Hi wwise!! It not easy to have this disease, but there is help to get! First i have to say that i havent heard of anyone who have had some help from some herbal remidies, and the medications that are availebal for us is well tested, so you shouldn´t be afraid of them.What kind of symptoms do you have?
Mine was and still is ( not so often like before thou ) Very hard, and for me it woulnt be possible to do anything if i didn´t have had the medication that i have. ( Lamictal = Epilepsy medication ) Many here uses other medicines and have had help from them. You can in this forum read about many who suffer from this disease and what have helped them, under Hemiplegic migraine.
I think you should talk to yor neuro about this!
And i really hope that you soon will get some relife and help!!
Hi wwise!! Yes Lamictal is one of many medications that people use for FHM or Hemiplegic migraine= Sporadic migraine all these are the same disease the different between them are that if you have FHM it runs in the family, and you have family members or relatives with the same disease, if you dont have it then its called Hemiplegic migraine.
I dont have epilepsy, i have FHM and Lamictal helps with the aura for me, for the headache i use Zomig and painrelife with codein. Have you taken the gene test? and have some one in your family the same disease? Yes its nice to talk to people who suffers from this, i was so happy when i found this forum.
I come from Sweden and havent found anyone on the Swedish migraine pages who have this diagnosis, so its a really rare disease all over the world. For most of us it have taken many years to get this diagnos as for you too. From what country do you come from?
Bye / Sweden
Hi wwise!! Okey good that you have put the ball rolling ( probably doesnt spell that right lol ) Its´god that you are going to have a ct scan, everyone of us have had one. There are many other diseases that have the same symptoms as FHM, for example there is a kind of epilepsy yhat has it and so on........ So before you have had all test you ca´nt be sure its FHM, or have your mother got this diagnosis? Dont be afraid it is very good that the doctor take you seriosly and are trying to find out whats the problem!!!
Everyone who has migraine have different triggers ( things that we can have a attack for ) It can be something we eat, smells and so on. It takes time to figurit out for each and everyone of us. For me one of the triggers is stress and another is hard work like if i´m cleaning the whole house för several hours, then i no i,m going to start a attack. So i try to take it easy and not do all that i need at the same day so......... i´m sure you have some triggers too ( if it is FHM that you have of course ) so in time i am certain that your going to find your triggers.
Good luck whit the ct i am sure it´s going to go well and take it easy!!!