lyme without joint pain.

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abhi
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Date Joined Aug 2016
Total Posts : 188
   Posted 3/20/2017 7:20 AM (GMT -6)   
any one with only neuro and mild heart problem

summer16
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Date Joined Jul 2012
Total Posts : 851
   Posted 3/20/2017 7:31 AM (GMT -6)   
Yes, neuro problems. Occasional racing heart but no joint or muscle/tendon pain.

1000Daisies
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Date Joined Apr 2016
Total Posts : 1444
   Posted 3/20/2017 8:45 AM (GMT -6)   
Yep, none of us have joint pains for the most part.
Kid#1: Extremely sick for several years, very difficult to treat, but much better lately!
Kid#2: Very sick now despite being treated for years, very bad year
Kid#3: Doing great, minor relapse, but great again (ironically had least and shortest treatment)!
Me: Adv Labs positive 2016 (suspected I passed to my kids) - not as sick as others, mostly battling fatigue, kidney, heart, and yeast issues

3HumpedCamel
Veteran Member


Date Joined Aug 2016
Total Posts : 556
   Posted 3/20/2017 8:57 AM (GMT -6)   
My hubby has Lyme, but no joint issues. He has had the neuro stuff, anxiety, insomnia and digestive issues.

abhi
Regular Member


Date Joined Aug 2016
Total Posts : 188
   Posted 3/20/2017 9:13 AM (GMT -6)   
so please please give your treatment protocoal

NotQuiteAntonio
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Date Joined Jan 2015
Total Posts : 991
   Posted 3/20/2017 9:16 AM (GMT -6)   
Yeah, my symptoms have always been largely neurological. There's some physical stuff, but not as bad as the rest. Mine are brain, nerves, GI motility issues, and inflammation.

Though, after exercising more intensely these past couple weeks, I'd say there's still a lot of damage to my skeletal system that's been done/is still being done. I just don't experience it by doing normal tasks, like walking, bending my knees to tie my shoes, etc.

It took me having to use the joints more aggressively to feel how bad of shape they're in. My knees and ankles feel like they're gonna break when I am walking, like they can't support my body weight.

I think I am gonna do cycling or something with less impact for cardio exercise.

Post Edited (NotQuiteAntonio) : 3/20/2017 9:21:18 AM (GMT-6)


Girlie
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Date Joined May 2014
Total Posts : 21032
   Posted 3/20/2017 9:55 AM (GMT -6)   
abhi said...
so please please give your treatment protocoal


What protocols have you been on?


Have you tried minocycline?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

abhi
Regular Member


Date Joined Aug 2016
Total Posts : 188
   Posted 3/20/2017 10:00 AM (GMT -6)   
probiotics made me 1000 times worse so i am afraid to take too much antibiotics due to yeast infection.from last 7 month totally on bed due to probiotics .i found that immunocompromosied patient can t tolerate probiotics.so i want exact antibiotic that work for neurolyme.greatly improved on iver,alina

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 716
   Posted 3/20/2017 10:03 AM (GMT -6)   
I read something in Buhners updated book about how he started focusing on neurological issues since the last addition because joint problems were minor and easy to tend to. I was thinking this morning about how weird it is that so much focus has been placed on Lyme arthritis and Wormser and Auwaerter coming out with that recent review questioning the evidence for neurological issues. I definitely have some joint pain but it comes and goes and most days it's not even there. Most of my problems are in my peripheral nervous system and vascular system. And most people i've talked to have either CNS or PNS problems as their primary issues.

youngcd12
New Member


Date Joined Mar 2017
Total Posts : 8
   Posted 3/20/2017 3:42 PM (GMT -6)   
All neurological here. No joint pain.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 21032
   Posted 3/20/2017 4:03 PM (GMT -6)   
Psilociraptor said...
I read something in Buhners updated book about how he started focusing on neurological issues since the last addition because joint problems were minor and easy to tend to. I was thinking this morning about how weird it is that so much focus has been placed on Lyme arthritis and Wormser and Auwaerter coming out with that recent review questioning the evidence for neurological issues. I definitely have some joint pain but it comes and goes and most days it's not even there. Most of my problems are in my peripheral nervous system and vascular system. And most people i've talked to have either CNS or PNS problems as their primary issues.



Interesting what you said. That is true for me.

When I talk about my symptoms...to friends who want to know...I always say - "I can handle the joint pain...if I could just get rid of my nerve pain...and my nerve vibrations"

The CNS/PNS are the worst (in my case)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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