Olfactory Hallucinations

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Anduncan
Regular Member


Date Joined Dec 2012
Total Posts : 83
   Posted 3/27/2013 9:59 PM (GMT -6)   
Does anyone ever experience this? It's fairly new for me but I've had it a few times. Something smells bad but its not something that's real. I'm wondering if it's from the Lyme or another problem could be causing it.

Anduncan
Regular Member


Date Joined Dec 2012
Total Posts : 83
   Posted 3/28/2013 12:13 AM (GMT -6)   
Well I certainly hope it goes away with treatment for me as well. It's not the end of the world but it's very unpleasant. I just started treatment a few weeks ago but due to problems with my pancreas I've had to put it off for a while.
Fibromyalgia, Chronic Fatigue Syndrome, Chronic Daily Headache, Irritable Bowel Syndrome, GERD, Non-Celiac Gluten Sensitivity, Interstitial Cystitis, Migraines, Epilepsy, Generalized Anxiety Disorder

Traveler
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Date Joined May 2007
Total Posts : 25078
   Posted 3/28/2013 5:23 PM (GMT -6)   
Many people have Olfactory hallucinations that have these infections. Quite disturbing too! Some end up with multiple chemical sensitivities until they heal from these infections, but most seem to just notice that they smell things that aren't there or are just overwhelmed by others perfumes/aftershaves and such.

Although I still have a touch of this, most of it has gone away for me with good treatment.
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

MarieLS
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Date Joined Dec 2012
Total Posts : 2690
   Posted 3/29/2013 5:43 AM (GMT -6)   

I've been sniffing around my house for 2 days now, in all the corners, trying to determine where that smell of alcoholic drinks (that typical smell after you had a party, the smell of spilled alcohol) comes from... I haven't found anything that can cause it... I had it in my car this morning - so I think it must be me just imagining it.
 
I also smell cat pee...

and lately I experienced a recurring touch of vomit fragrance too... shocked


Traveler
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Date Joined May 2007
Total Posts : 25078
   Posted 3/29/2013 10:18 AM (GMT -6)   
Ooh! Aren't you the 'lucky' one, Marie!! eyes

Cat urine, gasoline, rotten food, and that vomit fragrance all followed me when I was at my worst! Aren't we just so special??? LOL!!!
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

Heathersdad
Veteran Member


Date Joined Nov 2012
Total Posts : 1081
   Posted 3/29/2013 6:30 PM (GMT -6)   
You poor people sure devise a lot of symptoms don't you? I can't believe what you go through!

Lyme and coinfections is definitely not on the list of diseases that I want to get!

Don
We are older parents and Heather is our only child. She became so sick and debilitated that we thought that she was going to die, and everything looked so hopeless and bleak. However, God answered our prayers, and used the healing hands of Dr. J. at the Hansa Center to more than restore the health of our precious daughter. I have a moral obligation to help others that are likewise suffering!

Hughy
New Member


Date Joined Nov 2014
Total Posts : 4
   Posted 11/3/2014 3:23 PM (GMT -6)   
I was diagnosed with BB Lyme a couple of years ago and I've been getting olfactory hallucinations on and off for about 11 months now. The smells change from a chemical like odor to something rotting ( i don't know what) to a few other very unusual odors that don't have any comparison in this world. If any other Lymers are getting similar symptoms please share them in a reply. I have to be fairly sure it's a real Lyme symptom before I seek more treatment because my Doctor is in another state 5 hours away. confused

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 25078
   Posted 11/3/2014 6:08 PM (GMT -6)   
Hi Hughy!
Welcome to our community!!

Olfactory hallucinations are very much a part of Lyme for some! I've had it and it's disturbing, even though I know that it's part of Lyme for me. I've smelled all kinds of things, so there's no real pattern as far as I can tell.

Do you have any other symptoms of Lyme? We have a very detailed list of Lyme symptoms in our "New to Lyme? Start here!" thread that sits at the top of the forum and it's packed with a lot of other really great information.

Many here must travel quite a bit of distance to see their LLMD. Back in 2007 when I was seeing one, I too had to drive 5 hours each way to see my LLMD. It's quite the trek when you are this ill! It usually took a couple of weeks for me to recover from the trip!

There's a possibility that we might know of a LLMD closer if you are interested - just let us know.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms -Herb only treatment for Babesia ended 12/12 - no active symptoms
Healed from tick-borne infections, now healing from the damage they left behind.
www.healingwell.com/community/default.aspx?f=30&m=2977364

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014

teragram
Veteran Member


Date Joined May 2013
Total Posts : 4035
   Posted 11/3/2014 6:12 PM (GMT -6)   
Are you sure it's not a ghost? Just kidding!!!!

I have auditory hallucinations, though there's usually a source, like the fridge, that sounds like another sound, like police sirens, and there has never been a police siren around here.

They'd have a hard time driving fast on this road!

When I catch myself, I remember that it's the fridge, the fan, or whatever.

Margaret
HELLO!! :) :)

Margaret, 53, Lyme, relapsing remitting c. diff., complete thyroidectomy, remote breast cancer, Interstitial Cystitis, Babs, Bart, Fibromylagia, Immuneglobulin Deficiency, depression, asthma and allergies, migraines, myoclonous and remote seizures, orthostatic hypotension and dysautonomia

Medication, herbs, vitamins, probiotics.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 25078
   Posted 11/4/2014 3:09 PM (GMT -6)   
Hughy was talking about phantom smells, not sounds, Margaret! LOL! But I get those once in a while too - but mine are generally a bit more creepy sounding.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms -Herb only treatment for Babesia ended 12/12 - no active symptoms
Healed from tick-borne infections, now healing from the damage they left behind.
www.healingwell.com/community/default.aspx?f=30&m=2977364

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014

mauihawaii
Regular Member


Date Joined Aug 2014
Total Posts : 347
   Posted 11/4/2014 3:32 PM (GMT -6)   
Ah! Another symptom I didn't know was a symptom until now! I've been rooting around all the corners of my bedroom and closet for 3 months now looking for rotting meat--eeeeewwwww! I was sure a rat must've died in the walls or something, even though we have no pests in this new building.
And now I realize that the smell showed up when the Lyme was at its worst.

Recently, I smell neighbors cooking barbecue mid-morning, hahaha. The best is the brownies I smell baking all times of day and night. :-)

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 25078
   Posted 11/4/2014 3:53 PM (GMT -6)   
OH no!!! Not brownies!! shocked I'd have to go find some brownies if I smelled them all the time!!! If I couldn't find someone else making brownies, I'd have to break down and make some myself!! devil LOL!

But that's a whole lot better than the rotting meat!!! I always smell what I always think of as cat pee, which in reality is the ammonia that I put off when I'm not detoxing very well. Hopefully Hubby is telling me the truth that no one else can smell that coming off of me!!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms -Herb only treatment for Babesia ended 12/12 - no active symptoms
Healed from tick-borne infections, now healing from the damage they left behind.
www.healingwell.com/community/default.aspx?f=30&m=2977364

Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
Back in treatment for new Lyme case 8/2014

Hughy
New Member


Date Joined Nov 2014
Total Posts : 4
   Posted 11/6/2014 8:47 PM (GMT -6)   
I've had a lot of other symptoms over the last seven years. Brain fog, nasty knee problems ( 2 repair surgeries and one replacement), fatigue, sharp pricking sensation in my eyes, slight headache that rarely ever goes away, memory loss, cognitive problems, trouble sleeping, stomach issues due to the antibiotics and so on and so on. In short, the phantom smells are the strangest of all my Lyme symptoms. Last year (November 2013) I had just installed a coal burning stove in my home. Then those weird chemical odors appeared and I feared that I may have installed the coal stove incorrectly. A bad coal stove installation (not properly vented/drafting) can be fatal. I drove my wife and son crazy for a couple of months by continually asking them if they smelled "that" and "don't you smell that." I would hover near the coal stove and inhale like crazy to try and find a leak. (Yes, I do have CO and smoke detectors throughout my home). Then I looked up olfactory hallucinations on a reputable medical web site and discovered that they can occur from intense infections and /or neurological issues. Anyways, I've grown used to the phantom odors with one exception, the "something rotten" smell. I'ts especially irritating if it occurs when I'm eating, yuck. Lastly, thank you all for the very useful replies. As of now I'm convinced it's a Lyme symptom.

See Ya smilewinkgrin

Hughy
New Member


Date Joined Nov 2014
Total Posts : 4
   Posted 12/8/2015 7:30 PM (GMT -6)   
I've had late stage Lyme for several years and the olfactory hallucinations seems to be one of those symptoms that keeps hanging on. Sometimes it smells like nothing I've ever smelled before, sometimes it a rotting odor, sometimes it a chemical like odor. It accompanies other symptoms like brain fog, headaches, knee problems and fatigue. When it rears it ugly head I go in for more treatments and it subsides.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 757
   Posted 12/8/2015 8:56 PM (GMT -6)   
Last month I had a watermelon smell stuck in my nose. Never occurred to me it could be a symptom. I am glad it was not the rotten smell!
Major Symptoms 4/15, Igenex Testing 8/15
IFA Positive, IGG 31+++, 39 IND, 41++, 58++ / IGM 31++, 39 IND, 41+, 58+ 66+
Positive 31kDa Epitope Test IGG & IGM
MTHFR a1298c heterozygous / HLA 15-6-51
Antibiotics 8/15-10/15. LDI (Low Dose Immunotherapy) 10/15 to present
Chelating using Andy Cutler protocol for heavy metals (Lead, Alum, Copper, Cadmium, Uranium)

finisului17
Regular Member


Date Joined Nov 2015
Total Posts : 176
   Posted 12/9/2015 11:34 AM (GMT -6)   
Hello, for me EVERYTHING smells different:me, home, detergent, coffee, shampoo, food, etc. Everything is unfamiliar somehow. And when I was în my so called remission everything went back to normal. I want it back! I will get it back! Also some good news :pulse went down from 92 to 68, and for a week Pots seems to be getting better. Thank you Traveler, Gkamom and Ihl. Hugs.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 2638
   Posted 12/9/2015 12:13 PM (GMT -6)   
One of my first symptoms was weird smells. The scariest was I would smell smoke. Not a good smell to smell in a forest. Then it was chemicals and I could swear that someone had a meth lab near us. Once I started Buhners the phantom smells went away. I love it when a symptom goes away. It has been gone now for about 3 months.

Georgia Hunter
Veteran Member


Date Joined May 2012
Total Posts : 1337
   Posted 12/9/2015 12:31 PM (GMT -6)   
MarieLS said...
I've been sniffing around my house for 2 days now, in all the corners, trying to determine where that smell of alcoholic drinks (that typical smell after you had a party, the smell of spilled alcohol) comes from... I haven't found anything that can cause it... I had it in my car this morning - so I think it must be me just imagining it.

I also smell cat pee...

and lately I experienced a recurring touch of vomit fragrance too... [img]/community/emoticons/shocked.gif[/img]


It sounds like multiple issues, possibly fungal with excessive aldehyde formation.

The cat urine can be excessive ammonia formation and in general, I associate olfactory issues with a deficiency of intracellular magnesium (sometimes calcium) and it's affect on NMDA receptors.

ahcoleman328
New Member


Date Joined Sep 2015
Total Posts : 19
   Posted 12/15/2015 11:16 AM (GMT -6)   
I used to smell smoke all the time and when it first started happening, I would wake up during the night and be in a panic that my house was on fire. My husband and I would run all over the house looking for smoke, but it was a hallucination for me. It has gotten better with treatment, but I find it happens every so often, especially close to my cycle. At least you know you are not crazy and certainly not alone!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 25078
   Posted 12/15/2015 2:14 PM (GMT -6)   
Lyme disease and hallucinations of different types:

www.mentalhealthandillness.com/Articles/LymeDiseaseAndCognitiveImpairments.htm
by Robert Bransfield, M.D.


www.angelfire.com/biz/romarkaraoke/lymeart.html
By Brian Fallon M.D., M.P.H., and Jenifer A. Nields, M.D.


www.medscape.com/viewarticle/459205 - musical hallucinations as well
Raphael B. Stricker, MD, Edward E. Winger, MD
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

Garden Peace
Forum Moderator


Date Joined Sep 2012
Total Posts : 4155
   Posted 12/15/2015 5:48 PM (GMT -6)   
I also smelled smoke and we have forest land too. Fortunately, I don't have that any more.
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