Saw neurologist for daily headaches

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mala407
Regular Member


Date Joined Mar 2007
Total Posts : 103
   Posted 12/6/2008 5:35 PM (GMT -6)   
Hi Everyone,
So....I've been having terrible, daily one sided headaches on the left side. There is a stabbing pain in my temple, and my eye socket and also behind my eye with burning. I also have some pressure and fullness feeling in my ear and the base of my head by my neck. The neurologist concluded it is most likely migraines, caused by stressed. Eventhough I havent really felt stressed lately. He prescribed me with fioricet for now, said if that doesnt work we will try something like Imitrex. Has anyone taken fioricet and found it helped? Does this pain sound familiar to anyone? Any help would be greatly appreciated. I'm seeing an ear, nose and throat in a few weeks too...thinking this could also be TMJ? Much thanks....

Mala
26 years old, living in Chicago, Chronic abdominal wall pain due to nerve entrapment. I have IBS-D and neuropathy. Gall bladder removed, 2 failed exploratory nerve surgery, pancreatitis, several hospitalizations for IBS flareups. Medications: Welchol, Align, Ambien, Oxycodone, Thiamine, Zyrtec-D


I am a dance teacher and choreographer who loves children and cats! I am to be married on June 27, 2009 to my wonderful fiance Jon!!


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2023
   Posted 12/6/2008 7:20 PM (GMT -6)   

Hi Mala

Sounds like TMJ to me. I suffer from these terrible headaches on a daily basis. The other symptoms you mention are in the tmj package as well. I would suggest seeing a tmj specialist as well from my experience. This is an awful disorder.

Good luck and let us know how you make out with your appt.


mala407
Regular Member


Date Joined Mar 2007
Total Posts : 103
   Posted 12/7/2008 4:55 PM (GMT -6)   
Hi TMJ,
Thank you so much for your reply. Can an ENT diagnose TMJ? How is it diagnosed? What symptoms do you suffer from? I would love to hear back from you, thank you for your care and concern

Mala
26 years old, living in Chicago, Chronic abdominal wall pain due to nerve entrapment. I have IBS-D, neuropathy and now get migraines. Gall bladder removed, 2 failed exploratory nerve surgery, pancreatitis, several hospitalizations for IBS flareups. Medications: Welchol, Align, Ambien, Oxycodone, Thiamine, Zyrtec-D, Fiorict


I am a dance teacher and choreographer who loves children and cats! I am to be married on June 27, 2009 to my wonderful fiance Jon!!


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2023
   Posted 12/9/2008 10:08 AM (GMT -6)   
Hi Mala
 
If you have TMJD, then an ENT dr. can't do anything. You need to see an orthodontist who specializes in TMJ. I just came back from an appt with mine. He made a splint for my bottom teeth for me to wear 24/7 to correct my problem. I had a lot of compression at the condyle head, the space where the disc is. So the splint brought my jaw forward and to the left and it also evened out the top and bottom when I bite down. Now I need time for the muscles to calm down and rest in their new places. My main symptom is temporal headaches, constant and bad. Also ear and jaw pain with the new splint. I am off work right now since I have so much pain. I rest in bed a lot due to the pain and being tired so much. My body went into somewhat of a shut down. I have had TMJ since 2000. It was my massage therapist that suggested I see an orthodontist when my headaches wouldn't go away. and also my second sick leave from work.
 
Tell me about your story? Where do you live? I am in Ontario.
 
Hope your day is pain free. I certainly can't wait for my pain free day.

mala407
Regular Member


Date Joined Mar 2007
Total Posts : 103
   Posted 12/11/2008 11:01 AM (GMT -6)   

Hi TMJ,

   I'm sorry your pain is at such high levels and you have been through so much. I really hope this splint can help you and relieve some of that pain. The fioricet doesnt seem to be helping the migraines....so I might have to call the neurologist. The TMJ can cause migraines right? I havent been diagnosed with it yet, just the migraines. I'm getting acupuncture on Monday, so we'll see what happens...

   I currently live in Chicago with my fiance and we are getting married in June. I am a dance teacher and choreographer in a large studio in the suburbs of Chicago. I am from Cleveland and just moved here about a year and a half ago. How about you? Hope we can keep talking :)

Take care,

Mala


26 years old, living in Chicago, Chronic abdominal wall pain due to nerve entrapment. I have IBS-D, neuropathy and now get migraines. Gall bladder removed, 2 failed exploratory nerve surgery, pancreatitis, several hospitalizations for IBS flareups. Medications: Welchol, Align, Ambien, Oxycodone, Thiamine, Zyrtec-D, Fiorict


I am a dance teacher and choreographer who loves children and cats! I am to be married on June 27, 2009 to my wonderful fiance Jon!!


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2023
   Posted 12/11/2008 11:36 AM (GMT -6)   
Hi Mala
I am 50 and am a nurse at a children's hospital. I really miss working because I love my job so much. It's hard to say when I will go back. I certainly hope I am better by Jan/Feb. Time will tell.
I still find I can't do much. too much pain and tired. My head always feels so heavy. So I rest in bed a lot and do little things in the house. Haven't been able to do any preparations for Xmas. My DH will have to do it in between his work schedule. I love scrapbooking and I even set up a little table in my room to make some xmas cards but I just haven't been able to. Oh well, one day at a time.
How is your pain level? Last year I tried acupuncture for three months, going three times a week and had no success. I was so disappointed as this guy is so well known to get results. For now I continue with chiro and massage weekly. Last night my massage therapist said to take a little break from the massage to the head and face/jaw so things can just rest instead of getting it all inflamed all the time with treatments. Makes sense I guess. I just want some relief now.
Anyone else suffer from headaches from TMJ? No one else is answering to our posts Mala. LOL!!! It's me and you girl!!
 
Hope everyone has a good day.

wantnopain
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/2/2009 6:04 PM (GMT -6)   
Hi all, I just stumbeled upon this site as a fellow sufferer. I guess we all have a common pain bond.

I've just run across something that might be helpful. It is a book on a website for free--believe it or not-- It was written by a guy that practices tmj in chicago. I live in california and I was refered to him by my doctor here. He speaks very highly of his abilities with headaches. I have looked at his website, www.headandneck.com and am considering making an appointment for an evaluation wth him. his name is dr a richard goldman

Has anybody heard of this guy?? His book makes a lot of sense. I'm about halfway thru it... It's almost like he knew me when he wrote it. Perhaps this is the answer to 10 years of suffering and too many treatments and $$$ wasted to mention. It's so depressing cry

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2023
   Posted 2/2/2009 6:59 PM (GMT -6)   
Sorry I answered this but it went on a separate thread with no subject.

Can you order the book on that website?

wantnopain
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/2/2009 7:25 PM (GMT -6)   
the book is free and you can download it from his website. You don't ned to order it. there is a button-thingie in the upper right of the first screen-- click on it and you can see the book. I was able to print it out from the screen. (I have an old monitor and it is hard to read for any length of time-- printing it out is good)

wantnopain
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/5/2009 12:10 PM (GMT -6)   
I am so encouraged,

I sent the guy at www.headandneck.com an e-mail and he actually sent me one back requesting that I call him. I did that this morning and was able to talk to him. He is quite approachable. my guess is that if you just call his number, you will be able to talk to him if he is available. I had a raft of questions for him, which he answered as completely as he could, considering that he had never seen me.

I too have been told that my TMJ is clear, and I told him that. He said that statement was all too common for the patients that he sees and says that is because most dentists and doctors are poorly versed in TMJ and its diagnosis and that this lack of knowledge yields an improper diagnosis and many times patients who could be helped are basically discarded.

I had been to 2 oral surgeons and one orthodentist, my personal dentist as well as numerous ENt's and Neurologists. I used to take a shopping list of drugs, much the same as those that I read about on these forums, but I stopped taking them due to the fact that they didn't work well, gave me gawd-awful side effects, and were expensive. Yes, I still have a lot of severe pain which really degrades my life, but sometimes I feel that the pain is better than the side effects.

He says that his examination takes about 1 1/2 hours to complete.

I am looking for good air fare so that I can get to chicago soon, with no promises but hope.

25BECCA13
New Member


Date Joined Apr 2009
Total Posts : 11
   Posted 4/1/2009 5:57 AM (GMT -6)   

Hello there,

 

I suffer from chronic tension headaches / daily headaches I to feel life my life is on hold - the pain is so bad I miss days off work. Mainly the pain is on my left side and especially in my eye - I have had a headache everyday - some bad some not to pain full for 7 years im now 24. I have tried every single tablet known the nhs - recently I went private and saw a neurologist who has mri scanned me - everything was ok as I thought. I have seen an osteopath with is a REAL BAD THING! I have a straight spine instead of a natural curve with little fluid in the discs which could contribute to the headaches. Recently I saw a doctor who specialises in BOTOX which I have now had done - it takes 4 to 10 days to kick in and has a very high success rate of about 70 - 80 %. The first few days I still had a headache but now 1 week on I have a clearer head than I have done in years. I would highly recommend this - I also see a phycio which really help.

Hope this helps you all

Becca

x


Annuk
Veteran Member


Date Joined Jan 2006
Total Posts : 1308
   Posted 4/1/2009 2:07 PM (GMT -6)   
mala407 said...
Hi Everyone,
So....I've been having terrible, daily one sided headaches on the left side. There is a stabbing pain in my temple, and my eye socket and also behind my eye with burning. I also have some pressure and fullness feeling in my ear and the base of my head by my neck. The neurologist concluded it is most likely migraines, caused by stressed. Eventhough I havent really felt stressed lately. He prescribed me with fioricet for now, said if that doesnt work we will try something like Imitrex. Has anyone taken fioricet and found it helped? Does this pain sound familiar to anyone? Any help would be greatly appreciated. I'm seeing an ear, nose and throat in a few weeks too...thinking this could also be TMJ? Much thanks....

Mala


Mala,

This sounds uncannily like Clusterheadache to me!! However, can I ask you a few questions to help clarify this a bit? Do you get these headaches at the same time every day? How long do they last? Does your eye droop or become blood shot? Does your eye water or does your nose feel blocked on the pain side, or maybe your nose runs??

To clarify things a bit for you I work on a Clusterheadache Helpline, and although I am not a Doctor and cannot diagnose this I may be able to give you some information to help you to take to your Neuro!!

Firstly, painkillers do not work for this condition, only Imitrex injections and high flow 100% oxygen! There are also some preventatives around for you to discuss with your Neuro. Btw the Imitrex tablets do not work for Clusterheadache!!

Many Doctors mis-diagnose this condition and say they are an ENT problem or 'Rogue migraines' or 'some type of migraine that is stress related'!!!!!!!

The best way to be clear on this is to see a Neurologist who is a Headache Specialist!!

Hope this helps, take care

Ann
Co-Moderator of the Migraine/Headache Forum


Seajay
New Member


Date Joined Mar 2009
Total Posts : 11
   Posted 4/3/2009 8:52 AM (GMT -6)   
Hi Everyone,

The first bad headache I had back in the 60's lasted three days, was on one side and I was extremely sick to my stomach. Nothing helped it. Some one told me it was from inflamination in my muscles and tissues at the back of my neck. You could feel the "knot". Working the knot out and using a heating pad took the pain away. That was the beginning of a lifetime of headaches. I was DX later with migraines. I knew five of my "triggers" and tried to stay away from them. After years of suffering and using meds that did not work, including morphine, a Doctor finally put me on Caffergot. I doubt too many of the new Doctors would use this today but it worked. Three pills and an hour later the headache was gone. That led to another problem....I got the worst case of rebounding the Neurologist had ever seen. The Caffergot was stopping the headaches but also bringing them back. After going through what I called "cold turkey" (no meds) and suffering a migraine for three days, the rebounding stopped. I then learned how to spot the rebounding and controlled the meds myself. 95% of my headaches I woke up with. As years went by, I found if I just got up out of bed, sometimes the headaches would go away on their own. ..no meds. They would come and go and some Doctors' then thought I had cluster headaches. Last year I had a total knee replacement and got sent home with O2. I only used it at night and guess what....NO MORE HEADACHES! I then had a sleep study (AHI 101) and found out I had complex, central sleep apnea and needed 3 lpm of O2 at night. There are so many reasons for headaches is it any wonder the Doctor's can't find a quick answer. I feel for everyone of you with headaches. They were so much of my life I felt a day without a headache was like a day without sunshine! I can honestly say that except for an occassional sinus headache I am free of them after 50 years. I can only hope that between you and your Doctors' you can find the right answer. BTW, one Doctor told me there are no sinus headaches, he feels they are all migraines. It is extremely hard to tell the difference but I do disagree with him now.
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