Cost of Malarone!

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NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 284
   Posted 10/12/2017 6:20 AM (GMT -6)   
I got a call from Walmart and they told me my Malarone is $175 after running through insurance.

So I guess my question is this - Is it worth the $175? Especially when I don't necessarily know I have it for sure. Although I do have some symptoms like feeling off balance and I really want to get rid of that.

And my second question is - How long would i have to take it? If it is normally only take for a month or two or even three then fine. But if this is something that I have to take for 6 months or longer then it gets really expensive.

Third question - Is there any other prescription that helped anyone just as well or better that may be more affordable?
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Currently taking:
Tinidazole - 500MG 2x a day
Nystatin
Cats Claw - 20 drops 2x a day
Gou Teng - 30 drops 2x a day
Cryptolepis - 20 drops 2x a day
Japanese Knotweed - 30 drops 2x a day

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1352
   Posted 10/12/2017 6:31 AM (GMT -6)   
1. Mepron will cost even more. Have you considered Burners herbs? JK, Sida Acuta, Cryptolepsis, Cat's claw, etc. That will $$ add up too

2. Normally babs treatment is a minimum of 4 months, the life cycle of a red blood cell. But most of us have treated for much longer.

3. Mepron, Malarone, and Coartem are the go to drugs, all very expensive. Some also do well with artiminisin (sp?). Then there are Buhner's herbs covered in #1, which I just noticed you are already taking.

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1352
   Posted 10/12/2017 6:36 AM (GMT -6)   
Might I add... I was treating what my LLMD thought was a stubborn, mepron resistant strain of Babs for well over a year. Then we switched to a Bart protocol and I broke out of my 50% to 60% plateau and improved to 85%.

Go figure...

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 284
   Posted 10/12/2017 9:17 AM (GMT -6)   
tickbite666 said...
Might I add... I was treating what my LLMD thought was a stubborn, mepron resistant strain of Babs for well over a year. Then we switched to a Bart protocol and I broke out of my 50% to 60% plateau and improved to 85%.

Go figure...


Impressive! I have been on crypto for months now. I think around 4 months ago and haven't seen any improvement in my babs symptoms besides a few things like I'm not having night sweats like I used to. The off balance feeling and the brain fog, tingling, weakness and fatigue all are very much persistent, although do you think that could be from Bart or something else?

What were all the supplements you took for babs and what was your dosage? Did you see improvements quickly?
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Currently taking:
Tinidazole - 500MG 2x a day
Nystatin
Cats Claw - 20 drops 2x a day
Gou Teng - 30 drops 2x a day
Cryptolepis - 20 drops 2x a day
Japanese Knotweed - 30 drops 2x a day

Post Edited (NicHostetler) : 10/12/2017 9:20:11 AM (GMT-6)


1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 1944
   Posted 10/12/2017 9:30 AM (GMT -6)   
Honestly, that's pretty cheap compared to what I hear others have to pay. : |

Such a gamble when we don't know. I can relate to that.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Very sick now despite being treated for years, still very bad
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 284
   Posted 10/12/2017 9:35 AM (GMT -6)   
1000Daisies said...
Honestly, that's pretty cheap compared to what I hear others have to pay. : |

Such a gamble when we don't know. I can relate to that.


LOL That is what my Lyme doctor said - "cheap". Luckily I have a pretty good job, but student loans and living downtown in a city is a pretty big burden. I can certainly afford the meds, but a "gamble" is exactly what it is.

I have read stories where it completely turned some symptoms around though which is encouraging.

If anyone else has success stories with Malarone and Zithro I'd love to hear them.
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Currently taking:
Tinidazole - 500MG 2x a day
Nystatin
Cats Claw - 20 drops 2x a day
Gou Teng - 30 drops 2x a day
Cryptolepis - 20 drops 2x a day
Japanese Knotweed - 30 drops 2x a day

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1352
   Posted 10/12/2017 10:46 AM (GMT -6)   
NicH,

I started with Cat's Claw, then added Cryto, then Sida, then changed to CSA blend and added JK.

Now I take just JKplus and Hout, along with the regular supps and ABX pulse schedule of Tetra, Diflucan, and Alinia two weeks ON, and just completed my first four week OFF period. But noticed some increase in sx flares, and return of spontaneous bruising and ruptured blood vessels.

My remaining sx are very similar to yours.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/12/2017 11:40 AM (GMT -6)   
Is that $175 for the month?

That doesn't sound too bad...when i called the pharmacy about Mepron...one bottle was something outrageous like $1000.00 and it wouldn't last very long either.

It's hard to say how long you need to treat Babesia...definitely minimum 4 months, but as tickbite mentioned..many have to treat longer - even 9 -12 months in some cases...I've read.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/12/2017 11:42 AM (GMT -6)   
tickbite666 said...
Might I add... I was treating what my LLMD thought was a stubborn, mepron resistant strain of Babs for well over a year. Then we switched to a Bart protocol and I broke out of my 50% to 60% plateau and improved to 85%.

Go figure...


It's possible that you did need to treat Babesia...it could have been holding you back from healing Bart...but maybe you would have done fine with just a few months.

It's so darn difficult knowing how long to stick it out with a protocol.

I've done 9 cycles of Babesia treatment with Mepron (7 months total) - not sure if I should stop now...but am going to go another month...or two and back to bart. I don't want to stop the babs treatment short.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 284
   Posted 10/12/2017 11:57 AM (GMT -6)   
Girlie said...
Is that $175 for the month?

That doesn't sound too bad...when i called the pharmacy about Mepron...one bottle was something outrageous like $1000.00 and it wouldn't last very long either.

It's hard to say how long you need to treat Babesia...definitely minimum 4 months, but as tickbite mentioned..many have to treat longer - even 9 -12 months in some cases...I've read.


What is the difference between Mepron and Malarone? For you babesia treatment, how much are you paying for your Mepron if you don't mind me asking?

With babesia, will I know after the first month or two if I should continue treatment or if it is pointless? Like would I start seeing some positive improvements in sx after a month or so? I don't want to keep spending money on treating babesia if I don't have it. For me it is so hard to tell what I have because my symptoms are pretty broad.

Is treating Bart cheaper? Maybe I should treat that FIRST and see if my sx resolve?
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Currently taking:
Tinidazole - 500MG 2x a day
Nystatin
Cats Claw - 20 drops 2x a day
Gou Teng - 30 drops 2x a day
Cryptolepis - 20 drops 2x a day
Japanese Knotweed - 30 drops 2x a day

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/12/2017 12:02 PM (GMT -6)   
Mepron is Atovaquone in liquid form.

Malarone is atovaquone (lower dose) plus another med - Proguanil.


Well, I'm not paying anything for my Mepron...someone else paid for it. (a gift for me)

You won't necessarily know after a month...or even two months.

Hopefully you will see improvements after a couple of months...and it will be clear for you.

Babesia is the most expensive one to treat...you could try bart treatment...but some LLMD's say you won't make good progress until Babesia is taken care of.

What is your LLMD saying?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 284
   Posted 10/12/2017 12:08 PM (GMT -6)   
Girlie said...
Mepron is Atovaquone in liquid form.

Malarone is atovaquone (lower dose) plus another med - Proguanil.


Well, I'm not paying anything for my Mepron...someone else paid for it. (a gift for me)

You won't necessarily know after a month...or even two months.

Hopefully you will see improvements after a couple of months...and it will be clear for you.

Babesia is the most expensive one to treat...you could try bart treatment...but some LLMD's say you won't make good progress until Babesia is taken care of.

What is your LLMD saying?


Thank you for the advice, I do remember reading that Horowitz said babesia must be hit first.

My LLMD told my Babesia is "The easiest to treat" which is my opinion is BS. (She based it on the fact that Buhners protocol is much more simple for babs than it is for bart, which is true.) She wanted to hit both at the same time but use a form bactrum (cant remember the exact name) for the bart instead of Rifampin since that interacts with Malarone.

I said no to that because I have taken bactrum in the past for sinus infections and get very nauseated while on it.
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Currently taking:
Tinidazole - 500MG 2x a day
Nystatin
Cats Claw - 20 drops 2x a day
Gou Teng - 30 drops 2x a day
Cryptolepis - 20 drops 2x a day
Japanese Knotweed - 30 drops 2x a day

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/12/2017 12:38 PM (GMT -6)   
Well, I wouldn't say Babesia is the easiest to treat. I'd say I've had some of my worst times on this protocol.

And, even taking the yellow liquid...I have to psyche myself up now...as I want to gag.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 284
   Posted 10/12/2017 1:15 PM (GMT -6)   
Girlie said...
Well, I wouldn't say Babesia is the easiest to treat. I'd say I've had some of my worst times on this protocol.

And, even taking the yellow liquid...I have to psyche myself up now...as I want to gag.


Exactly. She also said that she thinks die off isn't bad with babs or bart. She said Lyme is by far the worst. I completely disagree with that too. I think babs can give a nasty herx. I could be wrong though..
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Currently taking:
Tinidazole - 500MG 2x a day
Nystatin
Cats Claw - 20 drops 2x a day
Gou Teng - 30 drops 2x a day
Cryptolepis - 20 drops 2x a day
Japanese Knotweed - 30 drops 2x a day

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/12/2017 1:43 PM (GMT -6)   
NicHostetler said...
Girlie said...
Well, I wouldn't say Babesia is the easiest to treat. I'd say I've had some of my worst times on this protocol.

And, even taking the yellow liquid...I have to psyche myself up now...as I want to gag.


Exactly. She also said that she thinks die off isn't bad with babs or bart. She said Lyme is by far the worst. I completely disagree with that too. I think babs can give a nasty herx. I could be wrong though..


I agree...they're all nasty herxes.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 284
   Posted 10/12/2017 1:50 PM (GMT -6)   
Girlie said...
NicHostetler said...
Girlie said...
Well, I wouldn't say Babesia is the easiest to treat. I'd say I've had some of my worst times on this protocol.

And, even taking the yellow liquid...I have to psyche myself up now...as I want to gag.


Exactly. She also said that she thinks die off isn't bad with babs or bart. She said Lyme is by far the worst. I completely disagree with that too. I think babs can give a nasty herx. I could be wrong though..


I agree...they're all nasty herxes.


My LLMD did mention that I could try getting the Malarone using GoodRX so I checked their website and they have a coupon thing to use that says $115 at my walmart for 60 tablets. That almost seems too good to be true.
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Currently taking:
Tinidazole - 500MG 2x a day
Nystatin
Cats Claw - 20 drops 2x a day
Gou Teng - 30 drops 2x a day
Cryptolepis - 20 drops 2x a day
Japanese Knotweed - 30 drops 2x a day

joee
Regular Member


Date Joined Dec 2011
Total Posts : 138
   Posted 10/12/2017 2:06 PM (GMT -6)   
I herxed the worst on mepron. I took it for 8 months...no breaks. It was rough. Very rough.

I take malarone now. It is pulsed and I feel the symtoms of babs have finally lessened. I have been on malarone for 9 months now. I did not herx nearly as bad on malarone, but since it was pulsed I did get a break which really helped me....mentally too since the herx on mepron was just not good.

There has been improvement but not done yet.

I am so fortunate in that my insurance paid for mepron with only a 10 dollar copay. For 8 months till I just couldn't take it anymore...I still have a bottle unopened left. Hoping no one in my family will ever need it before it expires.

The insurance also pays for malarone with the same 10 dollar copay.

I also take artemisinin (sp) top with the malarone. All pulsed.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/12/2017 2:35 PM (GMT -6)   
joee said...
I herxed the worst on mepron. I took it for 8 months...no breaks. It was rough. Very rough.

I take malarone now. It is pulsed and I feel the symtoms of babs have finally lessened. I have been on malarone for 9 months now. I did not herx nearly as bad on malarone, but since it was pulsed I did get a break which really helped me....mentally too since the herx on mepron was just not good.

There has been improvement but not done yet.

I am so fortunate in that my insurance paid for mepron with only a 10 dollar copay. For 8 months till I just couldn't take it anymore...I still have a bottle unopened left. Hoping no one in my family will ever need it before it expires.

The insurance also pays for malarone with the same 10 dollar copay.

I also take artemisinin (sp) top with the malarone. All pulsed.


joee - with the 8 months of mepron...did you have some improvement or only after starting the Malarone?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

joee
Regular Member


Date Joined Dec 2011
Total Posts : 138
   Posted 10/12/2017 7:28 PM (GMT -6)   
Girlie,
I am not sure if the babs improved or not. I was treating with no breaks full dosages of a antibiotics, mepron in and plaquenil. I herxed so bad everyday for 8 months I could not get off the couch or care for myself. Not even for a minute of asny of those days. My health was deteriorating quickly and several reasons my Dr referred me to Dr j in dc. He started me with 6 weeks maintenance and no babs treatment. Then we started up again on a pulse schedule. So now I'm doing better all around. I could not tell you what was causing what because I was such a hot mess.

But the Dr I see tells me babs is really my biggest problem right now. But I don't have the severity right now of the heart symptoms I was having which I assume were babesia related.

So I guess I feel improved after the new protocol. Still very much in the fight tho.

I take a much stronger dose of the marine now than what has been discussed here though.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/12/2017 7:40 PM (GMT -6)   
I know Dr. J. does treat aggressively with often 2 abx with Mepron or Malarone - but with the pulsing and the week or two off...I find it easier to tolerate than daily dosing of less meds.

That sounds horrible - 8 months straight feeling that bad.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1352
   Posted 10/13/2017 5:13 AM (GMT -6)   
Spot on Girlie on my Babs treatment. Yes, I did indeed need to treat babs and there were some improvements. But on my first round of Mepron weeks 4 thru 9 was herx hell. The second round of Mepron I treated Babs maybe way too long and should have moved on to Bart much sooner.

Hindsight is 20/20.

Loutucky
Regular Member


Date Joined Nov 2014
Total Posts : 340
   Posted 10/13/2017 6:59 AM (GMT -6)   
I have been on Malarone for 9 months and seeing some improvement in my air hunger finally but nowhere near well. I have also been off/on artemisia and coartem. Two drops of cryptolepis still cause terrible muscle pain for me.

I have lyme and bart is probably out too. Trying to treat those with Buhner herbs until I can find another doctor.

My insurance covers malarone but not mepron which would have been $1200 for 30 days.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/13/2017 12:09 PM (GMT -6)   
tickbite666 said...
Spot on Girlie on my Babs treatment. Yes, I did indeed need to treat babs and there were some improvements. But on my first round of Mepron weeks 4 thru 9 was herx hell. The second round of Mepron I treated Babs maybe way too long and should have moved on to Bart much sooner.

Hindsight is 20/20.


How are we to know, right? Don't treat long enough...we're going back to it later...if we (or the Dr.) even figure out that's what we need to do...so I'm just going to continue a while longer before switching back to bart.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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