Why am I getting the same problem with each abx?

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kml1997
Regular Member


Date Joined May 2017
Total Posts : 100
   Posted 10/11/2017 9:05 PM (GMT -6)   
My LLMD has prescribed me Ceftin to take 2x daily. I started about one week ago. The eye and head pressure is so much worse while on this abx. I also don't get tired throughout any point of the day.. just eye heaviness. Along with ceftin, I take a probiotic, glutathione, and drink plenty of lemon water to detox.

I remember at the end of the Zithro I was on months ago, I experienced this pressure too.

Is this a herx? If not, then what is it????

My eye/head pressure is a lot better off of abx, but it's still there. It's driving me crazy.. I feel like I'm getting worse again like I was when I was first diagnosed... like a zombie


[Symptoms began Aug. 2016. Diagnosed Jan. 2017. Doxy from Jan. to May. Zithro June to July. Tested negative for co-infections, but LLMD suspected Babesia. Mepron for 2 weeks (w/ Zithro), got bad heart palps, so stopped Mepron. Stopped Zithro shortly after when PVC's continued. 2 month abx break. Currently on Ceftin 1 week]

Lapis_29
Regular Member


Date Joined Sep 2017
Total Posts : 275
   Posted 10/11/2017 9:13 PM (GMT -6)   
get checked for IH

http://www.healingwell.com/community/default.aspx?f=30&m=3917627

I have had great luck treating these symptoms with DMSO

Acetazolamide or Topiramate is standard treatment

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 1936
   Posted 10/11/2017 9:48 PM (GMT -6)   
Are you sure it's not yeast related?

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5813
   Posted 10/11/2017 10:11 PM (GMT -6)   
Hi kml1997 -

I responded to your other IV thread. I also suspect you might have yeast/fungal overgrowth and the abx is exacerbating it. Normally, the Nystatin would produce die off sx that you would probably notice unless the dose is too small, which I explain.

You might do better on herbal antimicrobials so that is something to look into - many of us here take them and there are many to choose from.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

kml1997
Regular Member


Date Joined May 2017
Total Posts : 100
   Posted 10/12/2017 6:04 PM (GMT -6)   
I have no clue. My LLMD believes abx are the best way to treat. He never mentions yeast to me.
That could be a possibility
1000Daisies said...
Are you sure it's not yeast related?

sebreg
Veteran Member


Date Joined Jun 2015
Total Posts : 773
   Posted 10/12/2017 6:12 PM (GMT -6)   
could be the abx are causing a herx response, especially if this is already a baseline symptom and meds are exacerbating that. If it is too much could look at trying an herbal protocol where you can really manage the doses to find a sweetspot that doesn't overwhelm your body. Or talk to your doctor and see if you can ease your way into the abx, starting with smaller doses or pulse dosing?

kml1997
Regular Member


Date Joined May 2017
Total Posts : 100
   Posted 10/12/2017 6:13 PM (GMT -6)   
Hi! Thank you so much for all this info you've been sharing. I do feel like yeast could be the culprit, so do you feel I should pause the abx for now and start slowly upping my Nystatin intake? Then take it from there?
Pirouette said...
Hi kml1997 -

I responded to your other IV thread. I also suspect you might have yeast/fungal overgrowth and the abx is exacerbating it. Normally, the Nystatin would produce die off sx that you would probably notice unless the dose is too small, which I explain.

You might do better on herbal antimicrobials so that is something to look into - many of us here take them and there are many to choose from.

-p

Lapis_29
Regular Member


Date Joined Sep 2017
Total Posts : 275
   Posted 10/12/2017 8:10 PM (GMT -6)   
kml1997 said...
Hi! Thank you so much for all this info you've been sharing. I do feel like yeast could be the culprit, so do you feel I should pause the abx for now and start slowly upping my Nystatin intake? Then take it from there?
Pirouette said...
Hi kml1997 -

I responded to your other IV thread. I also suspect you might have yeast/fungal overgrowth and the abx is exacerbating it. Normally, the Nystatin would produce die off sx that you would probably notice unless the dose is too small, which I explain.

You might do better on herbal antimicrobials so that is something to look into - many of us here take them and there are many to choose from.

-p


you really need to be screened for IH, in my opinion.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26428
   Posted 10/12/2017 8:21 PM (GMT -6)   
I'm wondering if your head pressure is Babesia.


I had it fairly mild first couple years of treatment - waxed and waned.

Then when I went on Mepron - it peaked about 4 or 5 months in....felt like my eyes were going to pop out of their sockets...my head was horrible.

Since then (at 7 months now), it's improved greatly...barely there now on the off weeks...and even on the 'on' weeks, it's so much better.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

kml1997
Regular Member


Date Joined May 2017
Total Posts : 100
   Posted 10/12/2017 8:47 PM (GMT -6)   
It could be. I was only on Mepron for two weeks back in June. It gave me PVC's so I stopped. So you are still on Mepron then? Do you think if I continue the Ceftin I will eventually feel less head and eye pressure?
Girlie said...
I'm wondering if your head pressure is Babesia.


I had it fairly mild first couple years of treatment - waxed and waned.

Then when I went on Mepron - it peaked about 4 or 5 months in....felt like my eyes were going to pop out of their sockets...my head was horrible.

Since then (at 7 months now), it's improved greatly...barely there now on the off weeks...and even on the 'on' weeks, it's so much better.

kml1997
Regular Member


Date Joined May 2017
Total Posts : 100
   Posted 10/12/2017 8:52 PM (GMT -6)   
I will consider it. Does IV abx treat IH? Also, I am extremely sensitive to caffeine and sugar with Lyme (never had a problem before this all). Both of which leave me super dizzy and cause severe dizzy spells/panic attacks following with a terrible migraine and lots of sinus and eye pressure. Does this go hand in hand with IH? Or yeast overgrowth? I'm trying to connect the dots whether my eye and head pressure is caused by yeast or the Lyme itself???
Lapis_29 said...
kml1997 said...
Hi! Thank you so much for all this info you've been sharing. I do feel like yeast could be the culprit, so do you feel I should pause the abx for now and start slowly upping my Nystatin intake? Then take it from there?
Pirouette said...
Hi kml1997 -

I responded to your other IV thread. I also suspect you might have yeast/fungal overgrowth and the abx is exacerbating it. Normally, the Nystatin would produce die off sx that you would probably notice unless the dose is too small, which I explain.

You might do better on herbal antimicrobials so that is something to look into - many of us here take them and there are many to choose from.

-p


you really need to be screened for IH, in my opinion.

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5813
   Posted 10/12/2017 9:08 PM (GMT -6)   
kml1997 -

OK, based on your last post above, I'm really leaning toward yeast/fungal overgrowth - (sensitive to sugar, super dizzy, panic attacks, migraine, sinus/eye pressure). So, yes, might be a good time to pause abx and get the y/f overgrowth taken care of.

If I didn't say it before, you'll need to eliminate ALL sugars, fruits, and simple carbs for at least a few months - not forever. No antifungal tx will work if you continue to eat the fuel for yeast/fungus.

You should know pretty soon if increasing Nystatin either reduces or increases sx. Either is a pretty good indication you're on the right track. And, it's something you can do right now, fairly straightforwardly, without getting another diagnosis and testing and meds.

I'd try as hard as you can to push to higher doses of Nystatin. It's not likely but it is possible that your strain of yeast/fungus could be resistant to the Nystatin, if you were taking low doses of it. So that suggests you should switch to a different antifungal. I would try that before exporing something else.

Not to say that yeast/fungal overgrowth will solve all the problems or answer every issue but it's something that is fairly simple to solve and needs to be solved in order for ANY other tx to work. And VERY few MDs ---even Lyme specialists--- think to explore this or really understand sx or tx. It's such an obvious place to start.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5813
   Posted 10/12/2017 9:11 PM (GMT -6)   
Lapis_29 -

Do you realize that DMSO is commonly used in antifungal drugs? It has antifungal, antiviral and antibacterial properties and helps break down cell membranes, inhibits the germination of candida? smile

I am a weeeee bit suspicious of IH as another name for sx and not the underlying cause of the sx. As I mentioned, the most common forms of yeast/fungus overgrowth are misunderstood by 90% of the medical field.

-p

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5813
   Posted 10/12/2017 9:14 PM (GMT -6)   
I do like DMSO - here's a good article:

health-matrix.net/2011/03/15/dmso-the-real-miracle-solution/

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Lapis_29
Regular Member


Date Joined Sep 2017
Total Posts : 275
   Posted 10/12/2017 9:49 PM (GMT -6)   
sinus and eye pressure are signs of IH, yes. no one knows for sure what causes IH, there is more info in this thread, including how I treated mine with DMSO


http://www.healingwell.com/community/default.aspx?f=30&m=3917627


Acetazolamide or Topiramate are the common treatments

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5813
   Posted 10/12/2017 9:58 PM (GMT -6)   
Yes - thanks - I had read that thread, which was good.

I had chronic sinusitis off/on for over a decade... turned out to be caused by yeast/fungl overgrowth growing up into head from GI, which frequently happens when y/f overgrowth goes untreated. Sinus infections and pressure can be caused by several issues, including inflammation and bacterial infection as well.

I'm glad you're treating with DMSO - interested in trying it myself -someone in my family has schleroderma and I really want to talk them into trying DMSO.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

Lapis_29
Regular Member


Date Joined Sep 2017
Total Posts : 275
   Posted 10/12/2017 10:16 PM (GMT -6)   
Pirouette said...
Lapis_29 -

Do you realize that DMSO is commonly used in antifungal drugs? It has antifungal, antiviral and antibacterial properties and helps break down cell membranes, inhibits the germination of candida? smile

I am a weeeee bit suspicious of IH as another name for sx and not the underlying cause of the sx. As I mentioned, the most common forms of yeast/fungus overgrowth are misunderstood by 90% of the medical field.

-p


yeah DMSO in incredible stuff

also what is sx?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26428
   Posted 10/13/2017 12:03 AM (GMT -6)   
Lapis_29 said...
Pirouette said...
Lapis_29 -

Do you realize that DMSO is commonly used in antifungal drugs? It has antifungal, antiviral and antibacterial properties and helps break down cell membranes, inhibits the germination of candida? smile

I am a weeeee bit suspicious of IH as another name for sx and not the underlying cause of the sx. As I mentioned, the most common forms of yeast/fungus overgrowth are misunderstood by 90% of the medical field.

-p


yeah DMSO in incredible stuff

also what is sx?
sx = symptoms.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mcspike
Regular Member


Date Joined Sep 2016
Total Posts : 165
   Posted 10/13/2017 12:07 AM (GMT -6)   
What is IH?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26428
   Posted 10/13/2017 12:58 AM (GMT -6)   
mcspike said...
What is IH?


Intracranial Hypertension.

I was wondering for awhile if I had it because of the bad pressure in my head.
I was on minocycline at the time...and it can cause it.
So, I was concerned about it.

I went off the mino and substituted it with Ceftin. I still had the pressure in my head...and for a few months it ramped up...and now it's much better.
so, in my case, I'm thinking it maybe was a Babesia symptom.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26428
   Posted 10/13/2017 12:59 AM (GMT -6)   
kml1997 said...
It could be. I was only on Mepron for two weeks back in June. It gave me PVC's so I stopped. So you are still on Mepron then? Do you think if I continue the Ceftin I will eventually feel less head and eye pressure?
Girlie said...
I'm wondering if your head pressure is Babesia.


I had it fairly mild first couple years of treatment - waxed and waned.

Then when I went on Mepron - it peaked about 4 or 5 months in....felt like my eyes were going to pop out of their sockets...my head was horrible.

Since then (at 7 months now), it's improved greatly...barely there now on the off weeks...and even on the 'on' weeks, it's so much better.


Yes, I am still on Mepron...for a bit longer. I don't know if the Ceftin will help - it depends - if it's Babesia - then probably not.
But, I can't say for sure in your case if it IS Babesia. It could also be lyme causing it.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 10/13/2017 1:07:01 AM (GMT-6)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26428
   Posted 10/13/2017 1:04 AM (GMT -6)   
Lapis_29 said...
sinus and eye pressure are signs of IH, yes. no one knows for sure what causes IH, there is more info in this thread, including how I treated mine with DMSO


http://www.healingwell.com/community/default.aspx?f=30&m=3917627


Acetazolamide or Topiramate are the common treatments


There are some known causes: One being minocycline, another being Lyme disease, another babesia.

I think you should be getting the yeast/fungal issues under control as well...as Pirouette suggested.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

kml1997
Regular Member


Date Joined May 2017
Total Posts : 100
   Posted 10/13/2017 8:19 AM (GMT -6)   
It only makes sense right? When I took a break from abx in the summer my symptoms got so much better,
but I wasn't taking an antifungal during that time so I was sensitive to food. That was pretty much all of the sx I had at that point. I started carelessly eating sugar, coffee, sweets, for about 2 weeks then my body crashed.
Which is why I'm back on abx now
Pirouette said...
kml1997 -

OK, based on your last post above, I'm really leaning toward yeast/fungal overgrowth - (sensitive to sugar, super dizzy, panic attacks, migraine, sinus/eye pressure). So, yes, might be a good time to pause abx and get the y/f overgrowth taken care of.

If I didn't say it before, you'll need to eliminate ALL sugars, fruits, and simple carbs for at least a few months - not forever. No antifungal tx will work if you continue to eat the fuel for yeast/fungus.

You should know pretty soon if increasing Nystatin either reduces or increases sx. Either is a pretty good indication you're on the right track. And, it's something you can do right now, fairly straightforwardly, without getting another diagnosis and testing and meds.

I'd try as hard as you can to push to higher doses of Nystatin. It's not likely but it is possible that your strain of yeast/fungus could be resistant to the Nystatin, if you were taking low doses of it. So that suggests you should switch to a different antifungal. I would try that before exporing something else.

Not to say that yeast/fungal overgrowth will solve all the problems or answer every issue but it's something that is fairly simple to solve and needs to be solved in order for ANY other tx to work. And VERY few MDs ---even Lyme specialists--- think to explore this or really understand sx or tx. It's such an obvious place to start.

-p

kml1997
Regular Member


Date Joined May 2017
Total Posts : 100
   Posted 10/13/2017 8:23 AM (GMT -6)   
ALSO, anyone know if yeast overgrowth can cause pelvic pain and/or discomfort? Even throw off your period? I know I'm not pregnant, but I just don't feel quite right. Sort of like the discomfort I get with PMS. But this has been going on for about three weeks.

Lapis_29
Regular Member


Date Joined Sep 2017
Total Posts : 275
   Posted 10/13/2017 10:52 AM (GMT -6)   
kml1997 said...
ALSO, anyone know if yeast overgrowth can cause pelvic pain and/or discomfort? Even throw off your period? I know I'm not pregnant, but I just don't feel quite right. Sort of like the discomfort I get with PMS. But this has been going on for about three weeks.


yes, it can cause that kind of pain

I would get some oregano oil and some dmso

rub the OO topically whereever it hurts, then rub some dsmo on top of the OO. the dmso is extrememly penetrative and will take the OO deep into your body. better than taking pills.
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