Week-long migraine

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kandjmomy
Regular Member


Date Joined Mar 2009
Total Posts : 40
   Posted 3/10/2009 1:15 PM (GMT -6)   
Hi everyone! I'm new here and desperately need some advice. I have had an intractable migraine for almost a week now and can't seem to find relief. I was discharged from the hospital after a 2-day stay where they tried some different combinations of meds but nothing to fix it. Pain meds help temporarily but the pain just comes back once they wear off. The neuro tried a cocktail of IV meds: benadryl, zofran, DHE and toradol. The DHE made me horribly sick and didn't get rid of the pain. I was discharged and recommended that I see someone outpatient and I can't seem to get an appt soon and I need help!!! confused

I should add that I've never add migraines before but do have multiple sclerosis (I'm doing well with that), and my CT scan and MRI were normal (other than the MS).

Any suggestions?
Thanks!

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 3/11/2009 3:31 AM (GMT -6)   
Welcome!!! I am so sorry that you are struggling with this intractable migraine. I have had really bad "episodes" like this and I am trying my best to think of something to tell you that you haven't already tried. I have been through the hospital stay with multiple medications which my doctor and I finally found the right "cocktail" that works (it was by no means an immediate thing)
 
 Please call your doctor and dont take "no" for an answer. If they can't squeeze you in go back to the ER! I have to say that kind of pain wears you down physically and emotionally.
 
Do you have a headache specialist nearby?
 
 
I wish I had an solution for you!!!
 
Please let us know how you are doing.

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SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 3/11/2009 6:06 AM (GMT -6)   
Do you get any relief for even just a short time? You could be having a "rebound" migraine as well. My first migraine was a rebound. Tried toral, demoral, etc. It took 60mg of morphine to kick it. Tried morphine yet? Also, you might want to see what triggers your migraines. Keep a diary of what you eat, drink, when migraine comes on, any out of normal thing you do...etc. For me, one day I stumbled upon a caffine trigger. I was drinking soda all day... I took a sip started getting t his real horrid migraine. I stop drinking soda...it goes away. I took a sip ouchhh its back. Stop its gone. Sip...eeks. Stop..oh I think I had too much caffine. Drinks water rest of day lol.
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications:  Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


kandjmomy
Regular Member


Date Joined Mar 2009
Total Posts : 40
   Posted 3/12/2009 5:41 PM (GMT -6)   
Thanks! I ended up back in the ER but got seen quickly thanks to friends that work there (it was the only way to get seen). I had an overnight stay where they managed my pain then saw the neuro the next morning. He put me on steroids, Lortab and nortryptiline and is hoping that they will do something. I saw him outpt today and he did several shots of cortisone in my temple and back of my head which just ended up causing more pain.

He's not sure of the cause so he's just experimenting with treating the symptoms right now. It's really frustrating because I can't function and am still in a lot of pain. Hopefully it will end soon.

Oh, and I do have the headache center at Jeff close by but cannot get in to be seen until April. I need help now!

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 3/13/2009 12:57 AM (GMT -6)   
Definitely keep your appointment in April- I hear that is a great place for help!
 
I am glad you finally got some control over things. It sounds like the neuro is working with you to find a solution. As far as the shots go I have had some luck with them and eventually had radiofrequency nerve ablation where they insert a needle, heat it up and essentially burn the nerves that are causing the majority of the problem, it does take some time for that to work AND it's pretty uncomfortable immediately after but the long term effects are great.
 
I hope the cocktail the neuro gave you will kick in soon and you will get some relief.
 
Please let us know how things are going!
Sara-Migraine/Headache Forum Moderator
 
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