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Milocat
Regular Member


Date Joined May 2017
Total Posts : 36
   Posted 8/7/2017 7:22 PM (GMT -6)   
I managed to get a bad case of c diff, I have a 10 day course of flagyl on hand that I'm taking and I'm taking probiotics in between. Anyone have any advice on how to recover from this? I feel really terrible, I've had it for almost a week and I don't want to miss too much work!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 24592
   Posted 8/7/2017 9:02 PM (GMT -6)   
Sorry, milocat !


i'm assuming you were on antibiotics prior to this?


I don't have any advice - but found this thread - may be of some help to you:

www.healingwell.com/community/default.aspx?f=30&m=3254505
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8472
   Posted 8/7/2017 9:11 PM (GMT -6)   
Oh my gosh this is not good news at all!

So you don't spread the disease, you need to close the toilet before you flush it. It has been proven that can spread the bacteria.

I have only known 2 people with C diff and one did the drugs for it and the other opted for fecal transplants. Both healed.

Make sure you stop all antibiotics now.

Load up on good probiotics.

This is from Dr. Axe's website --

If you’re looking for ways to get more natural antibiotics in your diet to fight off C diff then you’ve come to the right place. Here are some of the top natural bacteria killers you may want to consider when trying fight off invaders like C diff naturally:

Manuka honey: Not only has Manuka honey been shown to be a really powerful antibacterial agent, research has also shown its ability to reduce inflammation in the colon.

Raw garlic: Garlic inherently has antimicrobial, antiviral and antifungal properties. For general health promotion for adults, the WHO actually recommends incorporating garlic into your life on a daily basis in one of the following forms: two to five grams (about one clove) of fresh garlic; 0.4 to 1.2 grams of dried garlic powder; two to five milligrams of garlic oil; 300 to 1,000 milligrams of garlic extract; or other formulations that are equal to two to five milligrams of allicin. Onions are also great too.

Oil of Oregano: Research has shown that the oregano essential oil “may be an effective treatment against dangerous, and sometimes drug-resistant bacteria.” Oregano Oil is extremely strong so it is best used under the guidance of a natural health expert. Personally, I take it internally for a maximum of two weeks because it’s so strong. When taken internally, oregano oil always needs to be diluted with water or mixed with coconut oil. You can also incorporate dried and fresh oregano herb into your diet.
____________

Good Article

Milocat
Regular Member


Date Joined May 2017
Total Posts : 36
   Posted 8/8/2017 10:31 AM (GMT -6)   
Thanks for the replies. Yes I was on ceftin for a few months and have also been taking a ton of herbs. I stopped taking probiotics which is what did me in I believe. I have some allicin at home so I will add that. The flagyl doesn't seem to be working so I am going to urgent care to see if I can get a different rx.

The Dude Abides
Regular Member


Date Joined May 2017
Total Posts : 226
   Posted 8/8/2017 11:31 AM (GMT -6)   
Milocat:

For what it's worth, another user in a different thread highly recommended the following liquid probiotic:

/www.miessence.com/shop/en/product/15301/fasttract-gluten-free-probiotic-liquid

If you Google it, you can find it a little cheaper elsewhere, if you're interested in trying a different probiotic.

I'm sorry you're feeling so terrible and hope you recover soon.

Sincerely,
The Dude

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 24592
   Posted 8/8/2017 11:35 AM (GMT -6)   
Ceftin ?

That is the only antibiotic I've taken that cause me to have loose bowel movements. That was after a few months (4?) on it. It resolved after stopping it...but it took a month or so.

I'm wondering if that has a higher risk for C Difficile.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 864
   Posted 8/8/2017 1:46 PM (GMT -6)   
many cdiff strains are now no longer responding to metronidazole. you need iv vancomycin. hurray. this will nuke both cdiff and lyme for u, it is the best single lyme abx to date.

the bad news is u need to be hospitalized to get it.

next time take probiotics with saccharomyces boulardii , this will keep your cdiff in check.

summer16
Veteran Member


Date Joined Jul 2012
Total Posts : 1229
   Posted 8/8/2017 9:50 PM (GMT -6)   
I, too, had c-dif. Flagyl worked in a few days. Hopefully, yours will resolve soon. Do you see any improvement at all?

Patty

Milocat
Regular Member


Date Joined May 2017
Total Posts : 36
   Posted 8/9/2017 2:39 PM (GMT -6)   
Thanks for the replies everyone. I didn't notice any problems while I was on Ceftin but I have heard that before. I am feeling a tiny bit better so I hope I continue to improve. I wouldn't wish this on my worst enemy, take your probiotics kids!!

mcspike
Regular Member


Date Joined Sep 2016
Total Posts : 141
   Posted 8/9/2017 2:46 PM (GMT -6)   
I was curious...HOW do you know its C.diff? Did you submit as stool sample?

Milocat
Regular Member


Date Joined May 2017
Total Posts : 36
   Posted 8/9/2017 3:52 PM (GMT -6)   
These symptoms made me suspect c diff: completely liquid diarrhea with a foul odor, cramping, and nausea for over 5 days. Based on those symptoms and my previous long term antibiotic use, my doctor ordered stool samples for verification (takes a few days to get the results) and prescribed flagyl.

summer16
Veteran Member


Date Joined Jul 2012
Total Posts : 1229
   Posted 8/9/2017 5:09 PM (GMT -6)   
I had diarrhea with blood and mucous up to 15 times a day. I knew something was drastically wrong.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 24592
   Posted 8/9/2017 5:34 PM (GMT -6)   
Gosh - that sounds horrible. Hope it gets better soon, Milocat.


What I have read is that you can test positive for C-difficile but unless you have the diarrhea then it's not treated.

But, who would test for it unless you had symptoms, anyway, right?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Evanston1
Regular Member


Date Joined Jan 2017
Total Posts : 164
   Posted 8/10/2017 8:09 PM (GMT -6)   
I am ssooooo sorry you are dealing with c diff!! Its the WORST!!!!! And unless you have had it, no one can fully understand how awful it is. I had it in February but I didn't realize it at the time. I thought it was a side effect from antibiotics so I was trying to push through. I was officially diagnosed in April and had to stop all antibiotics. I was on two rounds of Flagyl and that did nothing except make me feel like I was dying. Literally. It temporarily stopped the diarrhea , but it resumed once I stopped the medication. So then I was put on a very long course of vancomycin. And during that long course, I consulted with a couple different GI specialists and found one who would do a fecal transplant if I failed the vancomycin. The good news is that the vancomycin took care of the c diff. The bad news is that c diff can be kind of like lyme. Once you have it, it sort of always is hanging out in you and can overpopulate your good gut bacteria should the environment be right for it. The c diff spores never completely die and disappear from the vancomycin. The vancomycin kills the active infection only.

There have been a few things that have helped me: 1. Find yourself a GOOD GI doctor who you like and trust.... even if that means you get a few different opinions. You want someone on board who can help and knows your story if the - - - - hits the fan (no pun intended). 2. Start taking two Florastor three times a day. 3. Get another very strong probiotic like VSL3 and take that twice a day. 3. Depending on how desperate you are, you could also do a probiotic enema. This is fantastic for repopulating the colon with good bacteria. 4. Get glutamine and take 5 grams daily. Helps soothe the lining of the gut. 5. Consider taking colostrum. Sounds gross, but can help strengthen and repair your stomach. C diff destroys your insides. 6. Digestive enzymes before meals. 7. Make sure you are getting enough short chain fatty acids in your diet.

Fortunately and unfortunately, I feel like I have become a "c diff expert" because of my own trials and tribulations with it. Email me any other questions you might have. You WILL get better though. I promise!!!!

Milocat
Regular Member


Date Joined May 2017
Total Posts : 36
   Posted 8/12/2017 2:15 AM (GMT -6)   
Thank you for the kind words and invaluable advice! Omg I can't imagine having this long term. I went to the ER Wednesday because I kept throwing up my antibiotics. They prescribed me vancomycin but my insurance won't cover it and it's over $1000! I'm hoping the flagyl will be enough until I can see a gi doc. Thanks for all the great tips Evanston, they are super helpful!!

I'm having terrible nausea and cramping if I eat any food/take any pills, my anti nausea meds don't work, is this common with flagyl or is it the c diff?

Evanston1
Regular Member


Date Joined Jan 2017
Total Posts : 164
   Posted 8/12/2017 8:54 PM (GMT -6)   
I am sssooo sorry it is so terrible for you. It is the worst!!! For me, the Flagyl was an absolute nightmare. Like I previously wrote, I literally thought I was dying. It made me extremely sick. And it was hard to tell if I was feeling that sick from the c. diff, the medication, or from all of my tick infections. But as soon as I stopped the flagyl, I slowly returned back to my normal baseline of feeling crappy. I have a feeling that if you can push your doctor or his/her nurse to write an appeal letter to your insurance company saying you have c diff and that you are not tolerating the Flagyl, they will cover the vancomycin. If the insurance company knows you are so sick to the point of being hospitalized from the side effects of the flagyl, they will approve the vancomycin because $1000 for vancomycin is a lot less expensive for them vs the alternative.... you winding up in the hospital with horrible complications from c diff plus dehydration from vomiting.

I am only a few months further along than you and it is all very fresh in my mind. Happy to email privately or chat if you need a pep talk. I promise you will get through this. But it is difficult and it certainly makes treatment for your other infections tricky. But not impossible!! You WILL get better!! I promise!!! xoxo!!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 24592
   Posted 8/12/2017 10:05 PM (GMT -6)   
Evanston1 said...


I am only a few months further along than you and it is all very fresh in my mind. Happy to email privately or chat if you need a pep talk. I promise you will get through this. But it is difficult and it certainly makes treatment for your other infections tricky. But not impossible!! You WILL get better!! I promise!!! xoxo!!


This is what this community is all about - caring, understanding, and support.

Thank you Evanston for reaching out to Milocat!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 864
   Posted 8/13/2017 12:12 AM (GMT -6)   
Milocat said...
Thank you for the kind words and invaluable advice! Omg I can't imagine having this long term. I went to the ER Wednesday because I kept throwing up my antibiotics. They prescribed me vancomycin but my insurance won't cover it and it's over $1000! I'm hoping the flagyl will be enough until I can see a gi doc. Thanks for all the great tips Evanston, they are super helpful!!

I'm having terrible nausea and cramping if I eat any food/take any pills, my anti nausea meds don't work, is this common with flagyl or is it the c diff?


i told you from start you may need vanco. but they prescribed you vancomycin based on what ? positive cdiff ? have they performed liver enzymes test ? antibiotics can cause all sorts of problems, including serious liver injury which will give u nausea and u will not be able to eat stuff easily. do u feel particularily worse if u eat oily/fatty foods ?

btw while taking abx for so long, has anyone told you to test your liver function (enzymes) every 2 weeks ? it's an inexpensive test but some drs dont ask for it and their patients can get VERY SICK because of liver failure from antibiotics toxicity... the symptoms can be the ones you describe.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 24592
   Posted 8/13/2017 12:44 AM (GMT -6)   
mpost said...
Milocat said...
Thank you for the kind words and invaluable advice! Omg I can't imagine having this long term. I went to the ER Wednesday because I kept throwing up my antibiotics. They prescribed me vancomycin but my insurance won't cover it and it's over $1000! I'm hoping the flagyl will be enough until I can see a gi doc. Thanks for all the great tips Evanston, they are super helpful!!

I'm having terrible nausea and cramping if I eat any food/take any pills, my anti nausea meds don't work, is this common with flagyl or is it the c diff?


i told you from start you may need vanco. but they prescribed you vancomycin based on what ? positive cdiff ? have they performed liver enzymes test ? antibiotics can cause all sorts of problems, including serious liver injury which will give u nausea and u will not be able to eat stuff easily. do u feel particularily worse if u eat oily/fatty foods ?

btw while taking abx for so long, has anyone told you to test your liver function (enzymes) every 2 weeks ? it's an inexpensive test but some drs dont ask for it and their patients can get VERY SICK because of liver failure from antibiotics toxicity... the symptoms can be the ones you describe.


She said she's been on abx a few months- not really a long time.

I have liver function tests every 4 weeks (not two weeks) - I think that's the norm.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dmitry
Regular Member


Date Joined Feb 2017
Total Posts : 25
   Posted 8/13/2017 4:05 AM (GMT -6)   
Natural remedy(abx) to suppress c. diff:
/www.ncbi.nlm.nih.gov/pubmed/24328700
Antimicrobial effects of virgin coconut oil and its medium-chain fatty acids on Clostridium difficile.

Purrrsiankitty
Veteran Member


Date Joined Dec 2016
Total Posts : 1606
   Posted 8/13/2017 11:13 AM (GMT -6)   
Milocat, hope you recover quickly. Lots of great advice..

Evanston, yay on feeling better 😊 I know you went through hell!
Moderator, Lyme Forum

Dx May 2015 Quest pos Elisa/neg WB. Doxy only. Restest Igenix lyme pos, neg CDC, 18 +, **23-25 IND, *30 +, **31+, **34 IND, **41+, **83-93++. Retest12/16 Igen 41+, 83-93+ whole blood-plasmid pos. Retest Lyme/co's. Neg co's. Suspected Bart. 7/15 start 16 mo of doxy, azith, ceftin. Finished 09/16. Cowden start 12/16 and stop April 2017 to deal with yeast and leaky gut

Evanston1
Regular Member


Date Joined Jan 2017
Total Posts : 164
   Posted 8/13/2017 5:32 PM (GMT -6)   
Purrsiankitty.... Hell is a nice way to put it smile. Hope you are doing ok!

Still dealing like most of us here are.... every day a different adventure. The c diff really messed up my plans for getting better. I am now doing things I read about early on in my infections and NEVER in a million years would have considered. But when meds are not an option, you need to look elsewhere. Herbs, rife, and ozone have been very very helpful.

herbalwhiz
New Member


Date Joined Jul 2017
Total Posts : 5
   Posted 8/13/2017 8:01 PM (GMT -6)   
I've had two bouts of C-diff and really feel for you. The best remedy for me was lots of Jarrow Saccharomyces boulardii. You can get it in almost any health food or vitamin store if you need to get your hands on some quickly. Hope this helps.

mpost
Veteran Member


Date Joined Feb 2015
Total Posts : 864
   Posted 8/14/2017 1:40 AM (GMT -6)   
you should get Saccharomyces boulardii BEFORE you develop cdiff while taking abtibiotics, to prevent the event from happening.
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