Facial Twitching

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

JSlag
Regular Member


Date Joined Aug 2015
Total Posts : 99
   Posted 1/8/2016 7:21 PM (GMT -6)   
Ugh- I am freaking out. A few weeks ago I noticed my facial muscles were feeling funny and then just over the last couple of days they've begun twitching. It almost feels like there's something under my skin. It's driving me crazy and making me super depressed. I'm embarrassed to even leave the house. I was hoping it was a reaction to a medication I had started, but I've now been off it a week and no improvement. Is this a typical lyme symptom. Does it ever go away???

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2598
   Posted 1/8/2016 7:56 PM (GMT -6)   
awe, so sorry you are experiencing this!! I remember the first night I started getting twitches, they came on like lightening. I couldn't sleep bc they were so strong - and all over my body, except for my face. But it is one and the same - it will go away with treatment. But you said you stopped taking a medication, what was it? Bc sometimes lyme symptoms get worse or new ones come on when you are treating with antibiotics (herx reactions). Please fill us in on what you were taking, and are you currently taking anything now? I would strongly suggest you start taking supplements which will help heal your nerves.

lymedriven
Regular Member


Date Joined Sep 2014
Total Posts : 397
   Posted 1/8/2016 8:02 PM (GMT -6)   
One of my first symptoms was pretty much not being able to use facial muscles properly...barely could smile...more like frowning.

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2598
   Posted 1/8/2016 8:06 PM (GMT -6)   
it is the lyme affecting the nerves and then as a result the nerves affecting the muscles. definitely a very disturbing symptom.

Jslag - just bear my situation in mind, when I was at my worst, I would be typing on the computer, and then after a few minutes, I couldn't type anymore bc the muscles in my arms just stopped working. Now after treating lyme, I am back to doing everything I could do before I got sick, including lifting weights!! The symptoms are reversible, so as long as lyme is treated properly
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014. Clinically diagnosed with Lyme and Bartonella Feb 2014.....Treated with abx & herbs for over 7 months. Finished treatment in Sept 2014. Healed from Lyme!! Read my success story on the forum here - http://www.healingwell.com/community/default.aspx?f=30&m=3509582

ghost93
Regular Member


Date Joined Jan 2016
Total Posts : 183
   Posted 1/8/2016 8:43 PM (GMT -6)   
i am waiting on igenex test but pretty sure i have lyme.My face is weak if i from like my whole face shakes if i frown i can smile just fine,Some times my jaws will twitch so does my cheek,My neck,my thighs,my arm,places in my stomach,I havnt lost the use of any body parts but i have been sitting on the couch n my legs felt non existent but if i touched them i could feel them

JSlag
Regular Member


Date Joined Aug 2015
Total Posts : 99
   Posted 1/8/2016 11:27 PM (GMT -6)   
Thanks, everyone. I had just started the Ivermectin the week before. That was definitely causing me muscle weakness- even just doing my morning stretching my legs would start shaking. That seems to have gone away since I stopped it, but not the facial problems.

I'm just getting so frustrated. It seems like any medication I try I can't handle- with the doxy I was throwing up every singe time, I'm trying Alinia again and I get awful painful urination from it- to the point I've been in tears, so I have to keep stopping, and now this. I feel like a lost cause and everything is just getting worse.
Jul '15 Ignex/CDC Positive
Sick since at least 2011- no tic bite or rash
MTHFR- Homozygous A1298c

Aug '15 Doxy only a week (couldn't handle it)
Oct '15 Alina 4 wks
Dec '15 Biltricide, Ivermectin
Jan '16 Alina, LDN, tons of other supplements

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 1075
   Posted 1/9/2016 5:01 AM (GMT -6)   
chelated magnesium helps a lot with the twitching.

To be honest nobody knows what causes twitching in lyme. it is certainly not just magnesium deficiency. i've heard and read loads of ideas online from both LLMDs , herbalists and patients. No scientific papers that tackle this seriously and specifically for lyme. Most of them talk about many possible lyme related causes:

- dead bacteria release toxins that interfere with nerve conduction (the herx explanation)

- the tail of the bacteria have a similar chemical signature as the myelin sheath of the nerves, thus when the immune system starts to create antibodies for that piece of the bacteria, they also bind to the nerves and then they are attacked by the immune system itself (the autoimmune explanation)

- the bacteria dissolves myelin using a specific enzyme then it feeds on it - this is from Buhner's latest book healing lyme 2nd edition that i am currently reading - the book is absolutely awesome, btw - (the nerve-eating bacteria explanation)

- magnesium gets depleted by the lyme bacteria replication/inflammation process (the magnesium deficiency explanation)

Certainly, supplementing with chelated magnesium does help with any kind of neuronal issue especially if there is some muscular involvement.

It does get better with treatment.

Post Edited (mpost) : 1/9/2016 4:04:11 AM (GMT-7)


Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2598
   Posted 1/9/2016 6:23 AM (GMT -6)   
Very interetsing mpost - I was aware of some of the points you made, but not all -

also, No matter what brand, what form, or how much magnesium I took, nothing ever helped. My twitching really didn't diminish until I was done with treatment. It happens on occasion now. My Dr said that once my nerves heal completely it should not happen anymore.
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014. Clinically diagnosed with Lyme and Bartonella Feb 2014.....Treated with abx & herbs for over 7 months. Finished treatment in Sept 2014. Healed from Lyme!! Read my success story on the forum here - http://www.healingwell.com/community/default.aspx?f=30&m=3509582

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 1/9/2016 9:06 AM (GMT -6)   
Exactly, Mpost. That's why we usually suggest magnesium and increased detoxing - what ever that doesn't help, treatment almost always does. It just takes longer.

I had a lot of facial twitching when I was still treating. Then my eyelid started in and put the rest of my facial twitching to shame!! And yes, it's very annoying, especially when people think you are winking at them.

There are some natural things you can do to help repair the myelin sheath, but since there is no way to know just what it is that is causing this for you, it's best to start off with magnesium supplementation to bowel tolerance, and increased detoxing first, as these are the most common things that need to be done. But, once a person has done those things and it's still happening a lot, Lions mane can be used. This is a mushroom though, not from a real animal (LOL!)

www.ncbi.nlm.nih.gov/pubmed/12675022

www.livestrong.com/article/509385-lions-mane-mushroom-for-nerve-damage/
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

JSlag
Regular Member


Date Joined Aug 2015
Total Posts : 99
   Posted 1/12/2016 2:13 PM (GMT -6)   
Thank you, everyone. I'll be checking all that info out. The twitching is driving me insane and is super embarrassing.
Jul '15 Ignex/CDC Positive
Sick since at least 2011- no tic bite or rash
MTHFR- Homozygous A1298c

Aug '15 Doxy only a week (couldn't handle it)
Oct '15 Alina 4 wks
Dec '15 Biltricide, Ivermectin
Jan '16 Alina, LDN, tons of other supplements

berean
Regular Member


Date Joined Aug 2014
Total Posts : 66
   Posted 1/12/2016 4:05 PM (GMT -6)   
I have the same stuff. It seems to come and go and is really annoying, to the point of being concerning at times. I feel like the magnesium really helps.

I just got a call from my LLMD and was told I have both Lead and Mercury levels at 5-times the normal level. I'm about to create a new post - would love anyone that has insight to weigh in.

JSlag
Regular Member


Date Joined Aug 2015
Total Posts : 99
   Posted 1/13/2016 12:33 PM (GMT -6)   
Sorry you're going through it too, berean. It's so frustrating. :(
Jul '15 Ignex/CDC Positive
Sick since at least 2011- no tic bite or rash
MTHFR- Homozygous A1298c

Aug '15 Doxy only a week (couldn't handle it)
Oct '15 Alina 4 wks
Dec '15 Biltricide, Ivermectin
Jan '16 Alina, LDN, tons of other supplements

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4388
   Posted 1/15/2016 7:08 PM (GMT -6)   
Jslag....have you looked into herbal treatment.? Other modalities. .. Mpost thanks for the explanation seem most plausible buhner is correct ...

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 1/17/2016 11:12 AM (GMT -6)   
JSlag said...
Thank you, everyone. I'll be checking all that info out. The twitching is driving me insane and is super embarrassing.


I used to have those muscle spasms so bad at night that not only did I get to have my side of the bed all to myself without question, but I gave myself black eyes regularly!! smhair That was a bit embarrassing!!

It definitely gets better. I have almost no twitching at all any more - unless I earn it by going out and doing some hard gardening or something. smilewinkgrin
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

st0rch
Regular Member


Date Joined Jun 2015
Total Posts : 63
   Posted 1/18/2016 4:09 PM (GMT -6)   
lymedriven said...
One of my first symptoms was pretty much not being able to use facial muscles properly...barely could smile...more like frowning.


Hey, my face feels stiff, sometimes burns, twitches, and it's really hard to even speak. Was it hard for you to speak and did you notice anything with your tongue?

Moving my face from a full smile to standard position back to a smile is very difficult, like a stiff, numb feeling. Anyone else feel this in lyme?
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, October 24, 2017 5:14 AM (GMT -6)
There are a total of 2,886,484 posts in 316,720 threads.
View Active Threads


Who's Online
This forum has 157814 registered members. Please welcome our newest member, sagsa345454546.
714 Guest(s), 13 Registered Member(s) are currently online.  Details
Crohnie91, KB69, LoudMan, Mr.Scott, PeppermintTea, johnG, Hoagie, getting by, Skypilot56, Tudpock18, Szabo246, straydog, Mister Mike


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer