dire need of help

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poetdowns
Regular Member


Date Joined Jul 2004
Total Posts : 41
   Posted 7/21/2004 7:53 PM (GMT -6)   
Greetings,
I have atypical chronic migraines. Which means, mine are severe, chronic ( at least 4 times a week). And that's only the ones that aren't started by certain triggers.
Anyway, i've seen the top neuro doc in the state, had a CAT & MRI, been on every preventative type of med, i'm rambling....
Let me be direct: nothing helps me. My body is so drug resistant it's unbelievable. I don't even go to the ERs anymore 'cause demerol has no effect. I've even tried methadone, which had no effect at all. The tryptophans don't help -except for maxalt which medicaid will only give me 9 every 30 days.
I've read thru my PDR, i'm out of things to take/try. So my question is, is there anyone with these conditions who found something, anything that helped.
The last recourse i know of, is having one of the nerves in the left side of the head severed. (about 90% hit me over my left eye).
I can't take it.
Poet

Cinda
New Member


Date Joined Aug 2004
Total Posts : 2
   Posted 8/2/2004 5:15 PM (GMT -6)   
How aboutTopamax or one of the new seizure meds? Nothing really helps me either except Maxalt. My daughter says someone told her pot smoking helps. I haven't tried. Never can tell what helps an individual. Here is a website that makes a pillow for migraine suffers: www.healthmakers.info
supposed to help---I am going to try it ---I will eventually try every thing.
Cinda

amandap
New Member


Date Joined Aug 2004
Total Posts : 9
   Posted 8/11/2004 9:26 PM (GMT -6)   
Poet and cinda,
I am SO sorry about all the meds you have taken. I am in the same boat. Migraines every other day and on the migraine "free" day I get a dull one. Imitrex helps for 80% of my bad ones, but my PPOM insurance also only gives 9 every 20-30 days. DUH!!! what are we supposed to do? I hate to take that much, but I cannot function w/o them! That sucks about medicaid. I hate illigal drugs, but I would try ANYTHING. I just get so nauseous, though, with my migraines that pot sounds like it would make it worse. Plus I have 2 kids to take care of..maybe not smart. :) What about chiropractor, acupuncture, biofeedback, hypnosis, or pursing the whole hormone theory..maybe the pill?

I keep thinking maybe if they ripped my ovaries out, I wouldn't get so many...but my Dr. won't go for that. Says its too drastic. WHAT? Maybe HE should live a week in our shoes!!!!

God bless
amanda

Jill27
New Member


Date Joined Aug 2004
Total Posts : 2
   Posted 8/15/2004 9:20 PM (GMT -6)   
Hi. I also suffer from chronic migraines. I have not had much luck with the meds either. I have headaches almost daily. I was allergic to the triptans which are so popular now. I was on the duragesic patch but went off it. You may want to try Botox injections. They seem to help some people. You will have to fight with the insurance company to get them though. Hang in there. I know it is terrible. I live with it every day. Love, Jill
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