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newuser22
Regular Member


Date Joined Jun 2017
Total Posts : 38
   Posted 7/17/2017 9:23 AM (GMT -6)   
My test result for CMV, HHV and Mycoplasma came back positive.
CD57 is 180.

How bad is that? Concerning? Easy to difficult to treat these three?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 25387
   Posted 7/17/2017 10:13 AM (GMT -6)   
The mycoplasma is often treated during lyme treatment.

The CMV and HHV are viruses. I think it depends on how 'high' the numbers are - whether or not they are treated with anti-virals.
I think we test positive for HHV even once we are treated...but it is dormant.


Don't worry - many of us have those. My LLND didn't even test me for them....
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 7/17/2017 10:30:02 AM (GMT-6)


Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5480
   Posted 7/17/2017 10:23 AM (GMT -6)   
Hi newuser -

I agree w/ Girlie's comments. Do you know much about viral symptoms? Having high titers or reactivated viruses (that many if not most people carry in their bodies) can really overwhelm the immune system, overlap with other Lyme & Co symptoms, and interfere with successful treatment so if you are symptomatic I would talk w/ your MD about antivirals ASAP. Always protect your liver while you are on them.

CD57 is becoming somewhat less specific and useful as a tool for understanding immune function. MDs once thought an optimal CD57 level is 200 but there is a lot of confusion about what the levels really mean. They are showing up too low for people who don't appear to have immune challenges, and too high in people who are really ill and struggling.

One MD actually measured CD57 in his patients multiple times a day over a period of time and the measurements were all over the map - varying significantly even within a 24-hr period.

In my personal experience, my CD57 level was 34 right before I started treatment, 47 a year later and 53 a year after that - and I had improved drastically in that period of time.

Despite all the confusion, some insurance companies are still wanting MDs to have CD57 measured and low numbers can sometimes be supportive of a Lyme diagnosis. So in that respect, they can be quite helpful in getting a diagnosis and getting treatment approved. However, I'm not sure that your level would qualify as 'low'.

Hope that is helpful -

-p

newuser22
Regular Member


Date Joined Jun 2017
Total Posts : 38
   Posted 7/17/2017 11:39 AM (GMT -6)   
Thank you both.

I can't tell from symptoms. May be some CMV, HHV category - burning after urination, ejaculation, bladder issues/UTI kind. Surely liver, kidney area pain.
The IgG numbers are very high, 4 to 25 fold of the limit.

I have an appointment coming up with LLND, I will discuss this with her.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8672
   Posted 7/17/2017 11:59 AM (GMT -6)   
I have always wondered why there was not more discussion on the co infection called mycoplasma. It is a bugger. I had a horrible cough from it. It was the mycoplasma pn and resided in my lungs. Looking back, I also wonder if it was not the reason for my bladder and kidney pains. Oh well, who knows.

I did Cordyceps for mycoplasma, but I was also on Buhner's core protocol for lyme. I just had to add in that one herb to get mine under control.

Here is what Buhner says on his website regarding mycoplasma:

The mycoplasma protocol, in its depth, is long. Primarily because the organism scavenges so many nutrients from the body in order to survive. The protocol is altered depending on what part of the body is primarily infected and also the symptom picture. In general Chinese skullcap, cordyceps, isatis, houttuynia and sida acuta will take care of most of the problems but that is just a shorthand for the whole thing, which will be out in the book in April of 2013 from Inner Traditions. As an example: if it is in the urinary tract bidens and uva ursi need to be used; in the cervix, a berberine plant; in the lungs, a combination of lung antimicrobials – all these in addition to the basic protocol. And yes, the herbal protocol will, in general, treat all the different species that exist.
Stephen

____________

Good Article

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 25387
   Posted 7/17/2017 4:27 PM (GMT -6)   
PeteZa - I think there isn't a lot of discussion on mycoplasma - because it is taken care with the same antibiotics that the other infections need. From what I have read - the LLMD's don't generally focus on the Mycoplasma.

Even herbally, there are some overlaps - Istatis, Houttuynia, sida acuta and Cordyceps are also for bart.
(and sida is for babs)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4378
   Posted 7/17/2017 11:44 PM (GMT -6)   
some forms of myco can be real doozies. according to one als lyme warrior they need be adressed dependent on species .(he did 3 years of floroquinalones and tetracyclines to stop the muscle wasting ). some are affected by zithromax but some require hd treatment . garth nicolsons work on m.fermantans incognitus (weaponized myco) and gulf war syndrome is fascinating and frightful. fortunatly my hd bart treatment and rife seemed to get mine under wraps

here is a thread with a list and their antibiotic suceptabilityflash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=127208;p=0#000006 lymenut never works here but if you search mycoplasma results ? 2013 it should come up

bad news is simian viruses are intercellular and life long some are linked to cancer .good news is viruses are usually held in check by immune sx and your appears to be working still(cd57to make some
jealous) . if later you have shingles or out breaks i found lysine and bee venom to handle them quite easily

here is that post in the thread
Don't ignore Mycoplasma. It needs to be treated just like lyme does and can become a chronic infection. One difference about mycoplasma is that to correctly treat it, it needs to be species typed. There are at least 4 pathogenic species: fermentans, pneumoniae, hominis and penetrans and the best antibiotics vary by species. They are very susceptible to floroquinlones.

Mycoplasma pneumoniae
Azithromycin (Zithromax)
Clarithromycin (Biaxin)
Erythromycin
Doxy, Mino, or Tetracycline

Mycoplasma fermentans
Gemifloxacin (Factive)
Clindamycin (Cleocin)
Levofloxacin (Levaquin)
Ciprofloxacin (Cipro)

Mycoplasma hominis
Gemifloxacin (Factive)
Moxifloxacin (Avelox)
Clindamycin (Cleocin)
Levofloxacin (Levaquin)

Mycoplasma penetrans
Levofloxacin (Levaquin)
Clarithromycin (Biaxin)
Azithromycin (Zithromax)
Doxy, Minocycline or Tetracycline

Note that Mycoplasma fermentans is highly resistant to Biaxin and Zithromax.

Hope this helps. It took me many years to be successfully treated for mycoplasma.

Post Edited (bluelyme) : 7/17/2017 11:48:40 PM (GMT-6)


newuser22
Regular Member


Date Joined Jun 2017
Total Posts : 38
   Posted 7/18/2017 10:54 AM (GMT -6)   
Thank you bluelyme for the wealth of info.

I am at the beginning phase of my Lyme war, still assessing the threat plane. These are good notes for planning.
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