A couple questions: Hemiplegic migraines

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Drag0nScal3z
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 11/4/2008 5:00 PM (GMT -6)   
Hi there,
My husband is suffering from bad hemiplegic migraines and I have a couple of questions:

Has anyone had classic migraines for most of their life, then develop hemiplegic? You see, he has always had classic migraines, then a couple of years ago, he had a severe hemiplegic attack. Then again about six months later, and six months following that. Now, starting a couple of months ago, he gets them on a daily basis with lasting weakness on the left side. Does anyone have any experience with this?

Does anyone get "nervous ticks" with migraines or hemiplegic migraine activity? It is obviously related, because it only happens with migraine activity, my husband gets "nervous ticks" in his head and neck, does anyone else have this happen?

Also, does anyone get hemiplegic migraines on a daily basis?

Does anyone have lasting weakness from hemiplegic migraines? How long has it lasted.

Thanks

Pegzilla
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 11/4/2008 5:51 PM (GMT -6)   
Hi, Peg here.
I sometimes get a very annoying nervous tick when I have migraines: my left eyelid twitches like crazy. Most annoying. I don't know anything about hemiplagic migraines. I have perimenopausal monthly migraines.

Kala UK
Regular Member


Date Joined Oct 2006
Total Posts : 54
   Posted 11/5/2008 2:24 PM (GMT -6)   
Hi,

I have suffered from hemiplegic migraines since the age of seven, I am now 32. I used to have an attack every four to six weeks lasting 2 days. With age my attacks have become more severe each one lasting up to 12 days. In April this year my consultant prescribed Gabapentin, which was about the only medication I hadn't tried, and February 16th this year was the last time that I have experienced a full blown "normal" hemiplegic migraine.

However, this year has been rather rough as I have chronic daily migraines and I have been experiencing prolonged episodes of hemiplegia, which is different to my normal hemiplegic migraines, and has lasted several weeks. Only recently due to increasing my dose of Gabapentin and combined with Flunarazine (another preventative that I have been taking for over three years now) has my prolonged episodes of hemiplegia become almost controlled. Although I do still occasionally experience this.

My hemiplegia is always my left side.

I don't have nervous ticks with my attacks but I have experienced muscle jerks but this is a side-effect of Gabapentin.

I hope this information is helpful and I hope that your husband has some much needed relief very soon.

Kala UK

Esjae
New Member


Date Joined Dec 2008
Total Posts : 1
   Posted 12/17/2008 4:17 PM (GMT -6)   
I was never diagnosed with one set migraine so Im still in the dark.  I was checked for MS and I didnt have it so please help me to further research what is going on with me.  I think I may have Hemiplegic migraines.  Here are some symptoms....left side goes numb or tingles, left eye twitches,  no headache, slurred speach, disorientation, motor skills are poor, and its lasts for about 2 days.  Im on Lyrica right now but I dont think its helping me much. 

Amber Jo
New Member


Date Joined Feb 2007
Total Posts : 16
   Posted 12/20/2008 8:41 AM (GMT -6)   

I have hemiplegic migraines, and have had them for 8 years. Mine are severe, daily, and cause seizures. I have a wonderfull doctor, and am on many meds. Trilepital, verapimil, keppra, ativan, clonopin, percocets, and zofran. I have numbness that travels all over my body, and a constant headache. There are times when I loose my ablility to speak, and there are times when parts of my body go numb. My doctor assures me that this is all normal, however, except I am at a higher risk for stroke. The problem is if I had a stroke I wouldn't know the difference.

The only thing I have found that helps is lots of rest, eating right, and not allowing myself to get stressed. Not an easy combination. I have seizures once a month on average, and have had up to six seizures a day.

Even though I find these episodes frightning, I try to make light of them. The hardest part about the severity of my migraines is explaining to people that I have hemiplegic migraines. They always say things like..I get migraines too, I know what you mean. But they have no idea what hemiplegic migraines are in comparison to normal migraines. I think they should name the disease something else.

There is very little support for us, and very few that suffer from these type of migraines. Like I said, they shouldn't even be called migraines. They seem much more severe than a migraine implies. I have been frustrated for years at the lack of help and understanding of how these episodes affect my life as well as my families life. I have been paralyzed for days, I have collapsed at work, in the store, at parties, and no one understands.

Like I said, I think the episodes should be renamed because no one understands how severe this disorder is.

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