WELL...IT FINALLY HAPPENED

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CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 6/25/2008 5:33 PM (GMT -6)   

Well, it finally happened. I went to the ER for a severe migraine, and after three hours of waiting, the new doctor refused to honor my PCP's standing order for a pain injection. I was in agony, and this chick said she didn't give pain meds for migraines. My Dad was doing the talking cuz I was pretty monosyllabic from the pain. She said she'd have to think it over and just left the room. She left me in pain, wondering if she was going to help me at all.

about a half hour later, I was in tears, needless to say, and she came back in the room saying there were some "combinations" of meds she was willing to try...leading off with imitrex. Well, having already told her that imitrex made me violently ill when reviewing my failed meds 45 minutes earlier, I just lost it. I wasn't going to go along with something that was going to make things worse. I started crying harder and the doctor just walked off, saying I could consult with one of the other doctors on duty.

about twenty minutes later, this nasty, sawed-off male nurse oozed his blubbery self into my cubicle and said that the other doctor had left, so it would be impossible to talk to him. When my Dad enquired about the third doctor, this nasty little man said that it wouldn't make any difference, because the doctors would back each other up. On top of that, he had this totally affected lisp which made his voice all the more irritating, and I was just waiting to hear him start snapping his fingers. He sounded like his stillettos were too sizes too small. You could tell this chap had his panties in a twist. It was basically..."you don't like the treatment, then you are refusing treatment, so just leave." End of discussion. No second opinion. Tough luck. One nurse named Julie, who had seen me before, was very sweet and was visibly distraught that I was getting the shaft.

My Dad offered to take me to the ER in the next town over, but it was almost 2:30 am, and I wasn't about to make him drive across the county at that time of night. I just went back to my apartment and waited until daylight. My Dad came back to get me to take me to my PCP, but I had just fallen asleep about 7:30, so he just curled up on my couch and went back to sleep. When I woke up a couple hours later, my Mom called my PCP's office to get me in to see him, but I had to wait until 4:15 in the afternoon.

It was total misery. My PCP did give me a pain injection and refilled my migraine meds, but wouldn't do anything extra in case I had an emergency room level migraine. I have a referral to a specialist(neurology/pain) at Duke University, about four hours from here, but I have to wait until the MIDDLE OF OCTOBER for an appointment!!! So much for getting a new work-up anytime soon. I don't know what's going to happen until then. Heaven only knows I don't want a duplicate trip to the ER. I've never had a problem before, but I guess from here on out I'm screwed. The doctors in Virginia have a severe case of opiophobia, and don't want to prescribe opiod pain medication for anything that isn't terminal. Having chronic pain most all of the time, doctors don't want to prescribe enough pain meds to keep me in a decent standard of living because there is such a stigma about "addicted" patients. There is a huge difference between someone being "dependent" on opiods to maintain a decent quality of life and an "addict", who will go anywhere and say anything to get the meds to get a buzz, not to control pain. When I take the pain meds, all I get is an easing of my symptoms, definitely not enough of a reaction to feel a "buzz". So many doctors are soley focused on not prescribing narcotics, regardless the condition. The hope the attitude at Duke is much different, although it looks like I won't be getting any relief there anytime soon. Say a prayer for me.

Thanks,
Leigh Ann :smokin:
PS - sorry if this sounded whiney, I'm just so beat down these days.


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 42, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Lexapro, Klonopin, Wellbutrin, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 6/26/2008 10:27 PM (GMT -6)   

Wow...not a single response from anyone?  Certainly someone must have an opinion.  No condolenses or condemnations? Just "no comment"?  I've never posted anything here that didn't at least garner a some smidgen of concern or criticism.

In thirty-five years of migraines, I've never been treated so poorly by "health professionals".  My brain is reeling, wondering what "gems of wisdom" have been written in my medical chart for posterity.  Will one doctor's opinion doom me from receiving any type of treatment if I have another emergency?

I got the paperwork to fill out to see the specialist at Duke today.  There was a huge list of medications that I'm supposed to go through and indicate whether or not I've taken or tried them before.  Sadly, I've been through most of them.  Every preventative and abortive I've ever heard of, and very few I've not had some experience with.  At least I have over three months to fill it out.

Boy, I'm really feeling the love now...

Leigh Ann sad


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


Sanguine
New Member


Date Joined Jun 2008
Total Posts : 8
   Posted 6/27/2008 6:24 AM (GMT -6)   
Hi Cranky,

I am nwe to this forum. No one responded to my request either. Even with all the 'research' materials available nothing beats advice from someone else who has 'been there.'

After you fall unconscious a couple of times from headache it becomes necessary evil to investigate all options and causes. Thanks for sharing your ER visit, I have had varied responses upon arrival in the ER from 'we are doing nothing go home' to OMG - call the family she is going downhill fast. I am always open to trying something new. I never worry about the headache pain until they have the severe aura stuff fixed because some of that 'lingers'. Lots of nueros in my life because of moving -- newest one referred me to a big headache clinic but I can't get there until September. Dr.s get frustrated when nothing stops the headaches (heck they isolated a gene, if its genetic does it have to have another 'Cause'?) Just treat my symptoms... we can't avoid living. Perhaps long time ago we all got these migraine genes from cavemen. Seems we would be well adapted for that. Dark, cool places where leaving the cave was only necessary for food, water.

Sanguine
New Member


Date Joined Jun 2008
Total Posts : 8
   Posted 6/27/2008 6:59 AM (GMT -6)   
Cranky,

I've been to Duke University Medical center years in the past, they do a very good job. Be prepared you have to pay for your parking and walk across the street, unless someone is driving you.


Good luck.

Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 6/27/2008 11:22 PM (GMT -6)   
Going to the ER is never fun. The ER where I live just remoldeled and is always bragging about how great they are and how much the doctor's there care, but i disagree with them. My friend's mom went in there not too long ago complaining of chest pain and they sent her home saying it was in her head and the next day she ended up needing a triple bypass and almost died. I use to go all the time for migraines and after a while they started treating me very bad eventhough I never asked for a narcotic, so i havent been since last summer, so i went again a few weeks ago and they treated me like i was asking for heroin, i wasnt even asking for a narcotic, i needed imitrex and something for nausea cause I was out of my own prescription and it was a weekend, and they acted like that was the worse thing in the world. there is nothng worse then being in severe pain and asking for help from someone that is supose to help you and is being paid to help and they kick you in the face. I'm so sorry for your experience.
 
-hellokitty

Nichole28
Regular Member


Date Joined Jun 2008
Total Posts : 39
   Posted 6/28/2008 7:32 AM (GMT -6)   
I won't ever go to the ER again, In march I thought I was having some kind of stroke well turned out not to be but I was still very sick. The butt head dr's in the hospital diagnosed me with Somatization disorder but when I saw a REAL dr a Neurologist at UCLA medical center on tuesday I do indeed have a REAL condition. I am sorry you were treated so poorly but it isn't shocking, and I am sure the dr was just trying to cover her own butt. But it is sad when people REALLY need the meds and they aren't given because people out there abuse them. Hoping you are feeling better and once again I am sorry for how they treated you!!!

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 6/30/2008 10:45 PM (GMT -6)   

I just re-read my two posts again, and I noticed that I left out a critical piece of information.  I have a signed Treatment Directive from my PCP stating exactly what medication I should be given in case of a migraine.  The doctor refused to honor the treatment specified.  Who the heck does she think she is, second guessing a reputable physician who has been treating my migraines since 1979?!!!  Makes me want to throw and break things.

Leigh Ann mad


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


Nichole28
Regular Member


Date Joined Jun 2008
Total Posts : 39
   Posted 7/1/2008 8:42 AM (GMT -6)   
Wow I am shocked that even with a signed treatment plan from another dr she still wouldn't do it. Some dr's never cease to amaze me, it just isn't fair that you had to suffer because she was being a jerk!!

monthofpain
Regular Member


Date Joined Mar 2008
Total Posts : 35
   Posted 7/1/2008 7:25 PM (GMT -6)   
I think that is crazy. The first time I ever visited the ER in my life was back in Feb.  I went to the doctors earlier that week because my headache was not going away.  She gave my an imitrex shot and told me to call back at the end of the week if it is not gone.  I called her that fri. morning the nurse that took my message did not find it ot be important so she just put it on the doctors desk.  The doctor didn't get it until after everything was closed and when she called me back around 6:30pm she had told me to go to the ER.  Anyways the part about the hospital.  My doctor told my mom that the hospital will call her after they do a ct scan and she will tell them to give me a prescription for imitrex.  My doctor was on call that night.  So after waiting in the ER waiting room for 5 hours (really that long) they finally put me in the back but becasue they where so busy they put me on a bed in the hall way.  This way they can give me the CT results and send me home.  They where going to send me home with nothing they never called my doctor.  So by this time it was 1:00am and my mom mentioned they imitrex all they said was "you seriouly want me to call they doctor at this time"  we said yes if they is what it takes to get something.  Luckly they did call but they where very sckeptical about it. 
 
But what gets me is how the insurance company is treating us.  They are questioning if I
really needed to go to the er.  When my doctor call us and told me to go my mom asked if we could wait until the morning for the ct scan and the doctor said no she needs to go now.  How is this not an emergency. 
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