barometric pressure and headache

do you have headache with increase in barometric pressure
3
Yes - 100.0%
0
No - 0.0%

 
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flutterflash
New Member


Date Joined Aug 2008
Total Posts : 6
   Posted 8/15/2008 12:18 PM (GMT -6)   
yeah  i... i have PTC.  It began when I was 18 yo and at that time I had 6 lumbar-peritoneal shunts in and out for the next three years.  Bad time to be out of commission - supposed to be having fun - not headaches and surgeries.  I had over 100 spinal taps at that time as well.  My initial opening could not be measured.  The fluid flew out the end of the syringe and over the doctor's head! I had papelidema, and an actual hemorrhage of my optic nerve.  I also had 7th palsy... I think that is what # it is.  I was double visioned.  It all went away and I only have a small blind spot from the hemorrhage.   So, trying to control it, we did two taps a day while I was in the hospital.  I got pretty good at it and used to let residents practice on me.  LOL.   NOT ANY MORE!  Anyhow, it absolutely went away for nearly 25 years!  One day about three years ago I bent down in my garden and felt that dreaded rush of fluid to my head.  I hadn't even seen a neuro in 25 years. 
 
After talking with my Family Physician, I went to see a neuro-ophthalomologist.  (Not many in the country.  I am VERY lucky I have one here where I live and he is absolutely the nicest, smartest, most compassionate doctor!)  I had no papilladema and my opening pressure was only slightly high.  It was an absolutely horrific tap.  A resident did it and I warned him - "I have had 6 surgeries and over 200 spinal taps and there is significant scar tissue".  They thought they were  "all that" and that they would have no problem.  It was awful.
 
After some consultation, it was decided that they would remove my old shunt of 25 years and put in a new one.  OMG.  They could not get the old one out.  The shunt was so old that it crumbled everytime they touched it to try and remove it.  They eventually left it in and put a new one in.  Guess what?   Well, the OLD SHUNT decided it was going to work and was "free flowing" all my spinal fluid right out of my head!  OUCH!  So, they went back in and removed the old one and made sure the new one was working right.  about three weeks later I was preparing to return to work and it was just before a three day weekend.  My incision site began getting large, larger... and looking kinda yellowish.  I KNEW something was wrong.  (Come on, you don't have 9 shunt surgeries and NOT know when something is wrong).  I went to the ER and the neurosurgery resident told me it was a "fat pad".  What a *&%)!  she did no tests, just gave me a shot of morphine for my headache and sent me home.  I had to wait three days to talk with my doctor because he was away.  (we did not have a very good dr-pt relationship either).  While I was on hold on the phone with my neurosurgeon, the incision in my gut burst upen and spinal fluid began leaking out.  Great, huh?  OMG.  I had to go back in for emergency surgery.  I was absolutely miserable and I was mad as hell.
 
To end this part of my post, my doctor had to go to review because of all the repeated surgeries and he didn't like me either... so he dismissed me from his practice with no other to care for me!  LOL!  Can you believe that?
 
I have a shunt that has a gauge on it that can be changed externally, which is very cool.  They do an x-ray and read the # on it - the pressure at which it is set, and if it has moved, they can change it with an electronic magnetic kind of thing that they just lay over the gauge.  (Yeah, but try to get a neurosurgeon to do it, my name is dirt).  Luckily, my Neuro-ophth has a good relationship with the neurosurg residents and he can usually get one of them to do it for me on the sly. 
 
Now onto the Barometric Pressure and Headaches!  What a disaster!  I live in the NE and we have had nothing but high and low pressures barrelling through here every day, sometimes twice, thrice!  My headache NEVER stops.  I want to know how many of you out there experience the headaches with the increase/decrease in barometric pressures... and do you think they are migraine or is it actually increased/decreased intracranial pressure? 
 
I'm counting on you all to answer!  My doc would love to do a study on this but well, who cares about headaches?  There's no grant money.  Let's do our own!
 
By the way... I spent the last 10 months in NC and GA and my headaches were GREAT...I mean, I didn't have any!  I've been back in NY for about 7 weeks and life here is awful.  My head hurts ALL THE TIME!

gizmogirl
Regular Member


Date Joined Aug 2008
Total Posts : 57
   Posted 8/17/2008 2:46 PM (GMT -6)   
wow. not fun for you. are you eating cereal for breakfast -- alhthough plane rides set off attdks for me. Getting good sleep beforehand and eating helps lessen severity. I think this is something worth trying to seach on, maybe 'headache air pressure" or 'migraine barmotric'? Don't some of these forums let you ask a doctor (migraine connection?)
Good luck

flutterflash
New Member


Date Joined Aug 2008
Total Posts : 6
   Posted 8/18/2008 9:44 AM (GMT -6)   
I know cereal is an important meal of the day but I don't know what it has to do with my post. I don't fly often at all. This has nothing to do with flying. I am referring to weather patterns. I searched "headache and barometric pressure" and came up with this forum. So, I guess I am on the right track.
thanks

adklover
New Member


Date Joined Aug 2008
Total Posts : 1
   Posted 8/21/2008 8:07 PM (GMT -6)   
I also have PTC and when the barometrc pressure is high it affects me. My doctor told me this years ago and it has never failed when I check what it is to see that it is high. I also live in NY and this summer has been worse then normal. A can handle a day or two but weeks is a bit more to tolerate. From what I know a migraine is more frontal. My headache is more on the top like my head is full and about to pop. As long as my headache goes away when it drops then I know it was that. Otherwise I will go to my doctor as my shunt probably isn't working. The other thing I notice is my vision isn't as bad as when my shunt quit working and had to have it replaced. So I am betting on the barometric pressure. Lets hope it goes down SOON!!

4tinaknox
New Member


Date Joined Aug 2008
Total Posts : 9
   Posted 8/21/2008 9:54 PM (GMT -6)   
Hi! I don't know your personal situation, but maybe you could set a goal to move to NC or GA. You are very strong to be able to deal with this, but I guess we all do what we have to do. Best wishes. nono

flutterflash
New Member


Date Joined Aug 2008
Total Posts : 6
   Posted 8/22/2008 9:32 AM (GMT -6)   
I want to live in NC and that is why I was there the past year.  Believe it or not, I COULD NOT get a job!  I am a highly successful HR generalist with a very diverse executive skill set, but I have been in academia for most of my career.  I have found that corporate america don't think "we" are suitable for corporate environments.  Bull.  I ran out of money and had to come home.  Also needed healthcare which I was unable to  obtain down there.  I hope to be able to try again.  I feel so much better down there!  Thanks for your support - I AM strong! yeah
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