I am sorry to hear you have been suffering for so long! While I cannot speak to your meds at all, perhaps I can speak a little to your latest condition. I have had migraines since I was 15. They have been really bad the last ten years or so, but since we were in the 'family way' and tryin to be in the family way, preventive meds were out of the question so , I just suffered. about five years ago, I ended up in the ER with the most bizarre of symptoms. My whole left side was numb, pins and needles and it my leg would not hold me up, I couldn't walk. From my face all the way to my foot, draw a line right down my center. It was really , really weird. Then my vision started to go, and my husband had been on the computer having suffered a heart attack the month before (yes..what a pair...lol) kept saying..you are having tia...I need to take you to the hospital. I kept saying...PFT! I am only 35 how could I POSSSSIBLY be having a stroke. So, long story short, my vision started to go funky, I let him get me to the ER, CAT scan, overnight at the hospital, they thought TIA. Several years testing. They thought TIA, MS, maybe a few other things. No conclusive diagnosis.
This year, I finally had a doctor who referred me to a Neurologist who is a headache specialist. When I took my stack of MRI, MRA, CAT scans and various other tests, told him my tale - he just blinked and said...you did not have a stroke, that is a typical complex migraine. blink blink. hmmmmmm. Well, he has now successfully found me a preventive med that works and I am quite happy And there were spots o' plenty on my scans...lol...typical white lesions found in a migraine patient.
So, thanks to the folks here who suggest this to others, might I suggest to you as well, that you seek the same? A Neurologist with a specialty in headaches. I see you said you have a PCP (primary care physician?) Do you have an HMO style of insurance? They may balk but I would push and kick and scream until they allow you to see this type of specialist. I would start with your insurance company...call them ask which of those doctors in your area are covered and who you could go to....then go to your physician and see who he/she recommends. It may be an uphill battle. That referal comes out of your PCP 's monthly stipend as I understand those insurance plans to be set up. Please be an advocate for yourself and don't give up! Sorry for writing you a book back...lol!!!
Post Edited (Parrotrosie) : 7/27/2008 5:57:27 AM (GMT-6)
My doctors and I have worried about the rebounding issue as well, but its easy to tell someone about it, its very difficult to push away a pain med when you are in great pain!
I am glad you are happy with your doctor as that is half the battle! I have learned a great deal her as well...I hope you find relief soon as well...keep searching Don't give up! Take care!
I checked out that book about six years ago, but I just didn't find it helpful in my situation. It didn't offer any information I didn't know, and having had migraines since I was eight(35yrs), I've been through all the steps. Unfortunately for me, my most significant triggers are changes in weather/temperature and hormones. Neither of which I can do a darn thing about. If you don't know what triggers your migraines, the book might be helpful in figuring out if you can eliminate some of your triggers. Hope you find out something useful.