I'm sorry you have been in so much pain for so long without relief. I'm only into my 2 year and I don't know how you do it.
So far, the best treatment for me has been IV lidocain through the Jefferson Headache Clinic in Philly. I had very low pain for about a month and 1/2. It felt great to feel like a human being again. The downside of this is that everything has a shelve life with me, so nothing lasts forever.
I see that you are going to a headache clinic in NYC. I hope that goes well. I find I like places like these over a "regular" nerologist because they are specialize in people with chronic pain and have the resources to treat many aspects of it. Not to mention you are around people who understand what it means to be in pain. If you want a list of headache clinics, I have one. I would be very intersted to hear what treatments they use there and if it differs some like Jefferson Headache Clinic or Diamond Headache Clinic.
about TMJ, I have treated mine and while it is not gone I haven't found that it has made a huge difference with my headaches minus the fact that all my head muscles have loosened up. However, it has down wonders for some!
When it comes to my headache I'll try just about everything and I also try to learn more about headaches in genreal. There is a book called "The Mayo Clinic on Headaches." And I found just reading about it gave me more insight into the headache. You can buy it for real cheap through people on Amazon. I reccommend it to everyone.
Good luck with your appointment. I hope it goes well!Peace.
Following is only my own experience hope it will help you.
After life time of suffering I have came to the conclusion that it is my brain inflammation causing the headache. I can feel the brain swelling inside the skull.
Once the symptom comes, it won’t stop on its own only getting worse, blur vision follows. The pain and dizziness is constant, any slight movement will trigger vomiting.
The only way to calm the pain and make it disappear is to relieve the inflammation, fight it right from where the problem started.
My battling is simply take aspirin because it has anti-inflammatory effect (or painkiller with aspirin ingredient not paracetamol), the type that you dissolve in water first is more effective; I take “Aspro Clear”. I can feel the brain slowly deflating and the pain calming down.
The most severe occasion I can remember was taking 4 doses (2 tablets each), that was because I determined to fight the pain without taking medicine, but the more you leave it, the longer time it would take for the pain to disappear.
However, please do some research first to see if you are safe to take aspirin for example, cautious should be taken if you have stomach ulcer. And also because you have been taking so many medication.
Good luck. All the best.