Sleep question

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tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 129
   Posted 10/10/2017 1:38 PM (GMT -6)   
So I have had 'episodes' of horrible insomnia that pop up out of no where! Last night was one of them! It's the falling asleep that is the problem for me. What I'm wondering is how can one no if it's the Lyme/ babesia causing it due to a herx or flare or if its hormones or if it's just ones mind? That has always puzzled me knowing what are symptoms and what are age related or other!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26428
   Posted 10/10/2017 2:03 PM (GMT -6)   
Ive been sleeping quite well for awhile now...but when I don't, it's because of the treatment.

When I'm taking the Mepron, I have some issues. I thought it was side effects, but the sleep issues are now getting better...so I am now thinking maybe I was having a Babesia herx. My two weeks 'OFF' the Mepron - the sleep would improve.

It was causing me to wake up sweating..with some anxiety...also early morning wakings.

This was a symptom before I even knew I had lyme disease.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 129
   Posted 10/10/2017 3:18 PM (GMT -6)   
Thanks Girlie! I kind of hope it's a herx...then at least I'm sleepless for a somewhat positive reason...killing bugs!! I forgot how horrible it is to lie in bed and not sleep, since sleep hasn't been an issue (although nightmares have). The worst thing for me is then I get sleep anxiety which just sets one up for disaster!!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26428
   Posted 10/10/2017 4:26 PM (GMT -6)   
It wouldn't hurt for you to try some natural sleep aids...like Valerian, L-Theanine...or melatonin.

Taking magnesium in the evening - closer to bed time may help as well.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Sheeks175
Regular Member


Date Joined May 2016
Total Posts : 154
   Posted 10/10/2017 6:24 PM (GMT -6)   
Girlie said...


It was causing me to wake up sweating..with some anxiety...also early morning wakings.

This was a symptom before I even knew I had lyme disease.


I had early morning awakening before I crashed and got full blown lyme as well. I had a period of time where I had night sweats too, but they went away. I always wondered if this was a sign of lyme before it really showed it's ugly head.

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 129
   Posted 10/10/2017 7:35 PM (GMT -6)   
I am taking so many supplements at bedtime!! Magnesium, l-theanine, gaba, taurine, hops and melatonin!! I wasn't having any issues with sleep for a good long stretch so I'm really hoping this isn't going to stick around! I forgot how awful it is not to sleep!!

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3704
   Posted 10/10/2017 7:53 PM (GMT -6)   
This all messes up out thyroid too. Not all, but many, and some dont know it. Low thyroid also makes insomnia.
Ended ABX for Lyme in 2015. Rebuilding / repairing / fine tuning since then. What an adventure this has been.

BabsBunny
Regular Member


Date Joined Mar 2017
Total Posts : 302
   Posted 10/10/2017 9:18 PM (GMT -6)   
I will have periods of about 3 weeks where I don’t sleep well (having one right now). It finally goes away, but will return in a few months. Remedies do nothing for me- magnesium, melatonin, valerian... nothing. Benedryl helped a bit, but I don’t want to take that long term. However with ragweed season upon us, it’s welcome.
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 129
   Posted 10/10/2017 10:42 PM (GMT -6)   
I'm taking so many supplements in the evening: gaba, l-theanine,magnesium, taurine, lemon balm and melatonin!! I was sleeping ok for the last few months (except for intense dreams or nightmares) so I'm really hoping it's not going to be another stretch like I've had in the past,ugh!

Kat1000
Regular Member


Date Joined Feb 2017
Total Posts : 469
   Posted 10/11/2017 8:36 AM (GMT -6)   
I started using a diffuser at night with either lavender or serenity essential oil drops, and I'm sleeping so much better! I read taking serenity capsules helps too, but I'm tired of all the pills so was happy this helped me. Maybe worth a try?
pos for MTHTR single mutation; Positive Igenix IgG Jan 2017
March/Apr '17: doxy, Tinizadole. 5/1 samento and exchange mino for doxy. 5/28- switch mino back to doxy, added activated charcoal. 6/9 - stopped antibiox; staying with samento, red root and houttiya and supps. 7/10 added LDN; 8/24 rifampin, samento, red root and supps

cNickChick
New Member


Date Joined Oct 2017
Total Posts : 10
   Posted 10/11/2017 9:43 AM (GMT -6)   
Depending on how comfortable you are with the meds ... my LLMD has me doing ambien every night (which I feel fine about and not dependent on, just as long as she keeps okaying it and monitoring me). This is to fall asleep, and it's certainly not as effective as it is when you haven't taken it in a while; it can take me several hours to fall asleep still, but I *do* fall asleep by 3 or 4am, which I can't always say without ambien. I've also added low-dose Naltrexone to help me stay asleep. Without it, I will only be able to stay asleep for about 2-3 hours. Don't know if these are the right options for you, and very med-heavy, but that's my experience, fwiw

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 129
   Posted 10/12/2017 7:43 AM (GMT -6)   
Sorry I seem to have posted twice about my supplements...sleeplessness does that to one I guess! Thanks for all the different advice, I do have some sleep aids that I'm not sure I want to start, one is amitryptiline (I got it for headaches but was told it helps with insomnia too) I also have Ativan but I'd prefer not to get hooked on something since when I finally start sleeping I sleep just fine!! I'm like you Babsbunny I will all of a sudden have weeks of insomnia and then it finally goes away, but it is constantly a fear of when it's going to come back which certainly doesn't help with sleep! I have a horrible yeast infection that I can't get rid of since starting amoxicillin, so I'm not sure if that is part of the problem, but it is so hard functioning on just a few hours of restless sleep! I feel extra irritable with my kids and I find since starting malarone months ago I'm pretty irritable anyway!

BabsBunny
Regular Member


Date Joined Mar 2017
Total Posts : 302
   Posted 10/12/2017 6:11 PM (GMT 0)   
I seem to be sleeping better faster as treatment continues. I take all my supplemts with B vitamins by lunchtime- nothing in the evening. I’ll take Magnesium (L-threonate, “Neuro-mag”) and 1-2 mg of melatonin an hour or two before I want to go to bed. Waking up earlier, no matter how tired, can help too- sleeping in is too tempting and disrupts the cycle.

I do not drink any coffee at all, not any caffeine. I’ve become super sensitive to it. Also no sugars in the evening, not even fruit.

I used to have Ativan for anxiety and depression, and since getting off antidepressants, I’ve become super sensitive to them as well. Last time I took an Ativan I was a frozen spaced out zombie all day and said never again. I would much rather take a benedryl than an rx brain drug.

I know it’s said too much, but positive attitude can help- I say that only because I’m at a point in treatment where it’s now possible to start controlling my thoughts. I know early in, it wasn’t really in my power. My mind is clearing slowly now. So I think of many positive things as I go to bed and end the day on a less stressed and happy note- it’s good for the body and brain to de-stress.

I have to wear ear plugs every night, and sometimes an eye mask. Thinking of getting heavier curtains to block the street lamps.

All that said... I went almost a month with insomnia, even taking those steps. Just had to keep treating, get through it, and it resolves itself.
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 129
   Posted 10/12/2017 3:05 PM (GMT -6)   
I so hope this will resolve soon! I can't even fall asleep for a nap! I feel so horrible! Sleep is so important to function, so I am just not functioning! I did start to increase my malarone slowly, wonder if that has anything to do with it. Also having a yeast infection that I can't seem to get rid of is not helpful either! I so agree with the positive thoughts, but it is soooo hard to have positive thoughts when your so darn tired and miserable!!

BabsBunny
Regular Member


Date Joined Mar 2017
Total Posts : 302
   Posted 10/13/2017 2:37 AM (GMT 0)   
Yes, I remember being so exhausted and needing to rest but not actually falling asleep for a nap.
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*
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