Extreme muscle pain

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Laker7491
Regular Member


Date Joined Aug 2015
Total Posts : 241
   Posted 3/20/2017 3:50 PM (GMT -6)   
Hello, I know I posted about this before and I usually bookmark all my posts but I missed this one.

I started having muscle pain in my upper left arm about 3 months ago.(? my lyme brain is bad so it could have been 6 months or 6 weeks) It sometimes goes thru my entire arm, up my neck and then down to my right arm. I have mentioned it several times to my LLMD and he doesn't think it's a problem because I am not losing any muscle strength.

It's becoming a real problem. In fact it woke me up last night and I was in agony until I finally fell asleep from smoking my medical marijuana around 8 am. Which I hate to smoke it but sometimes it's the only thing that works.

Sometimes if I move it the wrong way it will start up and other times I have no idea why it happens. Either way it is getting more and more painful.

I have had muscles die before and I know the difference in pain. When muscles die you don't get a break. So I think it has to be related to Lyme or a co-infection.

Does anyone have any suggestions on what I could ask my doctor to test for or what to use to treat it?

I'm not on any abx but am taking Buhner's supplements and am using a rife machine (Spooky2) I did take abx but after a year and a half my stomach couldn't handle it.

I'm getting so frustrated with my LLMD about why he doesn't think it's a problem. I told him how painful it is and how it prevents me from doing a lot, but he didn't say much. He just tested my arm strength and said it was fine. I said it wasn't fine but he somehow changed the subject and I lost track of it. I think he had a lot on his mind because it was a weird appointment last time. I have neuropathy which is slowly getting better but still flares up, my burning soles are getting much better. So now I have to deal with this.

Any thoughts would be greatly appreciated.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 22762
   Posted 3/20/2017 4:08 PM (GMT -6)   
I think the best thing is to treat the infections...and the pain should subside.

In the meantime...you are looking at detoxing ...some of the pain could be from the toxins...(die-off of bacteria)

...and.. oral and topical pain killers.

I've read on this forum..that some people use a magnesium spray to help with muscle pain.

Are you taking oral magnesium as a supplement? What about Curcumin...there could be inflammation also causing the pain.

What have you tried?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

julymorning
Veteran Member


Date Joined Jul 2015
Total Posts : 3695
   Posted 3/20/2017 4:47 PM (GMT -6)   
This sounds like what I was going through a few years ago. It was my right upper arm/shoulder. I'm right handed.

At first I thought it might be an old rotator cuff tear injury I'd messed up again, but the pain went beyond that, which is hard to imagine. Bone spur came to my mind. The pain will radiate, or transfer to extended areas.

I saw an orthopedic surgeon, and he tried a steroid shot in that capsule in there. Nothing. He ordered an MRI and it showed both, torn cuff and bone spur. He did laproscopic repairs to the entire tendon and musculature area and the surgery caused me to relapse into Lyme, big time.

I'm not sure I would do it again, in spite of the pain I was in.

If you've ever had any kind of issue with that arm, know that these invading organisms love to set up camp on old injuries and problem areas. Keep that in mind while you decide how to deal with this.

Try hot and cold alternating therapy on the area, don't physically stress or over extend it, but maybe do daily resistance bands exercises.
Moderator, Lyme Forum

Fibro diagnosed '85 Lyme (false?)positive '92,Osteoporosis, COPD, Hypertension, degen. disc disease, RMSF pos. Spring 2015, CHF, osteoarthritis. No LLMD. Used Doxy, Zithro and Flagyl since June '15, mono each time. Useless. Current treatment JK, Milk Thistle, kudzu for head fullness/pressure, avena sativa for nerves. Bragg's ACV, lemon water, Herbal de-tox tea.

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4030
   Posted 3/20/2017 5:22 PM (GMT -6)   
Consider bvt ..it helped my pirranah feelings nerves etc etc

Laker7491
Regular Member


Date Joined Aug 2015
Total Posts : 241
   Posted 3/20/2017 6:17 PM (GMT -6)   
Thanks Julymorning, I have not had any injuries in my arms or shoulders. Did yours finally go away?

I do hot and cold methods which help a little bit. It's hard to do when it's in both arms and your neck. I was using 2 lbs weights when my arm didn't hurt but will switch to resistance bands. I'm worried my muscles will deteriorate in that arm.

Bluelyme - is bvt Bee Venom Treatment? If so I'm allergic to bee stings. I'm not sure what of bees are used in that treatment. I'll check it out though. Thanks.

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4030
   Posted 3/20/2017 7:18 PM (GMT -6)   
Ya ...unless anaphylaxis occurs its probably not true allergy ...but even if insurance will actually cover apitherapy to desensitize against allergy ..its about ramping up in very small doses ..like Wesley with iocaine powder in the princess bride ...ha ...

ellie lobel was told she was allergic too...it saved her life she is well now ...read her story ..she is a vervent advocate and has a facebook group where she guides people

the muscle pain for me was lyme bart killing the nerves the subsequent muscle death as a result ...literally felt like pirrahnas .....i am looking into gallium nitrate as its a treatment for horses

dogsblood
Regular Member


Date Joined Sep 2016
Total Posts : 181
   Posted 3/21/2017 8:12 AM (GMT -6)   
I had the same problem, though not quite as severe. My strength was never affected. However, I am in remission now and am feeling much better. So keep treating, and detox/drink water like crazy!

Kat1000
Regular Member


Date Joined Feb 2017
Total Posts : 270
   Posted 3/21/2017 9:01 AM (GMT -6)   
Laker - my muscle pain is mostly symmetrical, but I have had pain and numbness symptoms wake me up. These have improved since starting the restricted diet my LLMD recommended. Detoxing too. I start treatments soon, so don't know where that will take me.

Are you on an anti-inflammatory diet? I think the dry brushing and epsom/hyd perox baths have really helped me. Massage too.
Symptoms started early summer 2016
Sept 2016 - internist referred to endocrinologist
Oct/Nov - endo increased thryoid med and Vit D; pos for MTHR
Positive Igenix IgG Jan 2017 (internist ordered at my request)
Rheumatologist said no connective tissue disease Jan 2017
Skipped recommendation to see neurologist
LLMD first visit March 2017 - symptoms for borrelia, bart, babs

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35184
   Posted 3/21/2017 10:44 AM (GMT -6)   
With the way Lyme acts, if you are already allergic to bee stings, it's not really a good idea to try out BVT in my opinion. I'm quite allergic to them, while I don't go into anaphylaxis (as my brother does) I do swell an extraordinary amount. If I get stung on the hand, the swelling goes up to my shoulder and it's pretty serious and incredibly painful. Simply put, not every treatment is right for every person.

Are you taking magnesium? If so, what type? I have used several different types of magnesium and have discovered that magnesium orotate is what works best for my muscle spasms, cramps and twitches.

Are you detoxing well? This also often lowers things like muscle pain, especially if you can take an Epsom salt detox bath. Epsom salt soaks have been used for many, many years to relieving muscle issues.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Laker7491
Regular Member


Date Joined Aug 2015
Total Posts : 241
   Posted 3/22/2017 6:41 PM (GMT -6)   
Thanks everyone, It's funny I was mentioning to my hubby that julymorning said she had pain where she had a previous injury. I said I didn't have an injury and then he reminded me that it's that same spot where my horse ran me over and gave me a 3 in. cut. I didn't need stitches and it just bruised up really bad. So I guess I damaged my muscle and the bugs moved in.

I do have a pretty stringent detox program which I perform almost daily. I also take magnesium ( right now I am taking magnesium oxide) turmeric/curcumin, infrared sauna, epsom salt baths and tons of lemon water, plus others I can't think of and am too tired to get up and find.

I'm on the AIP Protocol and that seems to be helping, at least I'm finally able to lose some weight.

Today it's fine, last night was hell. I'll just keep trudging along.
smile
EBV- Diagnosed in 2014 - free of virus in 2015
Lyme Disease - Diagnosed in September of 2015
Babesia - just treated by symptoms. Free of Symptoms by 10/16
Bartonella - using Buhner's supplements and Spooky2 Rife machine
Hypothyroidism - diagnosed in 2009 on nature-throid
Not sure what else I may have since LLMD does not test for co-infections

jrpsf
Veteran Member


Date Joined Aug 2014
Total Posts : 1467
   Posted 3/22/2017 7:45 PM (GMT -6)   
Laker-I had 2 cervical spine surgeries and both shoulders operated on prior to getting lyme so those area's flair up significantly. I know what my physical therapist did when I had similar muscle pain. She would manipulate the area manually. It hurt quite a bit but it restored blood flow and that would help reduce inflammation.

I know it's hard to visualize so here is a link to a piece that was on the Today show about two weeks ago. I purchased the items and they're very effective. Both astroman and I have talked about things like this on here in the past. This is the best I've found.
www.today.com/video/fasciablaster-could-it-be-the-key-to-living-a-pain-free-life-892989507570

You can reproduce the same motion manually. It's just tough to do to yourself and hard for others as there hand's get tired.

I also find lidocaine patches helpful but they take 8 hours or so to give relief.

Laker7491
Regular Member


Date Joined Aug 2015
Total Posts : 241
   Posted 3/22/2017 7:54 PM (GMT -6)   
Thanks jrpf, I'll have a look. I do use lidocaine patches and they do take forever to work. Sometimes I think the pain just stopped before the patch even kicks in.

It's weird, sometimes like today, it feels like a normal arm, even though I lifted things and cut things up that normally really aggravate it. The maybe tomorrow, I'll pet the cat at a strange angle and I'm in agony all night.

But I will try the manipulations. The last thing I want is a gimpy arm when I'm all well. smile
EBV- Diagnosed in 2014 - free of virus in 2015
Lyme Disease - Diagnosed in September of 2015
Babesia - just treated by symptoms. Free of Symptoms by 10/16
Bartonella - using Buhner's supplements and Spooky2 Rife machine
Hypothyroidism - diagnosed in 2009 on nature-throid
Not sure what else I may have since LLMD does not test for co-infections

OldSalty
Regular Member


Date Joined Sep 2016
Total Posts : 251
   Posted 3/23/2017 3:05 PM (GMT -6)   
Fascia is connective tissue comprised of - collagen. Guess what body material borrelia devours? That's right - collagen. So why do we have these body and muscle pains for no apparent reason? The bugs are like termites eating us from the inside. So it's not just knees and large joints, it is everywhere they happen to go. Sometimes the more I learn the less I want to read.
Infected October 2015, diagnosed per lab - RMSF October 2016. EBV, Mycoplasma pneumonia. WB band 41 positive, Babesia positive. Bart symptoms.

Laker7491
Regular Member


Date Joined Aug 2015
Total Posts : 241
   Posted 3/23/2017 8:09 PM (GMT -6)   
Thanks OldSalty, I appreciate your explanation. It makes so much sense. My LLMD just tested my strength with my other arm and said I was fine. Acted like he had no idea why my arm would be in pain. It's time to move on and find a doctor that knows a bit more about Lyme.

The description is kind of depressing and creepy.

Tonight the pain went from the top of my neck, left arm, left thigh down to the knee. So crazy.

Hope you have a great day or night or both.
EBV- Diagnosed in 2014 - free of virus in 2015
Lyme Disease - Diagnosed in September of 2015
Babesia - just treated by symptoms. Free of Symptoms by 10/16
Bartonella - using Buhner's supplements and Spooky2 Rife machine
Hypothyroidism - diagnosed in 2009 on nature-throid
Not sure what else I may have since LLMD does not test for co-infections

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3356
   Posted 3/24/2017 8:36 AM (GMT -6)   
Here I go again sounding like a broken record .. .LOL...........

While waiting for it to get better, you need circulation - golf balls, lacross ball, hard foam roller to break it up and get circulated with new nutrients/oxygen ect. All this is on u-tube. It works temporary in the begining, but gives instant reliefe..

With traditional lyme treatment, the muscle pain can take a while to go way, most likely its a combo of nerve issues and muscle chemistry issues, both fro the infection. AND then if you have past injuries, expect your pain to be much worse.

Muscle injuries never completey heal 100%, even after they feel normal, the fibers are no longer aligned like when you were in your birthday suit. Thats realy no big deal, but if lyme realy settles in places with less blood flow/less circulation- this would be the place, an old injury..

Anyone can benefit from this, some more than others. Its realy muscle detox.

Laker7491
Regular Member


Date Joined Aug 2015
Total Posts : 241
   Posted 3/24/2017 11:47 PM (GMT -6)   
I watched the segment on the Today show on Fascia. My son ran cross country in high school and had a couple of things that looked similar to what she was selling for $89. Well I have been using them and they have made a big difference in the level of pain that I'm feeling. It's weird. I get one place better and then it moves to another. I guess that's Lyme.

Thanks for the suggestion, it really has helped so much. I recommend it to anyone having muscle pain. I have even been using it on my feet to maybe help the neuropathy. Who knows.

Have a great day everyone.
EBV- Diagnosed in 2014 - free of virus in 2015
Lyme Disease - Diagnosed in September of 2015
Babesia - just treated by symptoms. Free of Symptoms by 10/16
Bartonella - using Buhner's supplements and Spooky2 Rife machine
Hypothyroidism - diagnosed in 2009 on nature-throid
Not sure what else I may have since LLMD does not test for co-infections
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