facial migraine?

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sykes
New Member


Date Joined May 2008
Total Posts : 9
   Posted 9/30/2008 4:59 PM (GMT -7)   
ive been diagnosed with facial migraine(i thought it was sinuses) by an ENT specialist and prescribed amitriptaline
i believe hes right about it not being sinus pain but is there such a thing as facial migraine?
i have had the pain since january constantly but sometimes more painfull than others the only relief has been a steroid nasal spray nasofan
the pain follows my cheekbones under my eyes and along my eyebrows
it feels like the pain is in the bones or like tooth ache but in my face!
i do get awful headaches as i have m.e. and some seem like a migraine it builds up and lasts for 2-3 days across one eye or it'll move to the other eye.
the face pain is constant the head/migraine pain usually happend week before my period.
on top of that i have a constant head pressure type pain dizzyness and balance problems
 
im told amitriptaline 10mg will help but im scared of taking it, im already on 30mg of citalopram id hate to feel more drowsy than i already do, anyone know any non drug treatments or have had good experience of amitrip?

tigger83
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/2/2009 11:04 PM (GMT -7)   
Facial Migraine

Hi I have recently been diagnosed with facial migraine and tried amytriptiline but it didn't work for me. I am now trying migraine medication, but not having a lot of success. My episodes are very severe, as I am up now in the middle of the night as the pain has woken me. No painkiller or mix of them takes the pain away, although applying heat to the side of the pain, usually the right side with me, although it can wander does help to take the edge off sometimes. I use a wheat bag and wrap it round my neck and over my ear. I have noticed that my episodes happen about a week before my periods and the more I investigate the more I believe that they are hormonally triggered, and I'm back off to the doctors to see if there is any treatment or change in life style that I can make. I know many patients have been treated successfully with amytriptiline so give it a go.

I don't think there is an easy answer, but the thought of living with this pain for me is very frightening and sometimes I don't think that I can cope, especially if it lasts 3 days or more. I hope your treatment is successful. Good Luck.

user90
New Member


Date Joined Dec 2008
Total Posts : 1
   Posted 1/6/2009 7:49 AM (GMT -7)   
hey
it can be related to dentalproblems, because dental problems can also lead to facial palsy,migraine etc. you should get it checked.

lymewarrior
New Member


Date Joined Apr 2005
Total Posts : 19
   Posted 1/7/2009 9:17 PM (GMT -7)   
I suffer from the same type of migraine, but tied to barometric pressure changes.  I have tried everything.  Relpax really works for me if I take it right away.  Also, ice packs and Bengay patches - I cut them up and put them on my face even.  Most recently I have been going to a pain management clinic.  I started with trigger point injections in the shoulder area and then moved up tp facet joint injections in the C4,3,&2 area of my cspine.  The C2 area seems to be the exact origin of the pain.  It's amazing when they hit the area.  I just had my third round today.  At first I wasn't sure if it wasn't going to work.  The second time I went 8 full days without one bit of pain.  I couldn;t believe it.  I have been suffering almost daily, usually waking in the early morning withe most severe pain in hte left side of my head.  I usually can't even function so to have 8 days was a blessing.  I am hoping the results are even better this time around.  So that's always an option.  I have been suffering for 20 years and this is the first timeI had found any relief. 

tigger83
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/8/2009 7:06 AM (GMT -7)   
Hi Had the dental side of things checked out - everything ok! I'm going to try cranial osteopathy as I think the relaxation side might help!!

Lozzz
New Member


Date Joined Apr 2009
Total Posts : 1
   Posted 4/3/2009 3:08 PM (GMT -7)   
I went to the Neurologist the other day and he diagnosed me with Facial Migraines. He told me that i should start taking Vitamin B2 riboflavin pills. From the span of august 08 till december 08 i had 4 sinus infections, 1 was chronic. Since then, i went back to have another Ct scan and everything looked ok but i was still having sinus pains (what facial migraines are mostly blamed on) under my eyes/upper cheek area and in my eyebrow region. I've heard this can be triggered by weather changes so once the summer comes, we'll see if it gets any better.

korbnep
Regular Member


Date Joined May 2007
Total Posts : 326
   Posted 4/5/2009 10:32 AM (GMT -7)   
Concerning 'facial migraine', I'd like to contribute some information. Seeing an ENT for headaches is not incredibly common though it's not at all a bad decision (so long as you're also being followed by a neurologist specializing in headache disorders--by that I mean that if you are sick enough to need to see a specialist like an ENT who could diagnose secondary headaches then you probably ought to be seeing a headache specialist). In my opinion you seem to have had a fruitful visit because a otolaryngologists (who knows a heck of a lot about sinus problems) to rule out the possibility that your headaches stem from sinus issues.

But receiving the diagnosis of "facial migraine" is not especially helpful. The IHS (int'l headache society) classification system (ICHD-II) does not list an known headache disorder with that name nor anything particularly close to it (unless you arterial dissection or certain uncommon psychiatric diseases). As the name implies, facial migraine--to the best of my knowledge--is a non-technical symptomatic diagnosis. By this I mean that the diagnosis describes your symptoms (facial pain presumably) rather than its cause or any particular comorbidity ("the coexistence of one disorder with another that occurs more commonly than by chance"). But just because his diagnosis may not be what the IHS would use it doesn't mean his treatment is incorrect--amiltriptyline can be a very effective Rx). But if you continue to have problems that diagnosis doesn't appear to be associated with an prognosis or insight into its progression.

In my lay (not medically trained but very experienced with headaches) opinion, it seems likely that you may be suffering from something called Trigeminal neuralgia. If you don't already know, neuralgia means pain that is caused by a nerve--the trigeminal nerve in this case.

http://en.wikipedia.org/wiki/Trigeminal_neuralgia said...
"The trigeminal nerve is the fifth cranial nerve, a mixed cranial nerve responsible for sensory data such as tactition (pressure), thermoception (temperature), and nociception (pain) originating from the face above the jawline; it is also responsible for the motor function of the muscles of mastication, the muscles involved in chewing but not facial expression."


Neuralgia, especially from the trigeminal nerve, is a very common cause of extracranial headaches. Thankfully that means it's very treatable. Now, I want to reiterate that I am in no way qualified to diagnosis your headaches but I speak from experience and what I'm saying might be a good subjec to simply ask your doctor about. Nerve pain is often treated with antiinflammatories, nerve blocks (anesthetic injections surrounding the problematic nerve(s)), and potential muscle relaxants. From what I've seen (and from reason), nerve blocks tend to be very effective as they literally block the pain signals sent by the nerve. In most cases a headache specialist will not use this treatment as a first course of action.

Anyway, just "some" information that MAY be relevant to your problem. In any case I do recommend seeing a headache specialist if you continue to have problems.

Best of luck and well wishes,
Ben
DX: NDPH, Recovered CRPS
RX: Lamictal, Provigil, Clonazepam, Ambien CR, Emsam, Namenda, Oxycontin, Oxycodone
PRN: Haloperidol, Zyprexa, Lodine, Zofran, Skelaxin


faster
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/21/2009 1:03 AM (GMT -7)   
I POSTED THIS STORY YESTERDAY. APPARENTLY THIS TECHNIQUE IS QUITE SUCCESSFUL FOR MIGRAINES AS WELL ALTHOUGH MY EXPERIENCE IS LIMITED TO ON.

I'd like to share my story since I finally seem to be on the road to success.I am an American in my early 40s living in Italy. I have suffered from Occipital Neuralgia for the past 7 mos. Burning sensation and stabbing pains only on right side of my head which at the worst state start from my neck and travel to the top of my eyebrow. Also get pain around my right jaw muscle and ear. Frequency is daily and pain usually starts late morning or midday and worsens as day progresses. Had both CAT scan and MRI performed and both turned out negative. Saw 2 different neurologists locally who prescribed amitriptyline to no avail, went to US trained chiropractor who advised me that in his opinion I had malocclusion and had dentist confirm the same and make me a bite plate me which I wear daily as much as possible and during sleep. Then a friend who suffered from a devastating bout of trigeminal neuralgia for many years told me about a doctor in Northern Italy who had TREATED her (now for 8 yrs) by the Furter Method, a deep (painful!) manipulation of the the inflamed area over the course of approx 7-8 visits (can be up to 15-20 in extreme cases) spaced at least 7-10 days apart. Obviously I was was very skeptical at first but given that it was not invasive and hardly dangerous I decided to try it with the consent of a family member who is a doctor in the U.S. The experience is quite painful as the area is tender to begin with and the doctor uses a plastic, 3 pronged tool with lubricant cream to treat the area. I just completed my 5th visit today and I have to say that, amazingly, this procedure is really starting to work! Up to the 4th visit almost nothing... in fact things seemed to get worse before they got better. But then after my 4th visit I started noticing a change. Longer time span between attacks, smaller area on the head and less intense. So much so that over Easter break I had 4 days completely pain free! Now after my 5th visit I can objectively say that I've had the pain reduced by about 70% and am looking forward to my next appointments in the hope of finding a definitive SOLUTION to the problem. I know it won't be easy for people in the US to access the exact cure but surely there must be something similar? And no meds!! If you want to look up the website it's The site is in French and German only but google does a halfway decent job of translating. I would never have believed it unless I started seeing real results as I am now. Wanted to share this experience. Will let you know how I do in my upcoming visits, patience needed :-)

I forgot to mention that Dr. Michel Furter operates his clinic out of Nyon, Switzerland, near Geneva although his method is practiced not just by many doctors in other European countries but in places as far away as Australia.
 
(EDITED: to remove "cure" to "treated" and "solution" as there is no CURE for migraines. Thanks)

Post Edited By Moderator (tysmyboo) : 6/18/2009 11:09:54 PM (GMT-6)


dragonflyand rainbows
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/18/2009 1:28 PM (GMT -7)   
dear sykes,

The amitrip does make you groggy but it did help me sleep it also made me gain 30 pounds that I can't take off. I have yet to find a med that helps with out unpleasant side affects and I have been dealing with my headpain since a car accident on 7/6/96. I have done cervical facet nerve blocks, botox, electrical stim, traction, nose surgery, infusion therapy ( this helps the most). I have spent over 50 k out of my pocket for medical care and I have yet to find the right answer. And Yes there are many days that I feel like *i can't make it.
 
edited to follow forum rules

Post Edited By Moderator (tysmyboo) : 6/18/2009 11:10:45 PM (GMT-6)


grank
New Member


Date Joined Dec 2011
Total Posts : 1
   Posted 12/30/2011 9:20 PM (GMT -7)   
You are lucky to be diagnosed so soon. I woke up the morning after my daughter was born with facial migraines. Got out of the hospital and went to dentist. After years of expensive dental work my neurosurgeon diagnosed facial migraines when my daughter was 20. 20 years of pain and not knowing what was causing it. The migraine medications (like Imitrex) is the only thing that will stop them. I find when I get real hot is one of the big causes of my facial migraines.

madcascade
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/7/2013 4:20 PM (GMT -7)   
I know this thread hasnt been updated in awhile but I was wondering if anyone gets these same symtoms (stuffy nose, pain b/w eyes, and on one eye, with a migraine only when they get overheated? Excersing, hot from the hot weather, over exertion, etc? Even if I do too much house work and get hot I start to get a blocked feeling in my nose (but I can still breathe freely and there is no drainage) and my head burns b/w my eyes and in corner under eyebrow closest to my nose in one eye. It actually feels better if I press there. Laying dow with ice packs across that area helps but summers kill me and I would really +like to exercise without ending up in bed for 12+ hours. Help!!
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