chronic daily headaches / pressure in sinuses

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rocky4518
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Date Joined Jun 2008
Total Posts : 1
   Posted 6/6/2008 4:00 PM (GMT -7)   

(sorry this is so long..)

 

For over nine months now, I’ve had chronic DAILY headaches. I’m a 26-year-old female. At first, they behaved like sinus infections and improved with antibiotics and steroids. Now, NOTHING seems to help. I had sinus surgery in November 2007, but it did nothing to help my pain. In fact, my pain has been worse since the surgery!

 

My main symptoms are:

-          a deep, aching pain/pressure in my cheekbones

-          dental pain on my upper-left teeth…was so bad once that I went to the ER

-          pain all over my forehead/temples

 

These symptoms never leave…they’re present ALL day…the intensity just varies. It usually gets worse and worse as the day goes on. Simple things like talking, laughing, or smiling a lot tend to REALLY exacerbate the problem. It also gets worse if I go outside for awhile…not sure if it’s from the sun or from the allergen exposure (I have VERY bad allergies…I started allergy shots in February 2008). It also gets worse if I lean forward.

 

I’ve tried many medicines to no avail:

-          amitriptylin

-          topamax

-          zanaflex

-          dexamethason

-          round after round of antibiotics

-          prednisone (seemed to help, but I obviously can’t be on steroids forever)

-          indomethicin (seemed to help for awhile but doesn’t anymore)

-          naprelan

-          magnesium infusion via an IV

-          advil, tylanol, excedin, etc.

 

I take Allegra D and Singulair daily as well as the nose spray Nasonex.

 

I had an MRI…it was normal. I’ve had several CT scans…they show nothing that could really be causing these headaches. I do have one remaining, relatively minor structural problem that was MISSED during the first surgery, as well as some scar tissue in the ethmoids…I intend to have a second sinus surgery to fix these problems. My new ENT told me, though, that it’s statistically unlikely for the surgery to help my headaches.

 

I am well aware that migraines can often FEEL like sinus headaches…however I don’t have any of the other migraine symptoms (nausea, sound/light sensitivity, throbbing, etc.) My headache specialist thinks that I most likely have chronic daily headaches which, I’ve learned, are the hardest to treat. He just gave me a triptan to try and see if I respond to that...mainly to be able to cross that off the list. The problem becomes that, since my head hurts ALL the time, I would be taking a triptan ALL the time, and I know that can cause rebound headaches. I have yet to try it.

 

I’ve found a few people with similar problems on forums like this, but they seem to usually have vision problems, lightheadedness, etc. that I don’t have. I’ve also never found anyone who SOLVED their problem. Does ANYONE have a similar-sounding problem? Any solutions??? Any advice would be most appreciated.


arinama
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Date Joined Jun 2008
Total Posts : 2
   Posted 6/8/2008 5:04 PM (GMT -7)   
I have gone through something similar. I still have daily headaches (but not as intense). I have had MRI's, CAT scans, and gone to every type of doctor imaginable. I did determine finally about 1 1/2 years ago that I have TMJ. You don't have to have your jaw lock up on you, or have it click or pop all the time to have it. It can be that your bite is offset (especially if you a clencher or a grinder). Anyway, I found a doctor in my area that specializes in TMJ. I got a splint (that I wear all the time with the exception of when I eat) that evens out my bite. At first my headaches got worse, but that was because there was a foreign object in my mouth and I kept biting down on it (or rather clenching on it). Once I got used to it they eased up some. Before my ears would ring, I thought there was always something wrong with my sinuses, my ears would clog up, I would get dizzy, pain behind my eyes, my temples were sore, my teeth hurt, my neck, etc. Anyway, if you look up TMJ or TMJD and look up the symptoms, you may find that you have this. You certainly sound like you have some of the typical symptoms. Hope this helps.
 

oley1972
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Date Joined Jun 2008
Total Posts : 19
   Posted 6/25/2008 12:17 PM (GMT -7)   
I also suffer from daily feels like sinur pressure headaches...I got my very first Migraine headache about 3 weeks ago here at work and was taken to the ER b/c it felt like the left side of my head was going to burst...It was just a Migraine but also with my Migraine's I do not have the sensitivity to light or nausea, just the pain on the left side of my head, right behind my eye & temple area. I had a CT Scan done and nothing was wrong so they gave me a shot of Imitrex and that took the pain right away so my Doctor said well Imitrex only works on Migrane's so if it was something else it wouldnt have worked and said I was stressed. She did refer me to a Neurologist and I have an appt w/ one coming up in the next couple of days...your not alone...

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 6/25/2008 1:25 PM (GMT -7)   
Hi Oley,

Welcome to Healing Well. Sorry to hear about these headaches. Imitrex works for Clusterheadache as well as Migraine - it even says this on the box and in the Doctors prescribing bible!!!! So I think the ER need to do their homework!!!!

What is the pain like behind your eye and around the temples? Is it stabbing, throbbing, burning or pressure?? How long do these attacks last if you do not abort them? Hope you have some success with the Neuro, please let me know how you get on?

take care

Ann
Co-Moderator of the Migraine/Headache Forum


oley1972
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 6/25/2008 1:41 PM (GMT -7)   
yeah the ER Nurse Practioner I say that day said the Imitrex will work on Migraines and Cluster headaches...the pain behind my left eye is more like a low throbbing pain...dull but there. I have been to the eye doctor and he didnt see anything wrong w/ that eye & my rx for my contacts was fine...my regular Doctor just keeps saying I am stressed and my response was "well i am stressed now b/c why all of a sudden at 35 am i getting headaches that i have never had before"...of course no Dr can explain that! I can have the pain behind my eye most of the day so another reason why my Dr says could be sinus pressure...b/c if it was a brain tumor or stroke i would have other symptoms, blah, blah, blah....i am just praying & waiting to see the Neuro Dr and get an MRI to make sure nothing else is seriously wrong.

Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 6/25/2008 1:57 PM (GMT -7)   
I wish you well when you see the Neuro, it sounds to me as though this is migraine but I am no Doc! But I would point out that Imitrex would not take away the pain of Sinus pressure!!!!!!!!!!!!! Let me know how you get on?

take care

Ann
Co-Moderator of the Migraine/Headache Forum


Stayce92
New Member


Date Joined Jul 2008
Total Posts : 12
   Posted 7/7/2008 9:09 PM (GMT -7)   
Hi Oley,

Many of us have been in your position; I was 32 when I had a headache for 3 months straight before the doctors could finally break it. I have had MRIs, CAT scans, sinus surgury, infusions, more pills prscribed to me than I can list. They honestly don't know when it comes to headaches, it is so frustrating. They can come on one day out of no where and take away your life and everyone is clueless as to why.

I wish you luck.

oley1972
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 7/8/2008 7:57 AM (GMT -7)   
Well I say the Neuro yesterday-really great Doctor, she was awesome.  Didnt look at me funny when I was explaining my symptons.  She also stated that a woman's body changes many times on its own or after having kids...My daughter is 2 and I am 35 and still on birth control...she said all of that can produce Migranes...she also said stress is the best cause...which I guess we all stress every day over something sad ...she scheduled me for an MRI, MRA and a Visual Field Test...She did make me feel good when she said the CT Scan I had done a month ago would have shown anything really bad so that takes away the fear of a tumor or stroke.  It seems like everyday I get some type of headache weather its sinus pressure or the starting of a Migrane.  I go back to the ENT next week for the Vertigo issues which also can cause Migranes...I feel for everyone who is having the same issues I am but its nice to know I am not alone in my pain. eyes The nasal spray, Veramyst the ENT gave me gives me nose bleeds so can't really take that every day for the sinus pressure...I take Advil and/or Aleve almost every day to relieve the sinue pressure...Maybe seeing the ENT next week and telling him the repoisitioning didnt work and the Vertigo is worse-we can get that fixed & the headaches will go away!  How awesome would that be?  My sinus hurt so bad sometimes they feel like there burning...I am really hoping the MRI will show whats going on b/c that looks at the nerves and sinus cavaties!  Oh well...Will keep posting with updates. scool

patticat
New Member


Date Joined Jul 2008
Total Posts : 1
   Posted 7/9/2008 7:37 AM (GMT -7)   
I can totally relate to you and your situation.  I am a 37-year-old mother of three.  I have had headaches for 15 or more years.  I have had 2 sinus surgeries that provided temporary relief only.  It was very hard for me to accept the fact that these were indeed migraines.  I have mainly pain behind my eyes.  It is very hard to describe because the pain may be behind the right eye one minute, and behind the left the next.  Sometimes the pain moves to my temples and to the sides of my head, but the central pain remains in my eye sockets.  The pain gets worse when I stand quickly or bend over.  Sometimes I think the headache is gone because I feel fine, and I might move my head and WOW...there is the pain stabbing my eye socket.  I feel very isolated with this.  Sunlight is rough on me as you all well understand.  I have run the gammet of tests and everything has come back "normal."  I currently take elavil and topomax, although I think the topomax has maxed out its effectiveness.  I actually had about 4 months of no h/a, but maybe it is the summer heat, or just a reminder that I am not done with them, but I have currently had a headache now for about 1 1/2 weeks.  It really wears on you.  People around you can't understand how you feel. 

oley1972
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 7/9/2008 12:18 PM (GMT -7)   
My pressure is behind the left eye & in the left temple...There are times when it will move over to the right side but no that often. My new symptons is head tingling...Like my head has fallen asleep...Today I have walked around with a sinus headache and took Sudafed Sinus Headache and that took away a lot of the pressure but the pain never really went away completely. Talked to my Neuro and she is wanting the MRI and MRA done but the girl won't call me to set up the appointment. I mean insurance pays for it so whats the hold up? The pressure is so bad from sinus my face tingles and feels like it numb but when I tough it I can feel it. Getting nose bleeds too! Great it just keeps getting better & better. I will feel better once all these tests are done & I can be told "its not a tumor"!

SGC
New Member


Date Joined Jul 2008
Total Posts : 5
   Posted 7/29/2008 4:37 PM (GMT -7)   
I have had similar symptoms daily ~6 months. Pain just below the eyes and behind the eyes. I feel best when I wake up and it is worst in the late afternoon and early evening. Some very mild clear sinus drainage on occasion but nothing to indicate a sinus infection. Also my head hurts when I bend over to pick something up off the floor.

A cat scan was negative on Monday. Veramyst does not seem to help nor antihistamines. I usually get some pain relief after 2 advil.

Sounds like I am going to have to learn to live with this. Not a pleasant thought. I was thinking of an ENT visit next but sounds like no one here has gotten any relief. Maybe the ones who get better don't post on bulletin boards!!

oley1972
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 7/29/2008 8:35 PM (GMT -7)   
Well had my MRI and MRA done and both came back NORMAL! I am really starting to just love that word...Still have the daily sinus pressures, some days are better than others. Going to the eye dr tomorrow so they can dialate my eyes and make sure nothing is wrong w/ my optic nerves...had blood work done, its not diabetes...starting to think now it could be MS or spinal issues b/c I work on a computer alllllll day...sitting at a desk on the computer. thinking about seeing a chiro dr next to see if that helps...even stopped taking bc pills thinking the headaches could be hormonal. my ENT gave me xyzal to take for the sinus but i am not a pill popper person & scared to try something new but who knows one night b/c you have to take it at night b/c it makes you sleepy, i will try it & see if it brings me any relief. I go for a balance test on 8/11 b/c of my vertigo which has made its way back into my daily life. Feels like I could just fall over or I am on a roller coaster just sitting at my desk! fun, fun, fun...

SGC
New Member


Date Joined Jul 2008
Total Posts : 5
   Posted 7/30/2008 4:52 AM (GMT -7)   
Here is a common thread. I am a programmer and work on a computer all day too!

oley1972
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 7/30/2008 5:51 AM (GMT -7)   
SGC...I am starting to believe it is b/c I sit at this uncomfortable desk and work on this wonderful computer all day!

SGC
New Member


Date Joined Jul 2008
Total Posts : 5
   Posted 7/30/2008 3:43 PM (GMT -7)   
Oley1972...I am starting to believe that no doctor is going to help me. I have decided to exercise more and de-stress my life as much as possible. As of today, I am using one of those soft ice packs on my head and face for about 5-10 minutes every hour (as possible) when I am at home. It seems to help some. Other than Advil, no med has helped me at all.

Today my internist referred me to a neurologist after finding that the CT scan was negative. I do not think I will even go. I am reading other places on the web that headaches are the most common complaint to doctors. I tend to think that with the exception of migraines and brain tumors (as a cause) that there is not much doctors can do.

We are on our own and may as well take responsibility for our health. Am I being realistic here or just negative...I can't tell.

oley1972
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 7/31/2008 12:57 PM (GMT -7)   
SGC...I think you are being realistic...I truly think the only reason my Doctor sent me to a Neur Dr is b/c she knows how I am...I would have gone anyway...I like to rule out all the bad and then everything else I can deal with, with less stress. I also really bad bouts of Vertigo so I see an ENT for that and the Sinus Pressure. I go for a balance test on the 11th and we go from there. I was just in WV over the weekend and man going over those high mountains was killing my head. Felt like I was on an airplane. But its amazing to feel the difference when Im not working to when I am working...all my muscles hurt when Im here at work and at home they dont. Nuts

SGC
New Member


Date Joined Jul 2008
Total Posts : 5
   Posted 7/31/2008 4:16 PM (GMT -7)   
Oley - Yours sounds more complicated than what I am experiencing. I don't have any vertigo but I am hearing low frequency noises at times. Also day before yesterday, I ran after my dog and every time my feet hit the ground I heard a noise that was like a highway traffic noise in the distance, but when I stopped running, the noise stopped. So weird...makes me think maybe I am schizo!!!

Good luck ruling out all serious illness. Then try standing at your computer for part of the day and/or working on the ergonomics of your sitting arrangement. Take a 5 minute break every hour and look off in the distance. All of this is cheaper and less time consuming than taking off work and going to the doctor... Sounds like a stress component may be part of the mix.

Also try my ice trick. I swear it is helping...I think it reduces the swelling of the tissues if you can get the cold right over top of the sinuses. I also do the top of my head for part of the time.

Thanks for chatting with me. I will continue to look for your posts.

oley1972
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 8/2/2008 9:03 PM (GMT -7)   
I am more and more starting to think my Migraines are either Hormonal or maybe Menstral, which doesnt explain why all of a sudden I am getting them now BUT...or they could be stress related or tension related. I have noticed that I am tense a lot & try to really relax but again working on a computer, sitting at a desk all day, its not comfy by any means! I am just dealing with them as they come & still have a balance test on the 11th to see if maybe its been sinus all along........

SGC
New Member


Date Joined Jul 2008
Total Posts : 5
   Posted 8/3/2008 7:11 PM (GMT -7)   
Oley, I am 58 so I don't have those issues any more...age has its own drawbacks but the hormonal issues have now passed for me! I have been suffering with the eye headaches for over 6 months but just in the past week I am getting some control over my life back. This weekend I have been using the soft ice pack on my head and face and back of my neck, maybe 8 times a day and 2 advil once or twice a day and a morning walk and an evening walk. I read that exercise helps headaches. The pain is much much less. Of course, it could be some allergen is not present...who knows...

Week before last I was coming home from work with bad headaches and extreme tiredness...feeling totally miserable and going to bed at 8:30 or 9 pm. every night. That was no life.

Alilstar23
New Member


Date Joined Apr 2008
Total Posts : 6
   Posted 8/11/2008 11:59 AM (GMT -7)   
I am 28 yrs old about 2 months ago I developed pressure in my head, sometimes face area, and chronic burning sensations. Had MRI no tumor although they found a Arachnoid cyst in my brain and said has been there probably since birth and has NO SYMPTOMS benign and like a mole on the skin told me ignore it and that wont be causing pressure headaches and burning sensations. NO over the counter meds work, doctor now wants to send me to neurologist. I cannot take this anymore it is truly affecting my life. Everyday my head BURNS I have massive pressure in my head people do not understand me. I had blood work all normal, MRI no tumors or any type of problem, eveyrthing normal have not seen Neuro yet however what can I do about this? How can I continue with BURNING, PRESSURE 24-7 and not a doctor knows why?!!!!!!!!! Sometimes I feel slightly dizzy other times weird sensations in my arms, light numbness once in a while otherwise, its the head pressure and excessive burning sensations. I am trying to figure this out on my own because doctors seem to say its nothing. Hopefully the neuro can run some tests. I was thinking I need to go have my wisdom teeth removed maybe its that althought I have no teeth pain my wisdom teeth came in partial and maybe their adding pressure to my head? Or TMJ? Or who knows, can anyone relate out there?

oley1972
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 8/11/2008 7:24 PM (GMT -7)   
Alilstar...I too have daily sinus pressure in my head that seems to move all around my head w/ the burning sensation...I take Ibuprofen 800mg that was an Rx for something else but it takes the edge off...again I have had a CAT Scan, MRI, MRA and some other tests that have all come back normal...MY ENT Dr just diagnosed me with Vestibular Neuritis and have given me yet another Rx to take and says that I must take this if I want the dizziness to stop but it wont happen over night...YIPPIE SKIPPIE...I would see an Ear, Nost & Throat (ENT) Doctor who also does sinus issues, most do, but some do more...and go from there. I also take Veramyst which is a Rx nasal spray that takes away a lot of the pressure and burn but it can cause nose bleeds...

ChronicHeadPain
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/13/2008 8:13 AM (GMT -7)   
I feel everyone's pain and frustration.....I am a 30 year old female who has had a constant headache for at least 5 straight years. The eyes are always involved, I am sensitve to light, and have pressure when I lean over. I have had sleep problems since early childhood (sleepwalking, talking, insomnia, teeth grinding) and a long history of occasional migraines. I have had MRIs, an MRA, blood tests, and a sleep study. MRI showed lesions on the white matter of my brain, which I was told was indicative of someone with a history of migraines, but no other results were found on any test. I have been on about 40 (not exaggerating) different medications in the last year alone for the daily headaches; everything from Lidocaine nasal spray to Neurontin to Topamax to Triptylines. I don't think there's a category of medication I haven't tried, and nothing has worked. I have trouble getting out of bed some days, and most days entail working and laying down because I really can't do much else since everything seems to exacerbate the pain.

I was put on Klonopin at night for anxiety-related insomnia and parasomnia which helped tremendously with those isues, and helped a little with the headaches, but my last visit with my non-helpful, ever-judgmental (now EX) Neurologist told me to stop taking it and would not refill my prescription because she thinks I should be able to sleep just fine on my own. Now I am back to little sleep at night and waking up with bumps and bruises from getting out of bed when I am asleep. Anyway, I sit at a desk at least 9 hours everyday, which I know is terrible for my health. However, the constant headache precedes my current desk job, so I don't think it's a cause....

I get dizzy sometimes and also faint on occasion. The fainting happens generally with abdominal upset or nausea or vomiting (which, thankfully, is infrequent), but can also happen out of the blue. My Neuro disregarded this issue completely, even as I said I have fainted enough times that I have whacked my head off many a hard surface (toilet, bathtub, metal railing, I have even landed face first on a hard tile floor), especially since it happens when I am walking or sometimes running to the bathroom. I have learned to recognize when this might happen, so I try to get down to the floor as quickly as possible, so when I go unconscious, I don't have far to fall! I have not seen other doctors since I have lost a lot of hope in them after spending over a year of frequent disappointments with medications and Neurologists insinuating that there's no reason for this, so I can't possibly be in constant pain. I have tried acupuncture, massage therapy, and reiki.....no help there either. I am at the end of my rope and do not know what to do at this point. I was thinking about seeing a Chiropractor, but I have really low expectations at this point for ever getting any relief.

cbubbles2
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/13/2008 3:58 PM (GMT -7)   
I just signed up on this website as I have had a headache for one year now and i need to talk with other people who are dealing with this as well! the pain started instantly one day and a year later it's still here! every minute of every day my head hurts to some degree and no doctor or medicine has helped. This is so frustrating and nobody really understands and I'm so tired of complaining, going home sick, and not being able to do anything! I am just wondering if anyone is dealing with the same symptoms as me and where you're at right now. My head hurts all over, in my face, jaw, sometimes ears, and it goes into my neck really bad sometimes and my neck is super stiff and sore. I get really dizzy sometimes and its hard to focus because things seem to just get fuzzy. i've also had a bad runny nose for awhile...anybody have that too? ive been under a nuerologist but she just put me on one medicine that didnt work after another so I got really frustrated and stopped seeing her. chiropractor seemed to help at first, but then i got totally dependent on being adjusted and that created more problems than it fixed! another thing is that i have endometriosis pretty bad and I think they are somehow related, but maybe not. I just got married and went off my birth control and i am a complete mess. my head is about as worse as it's been (and the first few months were terrible) but i have to be off them to get pregnant because after having surgery for the endometriosis my dr told me i dont have much of a window for getting pregnant :( So, i was hoping that i'd find someone going through the same problems (endometriosis and migraines) because i feel like i have no life and its so depressing to be in pain all the time!! i feel so bad reading some of these posts because i know how you feel! I look forward to chatting and maybe finding some help or answers or anything!

Minsh
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/26/2008 2:02 PM (GMT -7)   
Yikes, looks like all of you are talking for me.  I know mine aren't migraines and are sinus related.  Pain has been for 3 months constant above eyes, cheekbones, sometimes jaw and ear and neck too.  Some minor clear drainage down the back of my throat.  I had sinus surgery about 6 years ago which helped for a few years but it's back and they (doctors) just always want to give more drugs, which never help.  Advil helps some but I'm taking it several times every day.  Going to try a Chinese Herbalist and Acupuncturist next since no other doctors help.  I know changing to a probiotic (no wheat, sugar, corn or dairy, caffeine) diet would help, but that's hard to adhere to all the time.  Most all medical conditions are related somehow to diet and we (Americans) have crappy processed diets.  If you do only one change get off the dairy, calcium is more readily available in green vegetables anyway.  I know its hard to do but you'll feel better.  Now if I can take my own advice we'll all feel better.

jfb42
Regular Member


Date Joined Jun 2006
Total Posts : 56
   Posted 12/5/2008 8:57 PM (GMT -7)   
Hello Everyone,
A 'headache' like this may actually be caused by infection.  Maybe ask your doctor if it's a possiblity or google around.  My daughter has had a constant headache for going on 5 years.  The first 2 years some anti-siezures or anti-depressents seemed to take the edge off, but still there and started to get worse (especially after prednisone treatment which suppresses the immune system).  Went to Thomas Jefferson Hospital and they looked at on-set (intense Headache, visit to ER, flu-like illness a few weeks before it started) and thought she had meningitis early on that was not treated when acute.  It started to affect her peripheral nervous system and she had random pains, sleep, cognitive issues, anxiety etc.  This can be caused by viral illness (unfortunately no good treatment) or a bacterial illness such as lyme disease (unfortunately a more controversial diagnosis although this is starting to change).  The tests for these illnesses are not accuarate enough.  After intensive antibiotic treatment she is greatly improved and functioning (in college and doing well after having to be home schooled), but still has a constant headache but at a lower level and says she forgets about it sometimes.  Best of health to you all.
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