How do you find a migraine specialist?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

HeyAim
New Member


Date Joined Feb 2008
Total Posts : 16
   Posted 4/3/2008 4:46 PM (GMT -7)   
I'm on my 2nd PCP, who I really like but he really doesn't understand. I've been to 1 Neurologist who apparently doesn't understand either. I've had a migraine since Jan. 11 this year. Last week I went to FL on vacation, the whole week I was 100% headache free. I thought my new meds the neuro put me on was actually working. When I got home on Monday, in Ohio, within 15 minutes of walking out of the airport my migraine started coming back. I called the neuro to have them put the info in my chart, just in case it meant anything. They called me a little while ago saying that even though I'm on meds I'll still have break-thru headaches. OK, that was Monday and today is Thursday and it just keeps getting worse. So I'm guessing my neuro doesn't understand either.
 
So how do I find a Dr. who understands? I don't have a migraine a couple times per week, it's non stop! I've yet to be able to work a full week this year!
 
Thanks for any information!
 
My meds...
Verapamil 80mg 3x's day
Depakote ER
B2 400mg 1x day
Magnesium 250mg 1x day
 

harvest
New Member


Date Joined Oct 2006
Total Posts : 10
   Posted 4/7/2008 10:38 PM (GMT -7)   
I'm sorry, it's late and i'm not sure of last names etc. I live in the Dayton Ohio area and after 3 years have found the absolute, most wonderful Nuero. Dr. Svleic ??? She is in Beavercreek. She spent nearly 2 hours with me my first visit. She specializes in headaches. She spent her residency at Cleveland Clinic. I heard thru the grapevine how nice and good she was. She is very detail oriented and is so knowledgeable, you don't have "wait" for answers, she likes to know every step of the way if something is or isn't working and will change/alter right away. Her staff calls like they are family and are very supportive..I promise I have been to the "top" dr's around here in the last 3 years and she is all that and a bag of chips!! p.s. I work at airport and the lights really stink for migraines. There are a lot of us suffering and realized it's the new lights they installed. If you can't find info, I will look up her full name in the a.m. and type is out.

HeyAim
New Member


Date Joined Feb 2008
Total Posts : 16
   Posted 4/8/2008 4:51 AM (GMT -7)   

Thank you so much! She is almost 2 hours from me (I'm south of Columbus). Just go out 70, that's not a bad drive. I can handle that. It's definately worth a try. If my neurologist appt. on the 17th doesn't work out well, I'll be asking my pcp for a referral. I would appreciate her contact information.

Oh, I can't even imagine working around bright lights + the noise. When my employers (my mom and dad) start talking to me kind of loud I start shhhhh'ing them. LOL At least I have the most understanding employers...to a point. They understand 100% when I have to leave and feel horrible. But then bug me like crazy cuz work needs done, which I understand. We're in the process now of hiring a couple people to help me out at work as our busy season is starting to roll in.

Thanks so much for the information! I really appreciate it!

kymark
Regular Member


Date Joined Dec 2005
Total Posts : 86
   Posted 4/8/2008 8:46 AM (GMT -7)   
They're kind of touchy around here about posting links, but if you do a google search for the American Council on Headache Education and/or the National Headache Foundation, both organizations offer lists of member physicians -- a good place to start looking for an area specialist in headache.

Of course, a finding a specialist is only half the battle. Finding a specialist who cares AND LISTENS is even more important. Harvest has given you a good lead in that regard!!

Best of luck!

kissfan1976
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 4/8/2008 1:27 PM (GMT -7)   
kymark i beleave as of right now there is no cure for migrains cause i have been going to speciaslist for year and the only thing they have done is take my money. please tell me what i should to the doctors have given me every thing from under sun and above it... the only thing that helps me is demeral and i'm real tieard of that.

thank you for your tme
kissfan

kymark
Regular Member


Date Joined Dec 2005
Total Posts : 86
   Posted 4/9/2008 9:42 AM (GMT -7)   
Kissfan,

If I could tell you what would cure every migraines, I'd be a rich man! I myself have had chronic daily headaches (not classic migraines) for almost 20 years. Some things have helped for awhile but even then the effectiveness wears off.

On the bright side, my mother has suffered from migraines for 40+ years, and in the last 5 or so years, new medicines (particularly Topamax) and the off-label use of older meds (like amitryptaline) have given her relief that she never had 20 years ago. The science of headache medicine, although still in its infancy, is advancing rapidly. What you need to find is a headache specialist who stays up on the literature and can talk with you about why they're trying the approach they're trying. Even though my doctor hasn't been able to find a "cure", I feel better about the whole process because she listens to me and takes my opinions and ideas into account in shaping my treatment (it no doubt helps that I'm a professor at the same university where she practices, but I've heard the same from other patients of hers).

Personally, I've pretty much given up on a cure for my headaches. My goal is to keep the pain at a level where I can live a productive life. Maybe a wonder drug will be developed next year, but waiting around hoping for it just makes me more miserable. My pain isn't as severe as many on this board (usually a 5 out of 10, but constant), so that makes that approach easier for me, but I think expecting a "cure" is setting yourself up for disappointment.

Take care,
Mark

nurse42
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 1/3/2010 3:11 PM (GMT -7)   

I have had Migraines for 20 years I’m at the end of my rope, I can’t take it anymore! I currently take Maxalt, and Esgic plus I have tried many preventive all which make me horribly sick. I am a registered nurse and I am in school for my BSN. I teach LPNS at this time. I chose the teaching due to its less hours to get thru in the day with a nasty headache. I live near Lima, Ohio and I am looking for a new doctor I am leaning towards Columbus Ohio. My current neuro doctor is great but he has limited resources for me, he does not do any IV therapy which I would like to try, or maybe Botox. Any one tried IV infusion or Botox?    Nurse 42

 


Lialdia 4tabs/day

Prednisone 40mg in Am just started this week

Imuran 150mg

Folic acid

protonix 40mg


hymee
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/26/2010 9:21 PM (GMT -7)   
harvest said...
I'm sorry, it's late and i'm not sure of last names etc. I live in the Dayton Ohio area and after 3 years have found the absolute, most wonderful Nuero. Dr. Svleic ??? She is in Beavercreek. She spent nearly 2 hours with me my first visit. She specializes in headaches. She spent her residency at Cleveland Clinic. I heard thru the grapevine how nice and good she was. She is very detail oriented and is so knowledgeable, you don't have "wait" for answers, she likes to know every step of the way if something is or isn't working and will change/alter right away. Her staff calls like they are family and are very supportive..I promise I have been to the "top" dr's around here in the last 3 years and she is all that and a bag of chips!! p.s. I work at airport and the lights really stink for migraines. There are a lot of us suffering and realized it's the new lights they installed. If you can't find info, I will look up her full name in the a.m. and type is out.



Okay, so I could not find a Dr Svleic in Beavercreek. I too am from Dayton, OH so I'm trying to find someone who will do Botox for migraines at a reasonable price.
Any one know of any in this area?

redchief16
New Member


Date Joined Mar 2011
Total Posts : 1
   Posted 3/23/2011 10:48 AM (GMT -7)   
It's Antonela SVETIC. I found her by googling "Beavercreek, OH" and "Neurologist." Have called for an appointment but I haven't seen her yet.

rose42
New Member


Date Joined May 2011
Total Posts : 1
   Posted 5/15/2011 1:06 PM (GMT -7)   
I saw Dr. Svetic in 2009, and I think she is a very good doctor, very knowledgeable about migraines. What you should know up front is that she is very likely to ask you to stop all pain killers, which isn't easy for any of us that work full time and can't afford to be non-functional for 1-3 months. She may have changed her approach since then, but I doubt it.

Her approach is based on well founded research (e.g. see Mayo Clinic) that the most common cause of chronic daily headaches is the rebound headache, where your body craves the pain killers and creates pain to get it.

She told me it can take 1 week to 3 months to break this cycle, and she suggested I try taking a month off from work. She had several treatment options for the pain during this time that include Botox, weekly IVs (I think it was some kind of magnesium compound), etc. She said she would put me on a preventative (e.g. Topamax) and the idea would be to break the rebound cycle and give the preventative a chance to work and only rarely (e.g. 1 or 2 times a year) ever take a pain killer again.

This approach wasn't practical for me, but if you are willing to try it, you may see results. Another neurologist I’ve seen who specializes in migraines and is very fond of using Botox is Dr. Lisa Mannix in West Chester, OH, 513-792-9888.

I did wean off most of my pain medications as a result of Dr. Svetic’s insights, and then found that a type of nerve block administered by Dr. Soin at the Ohio Pain Clinic (Dayton Mall area and Beavercreek) was able to provide relief up to a year (didn't work until I weaned off the pain killers creating the rebound cycle). His number is 937-434-2226.

I have also been seeing a very good DO who does osteopathic manipulation that I believe is helping me -- Pain Alternatives in Beavercreek, OH -- 937-429-8620.

migraines4real
New Member


Date Joined Aug 2011
Total Posts : 1
   Posted 8/13/2011 10:23 PM (GMT -7)   
I am also from the Dayton area and am looking for someone who does the botox. So the Dr. Svetic does the botox at her office? Or do you go to another office? Also has anyone had any luck with insurance covering any of the costs? I also have heard of several new surgeries, one of them is preceded by botox treatments if they work and another one is an implant. http://www.migrainesurgerycenter.com/ and http://www.ascendantneuro.com/about-ascendant-neuro respectively. I am really interested in the second one. Has anyone known anyone or researched any of the surgeries more in depth?

Mamudoon
New Member


Date Joined Aug 2011
Total Posts : 8
   Posted 8/16/2011 6:58 AM (GMT -7)   
HeyAim - It sounds like you've found a migraine specialist, so I'm very glad for you! I'm just posting some general info for anyone else who may be looking for one.

I've been seeing a neurosurgeon for several years for trigeminal neuralgia, and at my most recent appointment, I brought up my chronic migraines, and he recommended a neurologist. He's part of a very large network of hospitals and doctors, so I'm seeing a neurologist who is part of that network. I have my first appointment on Thursday, so I haven't seen him yet, but I'm glad that he's part of the same facility because they'll have all my records and whatnot.

Try to choose a neurologist who is part of a large hospital or physician network. I've had bad experiences with "individual" neurologists, and I know that some people have had great experiences with them, but this is just what I've been through. If they feel that your migraines may be triggered by something else, they can recommend you to another specialist in the network. If you have a physician (any specialty) that you really like and trust, ask him/her for a recommendation for a neurologist. They'll be glad to help you out or point you in the direction of someone who can.

Good luck!
"Well, he understood the fantasy part, but had no idea what basketball was. He tried to add three griffins and an orc to your roster."

30-year-old female. Diagnosed with ulcerative colitis, trigeminal neuralgia, ankylosing spondylitis, panic disorder, and Sjogren's Syndrome. Don't feel bad for me. Just listing them so people don't ask. :)

Zinedine
New Member


Date Joined Jul 2014
Total Posts : 2
   Posted 7/14/2014 6:47 PM (GMT -7)   
Hello. I have been treated for severe migraines for 13 years now. I have been on Topamax that long with no success. My neurologist (I also have epilepsy) has put me on 5 other medications to combat my migraines and I am getting them every few days. They last for 2 to 3 days, then another one comes along a couple of days later. I can do nothing but sit and cry. My latest meds are Imitrex and Fioricet. My neurologist (in West Chester) has told me that he is out of ideas and that I will need to go to a headache clinic and probably get botox injections. I am afraid of this.
 
Has anyone else had these injections. I am located in Kettering, Ohio, and the talk of that Dr. Svetic sounds promising. Otherwise, there is a headache clinic at Wright State University. I am at the end of my rope and when one of my migraines comes on, I sit and pray for a meteor to strike the house and end it all.
 
I have been on my epilepsy medication since 2001, and have not had a seizure since Oct. 15 of that year. So, those meds are doing their job. Now my doc wants to take me off of Topamax because he sees no point in me staying on it. But he said he would have to put me on another seizure medication (in conjunction with my Trileptal) if I stop the Topamax. I am afraid to go monkeying around with these meds. When I have my first seizures, I lost my memory for a year.
 
Please, if any of you have had the botox injections, please let me know how much it hurts and if it has helped.
 
Thank you.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 4156
   Posted 7/15/2014 11:39 AM (GMT -7)   
Zine,
Welcome to the forum.

I also have TN, [see dx below] I see a neurologist at Jefferson. I highly recommend this hospital! I suggest the hospital instead of a headache clinic, specially since you have ep..

The botox did not work for me, I received some relief early on, in the end, it did nothing.

For my pain I am currently on:
Propanaolol 60mg 2x a day
cymbalta 60mg
Topamax 100mg am 125mg pm
Imitrex PRN
Tylenol 3 PRN for combo TN/migraine/cluster pain

I take 500mg magnisum, it stops the ringing in my ears.

this keeps my daily pain down to 2-4 on the pain scale and it usually hits in the afternoon, depending on how active I am and other triggers.

I hope this helps.
Peace
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Zinedine
New Member


Date Joined Jul 2014
Total Posts : 2
   Posted 7/15/2014 12:08 PM (GMT -7)   
Thanks Trina. I sure don't want to go the botox route.

I've been on 100mg of topamax in the morning and 150mg at night. Nortriptyline 25mg at bedtime. He tried me on effexor 75mg twice daily, but I weaned off of that SLOWLY!! Now Paxil. I have Norco extra strength.....just a strong narcotic. Then the Imitrex and Fiorcet. It's just too much. I have always taken 500mg of magnesium daily. And 4000iu of vitamin D3. Not to mention my ep med. Oy.

I am sitting here right now with a headache so bad I want to run my head into a wall. My depression is getting so bad.

I have a plethora of other ailments (bleeding disorder -I don't clot), underactive thyroid, an extra bone in each ankle (called an Os Trigonum) that makes me have pain in my feet when walking. The list goes on. I just need a doctor who can take everything into account and treat the "whole" problem. Perhaps my thyroid is causing headaches. Perhaps I am anemic. Maybe it's the depression. But I can't get a doctor to look at the WHOLE picture. The whole body of ailments.

Anyway, it's just one step at a time.

Sunny13
Veteran Member


Date Joined Feb 2014
Total Posts : 685
   Posted 7/15/2014 8:56 PM (GMT -7)   
I used to have chronic migraines....pretty much every single day. Horrible. Tried various meds, etc. For the past year and a half, maybe longer, I have been getting botox injections every 3 months, along with taking some preventative meds, and need to use my "rescue" meds only 2-3 times a month now, and even those migraines are less intense and do not last as long as they used to. We just had a conversation on this forum about botox, and have also talked about it quite a bit over the past several months. Try doing a search for Botox injections for migraines to read some of the posts. I am extremely happy that botox was recommended to me. The "procedure" itself is a piece of cake. Whole thing takes just a couple of minutes, usually 31 injections, super tiny needle, feels like little bee stings or something (pain lasts just a few seconds or so), and when you're done, you just schedule another appt for 3 months to repeat, and go on with your day. No down time or recovery time or anything like that. I actually just had mine done again yesterday. Not sure how it is in other states or with different insurance companies, etc, but lots of times they require you to do a migraine log/diary for several months before approving the botox treatment. Not sure if there is a universal form for this, but basically, you need to keep track of things like: when you get a migraine, how long it lasts, symptoms you have with it, where the pain is, how bad it is (scale of 1-10), anything that may have contributed to it or triggered it, any meds or other treatments you use to try to make it go away. Basically anything you can think of related to the migraine. I'd start writing things down NOW, so if they do require it, you'll have a head start on it. My understanding is that it is very expensive, my insurance co. has always covered it, no problem.

Finding the right combination of meds and botox and lifestyle changes (good sleep, avoid alcohol and caffeine, water, and some other stuff) has made a HUGE difference in my life. Have gone from 31 horrible/severe migraines a month to 2-3 moderate migraines a month. What a world of difference!! Only side effect I have had from it, if you even consider it a side effect, is that I cannot raise my eyebrows--but who cares???!!! In the year and a half since I have gotten the injections, I have never been upset by my lack of ability to raise my eyebrows, and no one has made any comments to me about it either. Probably because either they didn't notice or because it's just not important. Well, actually my mom and one friend did make fun of me, but only because I told them about it and made fun of myself first!!

Anyway, to see more info/stories about botox and other treatments, check out some of the other posts on the forum. And feel free to write me here or email me with any questions.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, November 23, 2014 6:06 AM (GMT -7)
There are a total of 2,275,821 posts in 252,956 threads.
View Active Threads


Who's Online
This forum has 158681 registered members. Please welcome our newest member, Heathero.
190 Guest(s), 4 Registered Member(s) are currently online.  Details
soystud, Talon, Conquer UC, Andrew77


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer