Scared to start treatment

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WarriorMom
Regular Member


Date Joined Sep 2012
Total Posts : 82
   Posted 12/22/2012 6:39 PM (GMT -7)   
I was finally diagnosed with Chronic Lyme Disease last week. My Igenex test came back positive. My LLMD gave me a ton of helpful information, ordered my prescriptions and I will also be participating in a study she is doing with her Lyme patients. Anything to help science and others about this disease!!
 
She told me to wait until after my birthday which was Dec. 14th to begin treatment. I have yet to start, as I would like to enjoy the holidays without experiencing a herx. On my good days I would say I am about 50-60%, which is improvement since the last 3 months I was at 30% and hardly able to function.
 
I am so scared to start the antibiotics as I have no idea how I will react to them and start herxing, and become bedridden. My thoughts are filled with apprehension. My husband and family are all cheering me on and giving me tons of encouragement. I can finally see a light at the end of the tunnel, and know that you get worse before you get better. I have been so ill since May and want more than anything to get well sooner rather than later. Actually I believe I have been battling this disease for almost 8 yrs and was diagnosed with fibromyalgia instead of being treated for Lyme.
 
This is now my chance to beat this! I just cannot bring myself to swallow the pills :(  I know I need a lot of patience, positive attitude, a lot of detoxing and strength. I have to get beyond my fears and hope for the best. Ugh!! 2013 is the year of healing!!!!

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 12/22/2012 6:46 PM (GMT -7)   
I was scared at first too but a year later, I'm eager to start new meds and protocols hoping to find one that works well for me and that can be sustained for a while. Herxing has been rough for me sometimes, but you can get through it! Especially with a supportive family and a good doctor that is available to address your concerns.

What meds or herbs will you be taking? I've taken most of them at some point so even though it's different for everyone, sometimes it helps to hear different experiences from others.
www.lymepie.blogspot.com

Mystery Illness
Veteran Member


Date Joined Dec 2011
Total Posts : 767
   Posted 12/22/2012 7:29 PM (GMT -7)   
My advice is to start SLOW. My first LLMD (i'm not seeing a different LLMD) put me on huge dosages of 3 abx. - Keflex, Doxy, and Flagyl. He had me start at the high dose, all within 1 week. It was way too much at once and I had a week from you know where. He then had me cut the dosages in 1/2 and it was more tolerable.
As long as you start slowly, it will probably not be too bad. Just make sure you're detoxing and have help lined up ahead of time - help w/ the kids, groceries, household stuff. That way, if you do experience bad herxing, you don't have to worry about other things. You'll be able to focus on detoxing, eating healthy, and healing!
It will be okay! You'll soon be on a path to healing.

Mystery Illness
Veteran Member


Date Joined Dec 2011
Total Posts : 767
   Posted 12/23/2012 12:18 PM (GMT -7)   
oops-type-(I'm NOW seeing a different LLMD)

Hope65
Regular Member


Date Joined Oct 2008
Total Posts : 59
   Posted 12/23/2012 1:04 PM (GMT -7)   
Hi WarriorMom - I understand your fear. My antibiotics are sitting here waiting for me to begin. I'm not going to start until the 27th. I am so scared. My friends tell me to get excited - this could be the start of healing after so many years of being sick!  I hope it goes well for you - I don't think antibiotics always causes herxing if we are detoxing. Can someone tell me if this is correct? 

shadow69
Regular Member


Date Joined Oct 2012
Total Posts : 137
   Posted 12/23/2012 3:52 PM (GMT -7)   
I am starting on the 26th!! I am scared to, but also excited to get on the path of healing and hopefully start feeling better. The pain I am in now is incredible and I am hoping that I will heal from this! Good luck to everyone. And Merry Christmas!

Justme4508
Veteran Member


Date Joined Sep 2012
Total Posts : 674
   Posted 12/24/2012 5:12 AM (GMT -7)   
Hi everyone, I just wanted to say I know you are scared I was too in your shoes. The main thing is to go slow , not to take to much at once.

Also, I had to remind myself of this, so I am hoping to let you know as well, with Lyme our bodies need to rest, so if it's possible take a daily nap if you can. It's almost like we have to recharge our batteries. You will have good days and bad days with Lyme, I try to keep a positive attitude , but at times it's very difficult. This website is so very helpful, I learned about detoxing and so many other things that has helped me continue to fight through this disease.


Before I started treatment I was in bed for about a week straight. I have tried many different things, and I know now that everyone is different, so what works for one person may not work for another. I think it also has something to do with what stage everyone is in. I am late stage Lyme, so the first few rounds of meds did not work for me.

I also wanted to say this, there is no quick cure to my knowledge to fight lyme. It's a battle , it also depends on our bodies, and I feel mental attitude has quite a bit to do with it. In my experience when I felt I could not do this any longer I was worse, but when I got up and said I am ready to fight , I do better.

The main thing is there you are all in treatment, and that is the first step into getting better. I hope you all have a fast recovery.

Take care

Justme
Doxy 3 months, neproxen, zanax, now trying Buhner protocol. Late stage Lyme with seizures

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 3853
   Posted 12/24/2012 7:37 AM (GMT -7)   
Hi Warrior Mom and everyone else,
 
Please do what YOU feel comfortable doing.  I always suggest to people to do 3 things:
 
1.  If you don't feel better within a reasonable time on your current protocol, then it's time to look into other protocols, you can always go back to conventional antibiotics.
 
2.  Educate yourself.  Read books (there are many good ones out there that explain what antibiotics do to your body versus alternative medicine).   I personally recommend:
 
"Healing Lyme" by Stephen Buhner (www.amazon.com)
 
"Beating Lyme Disease" by Dr. Jernigan (www.hansacenter.com) and go to the store link
 
3.  Detox, detox, detox.  In the "New to Lyme?  Start Here!" Sticky Thread in this forum there are instructions on how to detox and why one should be detoxing. 
 
Good luck!
Denise
 
 
 
 
Symptom free for 7 years ~ used Dr. Jernigan's protocol.

Our bodies are wise as they can heal themselves, all one has to do is nourish them properly. Thus it's about the Immune System mixed with Daily Detoxing and a dose of Positive Thinking, and Lowering Stress Levels.

I come back to help others as others helped me. Pay it forward! :-)

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 15350
   Posted 12/24/2012 9:45 AM (GMT -7)   
I would like to encourage you to start detoxing now, before you start your treatments!! It's like getting out all of your stuff before you cook a meal - preparation! Prepare your body for what's about to come, get it started detoxing so that you aren't behind before you even start.

Drinking as much water as you can get down you in a day will also go a very long way to helping you deal with whatever may happen as you start your abx. The liver, kidneys, bowels, and the Lymph system all need a lot of water to stay flushed of toxins. We should do all we can to get at least 64 ounces of water a day down us!

And, as everyone else is saying, start off slow, maybe with only 1/3 the dose the first few days. This will allow your body to detox those toxins that the abx will get started flowing without being completely overwhelmed right at the start.

The last thing I would like to say - you are going after healing, so don't be afraid!! Healing from something like this will never be easy, but think of all the ways you can celebrate once you have healed!!! smilewinkgrin
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

Hope65
Regular Member


Date Joined Oct 2008
Total Posts : 59
   Posted 12/24/2012 3:17 PM (GMT -7)   
Okay WarriorMom and Shadow - We can do it!! Thank you Traveler, JustMe and Deejavu for the great suggestions!

Heathersdad
Veteran Member


Date Joined Nov 2012
Total Posts : 842
   Posted 12/24/2012 4:45 PM (GMT -7)   
WarriorMom,

I think that you have heard some excellent advice here! First of all, you must be proactive in your treatment. If you aren't really happy about the situation, take a little more time, and mull it over in your mind. Take Deejavu's advice and learn about other treatments as well to be sure that this is really what you want to do.

Whatever your treatment approach will be, I would heed Traveler's advice. I would start to detox, and slowly increase the intensity of the detox regimen. Doing this will help to alleviate any treatment that you elect to do. My opinion is that detoxing is the very first thing that a chronically ill person should do. Then continue it throughout and after your treatment.

I know that this illness has beat you down emotionally and psychologically over the long haul. However, I would suggest that you thoroughly enjoy the holiday season with your family. If you adopt the mindset that you are a victim, then it will be self-fulfilling and defeating. You are in command with regard to what you will do. Why does the thought of the taking of those pills have so much power over you! The worse that can happen is that you decide that taking ABX is not for you. You are then at liberty to consider another treatment approach. You are not a prisoner. You are free! Enjoy the holidays!!!

Don

Julie61012
Regular Member


Date Joined Dec 2012
Total Posts : 33
   Posted 12/24/2012 6:24 PM (GMT -7)   
I can relate to all of this :) started antibiotics last week - and weird herx symptoms today. I got sick in June on my honeymoon - and was bed ridden with fatigue until September. Last week I found out I tested positive. I've come to a place of acceptance over the last few days with the help and information on this board. My birthday is next Saturday - my LLMd doc appt is on Thursday. I went and bought a natural hair brush today for detox - not the holiday presented I wanted :) but at least I know what caused the craziness of the last 6 months - and I'm grateful for that. I'm stopping the abx until I see the doc - and most likely until the new year. I'm also grateful to know I'm not the only one who is scared of taking this journey. All the best. Julie

WarriorMom
Regular Member


Date Joined Sep 2012
Total Posts : 82
   Posted 12/26/2012 10:37 PM (GMT -7)   
I appreciate all the responses and great advice from everyone. I have been detoxing over the past several months, as well as building up my immune system with supplements. I also take a remedy to support my adrenals and just started thyroid meds....I know this is helping me to heal. Now it's time to attack the Lyme. I do plan to start slow.

Now I will continue to enjoy the holiday season with my family and embrace the pills :) Within a few days it's time to start them.

Hope, Shadow and Julie - - I wish you all the best as you begin your treatment as well. Here's to beating Lyme!!
Jeremiah 29:11 For I know the plans I have for you, declares the LORD, plans for welfare and not for evil, to give you a future and a hope.
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