Let the CDC know how you feel!!!!

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mm57553
Regular Member


Date Joined Jan 2017
Total Posts : 443
   Posted 3/17/2017 11:51 AM (GMT -6)   
For the first time in forever, the CDC has actually mentioned Lyme on their Facebook page. If you are on Facebook, please, please comment on their post. Inundate them with your stories. We need to be heard, and a public forum like Facebook is a great way. Here's a link to their post:

https://www.facebook.com/CDC/posts/10154642761916026:0?hc_location=ufi

Munkra
Regular Member


Date Joined Jan 2017
Total Posts : 77
   Posted 3/17/2017 12:16 PM (GMT -6)   
I find it hard to comment while incensed with rage.

Especially reading comments like this : ''I had Rocky Mountain Spotted Fever and wish the CDC could do more for me, but really I'm just here to watch the chronic Lyme truthers embarrass themselves in the comments.''
Diagnosed with Lyme disease in January 2017 - tested positive on Elispot borrelia b. Full Antigen 2 SI - tested positive on Elispot borrelia b. OSP-MIX 6 SI

CD57 + NK Cells (absolute) 54/UL - T Cells CD3+ (%) 82.05%

20 years of misdiagnosed and mistreated symptoms by western doctors using inaccurate and/or useless CDC guidelines.

Buhner's core herbal protocol - started 21.02.17

ChickNorris
Veteran Member


Date Joined Jan 2012
Total Posts : 567
   Posted 3/17/2017 1:03 PM (GMT -6)   
Wow, I don't have Facebook so I can't comment but reading all those comments... are they just trolls or do people really think we are certifiably nuts?
Igenex 9/2016 31-I, 39-I, 41-++, 58-+ Igenex 2/2017 31-I, 41-++, 58-+, 66-+
CD57: 28
EBV, CMV, HHV-6, Mycoplasma Pneumoniae, Bartonella, Babesia
Hashimoto's, endometriosis, alopecia areata, migraines galore


11/22/16 started Doxy 100mg/2x a day, Samento and Banderol 10 drops/2x a day
1/10/17 stopped Doxy, abx break
2/10/17 started cryptoleptis
3/13/17 started Zithromax 500mg, Rifampin 600mg

Munkra
Regular Member


Date Joined Jan 2017
Total Posts : 77
   Posted 3/17/2017 1:09 PM (GMT -6)   
^^^^^^^^^^^^^ A lot of paid shills and disinfo agents you can count on that.
Diagnosed with Lyme disease in January 2017 - tested positive on Elispot borrelia b. Full Antigen 2 SI - tested positive on Elispot borrelia b. OSP-MIX 6 SI

CD57 + NK Cells (absolute) 54/UL - T Cells CD3+ (%) 82.05%

20 years of misdiagnosed and mistreated symptoms by western doctors using inaccurate and/or useless CDC guidelines.

Buhner's core herbal protocol - started 21.02.17

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 894
   Posted 3/17/2017 2:55 PM (GMT -6)   
I hate people (not you guys/gals)... but really... I went on there and got so enraged at some of the comments. Not just ignorance, but blatant disrespect for suffering patients. I already wasted all morning in an online argument with someone who wanted to criticize simply to criticize. And there went my afternoon too... I don't understand it. How are people so complacent. So unwilling to accept that the answers to peoples problems are available right here right now. Do they just want to believe that they can defer all responsibility in life to specialists? What the mainstream says has to be true otherwise they have to take the responsibility to learn something? Help me understand what is wrong with people!! UGH

mistercamp
Regular Member


Date Joined Nov 2016
Total Posts : 29
   Posted 3/17/2017 3:27 PM (GMT -6)   
2 things i would love to ask (but won't, can't handle the stress and not like I would get an answer) someone at the cdc:

1. If Lyme can be cured across the board with 28 days abx, why would there need to be a vaccine created, and why are they working on another one

2. If Lyme can be cured across the board with 28 days abx, why would it be researched as a biological weapon (plum island, UTSA bioterrorism lab)

madisongrrl
Regular Member


Date Joined Oct 2016
Total Posts : 214
   Posted 3/17/2017 4:30 PM (GMT -6)   
Some of those comments are hard to read. Some real jerks on that thread making fun of the sick.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3354
   Posted 3/17/2017 6:45 PM (GMT -6)   
Its amazing how some people really truly believe everything a government agency tells them - and are TOO LAZY to find the truth themselves. They are the "perfect" citizens in the governments eyes. So easily fooled.

I commented on a mountain bike forum about tick illness awareness in the springtime a few years ago. Some people were like "hay thanks for the info" and a couple guys were like "you chronic lyme people are a bunch of fakes''......ect. They had their "lyme is no big deal" theory from the local news mention both sides of the "debate".

I asked them questions and pointed out health facts that were completely beyond their little tiny brains- basically buried them on that forum. Idiots. The average adult has zero knowledge about their immune system. Zero.

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3695
   Posted 3/17/2017 6:59 PM (GMT -6)   
Astroman, if given a chance, those kinds of people will tell you that that's why they pay their doctors for, to be their doctor.

It terrifies them too much to even consider that their dr., may be inadequate. I can imagine the feeling. I have changed from a person that always got that sense of relief and well being going to a Dr. or the e.r. when I thought something terrible was happening to me, to either keeping my mouth shut over all but the most basic things...like a sore throat....because they can't help with anything more serious.

My neighbor behind me 'fessed up about a year ago that he thought he had Lyme....and his symptoms seemed like it. But he told me the other day that it's "osteoarthritis", and the rest unknown, because he's "had a whole bunch of Lyme tests that were all negative".
Okay. What can you do with these people? They aren't going to listen.
Moderator, Lyme Forum

Fibro diagnosed '85 Lyme (false?)positive '92,Osteoporosis, COPD, Hypertension, degen. disc disease, RMSF pos. Spring 2015, CHF, osteoarthritis. No LLMD. Used Doxy, Zithro and Flagyl since June '15, mono each time. Useless. Current treatment JK, Milk Thistle, kudzu for head fullness/pressure, avena sativa for nerves. Bragg's ACV, lemon water, Herbal de-tox tea.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3354
   Posted 3/17/2017 7:20 PM (GMT -6)   
julymorning said...
Astroman, if given a chance, those kinds of people will tell you that that's why they pay their doctors for, to be their doctor.

It terrifies them too much to even consider that their dr., may be inadequate. .


- yep. I even had some family/relatives like that, I am slowly changing their minds for the good.

To put Drs on a pedestal, just because they are Drs is mind blowing. To do this if they are smart is another thing (but I still wont do that).

Once upon a time their parents said "we want you to be a Dr"....or they woke as teen and thought: "what can I do to assure I can live an upscale lifestyle"?

Answer: be a MD.......So they did just that (as long as they were good at remembering what they read and could stay awake for 20 hrs)- that's what is need in studying to be an MD.

Lymepilot
Regular Member


Date Joined Aug 2016
Total Posts : 193
   Posted 3/17/2017 8:58 PM (GMT -6)   
Oh just stop astroman. I'm sorry your life is so goddarn tough. All doctors are ******s except LLMD's, got it. Grin.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 7729
   Posted 3/17/2017 9:02 PM (GMT -6)   
I read a few and had to click out.....

It was not making for a stress free environment.

I don't have the time for stress. Too many fun things to do.
____________
You will be the same person in five years as you are today except for the people you meet and the books you read. ~Charlie Tremendous Jones~

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3695
   Posted 3/17/2017 9:07 PM (GMT -6)   
Lymepilot, we really want to try not to attack each other in here, we're all trying to row our boats the same direction.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3354
   Posted 3/17/2017 9:46 PM (GMT -6)   
Lymepilot said...
Oh just stop astroman. I'm sorry your life is so goddarn tough. All doctors are ******s except LLMD's, got it. Grin.


What the ????

Dont know how all that came about. Odd sense of humor, or........just just a troll with nothing better to say..

Didnt know my life is tough, apparently also better than yours.

Ha Ha!! Gotta love the web.

turn

gfields
Veteran Member


Date Joined Oct 2015
Total Posts : 669
   Posted 3/17/2017 11:10 PM (GMT -6)   
I just gave them a piece of my mind.

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 894
   Posted 3/18/2017 6:10 AM (GMT -6)   
I gave them many pieces of my mind and am trying so hard to not go back this morning at look at their responses. I know I'll get sucked in and lose another day to that nonsense. What really blew my mind was the amount of "pro science" people referencing quackwatch, skepticalraptor, sciencebasedmedicine and the likes after criticizing patients for learning off of blogs

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35157
   Posted 3/18/2017 8:26 AM (GMT -6)   
You can take a horse to water, but you can't make them drink - or take a man knowledge, but you can't make them think. Those that want to learn will, those that won't will only throw back as much nonsense that they have heard as they can.

It's not worth upsetting yourself if it's truly upsetting, so be careful. I do get into those 'arguments' from time to time, but it's only with those that I see are truly searching for answers - the others just want to argue and don't care what resources they use or how they can be discredited.

So, do watch out for your own health when doing these things!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Serfr
Regular Member


Date Joined Jan 2014
Total Posts : 87
   Posted 3/18/2017 9:35 AM (GMT -6)   
I remember i went to an ID doctor once and told him of the conflict between the cdc and ilads.. He said he was aware of it but followed the cdc.

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 894
   Posted 3/18/2017 9:42 AM (GMT -6)   
Well i gave in and went rabid on a few posters this morning. Oh well LOL. It's only... 12am...

cr3ativegirl
Veteran Member


Date Joined Oct 2015
Total Posts : 562
   Posted 3/18/2017 9:50 AM (GMT -6)   
I lasted about a second! HA. You gotta wonder what is missing in people's lives that they find fulfillment in that negative discourse.
Oct 2015 Dx Lyme, Candida, Mold, Toxic Metals
Nov 2015 Dx Bart, Bacillus, Histo, Aspergillus, Mucor, Trichophyton, and Mycotoxin. Doxy & DesBios remedies
Jan 2016 Minocycline pulse/ Nystatin, Flucanizole
Feb 2016 LDI for Mold, Lyme, EBV, Added Tinidozole, Flucanizole
Sept 2016 Switched to Buhner herbs. @ 90%
January 2017 Plaquenil for Babesia @95%
Feb 2017 Dx Mucor/Mycoplasma in Nervous system.

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3695
   Posted 3/18/2017 10:37 AM (GMT -6)   
I gave it a glance last night, feeling strong enough not to let it rattle me...and felt the whole thing of getting into it would be a waste of time.

Again, talking to 'outsiders' about Lyme is like trying to change their religion. As Traveler says, they have to want to know, be unsatisfied with where they are and thirsty for answers.

Wish I knew some of your fb names that did post, so I can read your comments on there.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35157
   Posted 3/18/2017 10:53 AM (GMT -6)   
Friendly warning time ~

While I do agree with Julymorning about wondering what your FB names are - PLEASE do NOT post them on here!! We don't want any personal information posted that can be connected with your life. This is a public forum and anyone can come here to read - and then connect your posts here with your FB account.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

madisongrrl
Regular Member


Date Joined Oct 2016
Total Posts : 214
   Posted 3/18/2017 11:13 AM (GMT -6)   
I posted on that site about persistence studies and also talked about how a top tier neurologist saw life-altering neurological problems with patients after the Lyme vaccine. I was very polite and cordial. I can no longer find my comments and believe they might have been deleted.

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3695
   Posted 3/18/2017 11:57 AM (GMT -6)   
Oh, absolutely Traveler. I am so naive.
Moderator, Lyme Forum

Fibro diagnosed '85 Lyme (false?)positive '92,Osteoporosis, COPD, Hypertension, degen. disc disease, RMSF pos. Spring 2015, CHF, osteoarthritis. No LLMD. Used Doxy, Zithro and Flagyl since June '15, mono each time. Useless. Current treatment JK, Milk Thistle, kudzu for head fullness/pressure, avena sativa for nerves. Bragg's ACV, lemon water, Herbal de-tox tea.

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 894
   Posted 3/18/2017 12:03 PM (GMT -6)   
Hehe madison i know who you are!!! Not really i can't remember your name... I commented on that one too and can't find it. At the bottom it says 40 of 60 comments but won't let me load the others. So i don't know if they deleted it or if it just got lost in a computer glitch. But yeah... some serious ignorance. "No prominent neurologist believes in chronic lyme". Must be exactly why Norman Latov who is not a Lyme physician or has any vested interest in anything but peripheral nerve disorders refers to it as chronic Lyme in his paper on OspA induced CIDP... There's nothing i hate worse than crusaders of science who don't actually read science but rather support the status quo as if these organizations are gods. The irony is too much to handle
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