igenex was positive but DNAconnections was negative - please help

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jordanmichael
Regular Member


Date Joined Apr 2015
Total Posts : 20
   Posted 10/5/2017 8:07 AM (GMT -6)   
Hello!

A few years ago I had a positive igenex test and last week I had my DNA tested by DNAconnections and that came back negative.

I don't know how to get reliable answers and figure out if I actually have Lyme or not...

My eyes are on fire and I have floaters now as well...

Does anyone know of a Dr. or place that will keep digging?

Thanks so much!

Hoagie
Regular Member


Date Joined Jul 2017
Total Posts : 209
   Posted 10/5/2017 10:45 AM (GMT -6)   
If you had a positive Igenex test, I would say you have Lyme and treat for it.

Start a thread stating you are looking for an LLMD and your location and we can help you find a doctor that will treat you for Lyme.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26291
   Posted 10/5/2017 11:47 AM (GMT -6)   
jordanmichael said...
Hello!

A few years ago I had a positive igenex test and last week I had my DNA tested by DNAconnections and that came back negative.

I don't know how to get reliable answers and figure out if I actually have Lyme or not...

My eyes are on fire and I have floaters now as well...

Does anyone know of a Dr. or place that will keep digging?

Thanks so much!


So you didn't treat it at all a couple years ago? Are your symptoms the same now as they were a few years ago?

Interesting that the DNAConnexions was negative...I think that's the first I've heard of no positive.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5762
   Posted 10/5/2017 11:49 AM (GMT -6)   
Hi jordanmichael -

I agree with Hoagie - a positive IGeneX Western Blot is like the holy grail - and pretty darn accurate. A negative WB is not accurate - the system set those tests up for high false-negative rates. It can get a little confusing.

So, we normally recommend people who have a positive IGeneX WB AND symptoms, to treat - regardless of any other test results.

I had a CDC-positive IGeneX when I first started treating and took a DNAConnections test a few months ago, and it was negative across the board - for the other Co-infections I have positive tests for as well. My LLND was shocked because most of the DNAConnections tests they've administered have been pretty accurate. And I know others here have had reliable results.

The two sx you mention are also common with yeast/fungal overgrowth, which has many overlapping sx as Lyme & Co so that is something else to look into. Untreated y/f overgrowth can really interfere with treating Lyme & Co and can cause GI damage, which also can interfere with treatment and immune function. You can learn more here:

Y/FO post in the "New to Lyme?" thread:
www.healingwell.com/community/default.aspx?f=30&m=1606610&g=3644275#m3644275

Hope this is helpful -

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!
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