Ketamine infusions

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korbnep
Regular Member


Date Joined May 2007
Total Posts : 327
   Posted 6/26/2008 12:50 AM (GMT -6)   
Just wanted to quickly inform you all that I've scheduled an(other) inpatient hospital stay at Jefferson (7/08) to have 24-hr IV ketamine infusion. I initially read about the drug starting to be used with headaches (it's been effectively used to treat RSD/CRPS for a while now) on this forum a while back and, after sending a lot of emails and nagging the headache center doctors to set-up the program, I'll going in to try it in just about two weeks. I'm very excited...I have been doing really badly recently (NOT having a 10/10 for a few hours each day is becoming uncommon). Thanks to whoever posted it! I'll try to keep you guys informed.

Ben
DX: NDPH, Recovered CRPS
RX: Lamictal, Provigil, Clonazepam, Ambien CR, Emsam, Namenda, Oxycontin, Oxycodone
PRN: Haloperidol, Zyprexa, Lodine, Zofran, Skelaxin


korbnep
Regular Member


Date Joined May 2007
Total Posts : 327
   Posted 7/18/2008 9:17 AM (GMT -6)   
Hey guys,

Just wanted to follow up on this. I was discharged from Jefferson critical care two days ago and, for the first time in years, I feel hopeful about the future. Personally, whenever I'd read some message like this, of someone saying "I finally broke through!", or something similar, I'd think to myself "oh, they must have not had it so bad". Of course, there's absolutely no way to compare pain--aside from the constant hurting, its effect on us is rangingly unique. Myself, I had pretty much curled up into a hole that I saw pretty much no hope of getting out of. My life has held little joy for many long years. It has been nearly six years since I've had a single moment of not being in pain.

And the ketamine infusions did NOT change that. But they allowed me to feel hopeful and start to drastically change my approach to living with pain. I was at a very high, inebriated state for a little longer than four days. At first this didn't do all that much for me, the medicine DID improve my days, but so long as the pain was still there, I could not just be instantly ready to face my future. But, the medicine gave me a reprieve, partly on its own merits. Through a lot of interaction with my family (who I have not been close with), I summoned the determination to try to be just..able. I did not let the headaches limit me, just for a moment then and I started reading a book that I've been wanting to read for a long time. To my surprise, I could actually handle this, though I was very drunken. I figured that it was worth the try, though I very much feared the backlash of pain that I thought would ensue this effort and the potential eyestrain.

Honestly, it did wear me out and I did have worse pain later in the day. But I had a push of Toradol that got me through the worst of it and I tried again, starting to read and write and be as active as I could be in the hospital, taking strolls throughout the floor and chatting with the nurses. That too, took it's toll and I needed to nap at times after even relatively short excursions, but I persisted and I started to crack through that VERY hard shell that I had erected from the thought that I cannot do things because I am always in pain. I have no decision in the pain and in the hours or days that I may have trouble doing almost anything. But I HAVE decided that living my life, fully, is not contradicted by the presence of chronic pain.

If anyone has more specific questions about the experimental treatment (I was the second person to do this program at Jefferson), just reply or, better yet, send me an email, which you should be able to find in my profile (if not, it's korbnep AT gmail dot com). I wish you all the best :)

Ben
DX: NDPH, Recovered CRPS
RX: Lamictal, Provigil, Clonazepam, Ambien CR, Emsam, Namenda, Oxycontin, Oxycodone
PRN: Haloperidol, Zyprexa, Lodine, Zofran, Skelaxin


givenup
Regular Member


Date Joined Aug 2007
Total Posts : 94
   Posted 7/18/2008 1:10 PM (GMT -6)   
hi ben its ashley. glad to hear you are feeling better. did the ketamine work at all? why were you in the critical care unit?  i dont know if you remember me, but we both went to jefferson.
    
 
 
                                                                                    ashley

ZoeSkye
New Member


Date Joined Jan 2014
Total Posts : 1
   Posted 1/7/2014 12:37 PM (GMT -6)   
Dr. Elena Ocher in nyc
she is a neuro pain management dr. and has developed a surgical cure for chronic headaches.
I had the surgery this past summer and have been cured after nine years of non stop pain. good luck

painfulflower
New Member


Date Joined Jan 2014
Total Posts : 4
   Posted 1/13/2014 7:56 AM (GMT -6)   
ZoeSkye, What exactly did this neuro doc do in your surgery? Was it something they found that warranted a surgical fix?
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