lyme or (anxity-stress)

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alunke82
Regular Member


Date Joined Mar 2017
Total Posts : 143
   Posted 6/19/2017 2:39 AM (GMT -6)   
hi all here is how it started and my symptoms.

it startet one day with stomach pain or around navel and diarrhea then around a week later i got dizzy spells out of the blue and allso when i eat very uncomfortable and allso brainfog and nausea.then i suddenly got spasm under my ribs worse left side.
then one eavning after i eat i got very bad burning under left side rib and left side back it lasted about a week or 2 and then i can handle it again sometimes it flares but not like first time i tryed abx and got rash from my ribs i think it maybe can be costochondritis.
i was very sick all the time but got better every evening.
then after some month i got tingling,burning,feets and a few days i had burning legs allso i thought it was diabetes but test are normal at doctors house.i bought vita biosa it helped alittle with nausea.
and then i devolep other symptoms to

sometimes muscle spasm,chills,head preassure most from neck,pulsating tinnitus,bug under my skin,dizzy when i stand up,burning body when i wake up from sleep,i hate heat,sometimes when i take a shower i feel worse,sometimes burning brain,burning in general.
some days fattigue,tinnitus,sensitivity to light,sensitivity to sound,i can talk but very hard for brain,concentration problems,hard for my eyes to focus,sometimes stomach pain,paresthesia,sore neck,hard to turn neck.cracking neck,sometimes like there are sandpaper in neck,sore jaw hard to open mouth,i pee alot if i drink water and i drink alot now i pee 2-3 times hour.
pain in stomach or guts first time morning after i pee but not allways.sick morning worse afternoon hard to work then late afternoon are worse best time evening
i had internal shaking for about 8-10 years in legs after i wake up but only in periods but only after a nap but i diddent have any others condition was healthy i had read about ms and parkinson but i dont hope i can have that for 8-10 years and then bam but maybe?
when i got sick i had a stool test faecal calprotectin they use it in crohn´s dieses and other guts dieses he called me and said everything was ok i diddent understand when i felt that way so i looked my test results up on the internet where i can see my test results and found
faecal calprotectin normal was <50 mine was 176 and i got charcot leyden crystal to.
i had a period on 3 weeks only where i had normal stool but for allmost a year i got diarrhea then i tryed abx for first time only 7 days 1-2 pills every day and after 3-5 days i had normal stool for about 3 weeks then it returned again then about 1,5 month after i tryed abx again i got normal stool again for some time but the other symptoms did not get better or i am unsure it felt like my neck got better but affraid i imagine alot after all those problems so maybe its stress-anxity maybe an undiagnosed diese only thing i am missing is a spinal tap but i am affraid now been through alot and my anxity are worse now i got an circulatory collapse
from 7 blood proves to armin labs and now i am affraid to take blood tests.
and got all test from armin labs no co-infection and only weak positivity borrelia
high ebv
and low cd57-53
maybe it can be another infection maybe i have crohns in
small intestine i read it can be hard to find sometimes.
i had xray of most of my body,gastroscopy all the test you can imagine i dont know if lyme start like that i know diabetes can and i dont know if charcot leyden crystals and faecal calprotectin allso can be from bacteria-parasites?
i got bitten by an tick when i walked to the bathroom it was beside where it bite me and there was blood so i dont know if it got annoyed and got loose when i was working or if it only just bite me so i cant say if it was a quick bite or i have had it on me for some time.
some of the symptoms are here all day and some symptoms are rare up and down
i dont hope i can do all that mentally
sry my long post and english and .,smile

Post Edited (alunke82) : 6/19/2017 3:30:45 AM (GMT-6)


RedLabel
Regular Member


Date Joined Feb 2017
Total Posts : 115
   Posted 6/19/2017 5:54 AM (GMT -6)   
Welcome to the forum. I have a lot of similar symptoms as toy and are also struggling a bit to fully accept my diagnosis as it seems nothing is certain. I also only had weak positive borrelia but posotive for some other co infections.

What co infections did you test for?
Diagnosed after almost a year of misery. Visited every specialist under the sun. Lyme, CPN, Yersinia, Coxsackie, CMV and Bartonella after LLMD visit.
CD57 of 0

Started treatment in May 2017

alunke82
Regular Member


Date Joined Mar 2017
Total Posts : 143
   Posted 6/19/2017 7:09 AM (GMT -6)   
hi redlabel i think i got all test from armin labs
then you got a better chance to have it if you allso have co-infektions but i am not an expertsmile
i am just affraid if i have another condition and i use alot of abx i get much worse not from an herx but from killing stuff in body i maybe need its so annoying there isent a test who can tell you 100% you have it
if there was i eat abx like candy thensmile
you have cd57 on 0?

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 6/19/2017 7:21 AM (GMT -6)   
Alunke, while you may be experiencing anxiety - all of that is NOT caused by anxiety alone. Those are symptoms of infections as well.

A herx IS from killing stuff in your body - as the bacteria from many of these infections die, they release toxins, which is why we herx.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

alunke82
Regular Member


Date Joined Mar 2017
Total Posts : 143
   Posted 6/19/2017 7:26 AM (GMT -6)   
hi traveler ty for help again i am just so stressed i cant do anything and i am stupid i try do some stuff anyway and got more sick i have to learn to relax

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 6/19/2017 7:30 AM (GMT -6)   
It's hard to learn to just take it easy when you are used to pushing through things. I pushed through all my symptoms for 40 years. It's a tough one to "undo"! But, we must learn to do this. Our bodies need to rest and to be treated like what they are - sick bodies with serious infections. Still - easier said than done for many of us.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

alunke82
Regular Member


Date Joined Mar 2017
Total Posts : 143
   Posted 6/19/2017 7:50 AM (GMT -6)   
i dont take any pills right now but thinking about some for anxity is it safe to take venlafaxine there are adrenaline in it or some without adrenaline?

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 6/19/2017 7:56 AM (GMT -6)   
I'm sorry, I don't know enough about the pharma drugs to be able to tell you what's safe and what isn't.

I did look it up though, and I do know that there have been some that have taken venlafaxine (Effexor). Here is a search I just did for posts talking about Lyme disease and Effexor on this site:
/goo.gl/g5gjsa
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

alunke82
Regular Member


Date Joined Mar 2017
Total Posts : 143
   Posted 6/19/2017 8:07 AM (GMT -6)   
ty traveler i forgot to mention at start of my sickness i got flu like symptoms felt hot every morning and for many hours felt like i had fever but now i cant get fever anymore now i have normal or low temp morning

RedLabel
Regular Member


Date Joined Feb 2017
Total Posts : 115
   Posted 6/19/2017 11:05 AM (GMT -6)   
Yes. I have 0 cd57. Will habe a new test in a few weeks after 2 months of treatment. I don't think it's related to how bad toy are affected as it seems many people are far worse of than me with much higher cd57.
Diagnosed after almost a year of misery. Visited every specialist under the sun. Lyme, CPN, Yersinia, Coxsackie, CMV and Bartonella after LLMD visit.
CD57 of 0

Started treatment in May 2017

RedLabel
Regular Member


Date Joined Feb 2017
Total Posts : 115
   Posted 6/19/2017 11:07 AM (GMT -6)   
Bartonella was only clinically diagnosed though, so I don't think I have any of the most common co infections. Well, seems like everyone get their own special cocktail to deal with
Diagnosed after almost a year of misery. Visited every specialist under the sun. Lyme, CPN, Yersinia, Coxsackie, CMV and Bartonella after LLMD visit.
CD57 of 0

Started treatment in May 2017

alunke82
Regular Member


Date Joined Mar 2017
Total Posts : 143
   Posted 6/19/2017 11:25 AM (GMT -6)   
that was lowsaddo you get better with treatment can you feel anything redlabel?

RedLabel
Regular Member


Date Joined Feb 2017
Total Posts : 115
   Posted 6/19/2017 11:38 AM (GMT -6)   
I am not sure yet since our goes up and down, but I think they down periods are not as bad as they were. It's hard to know since I may have gotten more used to it. I have less anxiety as well due to the fact that I now know what I have at least.
Diagnosed after almost a year of misery. Visited every specialist under the sun. Lyme, CPN, Yersinia, Coxsackie, CMV and Bartonella after LLMD visit.
CD57 of 0

Started treatment in May 2017

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 6/19/2017 12:53 PM (GMT -6)   
alunke82 said...
ty traveler i forgot to mention at start of my sickness i got flu like symptoms felt hot every morning and for many hours felt like i had fever but now i cant get fever anymore now i have normal or low temp morning


Those are typical Lyme symptoms when the infection is starting out.

If you have any testing that is even slightly backing up a Lyme diagnosis, you definitely have Lyme. But even without the testing, you have Lyme symptoms.

What tests have you had? Have you had any treatments? What kind of a reaction/response did you have when you were taking the meds/herbs?
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

alunke82
Regular Member


Date Joined Mar 2017
Total Posts : 143
   Posted 6/19/2017 10:40 PM (GMT -6)   
goodmorning i had all lyme and all co-infections test and ebv done.
and test showed only weak current cellular activity against borrelia burgdorfferi
and high ebv indicate humoral immune-response against epstein-barr-virus
and cd57 was 53
cd57(the cd57-cell-count indicates chronic immune suppression,which can be caused by borrelia burgdorferi or other bacteria like chlamydia/mycoplasma pneumoniae

borrelioburgdorferii
Regular Member


Date Joined Feb 2017
Total Posts : 114
   Posted 6/19/2017 11:08 PM (GMT -6)   
yes a low cd57 is considered one of the biomarkers for Lyme, and the ebv activates with stress and weak immune system
Tick bite over 10 years ago with EM rash, past concussions
summer flu, chills, fever, neuro symptoms, sleep apnea, vertical nail ridges
untreated w/ABX until recently (2-3 years now)
Buhner's Protocol, Doxycycline, Amoxicillin, Supplements,
Minocycline, Metronidazole, Bactrim
IgG via IgeneX 31-IND, 41++, 58+ (Sep-2016)
IgM via IgeneX 31+, 41-IND (Sep-2016)

alunke82
Regular Member


Date Joined Mar 2017
Total Posts : 143
   Posted 6/20/2017 12:02 AM (GMT -6)   
i just dont understand that i diddent have more positive and co-infections with all those health problems i have but i guess i have to give it a try some day and then i can tell if it helps its just hard to drive that long road right now

Post Edited (alunke82) : 6/20/2017 12:09:59 AM (GMT-6)


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 6/20/2017 7:17 AM (GMT -6)   
"and test showed only weak current cellular activity against borrelia burgdorfferi "

But this still shows that you have Lyme! You wouldn't have ANY cellular activity against a bacteria that you don't have in your body. It would be like being only slightly pregnant. Women either are or are not pregnant. If we have any evidence of Borrelia (Lyme) in our body, we have Lyme.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

alunke82
Regular Member


Date Joined Mar 2017
Total Posts : 143
   Posted 6/20/2017 8:26 AM (GMT -6)   
hehei guess your right travelersmile

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 6/20/2017 8:28 AM (GMT -6)   
The problem is that many doctors don't think this way! I've never been able to figure that out. I've even argued with some of them over this manner of thinking - then walked out to never return. Seems like it's a pretty basic piece of information and if that's wrong, then their whole process is wrong in my mind.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

alunke82
Regular Member


Date Joined Mar 2017
Total Posts : 143
   Posted 6/20/2017 11:31 PM (GMT -6)   
yeah sounds right traveler
what if i have trouble tolerating foods and abx if i can find one who am willing to help is it okay to start very slow with abx like 1 pill each day for a week before taking more?my stomach are really bad
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