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LiveLife30
New Member


Date Joined Nov 2012
Total Posts : 5
   Posted 2/13/2013 9:51 PM (GMT -6)   
Was recently diagnosed as having developed RSD secondary to lyme disease. I am really not doing well right now. Has anyone seen or heard of someone with both RSD and lyme?  Does anyone know someone who achieved remission from the RSD? Is a cure possible for RSD? Im seeing a LLMD finally and will be treating the lyme aggressively, but really need some hope in terms of RSD. It feels like a life sentence.
 
Thanks!
 
 

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 12558
   Posted 2/14/2013 8:06 PM (GMT -6)   
"RSD is an older term used to describe one form of Complex Regional Pain Syndrome (CRPS). Both RSD and CRPS are nerve disorders characterized by chronic severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling and extreme sensitivity to touch."

If this is what you are talking about, Lyme causes something very similar and could be misdiagnosed as RSD.

I've never been diagnosed with RSD so I can't say forsure I've had it, but I've had what is described here -although I don't know of any bone changes other than osteopenia - and have healed quite a bit, although I do have more healing to do. I've used a tincture called Avena Sativa (wild oats collected in the "milky" stage) which actually helps to heal nerves, and treats all kinds of nerve issues.

When I first started detoxing, I couldn't hardly stand the feel of my clothes (which I didn't hardly wear) against my skin because it was so painful. Even the sheets on my bed hurt me. It took a while but I was able to desensitize my skin and now I don't have any issues with it.
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 3772
   Posted 2/15/2013 8:32 PM (GMT -6)   
Yes, I had both. Well, I should say, HAVE both... But the RSD is currently in remission...and the Lyme/Bartonella are definitely NOT in remission...LOL!

So I was diagnosed with RSD in 1999, but it actually started in 1997. 2 years later, a lot of pain and a very aggressive physical therapy program got me into remission. I did not know about Lyme then.

Was finally diagnosed with Lyme in 2007. Then I found out Bartonella+Lyme can cause RSD in some people...so I think this is why I had the RSD problem.

My RSD is in remission, and it stays that way unless I get too ill and can't do any physical activity. Then I start getting the crushing sensation in my foot again...but it goes away quickly when I start exercising again.

So yes, there is hope for remission and I believe RSD can be cured if it is caused by Lyme/coinfections and the infections are treated by an experienced LLMD/LLND.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Flagyl, Domperidone, Claritin, Andrographis & other herbs, homeopathy, supplements, etc.
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