Should I get tested for Lyme-Disease? (I have Visual Snow)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

GuyWithVs
New Member


Date Joined Jul 2017
Total Posts : 6
   Posted 7/10/2017 4:32 AM (GMT -6)   
Firstly i want to say my english isnt that good so please forgive me if i made any mistakes writing this!

Thank you to anyone who reads this, it helps me a great deal.

Hello everyone. Im a 21 year old guy from germany and i have been suffering from a condition called "Visual Snow" for more than 2 years now and it has been getting worse progessively. Visual Snow is a persistent medical disorder in wich sufferers see constant television-like static, and many of them (like myself) are also experiencing a whole range of other symptoms (i will get to that later on). To date, there is on real cure for Visual Snow, but on a Visual Snow forum online i read that there are people out there whose Visual Snow is caused by Lyme-Disease, and on the "New to Lyme? Start here!" post i read about all the symptoms that can be cause by Lyme and it also says Lyme can cause Visual Problems, hence my question: Should i get tested for Lyme-Disease?

So here is my story i'll keep it brief:
My Visual Snow started out of nowhere about 2 years ago when i was watching TV one afternoon and suddenly noticed i had double/ghosting vision. All of a sudden i saw these colored "shadows" underneath and later also above objects especially light sources. Of course i went to a hospital and i had to stay there for a week. I had an MRI done Spinal Fluid Analasys etc. but they didnt know what was going on with me. When i came home it wasnt for long because after about a week i again had to go to a hospital because i had flu-like symptoms (aching muscels/joints, fever etc.) and severe pain in my chest wich was throbbing in the rythim of my heartbeat. I had to undergo an MRI of my heart and got pain killers and after a few days they discharged from hospital as i was feeling better. They told me i had a mild heart inflammation. But after this infection (or whatever it was) wich lasted about a week i havent experienced any other symptoms to date that would indicate a lyme disease infection other than eye and ear related symptoms. It all started with double vision and over time i also progressively got the following symptoms in this order:

many floaters in my right eye ,

light sensitivity,

gernally strained /tired eyes,

sometimes quick flashes of light

blue field entopic phenomenon,

blurry vision and extremly strained/tired eyes in stress situations (only sometimes),

after images/trails and halos,

sometimes feeling of pressure behind eyes and aching eyes,

tinnitus (sounds like a morse code),

different version of tinnitus (it sounds differently and gets louder when i think about it, and when im anxious) along with other weird ear related things that are hard to describe,

sometimes objects i look at appear to be slighty moving/flickering,

sometimes small flickering "light dots" that will stay until i blink or look away,

Also i should mention that i need glasses since it all started and i do see the "Television static" aswell, the thing is that ive always had this static tv like vision as long as i remember but it deteriorated unfortunately since the other symptoms started to develop. I went to many doctors; neurologists, neuro-ophtalmologist etc. I underwent MRI's of my brain and spine but no dcotor was able to help me or even give me a diagonis. After 2 years i finally found a doctor that knows about Visual Snow, and i will have an appointment there soon. But still i want to rule out everything that could possibly cause Visual Snow. This was a quick review of my story. and now i have a few questions:

1: Do you think i should get tested for Lyme-Disease even if i dont think i have symptoms other than Visual snow and tinnitus and i dont at all recall being bitten by a tick or having a "bulls eye rash" ?

2: If you think i should get tested, do you know any LLMD's near Dortmund in germany? Im asking this because i've seen other members ask this aswell.

Thank you all for reading.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8125
   Posted 7/10/2017 10:09 AM (GMT -6)   
GuyWithVs, Welcome and glad to see you have read the New To Lyme thread.

I have no information about this visual snow. It sounds horrible. I did get a lot of floaters and I was constantly seeing bugs on my wall that were not there.

Should you get a lyme test? It sounds like the Visual Snow has no treatment. So, if it is caused by lyme disease, at least you could treat, right?

If I were in your shoes I would examine every alternative to make sure there is no treatment. So I would get a lyme test to rule it out.

Maybe someone else has a better idea for you. I hope.
____________

Good Article

caramba
Veteran Member


Date Joined Aug 2016
Total Posts : 582
   Posted 7/10/2017 10:20 AM (GMT -6)   
Lyme test, if you can. that way you know you can rule it out, or find out you have Lyme.

Jinna
Regular Member


Date Joined May 2017
Total Posts : 338
   Posted 7/10/2017 11:30 AM (GMT -6)   
Are you going to get a Westernblot or an Elisa test, do you know?

Elisa does not work, in my opinion, but the doctors usually do that before the Westernblot, or the insurance will not cover the expensive WB exam... Here in Switzerland it cost me about 500 francs (about 450 euro) about 10 years ago. I don't know the price now...

I live in Switzerland, not far from the German border.

I don't know if your problem is lyme, but some symptoms do sound like lyme to me (tinnitus , stabbing heart pain, heart inflammation, floaters, light sensitivity, pain in the eye nerves etc).

Is your neck hard? CAn you sleep well? Short memory is good? GI tract is in order?
These are also common in lyme.

Are you comfortable with energy testing? Some German doctors use EAV devices to find out about lyme and coinfections, in case you get a negative Elisa / Westernblot.

I don't know in which area you are... I went to a practitioner near Freiburg.

If you get a positive Westernblot, it just means you had contact with Borrelia, not necessarily that you have active lyme disease (in my opinion).

Most people in my area are Westernblot positive, but present no lyme symptoms, according to dr. Rau (Paracelsus Klinik).

Either you find a good lyme specialist who can diagnose you both with blood tests and clinically...

.... or you can also make a self test with some antimicrobial herbs that act on Borrelia (like basic Buhner's herbs).

If you react in any way to these herbs, it is a good indication that lyme is possibly involved.

Most people I know with ACTIVE lyme react to some of the 4 basic Buhner's herbs: astragalus, cats claw, Japanese Knotweed and andrographis. If you don't, you probably do not have active Borreliosis...

It's just my feeling, not medical advice.

Post Edited (Jinna) : 7/10/2017 11:33:04 AM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 23607
   Posted 7/10/2017 11:52 AM (GMT -6)   
Hi GuyWithVS - welcome!

I think you should get tested for LD.

Your list of symptoms:


many floaters in my right eye ,light sensitivity,
gernally strained /tired eyes,
sometimes quick flashes of light
blue field entopic phenomenon,
blurry vision and extremly strained/tired eyes in stress situations (only sometimes),
after images/trails and halos,
sometimes feeling of pressure behind eyes and aching eyes,
tinnitus (sounds like a morse code),
different version of tinnitus (it sounds differently and gets louder when i think about it, and when im anxious) along with other weird ear related things that are hard to describe,
sometimes objects i look at appear to be slighty moving/flickering,
sometimes small flickering "light dots" that will stay until i blink or look away,

Most of them have to do with your eyesight, but a few others' don't: tinnitus, other weird ear things,
and pressure behind your eyes.

So, yes have a LD test done. But, don't do the Elisa, do a WB.

You can email me and I will send you information for Germany that I have...

We encourage our new members to read through the "New to Lyme"..start Here!" thread - that sits at the top of the page.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

silver.light
Regular Member


Date Joined Feb 2017
Total Posts : 59
   Posted 7/10/2017 12:49 PM (GMT -6)   
GuyWithVs,

Get tested for Lyme. I have had visual snow for about 20 years now but apart from that and some other visual problems I have not had other symptoms until 2009.

I got my test done at BCA Lab in Augsburg but was not happy with customer service.
Positive for Lyme, Chlamydia Pneumoniae, Ehrlichia and Mycoplasma Pneumoniae.
Negative for Bartonella and Babesia but symptoms indicate otherwise.

DangerLewis
New Member


Date Joined Jul 2017
Total Posts : 6
   Posted 7/10/2017 3:41 PM (GMT -6)   
Please do! I'm 27 but was diagnosed with HPPD and visual snow around your age (Ironically was diagnosed by the lead HPPD researcher before he retired in Boston - you think he might have suspected lyme), I had no idea about Lyme disease living in Florida.

My visual snow recovered 70% after a single Testosterone shot which lead me to discover Lyme, so I would recommends getting blood tested for your T levels, mine also showed elevated liver enzymes. I havent begun treatment but I have all the same visual symptoms. I highly recommend just a basic blood test too.

I still have floaters just as bad as ever especially in sunlight or fluorescent lights, head pressure, after images have lessened, starburst/ halos have lessened. Everything flairs up with anxiety and stress.

I get double vison also sometimes, have you had any facial muscle twitching or bells palsy (where one side of your face is sorta paralyzed short term.)

I've had 2 MRIs that came back normal- I would really try a SPEC Brain Scan- that detected 3 abnormal areas in my brain and 75% of Neuro Lyme cases have it. If you are having visual problems it's likely maybr NeuroLyme.

Another big deal is heart inflamation which is another area Lyme effects.

How has your sleep been, I have had major issues with insomnia, chronic fatigue, digestive issues, and weird immune issues : I caught shingles at your age which is super rare. How has your balance been, any twitching muscles or hand tremors. How has your psychological health been, mine started getting worst and worst- mine started with Visual problems, but evolved all the way to seizures - so catching it earlier will make a huge difference.

Just know the Lyme Disease test work poorly about 50% of the time, so if the test is unclear there's a better private test that's more sensitive by INGENEX.

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4225
   Posted 7/10/2017 5:17 PM (GMT -6)   
Hi welcome .my vs was caused by bartonella toxoplasmosis and hypoglycemia with lyme ...much has resolved with many modalities

GuyWithVs
New Member


Date Joined Jul 2017
Total Posts : 6
   Posted 7/11/2017 4:14 AM (GMT -6)   
Thanks to everyone for reading and replying.

Ok it seems like everyone thinks i should get tested.

Jinna: No i don't think my neck is is hard, im not 100% sure though. it might be a little stiff and also sometimes when i laugh the back of my head just above my neck hurts until i stop laughing (i dont know if that is relevant). I can sleep quite well and my short term memory as well as my GI tract are both working normally i'd say. I'm from Dortmund, it would take me 4 1/2 hours approx. to get to freiburg, unfortunately.. What do you mean exactly by "reacting to these herbs" ? Reacting in a good way or in a bad way? And what symptoms exactly? Also is an EAV test a secure way to determine wether i have lyme or not?

Girlie: Ok thank you very much. I will email you right away.

DangerLewis: Yes i did a normal blood test about 1 1/2 years ago after it all started, it came back normal.
No i have never had bells pallsy, i do get muscle twitching sometimes (eyelid, legs, etc.) but rarely and doesn't everyone get muscle twitching from time to time? My sleep is ok but im tired alot, but i think i'm generally a long sleeper. I don't have digistive issues. My psychological health is at an all time low, im sad often because i cant to things the way i used to because everything is impaired by Visual Snow.

bluelyme: Sorry i dont understand this scentence "much has resloved with many modalities", can you express it differently for me please (my english is too bad).


To everyone: You all gave me many approaches to go about the LD treatment/diagnosis (Herbs, WB test, EAV testing, testosterone shots, etc.). But how do i know wich way is right for me, if i find an LLMD will he guide me regarding diagnosis and treatment or will i have to decide myself what tests and treatment i have to do?

Thank you for reading.

Post Edited (GuyWithVs) : 7/11/2017 4:20:15 AM (GMT-6)


Jinna
Regular Member


Date Joined May 2017
Total Posts : 338
   Posted 7/11/2017 4:57 AM (GMT -6)   
https://www.ink.ag/therapeuten-vor-ort/deutschland/

The list of practitioners in Germany following dr. K's method is above.

These guys are not only treating lyme, but they can 'find' out problems that normal doctors have difficult finding, in my opinion.

I don't go to any conventional medical doctor anymore, because my complains are chronic, for many years.

I don't have a clear picture fitting to one disease either.

In my case I suffer from chronic candida that comes back in winter, difficulty in absorbing minerals, some muscle waste, food allergies, bad circulation, gut dysbiosis very likely, infections come and go, liver chronic problems, stuff like that, if you see what I mean....

Chronic illnesses are NOT the strong point of our conventional Western medical practice, as you may be noticing by your experience.

Even if they find something out, they can't treat you, anyway, except for some relief pills WITH side effects that you will probably have to take for life.


So that is why the only practitioners I go are the ones that AIM to treat chronic conditions. They are not easy to find, but they do exist.

There is no RIGHT way to find out what is your health problem.

If there were, conventional medical doctors would have found your problem, for instance.

Chronic illnesses involve MULTIPLE causes.

Example: toxins in the brain, viruses here and there, some nutrient mal-absorption, some defective detox pathways, genetic causes etc etc.

Medical practice cannot diagnose any disease with multiple causes. It always wants to come back to single-cause diseases, because that is the way Western medicine developed.


Even for Lyme, there is NO single conventional way of proving you HAVE lyme disease (serology is not very accurate).

The only way to prove you have lyme is going to a specialist who can diagnose you CLINICALLY with lyme (due to your symptoms).


The problem is that most MDs and lyme disease CONVENTIONAL doctors will only look at serology and define if you are ill or not.

http://www.sginf.ch/guidelines/guidelines-of-the-ssi.html

Go to:

Abklärung und Therapie der Lyme-Borreliose bei Erwachsenen und Kindern
Teil 1 Epidemiologie und Diagnostik
Teil 2 Klinik und Therapie
Teil 3 Prävention, Schwangerschaft, Immundefizienz, Post-Lyme-Syndrom

You'll see that's exactly how most medical doctors diagnose lyme all over the world.

Even the so-called lyme specialists will diagnose you following the protocol above (the famous Dr. Satz in Zurich only follows the SSI guidelines!).

So I got a negative Westernblot with him.

Even though I had a positive Westernblot BEFORE I went to him, he discarded older positive test, and gave me NO treatment at all.

The Swiss Society for Infectious Disease dictates the norm of DIAGNOSIS and TREATMENT for the whole planet (US inclusive).
Germany, Switzerland, Belgium and northern Europe follow them.

You CAN do the blood tests.

I would do them, at least once, if you find someone to prescribe you the tests. Elisa is useless, go directly to Westernblot.

If you would like to go Elisa, the only good reason is that if your Elisa is positive, the Krankenkasse will pay for the Westernblot. Otherwise, you got to pay privately.

Going to EAV testing with people that have experience with lyme can be helpful not as a FINAL answer for your diagnosis.

There is, in fact, no final answer, in my opinion.

Not even serology, as I told you above is something to be taken as 100% correct.

OK, that is the answer for the first part....

Jinna
Regular Member


Date Joined May 2017
Total Posts : 338
   Posted 7/11/2017 5:12 AM (GMT -6)   
Taking a treatment and seeing whether it works or not is the way pharmaceuticals are tested in vivo.

As serological tests are not accurate, some people with lyme and all possible coinfections usually do a challenge test by taking some medicines (usually herbs or supplements) and watching their reactions.

These can be positive (improvement) or negative (worsening, overreaction etc).

Which symptoms will react to what is hard to know beforehand.

If you read the list of symptoms of lyme, you'll see that it goes by dozens, if not hundreds of symptoms!

They overlap most known diseases in the planet.

So how can you define what is lyme and what is not? It's hard.

I find the challenge test with herbs or supplements (or even drugs) a good way of knowing about what is happening inside my body.

A simple example: you take Vit D3 in winter and catch less colds. That could be an indication of lack of Vit D3 in winter, right?

It's not a final answer saying 'you had Vit D3 deficiency', but who cares? I don't care, really, as long as I feel better and catch less colds!!smile

Of course, you could do then a blood test to find out whether your levels of Vit D are good or not.

but it is not that simple with Borreliosis, because of lack of final definitive tests.


You take a whole set of herbs designed to improve Borreliosis symptoms and even kill the bacteria. If you feel clearly better after a few weeks, it means you would possibly have had lyme!

If you react with herxheimer reactions, that is another way to find out.

This looks more like cooking, not science, I agree. smile

But that is what we most do, because of lack of clear diagnosis, and because there is no single-protocol-healing-all in lyme.

I hope you don't get a headache with all this information.

Even if it's not lyme, I recommend some type of energy testing, biofeedback, whatever stuff in that sense... It cannot harm you.

I started using biofeedback basically for lyme, and the reason I endorse it is because I got better (100% symptomless) with the help of it.

Post Edited (Jinna) : 7/11/2017 5:23:33 AM (GMT-6)


GuyWithVs
New Member


Date Joined Jul 2017
Total Posts : 6
   Posted 7/12/2017 2:55 AM (GMT -6)   
Jinna: i really appreciate the long answer. So youre saying i should visit one of those practitioners instead of going to an LLMD?

But how do i know if i have lyme disease if i dont have a diagnosis? Can these practitioners diagnose me with lyme or am i just supposed to go there and tell them i think i might have lyme or maybe even just tell them about my symptoms and let them do the rest?

And what exactly is Dr. K method?

Regarding the energy testing and biofeedback; will the practitioner know what to do when i go to one or do i have to say myself i want to do the biofeedback or engery testing?

Thanks for reading.

Post Edited (GuyWithVs) : 7/12/2017 2:58:21 AM (GMT-6)


Jinna
Regular Member


Date Joined May 2017
Total Posts : 338
   Posted 7/13/2017 5:59 AM (GMT -6)   
Do you have a physician to prescribe you the Elisa + Westernblot tests?

Ask him, who knows he'll do it?!

I see you are more comfortable with blood tests....

You may post your bands here, when the test is done, even if it comes negative.

Diagnosis of Borreliosis by SSI guidelines = positive Westernblot test.

Treatment: short term antibiotics .

That is what most German physicians will do.


The kinesiology practitioners cannot diagnose you for anything.

They can only see if your body reacts to Borrelia and coinfections frequencies.

It's NOT a definitive diagnosis.


Example:
I had a positive Westernblot after an infected tick bite. I had barely any lyme symptoms then.

A couple of months later, when I started to feel ill, I did a second Westernblot: it came borderline, not positive, not negative.

I changed doctors (went to Zurich), and he did another Westernblot: it came negative, but my symptoms were at highest levels then.

I got no treatment from any of these Westernblot exams, because all doctors said I was not ill with lyme.

But we can see I had contact with Borrelia, because of some positive bands.


There is no test that will tell you accurately with 100% certainty that you have lyme disease. Not even a positive Westernblot, because you can have positive Westernblot and present no lyme symptom.

Or a negative Westernblot and with loads of lyme symptoms that improve with antibiotic therapies.

Post Edited (Jinna) : 7/13/2017 6:02:32 AM (GMT-6)


Jinna
Regular Member


Date Joined May 2017
Total Posts : 338
   Posted 7/13/2017 6:07 AM (GMT -6)   
http://www.lymenet.org/BurrGuide200810.pdf

You'll find information about diagnosing lyme disease here. And info about the Westernblot too.

GuyWithVs
New Member


Date Joined Jul 2017
Total Posts : 6
   Posted 7/14/2017 2:34 AM (GMT -6)   
Ok, thank you very much

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4225
   Posted 7/14/2017 3:04 AM (GMT -6)   
Jinna has very good advice . Twitching is a sign of magnesium deficiency or nerve damage . My visual snow is gone through treating bartonella and toxoplasmosis. Have you ever had cats?
I used rife,bvt,herbs and antibiotics .
the best way to confirm lyme or other bacteria protozoa is through the microscope

GuyWithVs
New Member


Date Joined Jul 2017
Total Posts : 6
   Posted 7/17/2017 2:28 AM (GMT -6)   
bluelyme: No i have never had cats, however i did get scratched by a cat 2 times or so i think when i was younger.
Did you use rive, bvt, herbs and antibiotics to determine if you had lyme or to treat lyme? And what exactly is rife and bvt?
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, July 23, 2017 2:47 AM (GMT -6)
There are a total of 2,844,265 posts in 312,117 threads.
View Active Threads


Who's Online
This forum has 154000 registered members. Please welcome our newest member, sarah4god83.
260 Guest(s), 1 Registered Member(s) are currently online.  Details
Todd1963


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer