I am truly sorry to hear that you are suffering so much still. Sadly the availability of diagnosis and support depends very much where you live and what medical facilities are available.
This board is for support only as we cannot diagnose as we are not Doctors here, we can only speak from our own experiences!
Also, sadly we all have to come to terms with the fact that for the time being there is no cure for Headache no matter which type you have! There are only meds that we can try to explore their effectiveness, each of us getting different results as we are all different therefore the meds affect us all in different ways!
I know it may not feel like it but you are being treated by the best possible Consultant at the National Hospital in London, sadly there are no easy answers or any speedy ones either!!!
Hang in there Richard, keep following Prof Goadsby's suggestions and you will get there in the end!!
Co-Moderator of the Migraine/Headache Forum