Air Hunger: A New Symptom

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MA10
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Date Joined Oct 2012
Total Posts : 352
   Posted 3/19/2017 5:40 PM (GMT -6)   
I'm new to the whole cant catch your breath thing. I started having small periods of time where I felt like I couldn't catch my breath last week. It's mainly when I'm lying down but some when I am moving around.

But today, just suddenly, this air hunger has intensified. I had a lymphatic massage Friday, and I blame that on stirring things up. But this is totally weird. Any time I move I start gasping for air. The shortness of breath is worse when I move. I've had heart palps all day and rapid heart beat. My chest is tight and there's a burning feeling in the center of my chest. I have some labored breathing when lying still, but much more so when I move from my lying position. And this has been going on for at least 3 hours now.

I drank an electrolyte drink and took 160mg of a beta blocker. Still no relief. Also drank some lemon water and Burbor/Pinnella. Any suggestions? I'm desperate.

Does this sound like a mycoplasma or Babesia die off? Thanks!
Hashimoto's, Lyme, Bartonella, Suspected Babesia, Mycoplasma, CFS, EBV exposure, mold toxicity, adrenal fatigue, heavy metals, bipolar
Currently treating with Nature-Throid, Biocidin LSF, Lamictal, Saphris, UBI/Ozone, Low Dose Naltrexone and kicking butt along the way.

Girlie
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Date Joined May 2014
Total Posts : 22762
   Posted 3/19/2017 5:58 PM (GMT -6)   
Your signature line says "suspected Babesia. The air hunger IS a Babesia symptom.

Are you on anything to treat Babesia currently?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

julymorning
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Date Joined Jul 2015
Total Posts : 3695
   Posted 3/19/2017 6:02 PM (GMT -6)   
Did you have a full body lymphatic massage, or only neck/collar bone/facial nodes?

If it's done right, which you can do yourself, on just the head and neck nodes, you should be sitting upright and if you start and finish above your collar bone, you shouldn't have air hunger from that.

This is a symptom that so many of us share in common and I think it can show up in Bart, Babesia and Lyme.

Try not to breathe to fast, because it's too easy to start hyperventilating which will make it worse and cause your heart beat to increase to keep up with it. Try to breathe slow and deep into your diaphram, and blow out through your mouth slowly but completely, to get any residual carbon dioxide pushed out.

I can't remember the recommendations for dealing with the organism that causes this, but since so many have had it, you should get lots of feedback

Krimpet 🍔
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Date Joined Apr 2016
Total Posts : 3268
   Posted 3/19/2017 6:16 PM (GMT -6)   
Try some oregano oil drops in water or just a pill. It helps with respiratory issues such as this.
Lyme Moderator

Current treatment: Samento, Cumanda, Banderol, Pinella, Burbur, Beyond Balance-tox ease gl, BB-1, EN-MC, lomatium, cats claw, cordyceps, licorice root, Hawthorne, milk thistle, burdock root, oregano oil, gse, adrenal homeopathy, adrenal cortex, EBV homeopathy, past injury homeopathy, host of vitamins, organic foods
________________________________________
"When you get into a tight place and everything goes against you, till it seems as though you could not hang on a minute longer, never give up then, for that is just the place and time that the tide will turn.” ~Harriet Beecher Stowe

BabsBunny
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Date Joined Mar 2017
Total Posts : 191
   Posted 3/19/2017 6:45 PM (GMT -6)   
If you're not already, keep a diary/calendar of your symptoms every day, what you take, when you start and stop taking things. I track my physical and mental feelings. It helped me realize that the big nasty air-hunger panic attack occurred every 14-15 weeks. Turns out the every-few-months is a Babesia thing and really helped with the clinical diagnosis. I have a huge awful night like you're describing, then for about a week my chest feels tight and I always feel like I've just spent the day swimming.

Now, since starting Mepron for Babesia, the air hunger and tight chest is a low-grade constant. I seem to have interrupted its cycle.
geocaching in April 2016. Found a treasure trove of Lyme and Babesia.

MA10
Regular Member


Date Joined Oct 2012
Total Posts : 352
   Posted 3/19/2017 6:47 PM (GMT -6)   
Girlie, I'm not currently treating babs specifically. I'm doing the shotgun approach right now.

Krimpet, I wonder if goldenseal would help too. I have some of it but no oregano right now.

Julymorning, we mainly focused on head and neck but she did do some arms and stomach as well. I can't remember where we ended though. I know we started with the neck, but I was also lying down. So you think it could be from the massage?
Hashimoto's, Lyme, Bartonella, Suspected Babesia, Mycoplasma, CFS, EBV exposure, mold toxicity, adrenal fatigue, heavy metals, bipolar
Currently treating with Nature-Throid, Biocidin LSF, Lamictal, Saphris, UBI/Ozone, Low Dose Naltrexone and kicking butt along the way.

MA10
Regular Member


Date Joined Oct 2012
Total Posts : 352
   Posted 3/19/2017 6:54 PM (GMT -6)   
babsbunny, that's super helpful. Did those nights ever feel like you were having a heart attack? It does feel like anxiety, but on a much grander scale.
Hashimoto's, Lyme, Bartonella, Suspected Babesia, Mycoplasma, CFS, EBV exposure, mold toxicity, adrenal fatigue, heavy metals, bipolar
Currently treating with Nature-Throid, Biocidin LSF, Lamictal, Saphris, UBI/Ozone, Low Dose Naltrexone and kicking butt along the way.

aphysicalwreck
Regular Member


Date Joined Sep 2012
Total Posts : 443
   Posted 3/19/2017 7:07 PM (GMT -6)   
Ma10

I know that air hunger is a big symptom of babesia but did you have a full cardio work up to rule out any heart issues?

Just a suggestion.

julymorning
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Date Joined Jul 2015
Total Posts : 3695
   Posted 3/19/2017 7:09 PM (GMT -6)   
MA10 said...
Girlie, I'm not currently treating babs specifically. I'm doing the shotgun approach right now.

Krimpet, I wonder if goldenseal would help too. I have some of it but no oregano right now.

Julymorning, we mainly focused on head and neck but she did do some arms and stomach as well. I can't remember where we ended though. I know we started with the neck, but I was also lying down. So you think it could be from the massage?


I think Lyme node drainage benefits from the help of gravity. Anything below the waist has to fight against gravity if you're upright though. So in that case prone makes sense.

If you haven't seen the youtube video I frequently post of the head technique, it's pretty cool and a good method to add to one's de-tox regiment. I barely spend 10 minutes at it.

Want me to find it?

BabsBunny
Regular Member


Date Joined Mar 2017
Total Posts : 191
   Posted 3/19/2017 7:15 PM (GMT -6)   
MA10 said...
babsbunny, that's super helpful. Did those nights ever feel like you were having a heart attack? It does feel like anxiety, but on a much grander scale.


I often feel like my heart is too fast, too slow, or skipping beats. Did get an EKG and it was normal.

At first I was terrified. The first time, I was having trouble falling asleep. I very coincidentally and providentially found a tick on my pillow (this was before I had any idea it could be Lyme, but that got the gears turning later). It gave me the heebie jeebies, and then I just started feeling crawly and panicky. I was crying and upset and restless. The next day my head started feeling like it weighed a million pounds, and the back of my skull went numb. My neck and shoulders were stiff and tense, and I had no idea what to do. I swore I was dying.

The next one started with anxiety and panic and restless shaking, twitching, crying, then the air hunger started. Like you just can't breathe. I imagine its what asthma feels like, but never had asthma. I could tell I was breathing fully, but it just doesn't feel like I'm actually getting any oxygen. There's the one bad night, then for a few days after I feel unsettled and have mild breathing attacks. I swore I was dying.

Once, I felt really anxious, and tried to sit myself down and do some mindful breathing... but I couldn't focus my thoughts. So I thought of something I could count in rhythm... okay, my heartbeat. But then I couldn't feel my pulse regularly and thought my heart was skipping beats. Then I recalled all the horror stories of Lyme and death and freaked out. I swore I was dying.

The other time I just woke up in the middle of the night feeling kind of sick and dizzy. Then I started panicking. Then I couldn't breathe. My heart was racing. I was shaking and rocking myself and crying, and had these stupid songs stuck in my head that wouldn't go away. I was finally falling asleep, when I would jerk awake with a big gasp. I swore I was dying.

So I looked back on my millions of pages of notes and calendars, and realized this happened on schedule. Expected my next one at Easter, but since starting Mepron, they have been more frequent, but less intense - or maybe I am just used to it now, and I know what it is, so I don't freak out anymore. I know I'm not dying smile

And I happen to have the most "gasping" when I'm doing the dishes. I don't know why. Maybe the stinky food and hot steamy water make me not want to breathe too deeply? So I keep gasping like I've forgotten to breathe. My doctor actually said, "well then.. tell your husband you're not supposed to do dishes anymore." smilewinkgrin
geocaching in April 2016. Found a treasure trove of Lyme and Babesia.

Post Edited (BabsBunny) : 3/19/2017 7:18:04 PM (GMT-6)


BabsBunny
Regular Member


Date Joined Mar 2017
Total Posts : 191
   Posted 3/19/2017 7:21 PM (GMT -6)   
I have all kinds of weird feelings in my chest, though. The air hunger, chest pressure, tightness, and sometimes this really weird feeling that's hard to describe- almost like a sucking from the inside. Like my stomach is trying to suck my lungs in. Or sort of the feeling when the roller coaster drops. All kinds of weird stuff. Sad because I can't sing anymore sad No breath control.
geocaching in April 2016. Found a treasure trove of Lyme and Babesia.

MA10
Regular Member


Date Joined Oct 2012
Total Posts : 352
   Posted 3/19/2017 8:27 PM (GMT -6)   
aphysicalwreck, I haven't had a work up yet. I've thought about it, but outside of the heart palps I really haven't had a lot of cardio symptoms. Unless the shortness of breath is cardio related. Might be worth looking into.

Julymorning, I haven't seen the video. That would be great.

Babsbunny, thanks for that! When I lay down I feel like I'm drowning. It's exactly like what you said. You can tell that you're breathing deeply but you can't seem to get enough oxygen. I tried doing deep breathing exercises and it just didn't work out. It would feel okay for a second, but then the pain and chest burning would come right back. Definitely a lot of weird chest sensations. Burning, tightening, feels like it's being squashed. And I think/thought I was dying. It puts my mind at ease to see that this could be common. Thanks for sharing.
Hashimoto's, Lyme, Bartonella, Suspected Babesia, Mycoplasma, CFS, EBV exposure, mold toxicity, adrenal fatigue, heavy metals, bipolar
Currently treating with Nature-Throid, Results RNA, Lamictal, Saphris, UBI/Ozone, Low Dose Naltrexone.

OldSalty
Regular Member


Date Joined Sep 2016
Total Posts : 251
   Posted 3/20/2017 12:30 PM (GMT -6)   
It sounds like you do have one of the usual suspects. If moderate exertion is accompanied by unusual amounts of sweating and fatigue I would urge you to start treatment for babs now and investigate later. You might want to check this out if you haven't already: http://suzycohen.com/articles/lyme_babesia_treatment/ (If you think Lyme is bad, meet Babesia.) Babesia can overwhelm the immune system while Lyme avoids it. Between the two you're stuck between a rock and a hard spot.
Infected October 2015, diagnosed per lab - RMSF October 2016. EBV, Mycoplasma pneumonia. WB band 41 positive, Babesia positive. Bart symptoms.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 7730
   Posted 3/20/2017 12:54 PM (GMT -6)   
I would walk up just a few steps and get out of air. I would take deep breaths to try and compensate and that would make me take even more deep breaths. It was like I wasn't getting enough no matter what I did.

I learned that for me I had to relax.

Not being able to breath made me panic and the panic made it worse.

So number one lessen was chill and relax and try and breath like a normal person..... difficult no. 1 lesson.

I am glad I started with this one because even as I treated further for lyme those episodes were still there and you will continue to need to learn how to remain calm. Anyway, I did.

I don't think there is a "take this and you will be fine herb." I think it all treatment and that treatment may need to include babs treatment. I did Buhner's protocol, Beyond Balance and Cryptolepis for babs and Houttuynia for Bart.

I have no idea which one worked. My opinion is that it is a cumulative effect of the synergy of all the herbs. Too many times people look for one herb to be the "ticket." I think it is the slow progression of all the herbs in unison.
____________
Failures are useful because they tell what not to do next time

gosh, then they aren't really failures.... just lessons.

yancync
Regular Member


Date Joined Nov 2015
Total Posts : 380
   Posted 3/20/2017 1:42 PM (GMT -6)   
DS has had this and for him using an albuterol inhaler has helped. His LLNP described it as partially being an autonomic tangling of the wires and the brain gets the message scrambled up. Prior to getting the inhaler, he tried breathing slowly and deeply into a bag which worked for a bit but then failed when he had a panic attack type episode. His LLMD prescribed ativan which he took 1 time only thankfully. He had these episodes while in treatment for babesia. He still has myco and has the breathing and chest tightness but it doesn't seem as bad.
Parent of 15yo DS w/ CDC+ Lyme test 11/15, late stage Lyme + mycoplasma, bartonella, babesia. Treating with antibiotics/anti-malerials + Vit D, C, Vit B-12 injections, multivit, milk thistle, dandelion, parsley, cilantro, Burbur/Pinella, L acetyl carnitine, charcoal, mag etc.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents

MA10
Regular Member


Date Joined Oct 2012
Total Posts : 352
   Posted 3/20/2017 3:35 PM (GMT -6)   
oldsalty, I had read that article once before and didn't think it applied to me. But after reading it again, it sounds similar to what I've been experiencing. I tend to err on the side of chills at night currently though. I have had some temp irregularity during the day today, leaning more towards hot flashes.

yancync, I definitely felt like I could have used an inhaler or an oxygen mask yesterday. I'm wondering if mine could be myco related.

PeteZa, I definitely see where not being able to breathe caused me to panic yesterday. and the panic made it extremely worse. I'm working on that synergistic combination of herbs. I guess you just have to hit the sweet spot.

Random question, for whoever sees this...do biomats kill the bugs? I realized that I laid on a biomat for 25 minutes on Friday. That was my first encounter with one. Do you think that it could have killed a deeper level of the bugs, thus causing the random babs symptoms to come out of nowhere?
Hashimoto's, Lyme, Bartonella, Suspected Babesia, Mycoplasma, CFS, EBV exposure, mold toxicity, adrenal fatigue, heavy metals, bipolar
Currently treating with Nature-Throid, Results RNA, Lamictal, Saphris, UBI/Ozone, Low Dose Naltrexone.

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3695
   Posted 3/20/2017 4:35 PM (GMT -6)   
MA10 said...
aphysicalwreck, I haven't had a work up yet. I've thought about it, but outside of the heart palps I really haven't had a lot of cardio symptoms. Unless the shortness of breath is cardio related. Might be worth looking into.

Julymorning, I haven't seen the video. That would be great.

Babsbunny, thanks for that! When I lay down I feel like I'm drowning. It's exactly like what you said. You can tell that you're breathing deeply but you can't seem to get enough oxygen. I tried doing deep breathing exercises and it just didn't work out. It would feel okay for a second, but then the pain and chest burning would come right back. Definitely a lot of weird chest sensations. Burning, tightening, feels like it's being squashed. And I think/thought I was dying. It puts my mind at ease to see that this could be common. Thanks for sharing.



Here's the video MA10: /youtu.be/QA-wi0d7-Ro

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 7730
   Posted 3/20/2017 9:53 PM (GMT -6)   
MA10 here is a breathing technique that I love!!! It is a calming thing for me.


/www.youtube.com/watch?v=gz4G31LGyog
____________
Failures are useful because they tell what not to do next time

gosh, then they aren't really failures.... just lessons.

MA10
Regular Member


Date Joined Oct 2012
Total Posts : 352
   Posted 3/25/2017 12:32 PM (GMT -6)   
My LLMD got back with me today about my episode Sunday. He was concerned that it might be heart related. He told me to stop all big-killing medicine and go to my PCP for blood work and maybe an ekg. He told me to go to the ER if it happens again. My question is, do you think it's worth it? To go through all of that trouble to find out nothing's wrong? I guess I should heed the direction of my doctor, but what kind of blood work do you think would be helpful?
Hashimoto's, Lyme, Bartonella, Suspected Babesia, Mycoplasma, CFS, EBV exposure, mold toxicity, adrenal fatigue, heavy metals, bipolar
Currently treating with Nature-Throid, Results RNA, Lamictal, Saphris, UBI/Ozone, Low Dose Naltrexone.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 7730
   Posted 3/25/2017 12:44 PM (GMT -6)   
I think it will put your mind at ease to have it checked out.

Caution with our hearts is important.

The stress you have wondering is not good.

Just go have it checked out. I did with my heart, my brain and I also did with my eyes.

I am so glad I did. Now I don't worry.
____________
Failures are useful because they tell what not to do next time

gosh, then they aren't really failures.... just lessons.

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3695
   Posted 3/25/2017 12:58 PM (GMT -6)   
I concur Ma10, it IS worth it. They will probably run what they call a CBC panel. It checks all the right stuff. All they need is about a tablespoon's worth of blood in the draw.
Moderator, Lyme Forum

Fibro diagnosed '85 Lyme (false?)positive '92,Osteoporosis, COPD, Hypertension, degen. disc disease, RMSF pos. Spring 2015, CHF, osteoarthritis. No LLMD. Used Doxy, Zithro and Flagyl since June '15, mono each time. Useless. Current treatment JK, Milk Thistle, kudzu for head fullness/pressure, avena sativa for nerves. Bragg's ACV, lemon water, Herbal de-tox tea.

Krimpet 🍔
Veteran Member


Date Joined Apr 2016
Total Posts : 3268
   Posted 3/25/2017 6:56 PM (GMT -6)   
I don't think a CBC panel is going to give you definitive information about your heart. It's going to provide information on your red/white cells, etc., but there are more specific blood tests for the heart.

I would personally have a ekg, and a full stress test if you are able. I also had a heart calcium test done. I also wore a 24-hr heart monitor for 14 days and lastly I had lung function testing.

But to your question, absolutely mycoplasma could very well be the culprit.
Lyme Moderator

Current treatment: Samento, Cumanda, Banderol, Pinella, Burbur, Beyond Balance-tox ease gl, BB-1, EN-MC, lomatium, cats claw, cordyceps, licorice root, Hawthorne, milk thistle, burdock root, oregano oil, gse, adrenal homeopathy, adrenal cortex, EBV homeopathy, past injury homeopathy, host of vitamins, organic foods
________________________________________
"When you get into a tight place and everything goes against you, till it seems as though you could not hang on a minute longer, never give up then, for that is just the place and time that the tide will turn.” ~Harriet Beecher Stowe
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