anyone else have a headache every day??

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Nichole28
Regular Member


Date Joined Jun 2008
Total Posts : 39
   Posted 8/10/2008 11:25 AM (GMT -6)   
EVERY single day I have a headache, I wake up with them, I get them in the middle of the night I have them ALL day long every single freaking day. They go from stabbing pain to ok it is a dull pain to OMG I want to rip my own head off pain. I just had a stabbing pain in my head about 15 minutes ago that made my hearing go all funny and made me feel like I was going to throw up. I am just so very tired of it all. I can't take the meds my Neuro gave me because the one I am supposed to take daily makes me feel like I am having a heart attack. The Maxalt makes me feel like a zombie and I can only take it at night or if hubby is home to watch the kids. So what does that leave me, advil LOL what a joke. It takes the edge off but that is about all, I am just frustrated and tired of dealing with it. I want my old life back, one that didn't involve feeling crap crap and headaches every single day

Lizzy22507
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/12/2008 10:27 AM (GMT -6)   
I get frequent HA's as well. its quite annoying. I thought it was my eys doing it- I have strabismus so I get left eye pain alot, but ive also been getting just HA's/migraines more and more. My glasses Rx is correct. IDK.
 
Im like you, OTC meds are like popping tic tacs. Maxalt USED to help but it doesnt- and i didnt even take it that long, the dissenegrating tabs make my HA worse b/c it was just so EWWW.
The only thing that really helps is Imitrex. i dont have insurance right now so im using my last 4 pills when im in DIRE need of them. I also have 2 inj and 2 Topamax. nothing else even takes the edge off. i want to do an MRI but i wont be able to for a year b/c itll be preexisting and ill be so broke paying for it!
 
If you find something that helps you PLEASE let me know. I feel your pain. i hate soundling like a baby over a headache, but its annoying when it doenst subside for days at a time. take away concentration- esp when it turns into migrianes.
 
Good luck =]]]

Seahorse74
New Member


Date Joined Aug 2008
Total Posts : 6
   Posted 8/15/2008 10:17 AM (GMT -6)   

Hi,

 Its so frustrating! I have classic migraines with aura's and sickness and over the last year have started to get these long-winded headaches that last for weeks aswell!

It always starts out with a fuzzy head and a dull ache above my right ear, and as the day goes on it gets worse and worse.  I got so mad with the pain last week i actually dug my fingers in above my ear where head was hurting the most and now have a really sensitive, sore area about size of 50p!

I've been reading into migraines/headaches and magnesium levels being related and have started to take a supplement everyday and a tablet called feverfew.  These are both harmless to your system so doesn't do any harm to try taking them before seeing a doctor!

Hope feel better soon


ccarr
New Member


Date Joined Aug 2008
Total Posts : 2
   Posted 8/20/2008 5:56 PM (GMT -6)   
I have headaches everyday 24/7. It has been 5 years. I was diagnosed with something called Chiari One 4 years ago and had brain surgery and I thought that would take away all of the pain. It didn't. I have seen a variety of doctors who first thought it was migraines, then ran more tests because they were not sure, then back to migraines and tension headaches. I have been on every drug possible. I've done the magnesium, Vit.B-2 and B-12. My doctor told me in the spring it is occipital neuralgia. We have done nerve blocks and they worked for a few hours. Now I am planning on having an occipital nerve stimulator implanted to stop the nerves from sending mixed messages. I

It took 5 years and I am hopeful that we finally have an end in site. Keep looking for an answer. I was ready to give up, but it looks like there might be one out there! Best Wishes!

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 8/20/2008 8:45 PM (GMT -6)   
Yes, I had headaches every day, and during cluster periods (summer and winter solstice) I get up to 7 headaches per day. The headaches that begin in the middle of the night may be Hypnic migraines; these, like cluster or cluster feature migraines involve the hypothalmus. If your Dr. is unfamiliar with these you may want to find a new Dr. If you want to e-mail me directly, I can provide you with the name and location of my Dr., I am one of their "challenging" patients...not a position you want to be in, but they were able to help me tremendously.

Triptans not only did not help these headaches, but made them much worse; hence the long term road to finding the proper kind.

One thing that we did learn was that I had significant reflux while sleeping, this caused a lot of my headaches, especially my middle of the night ones. The reflux was considered silent, because I didn't have the typical evening symptoms. You may want to check out the self help information for GERD just to try them to see if they help.

The very best of luck to you; my migraine road has been exceptionally long and frustrating, but with persistence and a great Dr., we have finally succeeded in getting significant relief.
Janice

4tinaknox
New Member


Date Joined Aug 2008
Total Posts : 9
   Posted 8/21/2008 10:24 PM (GMT -6)   
Hi! I thought I was the only one that had HA 24/7. I have had them on the right side of my head for about 20 years. They started as migraines several times a week and transformed into chronic daily headaches. Depakote ER 1000 mg daily prevented them for years and then I had breakthrough pain so I discontinued it (very, very slowly) and tried cervical medial nerve blocks. After three I got about 50% relief for a few weeks, but ended up with the right side of my head being sore and sensitive, I can't sleep on that side. My shoulder is also now sensitive. These injections, for me, were painful. Some people have said they had very little discomfort. Must depend on the pain specialist. He is suggesting radiofrequency lesioning which can give relief for 3 to 18 months, depending on the person. I am afraid to do it although it is said to involve less discomfort. I don't have a good patient/doctor relationship. We are all different and these procedures using xrays and dye to locate the appropriate nerves before injection of a medication (nerve blocks) or heated needle (radiofrequency lesioning). Look them up on the internet and discuss with a pain specialist. God Bless
Your health is your wealth
4tinaknox


4tinaknox
New Member


Date Joined Aug 2008
Total Posts : 9
   Posted 8/21/2008 10:29 PM (GMT -6)   
Hi! Has anybody tried a chiropractor or physical therapy? If so, and it helped, please let me know. Any self help tips would also be appreciated.
Your health is your wealth
4tinaknox


lil_nytemare
New Member


Date Joined Jun 2008
Total Posts : 18
   Posted 8/24/2008 10:01 PM (GMT -6)   
I feel your pain Nichole. I have constant head pressure. Sometimes, it escalates into a serious headche and I'd just as soon cut off the right side of my head than put up with it. I know what you mean though about the wanting your life back thing. I just got over having a headache for 5 days last week. It sucks not being able to do anything. with all due respect, you're married and have a husband and kids. I'm 20 years old. I should have WAY more of a life than I do but I can't because of the headaches. I deal with insurance & investments so I definitely CANT stay doped up on pain pills all the time. Just curious, but do you take birth control? That has been known to contribute to the headaches. My Rx list is in my signature... have you asked your Dr. about any of the meds listed below? The cocktail I'm on seems to be helping a little atleast. I take atleast 2 hydrocodone a day (mainly to fall asleep at night because i STAY wired all night. I end up not being able to fall asleep until about 4 am without them) but am perscribed 4 a day. You should also ask about Dervacet. I usually take those while I'm at work because it dulls down the pain enough that I can actually get things done but it doesnt put me in any more of a fog than I'm normally in.

Like i said, I feel your pain. There's a lot of us here who do and who would be more thanhappy to talk to you anytime you need anything. We're all in this together and if we can't find doctors to help us individually, maybe our knowledge of drug sideffects, operation experiences, etc. will somehow find a way to help us all as a whole.

Good luck and let me know if you need anything!
-Casey
Dx'd:
Endometriosis (1999)
Depression (2003)
Fibromyalgia (May 08)
CFS (May 08)
 
Current Meds:
Gabapentin, Celexa, B-12, Yasmin, Darvecet
 
--------------------------------------------------------------------
"A woman is like a tea bag; you never know how
strong she is until she gets in hot water."
-Eleanor Roosevelt
 


 


Nichole28
Regular Member


Date Joined Jun 2008
Total Posts : 39
   Posted 8/24/2008 10:25 PM (GMT -6)   
Glad to know I am not the only one out there with daily headaches. Lil_nytemare I do not take any kind of birth control and haven't in YEARS and YEARS lol. I go see the Neuro next friday and I am going to ask for new meds to take daily I need some relief. I tried the magnesium but saw no difference so I just wasted money for nothing but oh well. I have thought about going for monthly massages but not sure seeing as mine aren't caused by stress or tension.

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 8/25/2008 1:10 PM (GMT -6)   
I go to a chiropractor and I did go for physical therapy. The physical therapy worked well for a little while and I still see my chiropractor; I've learned which head pain can be dealt with by seeing her and which can't, so in some instances it works very well.

I have had steroid injections, facet blacks and radio-frequency pulse; I've had occipital, supra-orbital and along my C-spine. Everything depends on the quality of pain Dr. you have, everything! I had the RFP supra-orbital and it helped, but it was painful...very... I've switched Dr.'s and the new one is much better. I've had many occipital injects and they help too, so I'm not adverse to having them, nor recommending them.

Massage helped a lot, and not because of stress or tension, but because, in my case, the muscles carried so much inflammation, that the massage helped to relieve it. Does it cure them, not even close, but it sure was nice while it lasted!!

Good luck everyone!, let us know how you're doing.
Janice

HeyAim
New Member


Date Joined Feb 2008
Total Posts : 16
   Posted 8/25/2008 7:07 PM (GMT -6)   
Yep, everyday, every hour-minute-second, since January 11, 2008. Not one second have I not had a headache or migraine. I've tried chiropractor, it didn't do anything. I've tried several preventatives, nothing helped. I've tried several abortives, Maxalt works the best for me...gives me about 6 hours of functional time.

Unfortunately it sounds like we're all in the same vote.

lil_nytemare
New Member


Date Joined Jun 2008
Total Posts : 18
   Posted 8/25/2008 9:43 PM (GMT -6)   
Nichole-

There are many diet triggers as well. Everything from citrus (which is one of mine) to canned figs. I mean there is seriously a laundry list. Citrus really makes my fibromyalgia flare up... but I have noticed that it also has an affect on my headaches sometimes too.

Talk to your Dr. though and tell him EVERYTHING you're experiencing... visual disturbances, where exactly the pain is in your head, neck tension, etc. All these little details make a big difference and can help to rule out possible causes.

Good luck doll! Keep your head up!
Dx'd:
Endometriosis (1999)
Depression / PTSD (2003)
Fibromyalgia (May 08)
CFS (May 08)
 
Current Meds:
Gabapentin, Hydrocodone, B-100, Folic Acid, Yasmin, Darvecet
 
--------------------------------------------------------------------
"A woman is like a tea bag; you never know how
strong she is until she gets in hot water."
- Eleanor Roosevelt
 
"Well-behaved women rarely make history"
- Marilyn Monroe
 
"All you have to do in life is go out with your girls, party hard, and look twice as good as the b*tch standing next to you."
- Paris Hilton
 


 


LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 8/26/2008 9:06 PM (GMT -6)   
I have a terrific Dr. in Ann Arbor; my daily headaches are (almost) a thing of the past, but I also had to go through a lot to get here. I don't what I would have done without them....I wish for pain free days for all of you.
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