Post Edited (Kala UK) : 1/24/2008 12:29:07 PM (GMT-7)
Post Edited By Moderator (Annuk) : 4/26/2008 3:18:18 PM (GMT-6)
sorry to hear your girlfriend having a bad time but hang on in there take a tip dont delve too deep scary stuff on net get a good neurologist or migraine specialist and with the right medication they can become not as severe. ive had them for the past 3 yrs and yes they are scary. i thought id got mine sussed then after my yearly mot got low blood count so off the 600mg aspirin and bang back to square one attack everyday really low at momment but as my son said mam its not permanent some people have no legs at all out of the mouths of babes eh. so ive made an effort to count my blessing and get on with it.
as an update ive been told to ask for a bloodtest for hughes syndrom apparantly it has the same symtoms as hemiplegic migraines plus some other i also get its realitively unknown there is info on the net goggle the name.
hope things have improved.
I have been relieved to read your posts and find others like me who suffer from this rare condition of Hemiplegic Migraines. It wasn't until I watch Larry King Live a few years ago when Larry's wife was on discussing migraines that I understood what I had and that there was a specific name for it. Unfortunately, I haven't found much help from my neurologist except to put me on Verapamil, which seems to have helped with the frequency of them (every few months), however I just had one last week and it was a really bad one. Mine usually start with the aura, then quickly my mood gets really angry and the pounding pain starts. I lose my ability to speak and understand speech soon after that. Last week I also felt my body jerk/jolt like a seizure. I have taken Esgic Plus, Tylenol with codiene, etc. for the pain but nothing but time and icing really works. I am an avid runner (40 miles a week) and this is one thing that seems to help. The times that I've had the least migraines was when my mileage was up so I think the blood flow to the brain helps from the running. I see my neuro this week to discuss my latest migraine with the possible seizure. I just want him to start some kind of study on me. Does anyone else feel this way? I am a young (36 y/o) with three little children. These migraines scare me when I am alone with my kids or am driving. Any help would be appreciated!
Post Edited (WritnGma) : 10/22/2008 9:19:37 AM (GMT-6)