1000Daisys- Saccharomyces Cerevisiae

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AutismMom99
New Member


Date Joined Oct 2017
Total Posts : 2
   Posted 10/12/2017 11:10 AM (GMT -6)   
Hi,

I am new to the site. I am not sure how to reach you, or anyone with Saccharomyces Cerevisiae. I can say I have been up many hours researching this stupid topic and you keep popping up. I seem to closely mimic your story of your 'yeast infection'. I have been battling mine since a first Drs dx in April. At least that was after weeks of self treatment due to no avail apts and travel. I have been through the ringer with the meds, prob like you. I argued for a culture after months of unresolved issues and feeling over all worse. Yesterday I had a call from the OB that asked if I was a baker and an insensitive question because it came back Saccharomyces Cerevisiae. Now they are stuck and admit they have never seen it and do not know what to do.

Can we chat? I do not know how I got it. What to do now etc...

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 26474
   Posted 10/12/2017 11:45 AM (GMT -6)   
Hi AutismMom99
Welcome to our community. Do you also have Lyme disease...or are you just dealing with this yeast infection?


Were you trying to reach 1000Daisies?

This is a thread where she talks about it:

www.healingwell.com/community/default.aspx?f=30&m=3780503
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 1944
   Posted 10/12/2017 9:59 PM (GMT -6)   
I'd be happy to chat about it here, even if you don't have lyme related illness.

I was beyond frustrated in figuring out that my yeast issue was s. cerevisiae, and I was even more frustrated when the doctors didn't know what to do with me.
I don't know how many of the threads you read here about my situation, but I had several posts about it.

Unfortunately, there is very little good information on how to combat this strain. As I'm sure you've come across, majority of the sites focus extensively on candida, candida, candida. Major *sigh*.

I did three weeks of diflucan (generic version) which did nothing at all for me (good or bad). I FINALLY convinced my doctor to test for the strain (took me years to figure this out!), which is how I found out it's this somewhat atypical strain. Then I had asked for a sensitivity test, which went to a well known lab here in the US and came back with pretty much partial information that was not helpful. The other (non-diflucan) medications are too problematic/side effects per my doctor, and he doesn't feel comfortable prescribing them due to the high risks associated with them. He told me to go herbally on my own. I appreciate his honesty and his help so far, but it's beyond frustrating finding a doctor who will help guide me.

I have definitely knocked this back a lot, but I don't feel I've fully resolved this at all yet. But a lot of my serious/major symptoms from the yeast have gone away or greatly minimized.

Let me know if/how I can help. I definitely do not have all the answers on this, but I've been stumbling my way through it. It's always nice to share information with somebody else who has the same type of issue too. Sorry you are going through this and struggling to get it resolved too.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Very sick now despite being treated for years, still very bad
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

AutismMom99
New Member


Date Joined Oct 2017
Total Posts : 2
   Posted 10/13/2017 8:10 AM (GMT -6)   
Hi,

First ty so much for the reply. That in itself is huge. You know how difficult it is to find anything on this. I am beyond livid how it was handled and presented to me. Very insensitive.

Did you come to a conclusion how you got it? I have been asked this and I have a timeline of events and how my body changed but no exact how.

I have done 6 months of the azole family of meds. Terconzole creams, nystain creams, diflucan daily for 2 months to go off and back on again till I stopped it. Name it. Nothing touched it. I begged for a culture. We are doing another one in a week because the Dr is stumped. I think in their minds they magically think it is wrong. I just want it to go away. My skin bounces from tender to inflamed to down right angry and cracked and sometimes bleeding. Forget any time with my husband, the pool etc... Clothing has been a challenge.

Only thing I have found that gives me relief is when I make and use Boric Acid. I use disposable applicators and put about 600mg (1/8tsp heaping till full in capsules) and put it in. The only thing I am trying to figure out is how long to use and in AM or PM to actually do long term good to rid myself of this. I went off after 3 weeks and had a great 1.5 weeks. Had intercourse with my husband for the first time in months and the next morning was flaming. I always complain mine begins as an external. No usual signs of a yeast infection at all. In fact the top part is always first to show signs and I feel like I have a UTI. I have asked to have my urine checked and they only dip stick it but nothing for yeast because they do not send it off. I am fighting with them like mad. With the external I have started using coconut oil with boric acid as a paste. Helps a lot. Same thing though. I get it under control and boom back again. I can not live on it forever.

I have a call into my regular Dr about this. Mostly because for months I have felt sick but no real issues to point at. I am normally a very active person. Hiking, out and about etc... I have gained weight and I feel like mud. I honestly feel like something is going on. I just do not know what. All we have so far is this DX and an elevated WBC.

I would like to know what you have found that works and does not. Have you found any links or something I could look into? Drs are so far no help.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 1944
   Posted 10/13/2017 9:55 AM (GMT -6)   
Here are my prior threads on this for some background information. I will also post again in regards to your questions too.

Original thread:
www.healingwell.com/community/default.aspx?f=30&m=3780503

Updated thread:
www.healingwell.com/community/default.aspx?f=30&m=3782092

Another updated thread:
www.healingwell.com/community/default.aspx?f=30&m=3785103

Thread on my "alternative" treatment options:
www.healingwell.com/community/default.aspx?f=30&m=3802560

We have a member/moderator here who is EXTREMELY knowledgable about yeast issues and has a boatload of information. There is a rather lengthy post from here on the sticky thread at top of the forum (New To Lyme). It's the last post on page 2. Definitely recommend reading it.
www.healingwell.com/community/default.aspx?f=30&m=1606610&p=2
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Very sick now despite being treated for years, still very bad
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 1944
   Posted 10/13/2017 10:06 AM (GMT -6)   
My story is kind of long, so I'll try to summarize it. I believe I've had yeast imbalance for several years now, but it wasn't causing me significant issues. Looking back, I realize that I was positive on paps for numerous years. Unfortunately, I started getting more serious symptoms of kidney pain (and thus sickness), headaches, menstrual migraines, and worsening fatigue. I finally started to putting it all together and figuring out that yeast may be the cause (no doctor ever figured this out). Then, I started pursuing self treatment, and amazingly, nearly all of my symptoms went away or greatly decreased. The kidney pain was my most concerning issue, and no doctor had any clue on what to do about it or what was causing it (all kidney labs came back good, of course). I still battle fatigue for sure, but I believe that's related to adrenal fatigue at this point due to my ongoing years of high stress.

Despite self-treating for many months and my symptoms improving, I STILL tested positive for this strain of yeast. So, I believe I have knocked it back for sure (based on decrease of symptoms), but I don't believe I have completely. It's something I really need to be careful about ongoing.

I understand about MDs not helping you. They just are not knowledgable about what to do with this type of situation, as you and I both have learned the hard way. Have you considered going to a naturopath instead? They tend to be better at these types of things.

My favorite products are probably the following (herbals):
1. Advanced Naturals YeastMax (2part kit)
2. Kyolic Formula 102 Aged Garlic (I started losing weight when I used this one)
3. Pure nystatin powder

I do need to do another cycle of going after this again.

I am a big believer in fixing from the inside out, meaning that we need to control the yeast on the inside/GI. This is where pure nystatin can come in play.

I posted these links on one of the threads mentioned above, but I think these articles make some really good points.
nutritioninstitute.com/probiotics-dont-work-for-candida/
nutritioninstitute.com/why-diflucan-does-not-cure-candida-albicans-and-what-you-should-take-instead/

Be careful on probiotics, which are highly recommended in general. One so-called good probiotic that has gained popularity over recent years is called s. boulardii. As I mentioned in some of those linked threads in previous post, this can actually cause the very specific yeast strain imbalance that we both are battling.

There is a highly recommended product called Syntol, which I tried but stopped. It also contains s. boulardii and should not be used for our strain (could exacerbate the problem). So, probiotics are very iffy for us.

Also, fermented foods/vinegar should not be used or used with extreme caution. This will be contrary to many sites, but I'm starting to find more about how these can also make our strain really flare-up. I know that raw ACV (apple cider vinegar) with the "mother" in it is also recommended for yeast, but from my experience/strain, it completely FLARED my kidney pain for weeks. As soon as I went off of it, the pain went away right away. Definitely not a healing crisis, and I'm confident it was flaring my problem. Careful on those common things that are recommended because they may be more harmful than helpful with our imbalance.

Also, I assume that you have made diet changes too, correct? I did a anti-yeast diet for months (very restrictive at first but then eased up on some of the restrictions). I have to eat no/low sugar nowadays as a life style change to keep mine in check.

Keep the questions coming. Happy to share experiences and brainstorm together.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Very sick now despite being treated for years, still very bad
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Post Edited (1000Daisies) : 10/13/2017 10:13:08 AM (GMT-6)


WalkingbyFaith
Regular Member


Date Joined Aug 2017
Total Posts : 312
   Posted 10/13/2017 11:48 AM (GMT -6)   
I did not read everything posted here but wanted to mention that Saccharomyces Cerevisiae (brewers yeast) is the form used in a lot of the natural brands of b vitamins, such as Megafood brand. Look at the ingredients here: https://megafood.com/store/en/womens-one-daily/

If you're taking vitamins or supplements that contain this ingredient, that may be how you got it. If it is, then my guess would be this yeast is not meshing well with your gut flora and got over populated.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 1944
   Posted 10/13/2017 1:46 PM (GMT -6)   
WalkingbyFaith said...
I did not read everything posted here but wanted to mention that Saccharomyces Cerevisiae (brewers yeast) is the form used in a lot of the natural brands of b vitamins, such as Megafood brand. Look at the ingredients here: https://megafood.com/store/en/womens-one-daily/

If you're taking vitamins or supplements that contain this ingredient, that may be how you got it. If it is, then my guess would be this yeast is not meshing well with your gut flora and got over populated.


That is a really good point. I was just reading about it in B vitamins in a different article. It got me thinking for sure....

Pirouette
Veteran Member


Date Joined Mar 2014
Total Posts : 5813
   Posted 10/13/2017 2:17 PM (GMT -6)   
Glad you posted that WbF - hope that sheds some light. So many fillers even in good high-quality brands.

So glad you saw this post 1000Daisies - I always wonder how you are faring and if your research has uncovered anything. Wish I could be more helpful.

AutismMom99---

A few thoughts. First, I'm so sorry you're struggling like this. Awhile back I was reacting to cleansing soaps and specifically, sex which would create excruciating pain. Took me 4 different gyns to figure out how to treat it - they never were able to diagnose it but treated me with gentian violet, which rebalanced the microbiome or killed off the bacteria or something. Was a very long time ago. But even then I remember how it interfered with everything. And after thinking about it, I linked it to a stain remover I was using on my clothes that maybe had spilled on underwear and didn't all come out in the wash or I'm just highly sensitive to it. But once I stopped using it - no more problems. So I wonder if you've eliminated any product you OR HE might be using?

Is your husband a beer connisseur? Has your husband been treated for yeast/fungal overgrowth? Couples can pass it back-and-forth.

Something happened recently that your post made me think about. After getting these weird lesions on my hands - literally raw, raw skin that burned if anything touched it, these hard blisters and bumps and eventual peeling and cracking and just pain.... which my MD and I attributed to psoriasis, after nothing else fit.... just the other day I think I cracked the mystery. I'm not 99% sure it's a LATEX ALLERGY! I finally tied these lesion outbreaks with wearing latex gloves, which I don't wear too often.

And thinking back, I had a gigantic case of thrush (breakout in the mouth and around the lips) after helping my sister out as a "patient" while she was going through dental hygeine school - sat in her chair for 4 hrs one day. It was so long ago I'd forgotten about it.

So - wanted to ask if you'd explored some sort of latex allergy (condoms?)

I hope you find some answers - maybe other women will chime in.

-p
Lyme Moderator
Chronic late-stage lyme—likely infected in '00; Clinically dx Mar'14 w/ Babs, Fry Labs+ Bart-like, CDC+ Bb. First treated 4-5 viruses & GI/immune. Herbal antimicrobials in May; IV port-started Rocephin in Nov; added vancomycin Mar'16;
DETOX: Pinella/Burbur/Parsley/Milk thistle/Burdock/Red root; Samento/Banderol/Enula; JK/Turmeric; BFM-1; antifung; many many supps; cholestyramine!

cr3ativegirl
Veteran Member


Date Joined Oct 2015
Total Posts : 649
   Posted 10/13/2017 8:16 PM (GMT -6)   
I would try some homeopathic remedies for it. They have worked well for me. DesBio makes a Yeast mix Naet. Might help!
Oct 2015 Dx Lyme, Candida, Mold, Toxic Metals
Nov 2015 Dx Bart, Bacillus, Histo, Aspergillus, Mucor, Trichophyton, and Mycotoxin. Doxy & DesBios remedies
Jan 2016 Minocycline pulse/ Nystatin, Flucanizole
Feb 2016 LDI for Mold, Lyme, EBV, Added Tinidozole, Flucanizole
Sept 2016 Switched to Buhner herbs. @ 90%
January 2017 Plaquenil for Babesia @95%
Feb 2017 Dx Mucor/Mycoplasma in Nervous system.
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