Shin pain - shin bone sensitive to touch

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Delmar
Veteran Member


Date Joined Apr 2014
Total Posts : 522
   Posted 8/22/2014 10:46 AM (GMT -6)   
Those of you who have shin pain... Is the bone ever sensitive to touch?

I've had the pain off and on but just today started massaging my leg and noticed that the bone, just below the knee is actually quite sore when I touch it. Should I be concerned or assume its bugs playing games?

Anyone?

AML94
Regular Member


Date Joined Jul 2014
Total Posts : 323
   Posted 8/22/2014 10:49 AM (GMT -6)   
Definitely! I forget and lay one leg over the other. Ouch!! It's the entire front of my shins. My ribs are the same way.
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Delmar
Veteran Member


Date Joined Apr 2014
Total Posts : 522
   Posted 8/22/2014 11:15 AM (GMT -6)   
Thanks AML, so you've felt around and it is actually the bone itself that hurts to touch?

Kind of scared me this morning!
Symptoms began October 2013
15 doctors from Feb. - April 2014
Began treatment with LLMD & tested Igenex + 4/2014

Zithro 600 mg x2/daily, Ceftin 500 mg x2/daily, IV/oral glutathione & PC, multiV, magnesium, calcium/D, probiotic, vit c, YL essential oils (thieves, lemon, panaway, oregano, Lyme Bullets, rain drops x1/wk, inner d), L-lysine, milk thistle, cats claw, red root, detoxing and exercise

AML94
Regular Member


Date Joined Jul 2014
Total Posts : 323
   Posted 8/22/2014 11:24 AM (GMT -6)   
Oh yes! But interestingly, it's gone away! I was on rifabutin for four weeks, but I had to stop antibiotics on Aug 4th due to pancreatitis and liver disease. Right now I'm only on flagyl, because early on when I go so sick my LLMD was suspicious of c-diff, and the ER didn't test for it. Now, I don't think I had it, but I've continued the flagyl. And I feel the best I have in months! I just checked my ribs. They still hurt to the touch, but not as bad as before.

Hopefully I can restart treatment soon. I'm feeling so much better. We're just waiting to see if my lab work gets better.
IgM
18 kDa +
31 kDa+
34 kDa IDN
39 kDa +
41 kDa ++
58 kDa +

IgG
39 kDa IND

Delmar
Veteran Member


Date Joined Apr 2014
Total Posts : 522
   Posted 8/22/2014 11:34 AM (GMT -6)   
Oh man, sorry to hear about that, but I'm glad you're having some relief now!! I hope things continue to improve.
Thanks so much for the response :)
Symptoms began October 2013
15 doctors from Feb. - April 2014
Began treatment with LLMD & tested Igenex + 4/2014

Zithro 600 mg x2/daily, Ceftin 500 mg x2/daily, IV/oral glutathione & PC, multiV, magnesium, calcium/D, probiotic, vit c, YL essential oils (thieves, lemon, panaway, oregano, Lyme Bullets, rain drops x1/wk, inner d), L-lysine, milk thistle, cats claw, red root, detoxing and exercise

Delmar
Veteran Member


Date Joined Apr 2014
Total Posts : 522
   Posted 8/22/2014 1:25 PM (GMT -6)   
So is this issue likely due to bone/marrow inflammation from Bart?
Symptoms began October 2013
15 doctors from Feb. - April 2014
Began treatment with LLMD & tested Igenex + 4/2014

Zithro 600 mg x2/daily, Ceftin 500 mg x2/daily, IV/oral glutathione & PC, multiV, magnesium, calcium/D, probiotic, vit c, YL essential oils (thieves, lemon, panaway, oregano, Lyme Bullets, rain drops x1/wk, inner d), L-lysine, milk thistle, cats claw, red root, detoxing and exercise

AML94
Regular Member


Date Joined Jul 2014
Total Posts : 323
   Posted 8/22/2014 1:36 PM (GMT -6)   
My LLMD said so. I haven't seen my test results yet. We had a delay in Bart testing due to a sample problem. But either way, I'm almost positive I have it.
IgM
18 kDa +
31 kDa+
34 kDa IDN
39 kDa +
41 kDa ++
58 kDa +

IgG
39 kDa IND

Delmar
Veteran Member


Date Joined Apr 2014
Total Posts : 522
   Posted 8/22/2014 1:41 PM (GMT -6)   
Yeah, I was negative for Bart but my LLMD is going to treat me for it. I think the Bart symptoms are my worst at this point.
Symptoms began October 2013
15 doctors from Feb. - April 2014
Began treatment with LLMD & tested Igenex + 4/2014

Zithro 600 mg x2/daily, Ceftin 500 mg x2/daily, IV/oral glutathione & PC, multiV, magnesium, calcium/D, probiotic, vit c, YL essential oils (thieves, lemon, panaway, oregano, Lyme Bullets, rain drops x1/wk, inner d), L-lysine, milk thistle, cats claw, red root, detoxing and exercise

orchid_rain
Veteran Member


Date Joined Apr 2014
Total Posts : 579
   Posted 8/23/2014 1:33 AM (GMT -6)   
Hi Delmar, I was going to ask you have you been diagnosed with bart and then I read the rest of posts and see you mentioned it!

My test was neg for bart also but bart testing is really inaccurate. There are SO many strains of that as well that the tests just cover all...or maybe your antibodies did not develop to the bacteria so the test could not pick up.

When my llmd was performing a physical test on me...he was running his fingers up my shin bones in a pressing manner. My shin bones are sore mostly all the time, but as he was doing it, there were like 3 places I was like "OWW". Apparently this is a big indicator for bart.

Do you have any crazy anxiety? Any swollen lymph nodes (front/back neck, armpit, or chest area)? Sore or burning feet/heel pain? Streaked rashes? Rib pain? Any nodules/bumps along bone extremities (along fingers, toes, shins, forearms etc)?

Its hard because the symptoms over-lap with lyme and other co's sometimes but the ones above have been from personal experience and they are pretty specific enough to point to a bart infection (I have all but not the streaked rash-*knock on wood!)


If it hurts really really bad, I would possibly be concerned if I were you. Otherwise, you got it....its proly the bugs playing games{as usual-unfortunately}


Gosh... its like "Pick a symptom, any symptom!" ...where will it hurt next :-/


xx's-Courtney

orchid_rain
Veteran Member


Date Joined Apr 2014
Total Posts : 579
   Posted 8/23/2014 1:35 AM (GMT -6)   
Oops meant to say *tests just DONT cover all strains

Delmar
Veteran Member


Date Joined Apr 2014
Total Posts : 522
   Posted 8/23/2014 8:32 AM (GMT -6)   
Thanks orchid, I have almost all of the symptoms you mentioned.

My anxiety is much better than it was in the beginning, but certainly not gone, I have the little bumps along my shins but that's the only place. I also have streaked rashes - come and go on my left arm and left side of my back (what is with my left side!? Everything is worse on the left side of my body!). My lymph nodes swell up (some have remained fairly swollen) in my neck an above my collar bone, and had one under my left armpit (can't feel that one at the moment though), foot pain - yes!, and lastly rib pain... Hadn't had it, that I remember, until a few days ago... It lasted a couple days in a row and, wow! Was that uncomfortable. Not sure they were sore to touch, but they just ached - made me feel so toxic.

The shin pain is uncomfortable but not unbearable... I can touch it but it's just tender (like when you press on a bruise) and again only on my left leg. I pressed on it so much yesterday, I now have a bruise. Ha!
Is that what yours feels like? Like pressing on a bruise?

I wish my doc would treat me for the Bart now, but she says, she treats it for approximately 3 months towards the end of treatment....

Thanks for the response! It helps to have people to "talk" to about this stuff... Eases my anxieties.
I hope you're feeling good today! Hugs!

bluebyyou
Forum Moderator


Date Joined Nov 2006
Total Posts : 1952
   Posted 8/23/2014 5:51 PM (GMT -6)   
Oh yes, that has happened to me for a long time. I definitely think it's bartonella. Rifampin really hit the bartonella hard.
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do, you have to keep moving forward." -Martin Luther King

"Be kind, be brave, be well."

Lyme Disease Forum Moderator
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