NEW DRUG PROTOCOL

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 11/21/2008 12:05 AM (GMT -6)   
Hey Gang,
 
I haven't posted here in a while because I have been lost in a fog of one or two weekly migraines and a complete failure of any of my doctors to find any protocol that would improve my lot in life.  I finally got into to see Dr. Timothy Collins, the migraine expert at Duke University Hospital.  He has me on a whole new course of meds, which isn't totally successful yet, but this is the first time I've had any hope in a long time.  He has me taking 300mg of Zonegran at bedtime as a preventative, which seems to be slowing the number of migraine attacks.  My abortive is Axert, which isn't working, but none of the triptans have ever worked for me, so I guess that area needs attention.  When a migraine does start, I take 300mg of Seroquel and try to sleep off the headache.  So far, that part is iffy.  The thought behind it is that when a migraine hits, the lining around the brain swells, in addition to the blood vessels in the brain.  The seroquel is supposed induce sleep long enough to give the lining in the brain time to deflate.  Not working great so far, but at least I've seen enough results to hope that this is a step in the right direction.  Has anyone else tried this combo of meds?
 
Leigh Ann cool

Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems 
  • Divorced, 43, spawn-free 
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(ten molars pulled, multiple cavities, root canals) Tubal Ligation/D&C/Uterine Ablation 
  • Current Meds: Prozac, Klonopin, Atenelol, Lortab, Trazadone, Buspar, Nexium, Tramadol, Hydroxizine, Vitamin D, Axert, Zonegran, Seroquel 
  • PROHIBITED FROM ALL NSAIDS
  • Current Problem: Mysterious Internal GI Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


awesome021
New Member


Date Joined Nov 2008
Total Posts : 13
   Posted 11/23/2008 2:19 PM (GMT -6)   
ive tried all kinds of meds and had migranes for about 6 years now ruined my life really it has.as for the meds not 1 single med has worked for me. ive used protocol for 8 months and well i just give up taking them as they done nothing either.every time i go to my doctors he gives me pain killers and i just have to sit and suffer with them.its not only ruining my life its ruining my familys too.good luck with your meds hope they work for you mate

CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 11/24/2008 1:42 AM (GMT -6)   

Thanks for the response Awesome.  Sorry you've been bothered with migraines for six years, I'm on year 35 myself.  Mine started when I was eight.  Many days I wonder why I got so lucky...NOT!!!

Maybe someday there will be a decent answer.

Leigh Ann cool


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems 
  • Divorced, 43, spawn-free 
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(ten molars pulled, multiple cavities, root canals) Tubal Ligation/D&C/Uterine Ablation 
  • Current Meds: Prozac, Klonopin, Atenelol, Lortab, Trazadone, Buspar, Nexium, Tramadol, Hydroxizine, Vitamin D, Axert, Zonegran, Seroquel 
  • PROHIBITED FROM ALL NSAIDS
  • Current Problem: Mysterious Internal GI Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


Catch22
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/24/2008 12:13 PM (GMT -6)   
  Hello Cranky1, As soon as I read your posts, It was like I was listening to myself, I just had to write you, and tell you a bit about myself. I to, live with chronic headaches.I have had headaches as long a I can remember.( My mom says, since around 7) These last 6 years,it has become chronic. I have had many trips to the E.R. Im sure you know what thats like. There are times, they look at me like I am a drug user, in need of a fix or high. A fix yes, to the pain in my head, so bad it feels like my head(and face) is just going to explode.Someties, I feel it in my back, down my spine.I sometimes say to my husband, I have a headache starting in my back..(??) I have tried every drug from A-Z, All the Triptans, Anti- inflamm. Antidepressants,Anxiety med. and the list goes on.My neurolog. is weaning me off of a narcotic(the only thing that gives me some(little at times) pain relief. But is is time, so now as I decrease the painkiller, I will increase Zytrem xl(Tramodol), at bed time. A drug, that is non-addictive(??).I see, you take this as well, something else you and I have in common, the G.I. issues. i started bleeding of the bowels, 2 years ago.This started after I was on, Tridural(another slow-release opiate). Effidently, it is not suppose to effect your G.I....But I feel differently.This may sound gross, but it started as discharging mucus, from the bowels, and also blood. I have had an Endoscopy and Colonoscopy, with a removal of a polyp(precancerous) Thankgod,I followed through my bowel-issues. Anyways, since then, on and off I continue with these symptoms. I had another Colons. a couple weeks ago. Just the lower area of the bowels. Still waiting on a follow up. I am very concerned about this new medication after I researched a bit about it, and side effects. Now of course, we both know, side effects are sometimes a page long, but...I do not want to worsen my bowel problems. I also, cannot live with this pain, it has taken so much from me, from my family. I am fighting for disibility, denied twice, now waiting on a tribunal hearing. I also, believe I have fibromyalgia. The list can go on, for these symptoms, but I can tell you some of mine, chronic muscle stiffness, fatigue, extremly suseptable to infections, colds, sinusitis(which make my migraines worse-the pressure) constipation, depression-in and out. It seems like Im always sick with something. Let alone, the chronic headaches.The weather I notice can be a trigger. My mom, has been diagnosed with Fibro.I am waiting to see a Ruem. in Dec. Anways, this is me in a nutshell.There are days I can be so positive and hopeful, and other days, where I sob, and know how much this is ruining my life. I am so tired, Tired of being Tired...of being Tired. Im sure you can relate. I have 2 beautiful children, it is so hard sometimes. I feel for them, they dont have a normal mommy, who cant do normal mommy things. Anyways, I better run, It was nice talkig to you and I look forward to hearing from you, if and when you have time, I wish you pain free days, You to, hang in there.......Take care,Catch22. :-)

korbnep
Regular Member


Date Joined May 2007
Total Posts : 326
   Posted 11/28/2008 6:54 PM (GMT -6)   

Catch,

Hey there. I can't get in a full fledged post right now but I just wanted to comment on one point. Regarding your detox from painkillers, I do think that you should know that, while Tramadol is different than many opioid painkillers, it [b]is[/b] indeed still an opioid painkiller. Maybe people view it as somewhat different because it is a synthetic opioid AND its analgesic (painkilling) effects are not wholly caused by binding to the opioid receptors in the brain (it can modulate the brain's Norepinephrine and Serotonin systems, two very important players in the development of a migraine--though the way that tramadol does this is not totally understood). And you are definitely on the right path regarding the abuse potential for tramadol. From extensive reading and seven more extensive personal experience, I can tell you that while there is some validity to the pharmacutical companies' claims that tramadol does have a lower "dependence liability", nearly anyone who has actually taken the drug or worked with it over an extended period of time will tell you that it can easily become just as addictive as any other opioid.

That being said, I just want to impart one thing I've learned from taking painkillers (on and off) over the many years in which I have experienced literally constant pain. During these years I have been on the vast majority of opioids that are prescribed for human use and at times I've felt that I couldn't live without them, once or twice felt truly addicted, gone through varying levels of psychological and physical dependence and learned some very important lessons about controlling increasing tolerance. I don't want to sound aloof or anything--it's entirely possible that you know more about this than I do, but in case you or other readers don't, I just want to share something that was very difficult for me to learn:

A year or two ago, after two failed nerve stimulator implant surgeries and a sit down with a team of neurologists at the Jefferson Headache Center in which I was told that they had nothing else left to try on me, it was pretty apparent that I was going to be starting with opioid painkillers again after a year or so hiatus that we had hoped would be helpful. I was very eager to get some relief but also very nervous, remembering the problems I'd had in the past, really just having so much pain that I could easily justify taking more and more and stronger and stronger pain medications. Luckily I have a friend who runs a pain management clinic (a friendship forged from innumerable visits starting with a different chronic pain disorder more than ten years ago). I asked him for his advice on the scenario and he said that, even though he didn't feel comfortable giving me a specific recommendation as he was not overseeing my care nor familiar with headache disorders as much as my main neurologist was, that, in his many years of dealing with patients with chronic pain, he had a fairly simple throught to share. And that was this: [b]Painkillers can be wonderful tools in improving your quality of life and lessening your pain, but [i]be sure to have realistic expectations[/i]. They will not get rid of your pain and are unlikely to do more than even just make it a step or two more bearable. If you expect more out of them then you're asking for trouble.[/b]

I realized that in past years that I didn't just look at the painkillers as a bit of a helper but instead looked for them to get rid of my pain--or at least make it much less.

Anyhow, I think you know where I'm going with this and I'm very sorry to have been so longwinded about it--I have trouble focusing sometimes. I hope that at least some of this is helpful to someone. Personally, it's made it so that I've been able to take a fairly high, but steady, dose of oxycontin for over a year without ever needing to increasing my dosage or frequency. Even though my pain still never drops below a 7/10, I can confidently say that I'm much better off.

Best wishes always,

Ben


DX: NDPH, Recovered CRPS
RX: Lamictal, Provigil, Clonazepam, Ambien CR, Emsam, Namenda, Oxycontin, Oxycodone
PRN: Haloperidol, Zyprexa, Lodine, Zofran, Skelaxin

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 31, 2014 1:33 PM (GMT -6)
There are a total of 2,256,186 posts in 250,960 threads.
View Active Threads


Who's Online
This forum has 157717 registered members. Please welcome our newest member, Alzheimer's daughter.
121 Guest(s), 11 Registered Member(s) are currently online.  Details
tdnjam, Scaredy Cat, Girlie, Dolph ziggler fan, NiceCupOfTea, Alzheimer's daughter, Carole_D, Poppie, Binduspire, Cornell, super max


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer