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monthofpain
Regular Member


Date Joined Mar 2008
Total Posts : 35
   Posted 3/20/2008 7:54 PM (GMT -6)   
I need help or ideas.  I got a really bad headache one month ago which wouldn't go away with over the counter pain relievers and it continued into the next day.  I went to the doctor and she gave me an imitrex shot which helped but the headache was still there just not as bad.  At that appointment she said she thinks it is a migraine but not sure.  After 5 days I still had it and she sent me to the ER for a CT scan.  It came back normal they gave me imitrex tablets those didn't help.  Since, I have been to an ENT and gotten a CT of my sinuses which I am waiting for the results.  I also went to the ER the other night because I was getting tingling above my left eye and at the base of the right side of my head.  Also I had a creepy crawly feeling across my entire forehead and base of my skull.  I felt a little tingly a few days before that but it was not as bad.  On top of that i got really dizzy.  The hospital just gave me antivert and sent me home.  I just don't know what to think any more it gets better but is still there then one day it might get really bad again and slowly gets better.  I haven't gone a single day with out 3-4 headaches each day for a month straight.  Some days they just last a few minute others a few hours.

Post Edited (monthofpain) : 3/21/2008 9:59:52 PM (GMT-6)


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 3/21/2008 1:27 AM (GMT -6)   
Hi Monthof pain,

Welcome to Healing Well. I am so sorry to hear that you have been suffering so much. I would strongly advise you to see a Neurologist who is a Headache Specialist as soon as you possibly can. Your symptoms are very similar to a particular type of migraine that should not be treated with any triptans especially not Imitrex!

I am not a Doctor so I am unable to diagnose or be sure I am right, but I do know someone with this particular type of migraine, and your symptoms particularly the dizziness and the positioning of the pain are very similar!
Talk to your Doc for his opinion as soon as you can on Basilar Artery Migraine!

Let me know how you get on, take care

Ann
Co-Moderator of the Migraine/Headache Forum


jillis
New Member


Date Joined Mar 2008
Total Posts : 9
   Posted 3/26/2008 1:55 PM (GMT -6)   
I went to the neuro due a headache that lasted a month long. Nothing helped me either....at first. They did a CT scan that came back normal. My ENT said everything looked normal. I got my MRI adn MRA done and that's when they noticed all my little issues. They said I had arnold chiari malformation (spelling may be off) which is why my head was hurting and my fingers where going numb for no reason at all, I was getting this painful numb-burn sensation down the back of my neck and upper back. My mom was diagnosed with MS and I feared I would be too. If you google arnold chiari malformation it explains it all......not saying that's what it is at all. It pretty much means that part of my brain isn't covered by my skull and there is alot of pressure down there and it causes severe headaches, numb sensations and burning. I would ask for a MRI or MRA. I had to go get a DHE injection and steroids to get rid of the pain which ended up coming back and then I had to do it again i've still had headaches just not as bad. A combination between my nasal spray and imtirex usually work if I get it in time. The numbness comes and goes. I'm not ready for surgery yet though so I'll wait it out until they make me. I hope some of this may have helped you none the less just to know your not the only one sometimes makes you feel better.

monthofpain
Regular Member


Date Joined Mar 2008
Total Posts : 35
   Posted 3/26/2008 4:53 PM (GMT -6)   
I went back to the ENT today and they said my sinuses are completely clear and now I have to see a neurologist. I was sarting to feel better the last few day but yesterday it got really bad again. Today it is not much better, especially since I am trying to go with out pain medication so I can celebrate my 21st birthday today. I just hope seeing the neuorologist is going to get the ball rolling so what is wrong with me.The ENT and my doctor are recommeding two different neurologist and I have to decide which one to go to. If any one is from the Palm Harbor,FL area let me know may be you know of any of these neurologists.

jillis
New Member


Date Joined Mar 2008
Total Posts : 9
   Posted 3/26/2008 5:37 PM (GMT -6)   
See if you can google them or look them up on the web and see what info you can find out about each one. Then choose which one you think knows more about your needs. My ENT didn't recommend anyone and I had to tell my doctor enough is enough fix me before he finally sent me to a neuro. Good luck.

monthofpain
Regular Member


Date Joined Mar 2008
Total Posts : 35
   Posted 4/1/2008 3:43 PM (GMT -6)   
My headache was doing really good until this past sunday.  I was stuck in bed all day with out being able to open my eyes, I feel like it is just all starting over again. I am also even more dizzy and now nauseas since sunday.  Since I can't get a neurologist appointment for another 3 weeks I went back to my prinmary care begging for help.  She took me off my birthcontrol and if the pain is not gone in the next week I have to go for a spinal tap.  I feel like it is never going to get better.  Has anyone else even had a spinal tap for a headache. 

jillis
New Member


Date Joined Mar 2008
Total Posts : 9
   Posted 4/1/2008 4:47 PM (GMT -6)   
Ask your doctor about taking some predisone. It's a steroid that they usually give me for a week and within the 1st day I usually always start to feel better. I hope it all starts to go away. Ever since I started to see the nuerologist I've been better. I take topamax 2x a day and imitrex as needed. I have flonase  for my sinuses but use afrin more. The nuerologist also prescribed me BUTALBITAL generic for ESGIC. It seems to help out and keep me off the imitrex a little more.

mudjamz
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/4/2008 10:33 AM (GMT -6)   
This is my 7th week of a constant headache.  It's not one sided, it's the entire top half of my head and occasionally reaches down to the base of my skull.  Sometimes minimal, sometimes extreme, but always there.  Dizziness comes and goes but also at different degrees.  The only time my head doesn't hurt is when I'm sleeping and the ifrst 15 minutes after I wake up.  The doc has tried treating me for migraines, tension, inflamation and sinus.  Nothing helps at all.  Light nor sound doesn't bother me.  Had a CT Scan last week-normal.  Going to see the neurologist but can't get in until May 5th.  My GP says he has no idea what it could be and to try to stick it out until I see the Neuro.  I see a lot of posts from people that have headaches like this but only on one side.  Anyone else have the whole head thing going on?

monthofpain
Regular Member


Date Joined Mar 2008
Total Posts : 35
   Posted 4/4/2008 5:40 PM (GMT -6)   
mudjamz,
 
Sounds alot like mine, on monday I went back to my primary care begging for help.  She took me off Birthcontrol and told me to see if it goes away by today.  Well it didn't and we are waiting for her call back.  But in the mean time I started researching what she thinks it could be and that is Pseudotumor cerebri.  I talked to my cousin who is in medical school who agrees it is something to look into.  You should look it up, it is just pressure in the fluid.  They have to do a spinal tap to find out but if it is then they can relieve it immediatly. 

chief #7
Regular Member


Date Joined Apr 2008
Total Posts : 124
   Posted 4/4/2008 7:44 PM (GMT -6)   
Hey everyone, I'm new to this forum as well (2nd post). I have been dealing with very similar issues.
January 7th - Headache onset
Headache everyday. Had MRI brain and neck, CT, vision, bloodwork, etc.. primary doc and neurologist multiple times per month.

Headache symptoms
1. Lightheadedness
2. Neck muscle tension
3. dizzyness

I think Root Cause is:
1. Toxic Mold 70%
2. Lyme's Disease 30%
3. Something else .00001%

mud and month of pain, any thoughts?

monthofpain
Regular Member


Date Joined Mar 2008
Total Posts : 35
   Posted 4/9/2008 7:46 PM (GMT -6)   
I just need to vent to some people that actually understand. When I called my doctor to tell her the headaches didn't go away she decided she does not want to do the spinal tap until I see a neurologist. I saw the neurologist today and he thinks it might be migraine even though they never go away. He put me on topamax and ordered a MRI to check a tumor I have on my pituitary gland (I have known about this for 2 years and treating it). Next he wants to do a MRA. I feel things are getting taken care of, but unless the topamax help which it has not yet, I still have to suffer for another two weeks.

mudjamz
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/10/2008 10:44 AM (GMT -6)   
Chief--we have some a/c vents at work that don't work properly and the walls have water damage. (we're relocating next month) so there might be something to the mold thing especially since I've noticed that my headaches are worse during the week. I clean the office on the weekend so I'm there for a couple hours on the weekends also making it harder to isolate if it is the office. I've started wearing a mouthpiece at night because I clench my teeth while I sleep----no relief. I've found minimal releif in alternating Fioricet and Darvocet every 3 hours. But I stress "minimal" relief. The longer this goes the more patterns I notice like any physical exercise decreases the pain. Saturday, I was doing a lot of yard work and had no pain at all as long as I continued working. The minute I stopped the headache started. I work in an office so physical work during the week is minimal. I'm thinking a hormone or adrenalin link?

mudjamz
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/11/2008 12:30 PM (GMT -6)   
What about dreams?  Every night I have very vivid dreams.  The kind that seem to go on and on.  Also if I wake up and fall back to sleep it continues where it left off. 
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