Research to share

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Ariahuma
New Member


Date Joined Mar 2017
Total Posts : 11
   Posted 3/18/2017 1:02 PM (GMT -6)   
I already shared my research couple months ago, but as I updated them I’m posting the new updated version. So here it is!

After 4 years of intensive researches on Lyme disease, co-infections, related conditions, alternative treatments, and, being part of around 30 forums and groups, I have been able to gather, to compile enough knowledge to create a big document that I decided to share with you in order to inform people about what is and what is available as treatments out there. I know it is impossible to know everything but, I believe, in all humility, that I learned about the most common and efficient available treatments out there right now for Lyme disease and co-infections. Ouffff…… It’s been long and it took me a lot of discipline but I did it!

Here is the link to my blog where you can download my research but you need to have Winzip to open the files. If you don’t have it you can download it for free online.

Don’t hesitate if you have any questions. I will be happy to answer to the best of my knowledge.

Enjoy!

http://lymeresearchtoshare.blogspot.ca/2015/12/lyme-and-other-related-research-to-share.html

Post Edited (Ariahuma) : 3/18/2017 1:06:30 PM (GMT-6)


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 32566
   Posted 3/18/2017 1:55 PM (GMT -6)   
I'm downloading the file to check in to it! Thank you for sharing your research!

Do you have Lyme or other vector borne infections yourself? And your profile says that you only created it today, so we do appreciate you sharing your updated research with us!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

ChickenArise
Regular Member


Date Joined Nov 2015
Total Posts : 483
   Posted 3/18/2017 2:13 PM (GMT -6)   
I am downloading it now. Thank you for sharing.
AUG14:Mold Sick FALL16:Clinical Bart/Borellia.
FEB17 Pupils follicles throat glow UV light.
16NOV INTR Lung Pain near resolved
Rx:Xanax,Kratom,Ambien,Biaxin,FLZ 400mg,Augmentin,Tini,Cycle#2Antihelmtics-1MAR:ADD DEC,Stabilized H2O
Clinical Lyme <1Yr.
Focus:Morgellons pre fibrous
Proto:Mod Klinghardt
Tx self:Mold,Lyme,back pain-28yrs

Ariahuma
New Member


Date Joined Mar 2017
Total Posts : 11
   Posted 3/18/2017 2:28 PM (GMT -6)   
Yes i do have lyme and co-infections. Its been 9 years im ill. You're welcome! ;) I will post my research 2-4x/year to make sure a lot of people get them.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 32566
   Posted 3/18/2017 2:32 PM (GMT -6)   
So, if you don't mind my asking, are you a 'professional' researcher, or more of a 'citizen researcher' like many of us have been turned into?

I did run into a bit of trouble trying to download some of the information. It said that there was a problem and it wasn't able to clone some of it???? LOL! I'm not sure what it didn't get, as that was the only information that was given. I thought, oh well, I'll try again - and it started back up again, so I'll see what I get! LOL!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 6814
   Posted 3/18/2017 9:12 PM (GMT -6)   
I am such a scaredy cat. I so dislike downloading. I always fear the potential for a virus.

People pass me articles and even pictures in emails and I wait for days while others download before I will do it. I have had too many nasty bugs on my computer and now I am leery.

Why not put it on a easily accessible blog spot. Oh gosh, like the free blogger????

ChickNorris
Regular Member


Date Joined Jan 2012
Total Posts : 449
   Posted 3/18/2017 9:54 PM (GMT -6)   
I'm with Peteza. No downloading random things from me. I've seen Mr Robot! lol!! I know what nasty bugs can do! Yikes!
Igenex 9/2016 31-I, 39-I, 41-++, 58-+ Igenex 2/2017 31-I, 41-++, 58-+, 66-+
CD57: 28
EBV, CMV, HHV-6, Mycoplasma Pneumoniae, Bartonella, Babesia
Hashimoto's, endometriosis, alopecia areata, migraines galore


11/22/16 started Doxy 100mg/2x a day, Samento and Banderol 10 drops/2x a day
1/10/17 stopped Doxy, abx break
2/10/17 started cryptoleptis
3/13/17 started Zithromax 500mg, Rifampin 600mg

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 32566
   Posted 3/19/2017 8:51 AM (GMT -6)   
While I have the protection on my computer to do those things, it's still too slow to download that research.

Is it possible to get it from another source/site?
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 32566
   Posted 3/19/2017 1:55 PM (GMT -6)   
Okay, well, I do have something to report. My computer may be toast now. I do NOT believe that it is the link from the OP that did it, but the site that I was directed to go to and download their app so I could download a larger file has corrupted my C drive. My computer is now stuck on "scanning and repairing drive (Csmile: 1% complete for the last 2 hours.

Soooo, while I am NOT blaming the OP at all, please do be careful with this!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3123
   Posted 3/19/2017 2:10 PM (GMT -6)   
So many fake download sites out there. The worst one I got a few years ago looked just like a real update. I yanked the power cord from the wall as soon as my hard drive started whipping around- but too late. On re-boot, offline, It was a "ransom virus".

Always scan with some spyware first if you are suspicious - some but not all have this capability.

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 3397
   Posted 3/19/2017 3:48 PM (GMT -6)   
Does ariahuma got anything new or is his download dangersauce ??

Ariahuma
New Member


Date Joined Mar 2017
Total Posts : 11
   Posted 3/19/2017 4:30 PM (GMT -6)   
I am a citizen research if you may call it this way. As its a 408mb collection of files i have to put it in a software where i can share with the public. I ask my mom to download it and it worked just to see if it would work with another computer somewhere else. There are no viruses on my research. I have been sharing it on a lot of Facebook groups and yahoo groups without any problems. A lot of people did download it without problems.

Ariahuma
New Member


Date Joined Mar 2017
Total Posts : 11
   Posted 3/19/2017 6:19 PM (GMT -6)   
Are there people who succeeded in downloading the files? Please let us know!

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 3397
   Posted 3/19/2017 9:17 PM (GMT -6)   
Pardon our sceptisism ...what new info can you present to us ? Abx review ? Your own microscopy with trials of various substances ? Herbs combination other than buhner ?

Ariahuma
New Member


Date Joined Mar 2017
Total Posts : 11
   Posted 3/19/2017 9:35 PM (GMT -6)   
There are a lot more research on alternative treatments than just abx and herbs on the files which is actually my biggest section in it as i more than anything focus on available treatments for lyme and co-infections. It would be too long to name them all. If you download my file you will know what im talking about. Im not forcing anyone to download it. If you don't feel comfortable with this its really up to you. Im only sharing these research to try to help others.

Lynnlee
New Member


Date Joined Mar 2017
Total Posts : 3
   Posted 3/19/2017 9:41 PM (GMT -6)   
Hi..i am just curious..i have had lyme for quite sometime.took a while to finally get a positive result and treated...been on a month of amox while breastfeeding..then had to ween and was on 2 months of doxy..nothing improved..had a spinal tap done..and will be getting co infection testing (out of pocket)..i had a horrible aftermath from the spinal tap..took a week for me to finally get up off my back as i felt like my head was going to explpde to the point where i went back to the ER and was given a choice of blood patch or wait it out..they said it doesnt always work and could make things worse and i refuse to let them touch my spine again..anyways, getting of my question, im wondering and fearful that if my lumbar test came back normal, is there a chance that lyme bacteria at that point can be pushed into the spine when they do the puncture this creating a central nervous system infection afterall? I worry about this and wish i would have thought of it beforehand. Thank you..smile.

Ariahuma
New Member


Date Joined Mar 2017
Total Posts : 11
   Posted 3/19/2017 10:05 PM (GMT -6)   
Hi Lynnlee,

Unfortunately this is what i read from couple people getting worse after getting a spinal tap as it was creating a passage way for the lyme to get into the cns. I'm really sorry to hear you are having a difficult time. Hopefully it will pass soon....

ChickenArise
Regular Member


Date Joined Nov 2015
Total Posts : 483
   Posted 3/19/2017 11:57 PM (GMT -6)   
I downloaded it to my MEGA account as you will need one just to download this.

Then I extracted it all to an external USB using 7-zip. I didnt have any issues but after reading the comments here I scanned all of the files with Microsoft Security Essentials and it came up free of any virus.

I havent had time to view much of it yet as there is a lot of stuff in here, but I look forward to doing so.

Cheers!
AUG14:Mold Sick FALL16:Clinical Bart/Borellia.
FEB17 Pupils follicles throat glow UV light.
16NOV INTR Lung Pain near resolved
Rx:Xanax,Kratom,Ambien,Biaxin,FLZ 400mg,Augmentin,Tini,Cycle#2Antihelmtics-1MAR:ADD DEC,Stabilized H2O
Clinical Lyme <1Yr.
Focus:Morgellons pre fibrous
Proto:Mod Klinghardt
Tx self:Mold,Lyme,back pain-28yrs

Ariahuma
New Member


Date Joined Mar 2017
Total Posts : 11
   Posted 3/20/2017 12:43 AM (GMT -6)   
Thank you ChickenArise! smile My parents have been able to download it without a Mega account...

ChickenArise
Regular Member


Date Joined Nov 2015
Total Posts : 483
   Posted 3/20/2017 10:27 AM (GMT -6)   
Who should we credit if we quote any of the research?
AUG14:Mold Sick FALL16:Clinical Bart/Borellia.
FEB17 Pupils follicles throat glow UV light.
16NOV INTR Lung Pain near resolved
Rx:Xanax,Kratom,Ambien,Biaxin,FLZ 400mg,Augmentin,Tini,Cycle#2Antihelmtics-1MAR:ADD DEC,Stabilized H2O
Clinical Lyme <1Yr.
Focus:Morgellons pre fibrous
Proto:Mod Klinghardt
Tx self:Mold,Lyme,back pain-28yrs

Ariahuma
New Member


Date Joined Mar 2017
Total Posts : 11
   Posted 3/20/2017 10:39 AM (GMT -6)   
As its a compilation of online internet research I did, not personal scientific research (Im not a scientist just a regular person who did online research to try to get better) there's no need to credit anyone. All this information is online, I just compiled it into a file.

Lynnlee
New Member


Date Joined Mar 2017
Total Posts : 3
   Posted 3/20/2017 11:06 AM (GMT -6)   
Ariahuma,

Thank you so much for the fast reply, well aparrantly the lab results came back negative..they are now saying i may have nwver had it which is far from teue..i caught the tick, had the bulls eye..then a year later after a year of testing my systema flares real bad stiff neck fever etc and at that point the weatern blot came out positive 5 bands so i am confused why the doctor would consider me negative. I am exhausted with finding good doctors to take this seriously.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 32566
   Posted 3/20/2017 11:31 AM (GMT -6)   
Lynnlee,
As you suspect, you have had a bulls eye rash, which is highly specific for Lyme disease, so there's no doubt you have had it - and if you haven't had adequate treatments yet, then you do need to get some.


​If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.

​ And, here's another good place to find helpful detoxing routines: ​http://www.tiredoflyme.com/detox-methods.html​

Have you received any recommendations from this forum yet for a LLMD?


For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your location.​

You can start a new thread titled something like "Looking for LLMD in the ​
(insert the nearest larger city & state)

area". Members can email you about the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.

You can email the Tick-Borne Disease Alliance at
​[​​url]​medicalinfo@tbdalliance.org​ for LLMD referrals

You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/


​ ​
And www.LymeDoc.org

You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.ilads.org/lyme/treatment-guideline.php
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)
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