Very COLD Feet/Hands....Advice or Remedy PLZ

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orchid_rain
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Date Joined Apr 2014
Total Posts : 579
   Posted 2/10/2015 5:48 PM (GMT -6)   
Hey guys, so I have a new symptom that in the last few years I havent experienced with lyme and its kinda worrying me to be honest. My hands and feet (esp. my feet!) are SOOO COLD. They are also going numb on/off. Gosh just when one thing subsides....buh buh but wait...here comes ANOTHER! *Sigh

Normally I have found some good methods to all this madness/remedies, but I dont know what to do for this. I put on lots of socks and put my feet in front of a space heater but they are still cold.


Can anyone tell me if they have experienced this and what it was likely due to?

Also, do you know any remedy for it?



Thanks in advance-Courtney

Chapelle
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Date Joined Feb 2014
Total Posts : 2598
   Posted 2/10/2015 5:50 PM (GMT -6)   
awe, so sorry - I had this happen to me when I was really sick. The only thing that helped was literally putting a heating pad on the cold spot (I only had it in one place at a time). It is all nerve related. Wish I had more advice!! Let me think in the meantime......are you taking anything to heal the nerves??
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014. Clinical Self Diagnosis (lyme test was negative) in Feb 2014.....Battled lyme and bartonella for over 7 months. Finished abx treatment in Sept. So far so good !!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26428
   Posted 2/10/2015 5:55 PM (GMT -6)   
Courtney - do you have bartonella along with the lyme?

The reason I ask...is my hands are cold, too..and I've never had this (prior to lyme).
But, the reason I'm thinking maybe bart could be causing this is because it affects the circulatory system. On occasion I have "venous pooling" ( my LLND's words) showing up on the tops of my feet - which I think could be from bart.

I just try to keep my hands warm and exercise.
I don't know if you're feeling strong enough to do exercise.
Symptoms started Sept, 2013 (maybe sooner?)
Buhner's protocol May 15/14 to July24/14
Igenex positive July 3, 2014; Doxy: July 4-Aug.24/14
Zithro July26-Aug.24/14
Amox 1000mg x3 + Probencid started Aug. 29/14; added biaxin 500X2 Sept. 26/14
Disc. amox and added Ceftin Nov. 20th
Probiotics, Gaba, milk thistle, VitC, B12,D, Cal/Mag, extra mag, Ashwaganda, Curcumin, back on Buhner (end Sept)

bbana
Regular Member


Date Joined Jan 2015
Total Posts : 81
   Posted 2/10/2015 6:31 PM (GMT -6)   
This is one of my mom's symptoms. One of the things that is really helping is the Epsom salts foot baths with cayenne pepper and mustard. It's one of her methods of detox, but incidentally it is also helping with the ankle and foot swelling and the coldness. I believe that the cayenne and mustard helps vasodilate the vessels so that they come closer to the surface. It helps with detox exchange and helps to keep the footsies at a "normal temperature" for her. I hope that helps.
daughter of mom with late-neuro Lyme (ALS type sx)
Neuro symptoms began 3/2014. Preceded by 2 significant respiratory infections and gastroenteriris within 2 months of neuro symptoms.
Igenex IgG positive
Current cocktail: Cat's claw, Banderol (tried oral doxy - was intolerant)
Detox: liposomal glutathione, curcumin, milk thistle, reservatrol, foot baths
Other stuff: Deanna protocol, lunasi

Utahgal
Veteran Member


Date Joined Sep 2014
Total Posts : 1242
   Posted 2/10/2015 7:33 PM (GMT -6)   
Cold hands and feet is a HUGE thyroid issue. You may need thyroid hormone.

Do you have: hair loss, weight gain, brain fog, low body temp, irregular periods, depression, trouble sleeping??
43 yrs old, symptoms for 5 yrs.
(Anxiety/panic, weakness, fatigue, cognitive dysfunction, insomnia, hair loss)
Recent IGenex test: 8/14
IGM: 18+, 23-25 IND, 31+, 39 IND, 41+, 83-93 IND
IGG: 31 IND, 39 IND, 41++
Treatment: 10/1/14: 200 mgs minocycline, 2 tablets malarone
10/24: 200 doxy, 1000 flagyl
12/1: 200 mino, 300 rifampin, 1000 tindamax

Revive
Veteran Member


Date Joined Dec 2013
Total Posts : 1293
   Posted 2/10/2015 10:22 PM (GMT -6)   
Me and hubby both but especially him and we both take thyroid meds. We now have heated mattress pads. I liked it better living in FLORIDA, I never had a lot of the sx I have now. Think the cold north causes some sx.
Took me 15 yrs to get diagnosed. back on anx after a 31/2 month break. Rifampin 600 mg, zithromax 1000mg pulsed, tindamax 2000 mg 3 days a month. Also lactoferrin and xylitol for a week. Feeling much better than a year ago.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3704
   Posted 2/10/2015 11:20 PM (GMT -6)   
I have low body temp and can feel it. But its MUtCH worse when my thyroid is more hypO.

I just upped my thyroid med and I feel obviously warmer. Dont need gloves on a frozen steering wheel as much as last month when I was hypo.

lymedisease1
Regular Member


Date Joined Jan 2015
Total Posts : 132
   Posted 2/11/2015 1:18 AM (GMT -6)   
orchid_rain said...
Hey guys, so I have a new symptom that in the last few years I havent experienced with lyme and its kinda worrying me to be honest. My hands and feet (esp. my feet!) are SOOO COLD. They are also going numb on/off. Gosh just when one thing subsides....buh buh but wait...here comes ANOTHER! *Sigh

Normally I have found some good methods to all this madness/remedies, but I dont know what to do for this. I put on lots of socks and put my feet in front of a space heater but they are still cold.


Can anyone tell me if they have experienced this and what it was likely due to?

Also, do you know any remedy for it?



Thanks in advance-Courtney

sounds like raynauds phenomenon, are your hands or feet turning white

orchid_rain
Veteran Member


Date Joined Apr 2014
Total Posts : 579
   Posted 2/11/2015 10:35 AM (GMT -6)   
Okay thanks a bunch guys :) Its comforting to know quite a few others have experienced this as well. As long as I dont lose complete loss of feeling in my feet & hands I guess I just have to kinda deal until I get to the finish line. I was thinking def nerves too since my whole nervous system just seems to be hit extra hard by lyme considering all the numbness, burning, etc. Ive dealt with. I take the diff B vitamins and ALA (maybe some others for nerves too but cant remember specifically).

If it is to do with thyroid, I think more 'hypo' is possibly correct. Ive been losing weight more than anything lately and I always hear people with thyroid problems gain weight and find it hard to lose.

Another possibility, Im just gonna throw this out there...is I think I possibly exposed my babesia. I think I might be at that "layer of the onion" now. Im on an abx vacation at moment but I had recently did a lyme targeted treatment and since then I had alot of symptoms subside but some other weird ones have popped up. I.E. bouts of sweating, chest tightness, bouts of my heart beating fast/heart palps, tinnitus, head pressure. I actually tested positive for babesia through labcorp so I know I have it. Regarding bart, we're on the fence the whether I have that or not!

All the symptoms I originally thought were bart (burning, rib pain,) could very well be lyme itself. Alot of people say the rib pain is bart but rib pain is actually more specific of lyme from diff symptom lists. Also, the burning can be lyme! For awhile I was attibuting it all to bart! I dont have a positive bart test but I know that dont mean anything. This lyme & co mess is so confusing! This reminds me though, I have a good symptom list saved that another member had posted months ago that I love that is from a reputable source. I am going to re-post it for any members that havent seen it....

Also, I hope its okay to post a link to info I read from another forum that I stumbled upon on the internet (if not, Mods plz let me know and I will edit my post). But this guy is a success story. He is member name "Squeezy". I had stumbled on his posts while researching 'fast heartbeat lyme' and he was experiencing alot of stuff that I am. He was treated by Dr H in NY (I would love to go see him!) and once he was treated for his babesia he states "he is feeling the best shape of his life". I clicked on his actual profile and read all his last posts but here are a couple in case anyone wants to check out.

Success story ;) !! (scroll down to member Squeezy) .....
www.mdjunction.com/forums/lyme-disease-support-forums/general-support/680238-rebabesia-treatment/limitstart/10#2811926

This is how my heart has been beating-like his was doing!
www.mdjunction.com/forums/lyme-disease-support-forums/general-support/574365-fast-heartbeat


Sooo I guess its a toss up between my nerves, hypo-thyroid, or the infections themselves causing.

All in all, hot showers & that heating pad sound like a plan for my freezing cold feet!

Thanks again everybody :-) :-)


-Courtney

Post Edited (orchid_rain) : 2/11/2015 9:40:00 AM (GMT-7)


Daisy's Mom
Regular Member


Date Joined Jun 2014
Total Posts : 103
   Posted 2/11/2015 6:25 PM (GMT -6)   
I have this too! It is by far the freakiest of my symptoms. I put my hands on my husband's neck to cool him off when we were picking blackberries this summer. I second the heated mattress pad. We have one and it is amazing. I also double up on wool socks. My hands and feet get so cold that they ache so I can totally relate. I've also been treated for bart but it hasn't stopped this symptom.

opugirl
Forum Moderator


Date Joined Nov 2012
Total Posts : 3576
   Posted 2/11/2015 8:49 PM (GMT -6)   
I used to have the popsicle feet also. For me, fresh grated ginger in a tea (about half a tablespoons worth) and japanese knotweed did the trick. Look up what to do for poor circulation. I only occasionally get this issue since I've been healed from lyme, maybe about once a month and it usually is when I've been sitting for long periods.

Hope you get it resolved soon, it can be worse in the winter!
Forum Moderator

July 2007 - Deer tick bite w/ physician confirmed EM Rash - given 10 days of Doxy
October 2012 - My world gets rocked January 2013 - My world turns upside down
March 2013 - Igenex +, start treatment with LLMD, LLND, and herbalist
August 2013- Finished all abx, continuing with herbs and homeopathy, Feeling good!
July 2014- Off all treatment since Jan 2014, just taking vitamins

lymedisease1
Regular Member


Date Joined Jan 2015
Total Posts : 132
   Posted 2/11/2015 10:05 PM (GMT -6)   
happyjo said...
Raynaud's is another LABEL given when they don't know crap about what is causing it. So easy for mainstream to treat the symptoms & not get at the root of what is causing these problems.
from my understanding, isnt raynauds phenomenon, when your blood vessels constrict and starts to leave part of your body unnaturally. causing it to turn white and cold. The cause is unknown.

orchid_rain
Veteran Member


Date Joined Apr 2014
Total Posts : 579
   Posted 2/11/2015 10:44 PM (GMT -6)   
Thx Daisysmom & Opugirl....at least I know im not alone then! Also wow.. "Popsicle Feet" sums it up pretty good Opugirl!! I almost bought ginger at the grocery store last night...now I wish I wouldve! I have thick socks but I dont think I have any wool...maybe its time to invest in some ;-)

-Courtney
Sx a week following pulling a tick off Summer '10. Oval rash. Initially doubted lyme since wasnt bullseye rash. Received short intervals of various abx 4 trtmnt. Naive to lyme, I gave Inf.D. doc benefit of the doubt & received 2 months of trtmnt (2nd mnth picc was inserted for IV meds). Time elapsed, tolerated sx. Things got bad 3/14-started treatment with LLMD 4/14(Lyme/Babs/Bart) Still treating~

silly sheep
Veteran Member


Date Joined Oct 2014
Total Posts : 778
   Posted 2/12/2015 4:44 AM (GMT -6)   
Good to read this info, thanks guys. I don't have a problem with my feet, only my hands. My hands can be like icepops when the rest of me is sweating, lol.

And I am constantly getting a kind of 'rash' that appears like broken blood vessels on the backs of them. This doesn't happen on my feet!!

First step, I am going to try sticking my hands in my foot baths from now on :)

teragram
Veteran Member


Date Joined May 2013
Total Posts : 4039
   Posted 2/13/2015 3:58 PM (GMT -6)   
It's Raynaud's and probably the other stuff too. FOR hands: Mittens are much warmer than gloves. They are a must. Get some disposable hand warmers. FOR feet: use a hot water bottle in bed; better and healthier than a heating bad. Slip hand warmers in socks. Feet are harder than hands. Cold and painful hands are the only problem for me.
HELLO!! :) :)

Margaret, 53, Lyme, relapsing remitting c. diff., complete thyroidectomy, remote breast cancer, Interstitial Cystitis, Babs, Bart, Fibromylagia, Immuneglobulin Deficiency, depression, asthma and allergies, migraines, myoclonous and remote seizures, orthostatic hypotension and dysautonomia

Medication, herbs, vitamins, probiotics.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3704
   Posted 2/13/2015 4:13 PM (GMT -6)   
Many people with "Raynaud's" are hypothyroid.

T3 hormone improves this.

SLML
Regular Member


Date Joined Jul 2012
Total Posts : 293
   Posted 2/13/2015 5:13 PM (GMT -6)   
Thick blood (hypercoagulation) can be the cause of this; especially with Babesia.

I had a major increase in cold hands and feet, head pressure, chest pain, palpatations and neck pain when I began treatment for Babesia (Duncani) with a-bab and Malarone.

I take nattokinase to thin the blood, and I take gingko biloba to increase circulation to the brain and reduce head pressure. I find the head pressure and neck pain may actually be due to the thickening of the blood and the inability for the blood to circulate to the head.

I rarely get this now although I am treating Babesia still. I was still struggling with the head pressure but I really upped my artemesinin and did some research and added back in the gingko biloba that Stephen Buhner recommends for hypoperfusion and I felt better (no head pressure) after taking the gingko.

lastly, not sure if I read correct but just an fyi that hypo (meaning underactive) thyroid would lead to weight gain whereas hyper (overactive) thyroid would lead to weight loss.

Best!

:-)

Post Edited (SLML) : 2/13/2015 4:24:48 PM (GMT-7)


orchid_rain
Veteran Member


Date Joined Apr 2014
Total Posts : 579
   Posted 2/14/2015 12:44 AM (GMT -6)   
Regarding the Raynauds, I am not familiar with so I just looked it up and as it was starting to freak me out reading the symptoms that are similar... it did end up saying that the affected areas of the skin turn white and thankfully mine do not turn white! (or sheesh, they dont yet anyway!)

@Margaret: Ooohwa thx..good idea...I forgot about those handwarmer thingys!

@SLML: Thanks for your insight. Hmm interesting...what your saying def sounds very familiar so that may just be it. Its funny because I recently treated with lyme only abx and was feeling better but yet had like a whole array of diff symptoms and I swear its the babesia coming out! I didnt know that hypercoagulation is caused by babesia either. Also, its mighty funny that when I eat some raw garlic (acts as a blood thinner) it reduces the head pressure! I always thought it was helping with candida possibly causing the head pressure being its an anit-fungal but it could be from the thick blood not circulating well from babesia. Wow, got the hamster wheel turning a lil bit now ;-)

I used to take Ginko some years ago but if it helps with cirulation and the dreadful head pressure I think I will purchase some here soon. Also, yes that is correct about the thyroid..it was backwards!

-Courtney

tbohl
Regular Member


Date Joined Nov 2014
Total Posts : 414
   Posted 2/14/2015 9:32 AM (GMT -6)   
I have this problem, sounds like thyroid, my doc just started me on kelp

orchid_rain
Veteran Member


Date Joined Apr 2014
Total Posts : 579
   Posted 2/15/2015 2:55 AM (GMT -6)   
Hey there Mike, they say most with lyme do have the adrenal fatigue to some extent (diff stages they refer to it I believe) and I while I dont take anything specific for it I have been working on lowering stress which I read in the Bryan Rosner book he says plays a major part of healing the adrenals ultimately. Its just weird that this cold feet/hands thing didnt start happening until recently. I keep a journal of symptoms and meds that I take and I have been seeing some patterns form...

All in all, Im dealing with it the best I can as with everything lyme! :-/ I hope you been doing okay! Also btw, so kind of you to send that snow down here the other day...I told ya we didnt need it! hehe lol



Tbohl-I am not familiar with Kelp. I am going to look it up following this post though. TYVM :)


-Courtney
Sx a week following pulling a tick off Summer '10. Oval rash. Initially doubted lyme since wasnt bullseye rash. Received short intervals of various abx 4 trtmnt. Naive to lyme, I gave Inf.D. doc benefit of the doubt & received 2 months of trtmnt (2nd mnth picc was inserted for IV meds). Time elapsed, tolerated sx. Things got bad 3/14-started treatment with LLMD 4/14(Lyme/Babs/Bart) Still treating~
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