My healing story

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PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8947
   Posted 9/9/2016 9:52 AM (GMT -6)   
I have been asked to tell my healing story, so here goes. Sorry this will be long and I have tried to break it up for easier reading.

I was bit April 29th, 2015 at a luncheon that was held on a concrete patio by a swimming pool. There was a little dog and a cat running around yard. The property outside of the yard is a forest and if a bear or deer had of walked by it would not have been shocking. So there are many critters in the properties next to the place we were eating.

I volunteered to help with the cleanup of the luncheon, so I gathered up the tablecloths off all of the tables and took them to the laundry room. I had a full load in my arms. I did a few other things and went to my car to go home.

A few hours later I took a shower and noticed a bite mark on my forearm. I have been bitten by spiders before and this was not a spider bite or a mosquito bite. I thought maybe it was a flea bite (having never been bitten by a flea). It did not itch and it was circular, but not a super definite bull’s eye. I knew nothing about lyme or a bull’s eye at this point.

After 3 weeks the mark was still there. I knew that something was very different about this bite. All I did was watch the bite mark intently. I had an antihistamine on hand in case I developed an allergic reaction. Finally it seemed to get lighter and lighter.

June 20th a girlfriend and I had to go buy some things for a fire department function. I complained that my neck hurt, like I had slept wrong. June 23rd I got a weird pain behind my ear. June 30th my knees were hurting. I have osteoarthritis in both knees and have had injections in them many times. Both knees have been scoped and they both are eventually going to be dealt with knee replacements. I went to the orthopedist and had him inject both knees. Steroids. I still knew nothing about lyme.

Meanwhile I now have a horrendous head pain. I never called it a headache because I had had those for years and this was not a headache. It was behind my ear on the right side and it was horrible. I took migraine meds and they did nothing. I took valium and it did nothing. I had hydrocodone and it did nothing. July 1st I went to the chiropractor to see what he could do. Meanwhile other symptoms were popping up one by one.

July 2nd I went to see my Internal Medicine (GP) doctor. I explained my symptoms, full ears, head pain, sore neck, swallowing was different and malaise. He diagnosed me with a sinus infection and gave me a Z-pac to take for 5 days. He also gave me narcotics for the head pain, which he said was a sinus headache……

Those meds did nothing and I complained some more. So July 14th my doctor ordered a brain scan to see if there was a tumor. It was negative. It is a funny thing when you have a brain scan and it says negative. I giggled thinking I had no brain.

I went and researched the internet. On July 23rd I talked my doctor into a lyme test. I got the test through Quest and it was negative. So, this made my doctor suspect something else and he had me go to a neurologist. On July 30th I saw the neurologist. His exact words were, when I asked him if it could be lyme, “you don’t get a headache with lyme.” He ordered 3 MRI’s.

August 18th I got in to see a LLMD. I cancelled the MRI’s. This LLMD started me on Ceftin (because I told him I was a huge outdoor person) and Biaxin was to be started 3 days later if I had no reaction to the Ceftin and I also got a blood test through Igenex.

Sept 10th I went back to the LLMD and my test results were IgM 31+ and 41+, IgG was 41+ and 58+. Silliest question I have ever heard from a doctor came next… He said, “What do you want to do now?” I knew this was not the doctor I should be seeing.

Sept 28th I got in to see another LLMD. I told him I had no change at all with antibiotics and would like an alternative. He started me on Beyond Balance – MC-BB1 and Tox Ease GL, both tinctures. He and his wife had both had lyme and she was unable to take antibiotics, so he went to a quickie school for Beyond Balance and also did a seminar for ILADS. It was fine with me.

Meanwhile, I have been scouring the internet and stumbled upon Buhner. Everywhere I turned it seemed to have healed people. There are more success rates on my table for Buhner, so I decided that Beyond Balance was not going fast enough for me and I am not a patient person. I decided to continue Beyond Balance and add in other herbs.

Oct 1st my heart was giving me some concern. I started Motherwort. I quickly got up to 1 dropper full, 3 times a day. I then added in Cat’s Claw. I had taken this before and knew I had no problems with it. I did capsules, 3 times a day. Then I added in Hawthorn for added help to my heart issues. I quickly went to 1 dropper, 3 times a day. By Nov. 8th I started Japanese Knotweed. I knew it was powerful so I did it a little slower and eventually got up to 2 droppers full, 3 times a day. That was my max for it.

Then I tried to introduce Elethrococcus and my heart went crazy so I stopped it. I tried to introduce Sida Acuta and my heart got flutters and that scared me so I stopped that. By this time I received the 2nd Edition of Buhner’s Healing Lyme. Chapter 8 gave his updated protocol and so I decided to add in his suggestions in the order he gave them. Cytokine remodulation was next. In his book it said combine tinctures, equal parts Red Sage and Skullcap. So being brain foggy that I was I did exactly that. I got a measuring cup and combined the two herbs and then poured the combination into bottles and had my mixture. I started slow and got to 2 droppers, 3 times a day. I later discovered my mistake in combining these two herbs. If I had of been allergic to one, I would have never known which one. Anyway, from there on out I did not mix them just because it was inconvenient.

Next I went on to Collagen protection. Biosil was recommended by the forum, so I invested in that. I also bought Great Lakes gelatin powder. I added Astragalus at this time also. I had taken it before so I just went with capsules and I did 2 caps, 3 times a day. And bone broth became a staple at our home. I eventually quit the Biosil and the Great Lakes. I found Protein Essentials hydrolyzed collagen to be better for me.

Next was Immune remodulation. I was already taking Cat’s Claw and a great mushroom complex - Host Defense® MyCommunity, a complex of 17 different mushrooms. I had no problem with sleeping, so I did not take Aswagangha. I also was leery of licorice (glycyrrhiza) so I did not do that.

My lymph nodes were still swollen so at this time I added in Red Root. My max for Red Root was 2 droppers, 3 times a day.

Then I added in Cryptolepis. My max for Crypto was 1 dropper, 3 times a day. Next I added in Houttuynia and my max for it was 1 dropper, 3 times a day. I then added in Gou Teng and I also got up to 1 dropper, 3 times a day. And then finally the big one, Andrographis… I could only get to 1 dropper, 3 times a day.

I did this all until March 12, 2016 and I got sick to my stomach. My body said I had enough. So I quit the Andro, Houtt and Gou Teng on Mar 14th. All symptoms had been gone for a week, so I was just doing the herbs to get to the 2 months without symptoms before I quit them all.

I slowly tapered off on all the herbs and by June 27th I quit everything.

It was a long journey for me, not compared to so many others. I sometimes feel guilty for healing as quickly as I did. I have been told that it was because I jumped on it so fast and that I was a huge detoxer way before lyme. I also had great eating habits. I still feel uncomfortable saying I am well. Now I am feeling fine, but cautious. I know lyme is still in me. I can feel it. I don’t know if that makes sense or not, but I know it is there.

I had a very stressful situation come up in my life recently and I saw my lyme trying to come back. That was my warning. I cannot do stress or anything in excess. I have to go with moderation for everything for the rest of my life. And, this is not necessarily a bad thing.

Now, I am slowly getting my physical body back in shape. Well, in as good as shape as it can be. LOL

If you take anything from my story, I would like it to be. Don’t copy me! Listen to your body and do it your way. That was what I knew to do so very well, listen to my body. I knew when I had enough or not enough. We are all so different and lyme goes for our weak parts. Help those weak parts get stronger. Help out your body to be able to fight the lyme. There isn’t a pill, tincture or antibiotic that will kill it, IMO. Your body has to figure out how to be stronger than lyme and that is the goal.

By the way, I never herxed. Unless you call that getting sick in March a herx - if that was a herx – gross! I never put my body through the stress of a herx. I could tell when I had gone too far and I pulled back before I stressed out my body with a herx. I have never thought the idea of herxing was a good sign.

Now remember, I am not a doctor. This is just my story. I am nobody special with any better information, education or insight into this lyme stuff than you.

I wish every one of you that waded through the reading of this long journey of mine good health. Oh, and did I mention laughter? Imperative!!! Laugh at those stupid symptoms, laugh at everything.

Denikeef
Veteran Member


Date Joined Aug 2015
Total Posts : 1092
   Posted 9/9/2016 11:51 AM (GMT -6)   
Thank you for sharing this PeteZa, I know it will be an encouragement to many of us!
Lyme Moderator

Tested Igenix positive for Lyme March 2016.
Lyme symptoms for possibly 40+ years but severe in the last 5 after traumas to the system.
Currently treating with Buhner's Protocol for Lyme and Bart.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/9/2016 11:52 AM (GMT -6)   
Thank you for sharing this, PeteZa!! We will definitely add it to our success stories!

And of course, CONGRATULATIONS!!!! turn
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Krimpet 🍔
Veteran Member


Date Joined Apr 2016
Total Posts : 3274
   Posted 9/9/2016 12:11 PM (GMT -6)   
Wonderful story!
Lyme Moderator
September words of encouragement:
"Life is 10 percent what happens
and 90 percent how you react"

Huddie
Veteran Member


Date Joined Nov 2014
Total Posts : 3126
   Posted 9/9/2016 12:29 PM (GMT -6)   
Peteza,

THANK YOU - so inspiring. Just what I needed to hear/read today.

Congratulations!

Suzee
Regular Member


Date Joined Jan 2016
Total Posts : 296
   Posted 9/9/2016 12:31 PM (GMT -6)   
Thanks PeteZa, so lovely to read and gives so much hope to read a healing story.

Keep well and thank you so much for all your help and advice on here.

3HumpedCamel
Veteran Member


Date Joined Aug 2016
Total Posts : 565
   Posted 9/9/2016 1:40 PM (GMT -6)   
awesome.

blueberrymuffin
Veteran Member


Date Joined Mar 2016
Total Posts : 1467
   Posted 9/9/2016 4:00 PM (GMT -6)   
PeteZa <3

so glad to read your healing story

sam12
Regular Member


Date Joined Aug 2016
Total Posts : 405
   Posted 9/9/2016 4:03 PM (GMT -6)   
Gives me hope, thank you!

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 997
   Posted 9/9/2016 4:26 PM (GMT -6)   
Thanks pete! So, 100% symptom free?

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2038
   Posted 9/9/2016 4:46 PM (GMT -6)   
Happy for you!

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8947
   Posted 9/9/2016 4:52 PM (GMT -6)   
Psilociraptor said...
Thanks pete! So, 100% symptom free?


Yes with a BUT!!! When I said I recently had a stressful event happen, I got a twinge of the lyme head pain and I was so scared. I thought, "oh no here I go again."

I immediately started meditation and doubled my water intake. I got calm and settled everything in my head. Actually I had to disassociate myself from the stress maker.

I took 2 Advil and went to bed and the next morning I was fine...... whew

But like I said, it was a warning to me. I cannot let those "emergencies" get to me or I will get sick again. I just know it now.

Thank you every one for your kind words. I just can't wait for each one of you to write your healing story. That is why I am still here.

And, you never know what tiny small thing will be just the right thing for someone else.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26443
   Posted 9/9/2016 5:29 PM (GMT -6)   
Yay....congratulations!!!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

mijos81
Regular Member


Date Joined Nov 2015
Total Posts : 55
   Posted 9/9/2016 7:22 PM (GMT -6)   
Wonderful healing story Peteza, very encouraging! Thanks so much for sharing it.

caramba
Veteran Member


Date Joined Aug 2016
Total Posts : 582
   Posted 9/9/2016 8:16 PM (GMT -6)   
Thanks PeteZa, your healing gives us hope! I know I'll come back to your story and read it again and again. I'm starting my Buhner and also have a hard time going slow. Thanks for sharing it!

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8947
   Posted 9/9/2016 8:29 PM (GMT -6)   
Caramba patience was the hardest thing. I wanted to paint the word on the living room wall so I would see it and read it each day.
Lyme Moderator

CD3764
Forum Moderator


Date Joined Sep 2014
Total Posts : 4508
   Posted 9/10/2016 7:24 AM (GMT -6)   
PeteZa said...
I wanted to paint the word on the living room wall so I would see it and read it each day.


I remember reading your earlier posts with some form of this sentence ;)

And, I am SO happy you decided to share your inspirational story, PeteZa! Thanks!

May good health stay with you for the rest of your life!
Jul '14 tick bite - inadequate abx from PCP
Sept '14 met LLMD - clinical Lyme dx due to Bells Palsy/started abx (CDC positive IgM)
Feb '15 weaned off abx and started full Cowden protocol along w/LDN - 90% healed
Aug '15 started transition to Buhner's Lyme, Babesia & Bartonella protocols
Nov '15 stopped LDN - 98% healed
Aug '16 started modified Buhner Lyme/Bart protocol - 99% healed!

LymeVeteran
New Member


Date Joined Feb 2014
Total Posts : 14
   Posted 9/10/2016 8:03 PM (GMT -6)   
TYFS!
Great message, listen to your body and find your own path to remission.
There is hope!

Aerose91
Regular Member


Date Joined Feb 2016
Total Posts : 198
   Posted 9/15/2016 6:28 PM (GMT -6)   
Thank you for posting your story, it's great resource.

Please, never feel guilty for healing fast and being recovered, thats what we all wish. Just make the most out of your life!

Just Mike
Regular Member


Date Joined Aug 2016
Total Posts : 368
   Posted 9/30/2016 2:50 PM (GMT -6)   
Well as I begin my month #2 and just finally got to full strength on my Buhner Protocol myself, this is a story I surly doubt I will be able to match but this gives me reason to continue and try. I find the genuine not only compassion here but honest CARING and contributing so much by so MANY to be inspirational. In my last 10 years I found myself joining many support groups, all for pain or recovery from one major surgery after another. But Lyme? THIS is the mother of all things UGLY in my life. I have been wounded in war, shot, tortured as a prisoner, survived in jungles and situations most could never imagine in America while they sit back watching Dancing With The Stars....

But I have never seen the likes of Lyme. Thank you so MUCH for this story for far more than just details, but for all that I hear between the lines of your story. Thank you for all you do and have already done. For your helping ME as I struggle. This is a true place of healing, hope and recovery. I may never heal even a little, but if I do or I don't, I never met a bunch of people I felt so bonded to in my life, more than right here. For better or worse, you and others have made this a true family. I suppose I will turn out to be you CRAZY Uncle in no time unfortunately tongue
My REAL Name Is Just Mike :-)
-We can't solve problems by using the same kind of thinking we used when we created them. Albert Einstein

-PLEASE: Use Your Computer To Fight Cancer & Hunger:
http://www.worldcommunitygrid.org/team/viewTeamInfo.do?teamId=RXZG0FT7S1

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8947
   Posted 9/30/2016 3:16 PM (GMT -6)   
Mike, I can always use another uncle but we are closer in age as brother and sister. LOL!

And as always, thank you so very much for your service. Deeply appreciated.

Just Mike
Regular Member


Date Joined Aug 2016
Total Posts : 368
   Posted 9/30/2016 3:40 PM (GMT -6)   
Ah shucks Sis, Tweren't nothin'
My REAL Name Is Just Mike :-)
-We can't solve problems by using the same kind of thinking we used when we created them. Albert Einstein

-PLEASE: Use Your Computer To Fight Cancer & Hunger:
http://www.worldcommunitygrid.org/team/viewTeamInfo.do?teamId=RXZG0FT7S1

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8947
   Posted 9/30/2016 3:42 PM (GMT -6)   
LOL!!

ResilienceR
Regular Member


Date Joined Nov 2016
Total Posts : 42
   Posted 12/8/2016 11:17 AM (GMT -6)   
Congrats! Looking forward for the day when I too can say that I'm healed from this dreadful disease lol.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8947
   Posted 12/8/2016 11:20 AM (GMT -6)   
I look forward to reading everyone's story!!

Now, I am helping my husband treat his lyme disease. Poor hubby, who has never been sick. It is hard for him. I tell him jokes to keep him on his toes and smiling.
My healing story --
www.healingwell.com/community/default.aspx?f=30&m=3698803
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