uterine fibroids

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Pirouette
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Date Joined Mar 2014
Total Posts : 5813
   Posted 10/3/2017 11:04 PM (GMT -6)   
Anyone have experience with this?

Do you have sx from them?

How were you dx?

Did you have them removed? how?

Or did you try to treat them with the oil cocktail? Did it work?

Any nuances or concerns with Lyme + co and/or tx?

Any connections with Lyme & co?

TIA

-p

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/3/2017 11:53 PM (GMT -6)   
Have you had a hormone panel done? Do you know if you have a high estrogen level?

I haven't had fibroids (not that I know of anyway) but when we had our Health Food store many years ago, a friend who was in her 50's bought some Progesterone cream for her large fibroid...because she didn't want to have surgery to remove it.
She had read that progesterone cream could help.

In her case, it did, the fibroid did shrink over time (and I think completely went away - it's a long time ago so I can't remember) She didn't have surgery and had no pain anymore.

Maybe do some research on it. I can't remember if she applied the cream on the lower abdomen...or if the location even mattered. I'm thinking location does not matter...as it just needs to get into your bloodstream?

I believe it works because estrogen dominance can be the cause of uterine fibroids...and the progesterone balances that out




www.virginiahopkinstestkits.com/fibroiddemarco.html



ETA - when I googled I did see some information that if the fibroids are of critical mass - then sometimes progesterone cream could cause them to enlarge.....

Do you know the size of the fibroids?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 10/4/2017 12:02:16 AM (GMT-6)


Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5813
   Posted 10/4/2017 12:39 AM (GMT -6)   
No - she just felt them. Having an ultrasound on Tues to determine where they are and if the location is a serious issue.

I don't know that I have sx other than the exam was painful. My progesterone was low a couple yrs ago. I didn't want to deal with any hormone creams at the time. I don't think estrogen has ever been off.

I'm not wild about surgical removal although one of the procedures seems fairly simple. She also mentioned hysterectomy. NFW. She mentioned they were generally not cancerous (which is helpful since I still don't have the biopsy back from last week) but also mentioned 3 times that you can bleed to death from them. She's pretty mainstream so I'm wondering if there are alternatives.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/4/2017 12:54 AM (GMT -6)   
So, even if the estrogen isn't really high, if your progesterone is low, then the estro dominance can be an issue.


Yah, I agree about the hysterectomy - don't want to be removing body parts if you don't have to.

Before you bled to death, I would think you would be having symptoms of low iron .
..and you have been having CBC showing what your hemoglobin level is right?


Don't you just hate having these additional 'things' to deal with...on top of lyme and co's?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Lapis_29
Regular Member


Date Joined Sep 2017
Total Posts : 287
   Posted 10/4/2017 7:34 AM (GMT -6)   
this can often be fully resolved with proper iodine supplementation

http://www.curezone.org/forums/am.asp?i=1619160

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8949
   Posted 10/4/2017 9:45 AM (GMT -6)   
Been through this. I was diagnosed with an unidentifiable mass that had metastasized to my large and small intestines.
Surgery scheduled. I was 35. 2 surgeons. One, because it was near female parts and the other to cut out the section of intestines and give me bag on the outside. The bad news would be if they did a look see and just sew me up and tell me how long I had.
Surgery done. Mass removed. They had to take out the uterus to get to the tumor. Benign and there was nothing metastasized.

Mine was all brought about by pain. It was so large it was pushing on all kinds of organs. I was beyond the point of doing progesterone cream.

This surgery caused adhesions and 5 years later I had to be scoped and lasers were used to separate the scar tissue that had bound my parts to each other and my abdomen. Lovely!

That surgery could have caused more adhesions, but I took a chance..... Doing fine.
____________

Good Article

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5813
   Posted 10/4/2017 6:36 PM (GMT -6)   
G -
Yes, I was thinking that, too. LLMD gave me Rx for a cream but it had more than just progesterone in it and I didn't want to take it. Or I was going through my "F-it" phase - can't remember. But I just didn't want to start the ball rolling on messing w/ hormone levels when only one seemed off.

Yes, CBC is normal every week. And yes, I would THINK that I would be having other sx. She could tell the uterus was enlarged before palpating and I'm not sure how she did. I do feel some pain every now and then and certainly during the exam.

But you know how it is, sometimes sx compete for our attention and you just can't deal with everything at once. But other women I've talked to, statements I've read online - suggest pretty extreme conditions (non-stop bleeding and a lot of discomfort) so I am rather surprised by this.

She also became rather insistent that 3 yrs since my last mammogram was too long (I had a benign cyst rem'd at age 30 but nothing since, my mother and her mother both had breast cancer in mid-60s and both had double mastectomies although mom's was elective. I do not have BRAC gene.) And it occurred to me the next day that she might have felt something but didn't tell me. I thought I felt something the other day. But I understood that they are requiring mammograms less now days because they are not always helpful.

And - my biopsy came back as basel cell carcinoma, as I expected. And I just can't help wonder if it's connected....

Lapis_29 -
Thank you - I was hoping someone would post some suggestions like that to give me a starting point for researching alternatives to removing organs and amputating body parts. Didn't these docs get enough experience on cadavers in school?

PeteZa -
Thanks for sharing. Ugh... well, I'm glad you're here to tell the story and that like you said - you didn't spend time agonizing about not knowing. I don't think our bodies are supposed to be invaded like that - not only by cancer and pathogens, but by scalpel-happy surgeons. I am pretty suspicious that there is more going on. But - will just have to wait and see. I really don't have noticeable sx that I can't tie to Lyme & co or tx. It's just that woman's intuition.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/4/2017 7:36 PM (GMT -6)   
P - Oh, I know too well about symptoms competing for attention ( 'pick me, pick me')

hmmm the mammogram - My last one was 2013...

I dislike adding anymore radiation to my body...I had a few X-rays, and one CT - trying to get diagnosed in 2013/2014. Also, don't like to squish them flat like that...wonder if that causes some sort of trauma to the tissue...that can't be healthy, either. (And, since my surgery...the scars are still sensitive)

I am thinking about having an MRI instead of a mammogram.
They cost $875 - but would I need two? One for each of the girls? or two for the price of one?

I had looked into thermography...but not sure if its reliable.

I did ask my Dr. if the mri's are as good as the mammograms for breast screening. She said that she knew one woman who had a lump show up on a mammogram...and she chose to have an mri after that...and they saw a second one. (as well as the first one).
That was the only experience my Dr. had with mri's vs. mammograms.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

ccc-better
Regular Member


Date Joined Mar 2017
Total Posts : 39
   Posted 10/5/2017 3:36 AM (GMT -6)   
You might not need surgery.

There is another procedure called uterine arterial embolisation. You need to have the right kind of fibroid for it to work (it needs a good blood supply).

It has the advantage of not removing body parts, not putting you under a general anaesthetic, and not having a long recovery period. The risk of infection is also much lower because the only incision is a small entry wound into an artery in your groin.

The downside is that, in Australia, it is available only through a private hospital, and you need an expensive MRI beforehand.

I'd strongly encourage you to find someone who can at least assess whether or not the fibroid you have is suitable.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/5/2017 11:32 AM (GMT -6)   
ccc-better - what are the risks with that procedure?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5813
   Posted 10/5/2017 8:35 PM (GMT -6)   
thanks ccc - I will find out more at the ultrasound on Tues. I don't like the gyn I saw. So I'll get the results of the ultrasound and find someone for a 2nd opinion.

Girlie -
I agree about the thermography, especially for dense, pre-menopausal breasts. If it suggests I need more investigation, I'll look into getting an MRI. There is a popular thermography place about 45 min from me so I feel fortunate.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

ccc-better
Regular Member


Date Joined Mar 2017
Total Posts : 39
   Posted 10/6/2017 8:51 PM (GMT -6)   
From what I can remember, it is a lower risk, cheaper and faster-recovery procedure than a hysterectomy (the only option initially offered locally).

Here's some basic information from a Sydney clinic:

http://www.sydneyfibroidclinic.com.au/sfc-UFE.html

As with all procedures, find someone who does it all the time and who has a good track record. The people I saw treated only if they thought they thought the patient was 100% suitable (needs to be the right kind of fibroid).

That's one reason I chose the 5-hour each-way drive rather than someone local.
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