Insomnia with migraines

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~Liz
Regular Member


Date Joined Oct 2007
Total Posts : 120
   Posted 2/14/2008 10:37 PM (GMT -6)   
Does anyone here suffer from severe insomnia as a result of their migraines?  I've had really bad insomnia ever since my migraines started in 2004.  My doctors have mostly told me that the migraines aren't the cause of the insomnia because most people with migraines want to sleep through the pain...I try explaining that I would love to sleep through the pain, but because of the pain I often can't sleep.
 
I've been on just about every kind of sleeping pill there is, and the only on that helped my was 300mg of Seroquil...which helped for about a week before it became ineffective.  I sleep so much better when my pain level is at a 6 compared to a 9 or 10.  I've kept track it in a headache/sleep diary, but the doctors keep telling me that it is abnormal...which is a word that seems to define me :P
 
I would really love to hear if other people experience similar sleeping patterns due to their migraines just so I can tell my doctor that it does happen; that it isn't impossible.
 
Thanks so much,
 
Liz
Dx: Chronic Daily Migraines & Chronic Depression
 
Daily meds: Trazadone, Norpramin & Cymbalta
PRN meds: Tylonal #3


sarahswan
Regular Member


Date Joined Dec 2007
Total Posts : 57
   Posted 2/16/2008 4:37 PM (GMT -6)   

Liz-

Isn't it sweet when dr's pass judgement with fun words like "abnormal" and "impossible"? nono  MANY migraineurs I talk with also suffer from insomnia. I haven't had a full night of sleep since my migraines started years ago, as well. And, we're  not even just talking about nights I have migraines. Even nights I'm migraine free I don't sleep all the way through the night. I only use Seroquil when I have migraines, but it makes me super "foggy" in the morning...as do most sleeping aids. For others out there reading this, DON'T use things like tylenol pm because it can cause rebound headaches. Are you seeing a neurologist or a neurologist who specializes in migraines? The second is always your best bet. Have you tried melotonin? It is a natural sleep aid. I use it also, though I have to take a pretty high dose at times for it to be effective. You are definitely not alone, in this phenomenon...tell your doc to do his research ;).

~Sarah

 http://www.healingwell.com/library/migraines/mcelhinney5.asp

http://web.winltd.com/Article.aspx?PageURL=/Pages/English/healthnews/migranes.htm

http://www.patienthealthinternational.com/archivenews/17678.aspx


http://www.myspace.com/nomoremigraine


~Liz
Regular Member


Date Joined Oct 2007
Total Posts : 120
   Posted 2/16/2008 11:37 PM (GMT -6)   
Sarah,
 
Having doctors use terms like abnormal and such gets so annoying after a while, I want to say "then look into it, if it's so abnormal you should want to learn more about it!"  My doctor's latest term was amazing...He was asking about my history of migraine medications and how I reacted and once he got my list he said "you're amazing..." I was just like "you mean that in a bad way, don't you?"  and of course he said "yeah...I'm sorry." 
 
When I said that I sleep much better with a lower level migraine, I wasn't implying that I got great sleep, it's just that lately 4 hours of uninterrupted sleep is pure heaven...which is what I usually get with lower level migraines. 
 
I am seeing a neurologist at the moment, he's almost over-eager to prescribe medications for me and he's always willing to up the dose...it seems like he thinks that the fact that he's giving me medications will make me happy.  What he probably doesn't realize is that I want someone to actually take the time to research my case before they start prescribing medications for me...but that's probably asking for way too much.
 
I have tried melotonin before, it made me really sleepy but I still had trouble falling asleep.
 
Thank you so much for replying to this message, it's very reassuring to know that I'm not as "abnormal" as my doctor tends to think.
 
~Liz
Dx: Chronic Daily Migraines & Chronic Depression
 
Daily meds: Trazadone, Norpramin & Cymbalta
PRN meds: Tylonal #3


sarahswan
Regular Member


Date Joined Dec 2007
Total Posts : 57
   Posted 2/17/2008 12:15 PM (GMT -6)   

Liz-

Unfortunately, I can also relate to being to a general neurologist who was all to happy to continue to prescribe medications (and up the dose) for every complaint I had. He thought my migraines were caused by tight muscles in my neck, so prescribed muscle relaxants. Then he thought I was too anxious, so he prescribed anti-anxiety medication. Then I couldn't sleep, so he prescribed prescription sleep aids. The list went on and on. I had to stop filling the prescriptions or I was afraid I wasn't going to be able to feed or dress myself tongue .  I seemed to be "out of the league" of all of the general neurologists I went to see. They had no idea what to do with me, except prescribe different medications and see if any of them worked. Finally, when I asked my general neurologist to write a referral for me to get into mayo clinic's migraine clinic I was referred to a neurologist who specialized in migraines (I didn't even know such a thing existed at the time). When I went to see the neurologist who specialized in migraines, THAT was the FIRST time a doctor actually sat down and listened to what I had to say. Really listened. My first appoinment was an hour and a half, and it was all question and answer.  It was so empowering. I had tears when I left the office b/c it was unlike anything I had experienced before. Definitely worth checking out. Here are some links to find neurologists who specialize in migraines in your area:

http://www.migraines.org/help/helpclin.htm

http://helpforheadaches.com/doctors/migraine-headache-specialists.htm

~Sarah


http://www.myspace.com/nomoremigraine

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