New Here...Trying to cope

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HeyAim
New Member


Date Joined Feb 2008
Total Posts : 16
   Posted 2/13/2008 6:12 AM (GMT -6)   
A bit about me 1st. I read often, but have never posted. I'm 34 with 2 kids, daughter is almost 15 and son just turned 12. I've had a few migraines in the past couple years - the kind with aura. They just lasted a day, then the next isn't much more than a dull ache. Nothing I couldn't handle, I just said it was stress as I do have 2 kids, a DH, a job, and a house to tend to...life.
 
Then January 11 this year everything changed. I got a horrible headache which turned into a migraine without aura. It lasted a total of 9 days. I spent 7 of the 9 days in bed, only getting up to take kids to school, pick kids up, eat, drink, shower and use the restroom. I went to the Dr. Jan. 16, he gave me Midrin (I had been taking Exedrin Migraine), neither did anything. By Jan. 18 I was in urgent care begging for anything and everything. They gave me a shot of something-I never asked cuz I didn't care. It just helped me sleep, but did nothing for pain. Urgent care Dr. also gave me vicadin which did nothing for pain.
 
The headache lingered on until my next migraine, no aura, kicked in on Feb. 3, son's Bday. I went to the dr. the day after it started begging for something to keep it from getting so bad and lasting 9 days again. Dr. gave me Topamax 25mg, which I started on Feb. 7. This time I was only in bed for 5 days. Of course not drugs helped, so I just toughed it out. Now the Topamax didn't get along with me well at all. 2 days & 2 pills later I had so many side effects I thought I was going to go nuts. So I'm not going to take it.
 
Oh, and in the midst of all this my eyes are so swollen and sore it hurts to put on eye shadow. I do anyway just to try to hide the puffiness. When a migraine comes on quickly in between my long spells, you can watch my eyes just swell up. It seems like I have so many triggers...smells, noise, stress, reading, pressure on my temples or eyes.
 
So, has anyone tried using a hot tub as therapy for migraines? They're very relaxing and may help out from being so tensed up. DH and I are talking about this. I'm just afraid the sound of the water rushing will make it worse.
 
Anyway, I go to a Neurologist on March 17 (after begging my Dr. to refer me). Yes I'm searching for a new family Dr. now. I just had to get a bit off my chest. I know no one else who has migraines like this. The ones around me who do have migraines just say to take Excedrin Migraine - Yeah right!
 
Thanks for listening,
Amy

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 2/14/2008 12:22 PM (GMT -6)   
Hi Amy,

Welcome to Healing Well. So sorry to hear that you are suffering so much!! Just a few questions for you if you don't mind - when you get these attacks of severe pain what sort of pain is it i.e. stabbing, throbbing, burning?

Is the pain at a very high level all the time or just in short bursts i.e. 2- 3 hours at a time with a headache in between? You say that yours eyes swell up do they droop at all? Does your nose block on the affected side? Is the pain on one side of your head or all over or something else? Sorry to bombard you, hang in there hopefully the Neurologist will sort you out. Is this Neuro a Headache Specialist?

take care

Ann
Co-Moderator of the Migraine/Headache Forum


HeyAim
New Member


Date Joined Feb 2008
Total Posts : 16
   Posted 2/14/2008 1:10 PM (GMT -6)   

Ann, Thanks for replying!

The pain is behind both my eyes and in both my temples, more of a constant sharp stabbing pain. It lasts for several hours. Then it'll taper down to a dull headache. The dull headache has not left since this started last month. Yes my eyes swell up & water, and my upper eyelid practically lays on my eyelashes-both eyes. When the pain starts to build, even just a little (like from a smell), my eyes start to swell. Then when the pain gets worse, so does the swelling.

If there's strong smells, loud noises,  I get stressed or aggrivated, I'm on the pc or reading for more than 5-20 minutes, it starts aching again. The headache is better in the a.m., but as the day goes on it gets worse...everyday. I'm usually in bed by 7 every night.

When it reaches it's peak, it's pretty bad - I'd say 8-9. When it's over and starts to calm down I'm actually surprised I'm still here and my head didn't explode. (I have a fairfly high tollerance for pain. Had my 2nd baby with no meds. Suffered gullbladder attacks for 3-5x's wk for 8 months.)

I live in a small town and only have 2 Neuro's here. If he's not willing to try to help me, I'll start traveling for help. Oh, I went to the eye dr. yesterday and made them test everything they could. Everything was fine, they found nothing.

Hopefully I answered everything. That's all my head can take. Thanks Again.

Amy


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 2/14/2008 4:17 PM (GMT -6)   
Hi Amy,

As I said i am no Doc, but you do have some symptoms of Clusterheadache as well as Migraine!!! You really need to see a Neurologist who is a Headache Specialist as most Neurologists do not know much if anything about Clusterheadache!!!

Do these headaches wake you up in the night?? The thing with your eyes is what they call Autonomic Symptoms that go along with the headache, it is unlikely there is anything wrong with your eyes!

It is possible to have Migraine with Autonomic Symptoms as well. As I said a Headache Specialist will be the Neuro you really need to see. All the best with this, please let me know how you get on?

take care

Ann
Co-Moderator of the Migraine/Headache Forum


HeyAim
New Member


Date Joined Feb 2008
Total Posts : 16
   Posted 2/15/2008 5:21 AM (GMT -6)   
Ann,
I'll start searching and see if there are any headache specialist around. It amazes me how many dr.'s don't care.

Oh yes, they've woke me up in the night. I've read about cluster headaches, a lot of the symptoms sound the same but a lot sound like migraine. My headaches don't just come and go. They almost build up for a few days then a hellish headache for several hours - always in the evening, then it tapers down, only to build back up again. This will go on for 4-9 days.

You say you're not a dr., but I can tell you I've been to 4 Dr's so far and you know a heck of a lot more information then any of the dr.'s.

Thanks for taking the time to talk with me. I really appreciate it.

Amy

sarahswan
Regular Member


Date Joined Dec 2007
Total Posts : 57
   Posted 2/16/2008 4:23 PM (GMT -6)   

Amy-

You can actually have cluster headaches and migraines together, which becomes more like cluster migraines, if that makes sense. I suffer from these as well. These clusters (they don't know why) occur during the Dec/Jan time frame, and the May/June/July time frame. Last year I was down for the count with migraines most of the holiday season, and then most of the summer. If you can get with a neurologist who specializes in migraines, they can help taylor your treatment plan to adjust for your regular migraines as well as cluster migraines. As Ann said, most regular neurologists don't have specific information about all the different types of migraines and the different treatment options for each.

 

Oh...your question on using a hot tub for migraines. This can go either way. Some of the triggers of migraines are both tense muscles (particularly back, shoulder, and neck) AND overheating the body temperature. Sooo...for some people using a hot tub to relieve tense muscles works fine. For others, the rise in body temp from the hot tub is a migraine trigger, and not a good idea to do when they're already in a migraine prone state. If you don't know how you'll react, you can always try it out, and you'll know soon enough.

 

Good luck!


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 2/17/2008 5:07 PM (GMT -6)   
Hi Sarah,

Sorry to have to say this, but there is no such thing as Cluster migraines!!!! Clusterheadache and Migraine are very different headaches!!!!

From your post it seems you may have Episodic Clusterheadache - that is why you get the attacks for two periods each year. Migraine is all year round, but can be worse at certain times of the year!

take care

Ann
Co-Moderator of the Migraine/Headache Forum


sarahswan
Regular Member


Date Joined Dec 2007
Total Posts : 57
   Posted 2/18/2008 10:16 PM (GMT -6)   

Ann-

*blush* Thanks for clarifying. You may very well be right. I know they are migraines that follow the patterns of cluster headaches.

 
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