Do my symptoms suggest LD or something else?

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jordanmichael
Regular Member


Date Joined Apr 2015
Total Posts : 20
   Posted 8/12/2017 11:49 AM (GMT -6)   
I've been dealing with stomach problems, and lower back / side pain (mostly when trying to sleep). Additionally my eyes burn most of the time, and it looks like a little black spot has formed in my right eye (floater?). My neck is very stiff (especially in the morning). This has been going on for a few months now. I've had a CT of my back / abdomen as well as a colonoscopy. Everything shows normal. I can't figure out what is going on sad

Thanks in advance for the help!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26270
   Posted 8/12/2017 12:00 PM (GMT -6)   
Hi jordanmichael.


Did you ever see a LLMD and treat when you had the positive lyme test result in 2015?

I'm wondering if you've relapsed?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8896
   Posted 8/14/2017 8:32 AM (GMT -6)   

jordanmichael
Regular Member


Date Joined Apr 2015
Total Posts : 20
   Posted 8/16/2017 8:35 AM (GMT -6)   
Hey Girlie!

I did take antibiotics that my LLMD subscribed, but I'm also wondering if I relapsed.

Whatever is going on is wrecking my eyes now. They are so inflamed and I'm seeing floaters. My neck is always locked up too.

If I purposefully take a lot of Banderol / Samento to see if I herx, would that be a good experiment to see if it's linked to Lyme?

Would it be beneficial to get tested again?

I feel like I'm starting all over again.

Thanks!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26270
   Posted 8/16/2017 4:25 PM (GMT -6)   
If you've already treated an active lyme infection and got to remission...I don't know if I'd bother with testing again.
It sounds like you may have relapsed. How long did you treat for,and did you treat co-infections?
Were you symptom free when you stopped treatment?


Have you been to your LLMD since these symptoms started?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Kat1000
Regular Member


Date Joined Feb 2017
Total Posts : 466
   Posted 8/17/2017 8:38 AM (GMT -6)   
Sounds like it's worth a visit to the LLMD to get it checked out. The longer you wait, the harder it is to knock it back into remission. I've gotten neck stiffness and floaters while treating. I've not had any burning issues, but I know some people with lyme do.
Symptoms started early 2016 - possibly earlier?
pos for MTHTR single mutation
Positive Igenix IgG Jan 2017
LLMD first visit March 2017 - symptoms for borrelia, bart
March/Apr '17: doxy, Tinizadole. 5/1 samento and exchange mino for doxy. 5/28- switch mino back to doxy, added activated charcoal. 6/9 - stopped antibiox; staying with samento, red root and houttiya and supps. 7/10 added LDN

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1489
   Posted 8/17/2017 8:45 AM (GMT -6)   
Is there a difference between "relapse" and a longer "flare up"?
Positive for Lyme (Igenex), Ehrlichia (Igenex), and Mycoplasma (Labcorp)

ABX Treatment: 03/2016-04/2016
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016

07/2017: Enjoyed a good 6 months symptom free. Relapsed. Back on herbs and abx.
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