I'm so lost. Anyone with a similar experience, if so, what did you do?

I'm also worried because I tested negative for Lyme by CDC standards (western blot), so how do I make sure the treatment for pneumonia is safe?? I had to learn the hard way about steroids...which is probably why I'm this sick now (more like definitely).

I can't do the ER tonight, I have my son and my husband is working. I think I'll go pull my hair out now...or cry...or both.

Summer3
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Date Joined Nov 2011
Total Posts : 1020
   Posted 12/14/2012 7:05 AM (GMT -6)   
At this point, I think it's okay to go anywhere in this situation including a walk-in clinic or urgent care. I don't think you have much to worry about since you aren't asking them to treat you for Lyme. Just tell them you cannot take steroids (unless it's life threatening and you absolutely need them).

I have been known to tell people I'm allergic to steroids when they wanted to prescribe them for things that they weren't necessary for (minor allergies etc.) wink I hope you feel better soon!

opugirl
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Date Joined Nov 2012
Total Posts : 3293
   Posted 12/14/2012 7:10 AM (GMT -6)   
I agree with Summer and I got way better care ironically at a walk in clinic than I did with my GP. In fact it was at a walk-in-clinic that suggested I had Lyme's. I'm kind of a walk in clinic kind of gal and there are two of these that I've been to that I would take over my GP anyday.
I understand having to wait for an LLMD - that blows. I have to wait til 29th of Jan so I feel for you. Have you thought about taking some herbs in the meantime?

hishorselover
Regular Member


Date Joined Oct 2012
Total Posts : 45
   Posted 12/14/2012 7:26 AM (GMT -6)   
Feel better Lymer! I am curious...what effect do steroids have on Lyme....

rns
Regular Member


Date Joined Dec 2012
Total Posts : 32
   Posted 12/14/2012 12:19 PM (GMT -6)   
Pneumonia is something to be taken seriously. I have a friend who for years was told his pneumonia was viral and was never treated and ended up with scar/fibrotic tissue in his lungs and difficulty breathing.

I agree, avoid steroids like the pest, they will suppress an immune system already under pressure.
A walkin clinic would be my choice as I have in the past for other problems. I never mentioned the Lyme problem, just that I had problems with certain meds which I didn't like.

In terms of treating recurrent respiratory infections, you may want to look into systemic enzymes.
They help solving this kind of infections when given with antibiotics, they have a powerful anti-inflammatory action and a definitely better alternative to steroids, since they can also help with immune stimulation.
They will make antibiotics more effective and I bet they might get rid of your problem for good.

I am aware of studies with wobenzym on children and bromelain (avoid serrapeptase, it can cause lung inflammation even in healthy people!)
It's worth looking up these studies to have an idea of duration of treatment and dosage which are important.
They may also help reducing bacterial biofilm which could be an issue in recurrent infections.

Here's some of the link to studies:
wobenzym on kids http://www.systemicenzymesupport.org/conditions/respiratory_tract_infections.htm
systemic enzymes in infections http://www.webmedcentral.com/article_view/2495

I have had various people in my extended family taking them (lumbrokinase mainly) and that helped with recurring tonsillitis and bronchitis, even in my elderly in-law when according to the doctors the problem was chronic and not treatable.

I also learnt from another lyme board of 1st line, an effective natural antibiotic. It can get rid of respiratory infections in matter of a few days and in fact recently it did that for my inlaw (took just two doses). It's worth a try in any case if your problem is really persistent. It may also help with lyme.
http://thisisnatural.com/health/1st-line-infection-fighter-broad-spectrum-antimicrobial.html

Post Edited (rns) : 12/14/2012 10:23:18 AM (GMT-7)


Summer3
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Date Joined Nov 2011
Total Posts : 1020
   Posted 12/14/2012 1:48 PM (GMT -6)   
Hishorselover,

Steroids suppress the immune system drastically making it possible for Lyme and co-infections to take over which can in turn cause irreversible damage in some cases. Unless you are in a life threatening situation where steroids would be lifesaving, they should be avoided if you have Lyme.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14779
   Posted 12/15/2012 11:10 AM (GMT -6)   
Lymer,
Have you made it in to be seen yet? I sure hope so! Take good care of yourself right now!
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

Lymer
Veteran Member


Date Joined Sep 2012
Total Posts : 510
   Posted 12/15/2012 9:22 PM (GMT -6)   
Thanks for checking on me Traveler, and thanks everyone for the advice.

I went to a Walgreens clinic and the doctor there thinks its viral. She said she couldn't hear anything in my lungs, which is weird because I was feeling so congested at the time.

I do worry though, and after rns mentioned the friend that was misdiagnosed, I'm going to see how I feel Monday and go to my rhuematologist again if necessary.

The doctor at the "take care clinic" did try to push some Walgreens brand decongestant on me, it was like a bad commercial...lol! I was pretty irritated, to say the least. She rolled her eyes when I said I take pain meds for Fibromyalgia. I didn't mention Lyme disease, she probably would have really had a hay day had I told her that! She told me I need to take control of my health, my personal life, my budget??? I was pretty insulted. I didn't ask her advice on my finances or personal life, she's a complete stranger!! It was very strange, to say the least!!!

I don't feel the congestion today, oddly enough. I haven't had a cough at all, so idk what the heck is going on!

I started having chest pains when I was taking prednisone (I stopped as soon as I found out I tested positive for Lyme), but since then the chest discomfort seems to come and go...

Summer3 is right, stay away from steroids!! I used to have good days and bad days, but for the past 6 weeks or so I've been progressively feeling worse. This all started with a very low dose of Prednisone. My Rheumy suspected Lupus at the time which is why he prescribed steroids. If only I'd known then what I know now, I would have never touched them!

My Mom told me that garlic is good for the lungs, so I plan to pick up a supplement the next time I'm out. Does anyone take this and/or have any advice on the proper dose?

I'm sorry this post is so choppy- I'm very scatterbrained and feeling pretty "foggy" today

Lymer
Veteran Member


Date Joined Sep 2012
Total Posts : 510
   Posted 12/15/2012 9:25 PM (GMT -6)   
Summer3, I also list Steroids as an allergy now. My Rheumy agreed that I can't take them since they cause chest pains. It's frustrating that he doesn't get the Lyme diagnosis, because he's by all other accounts a great doctor!! So frustrating.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14779
   Posted 12/16/2012 10:36 AM (GMT -6)   
Lymer,
Has Babesia been completely ruled out for you? That was actually my first thought when I read your original post here, the symptoms match up pretty good. I would be looking hard at a Babesia infection as I had those same types of feelings as well when my Babesia was acting up. I had a few other symptoms that clued me in that it was Babesia not yet another case of Brohnchitis for me.

Next time you get that really heavy feeling in your chest and you find it hard to breathe when you lay down, prop yourself up on several pillows under your head (so that you are in about the same position as if you were in a recliner) and then put a pillow or two under your knees/rear end to help 'hold' you there. It's a bit uncomfortable at first, but that's how I got through a pretty good flare of my Babesia symptoms.

For a very detailed list of Babesia symptoms, I would suggest that you take a look at this one - www.personalconsult.com/posts/babesia-checklist.html

This doc has done a whole lot of research into Babesia, Lyme, Bartonella and others. I would suggest that anyone wanting to know more about their infections spend some time reading on this site. It's one more place to get some good info from.
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name
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