DOES ANYONE HAVE MIGRAINE/PAIN MGMT EXPERIENCE AT DUKE?

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CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 7/1/2008 2:16 AM (GMT -6)   
Hey gang,
 
I'm having to search far and wide to get some help with my chronic migraines and other pain issues.  I have finally procured an appointment with a migraine specialist at DUKE University Medical Center.  Unfortunately, I have to wait 3 1/2 months for the appointment.  I would greatly appreciate any information available from anyone having experience at Duke in the meantime. 
 
Frankly, the state of Virginia is rapidly becoming a police state when it come to pain management.  Doctors won't even treat me as a whole person.  Heck, my PCP doesn't want to be responsible for my pain issues.  The "Pain Management" clinics I've been to at major facilities in the state only want to treat "parts", and doctors that will prescribe opiates are disappearing faster than the price of gas is going up.  I can't take NSAIDS due to a reoccurring GI bleed, so I'm kind of stuck.  To give you an example, I have a whole series of major problems with my back.  My latest PM specialist doesn't want me to take any pain medication at all.  He basically says I just need to exercise more and lose some weight.  HELLOOOOO!!!!  Not very easy to do when you can barely walk when you get out of bed in the morning.  My daily pain level is about a 6/7 out of 10.  My migraines are 8/9+ on the scale.  The pain medication I get is 30-5/325 LORTABs every two weeks from my PCP.  I have a moderate tolerance to narcotics, so this low dosage of LORTAB is about as effective as if I were eating chalk, and my doctors don't even want to me to be taking that dinky amount.  I do have a migraine abortive that is also a narcotic nasal spray, but it barely lasts a week, and I can only get it filled once a month.  AAAARRRRRGGGGGHHHHH!!!!
 
Any input would be appreciated.
Leigh Ann confused

Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


papasgirl
Regular Member


Date Joined Apr 2007
Total Posts : 44
   Posted 7/4/2008 12:17 PM (GMT -6)   

Hey Cranky! (i can totally sympathize with your name lol)

 

I am 32 and i live in the state of maine... i have been diagnosed with fibromyalgia,arthritis,spinal stenosis,scoleosis,herniated disk,ddd,well u get the idea lol.......anyhow as u are having the trouble in virginia i am having the same problem here in maine with anyone who prescribes meds being far and few between. i also had a long wait to see the pain specialist i am seeing now and u are right she only wants to treat certain parts of me instead of dealing with the whole picture. i have my pcp as of now prescribing me percocets 5/325 which is alot like taking nothing due to my tolerance of meds the only way i got those or an mri done was to take an older friend of mine to the drs apt with me and she told the doctor how she saw my pain on a daily basis effecting me and my husband and kids because i was so cranky all the time. dont know if any of this is really helpful to u but wanted to let you know that you are not alone,i am afraid tho i havnt really found the "awnser" yet either ... if u want to come in to chat and talk sometime im on often ok have a great day!! 

papasgirl

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 7/4/2008 8:18 PM (GMT -6)   

Hey Papasgirl,

Thanks for sharing your story with me.  It amazes me how some people are prescribed several heavy duty narcotics, while others with similar problems fight to get any help at all.  I just got a prescription for Lortab 5/325 - 30 of them.  I get this prescription once every ten days.  The instructions are for 1 or 2 every four hours, with a limit of eight per day.  Let's see...by my count the prescription will last for less than 4 days!!!  So that leaves six days with NOTHING to help ease the pain.  The Pain Management Clinic I have been going to doesn't even want me having that piddling amount of help.  It boggles my mind how some doctors just want to do procedures, instead of whatever it takes to make the patient comfortable.  The whole thing just really makes me angry sometimes.

Leigh Ann mad


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ 
  • Divorced, 43, no children
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(four molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab, Trazadone, Buspar, Nexium, Tramadol, Phenergan, PROHIBITED FROM ALL NSAIDS
  • Current Problem: Internal Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


papasgirl
Regular Member


Date Joined Apr 2007
Total Posts : 44
   Posted 7/6/2008 6:44 AM (GMT -6)   
Hi there,
 
 sometimes i swear doctors dont even know how to count let alone do anything else to help u with any problems you have, they did the same type of thing to my husband with his diabetic medication of all things the script said to take 3 a day but only gave him 30 for a month it never makes sense to me either and i hope that you find someone that is willing to sit and listen to u and then go from there when u meet your new doctor. I do hope u are having a good day and hope u get some relief real soon!!! :-)
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