I have hemiplegic migraines as well. They started suddenly two years ago and until I saw my current neurologist I was having daily attacks of right-sided paralysis. They would only last about 10-15 minutes, but it was still very disturbing. I was originally diagnosed with having TIA's and after a full workup they began to suspect hemiplegic migraines. I was very doubtful because I hadn't (and still have not) had a headache-migraine. I saw a neurologist who specializes in migraines and she started me on verapamil. It has done wonders. I had to go back to her last week because my episodes were coming back daily, but not full paralysis. Just some numbness in my cheek and weakness in my right arm and leg. It was not enough to even disturb my activities, but I didn't want it to progressively get worse. She doubled my dose and started me on magnesium. It seems to be helping.
My advice would be to seek a specialist who understands this rare form of migraines asap. My doc has been great and is very informed on all forms of migraines. As far as home treatment, I don't know. Magnesium can be purchased OTC so it wouldn't hurt to try that I suppose. I take 500mg daily. I also take one 325mg of aspirin daily.
Good luck, I know how frustrating it can be!
How did your neurologist diagnose you with Hemiplegic migraine? Did you have genetic testing? My daughter is 14 and the "episodes" started at 12 1/2. She has had 4 pretty bad episodes that always start with numbness in arm/leg and then moves to speech, disoriented, clumsy, and then use to go into the headache stage and nausea/vomiting. The whole episode looked like a stroke and we went to the ER the first two times. Her neurologist told us to try excedrin at the onset and now she has no headache, just the symptoms above and then a day of "dull". I am so scared for her and don't know what to do with high school starting; friends, etc. Would love to talk to you some more.
Worried mom in MN
Just wanted to confer about hemiplegic migraines in teenagers. My daughter began 6 months ago with migraines that made her unable to walk for 2 - 3 days at a time. As she has 2 - 3 a week they just run into each other. She has missed on and off 4 months of school and hasn't been there at all in the last 5 weeks. Am worried about school work, friends, self esteem. She gets a blinding headache, legs and arms go numb, mouth and cheek numb, and finds speech and thinking difficult for a while. She sleeps it off but it's the legs that continue to cause problems for days, and she crawls around the house. She is on Epilim (anti epileptic drug) morning and evening and paracetemol for the pain as and when. We were lucky that our doctor was quick to recognise the condition fairly early on, got her an MRI, EEG, blood tests and a neurologist that himself has migraines but how do we get her out of the house and off to school. A wheelchair arrived for her this week, and school are looking into tutoring. Where has my beautiful daughter gone?
Post Edited By Moderator (tysmyboo) : 9/28/2009 10:10:17 PM (GMT-6)