Have headache everyday...at my end need help!!!

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Cyn981
New Member


Date Joined Mar 2009
Total Posts : 4
   Posted 3/19/2009 7:57 AM (GMT -6)   
Hello everybody....i am very new to this sitution and i feel like im on my own. My doctors tell me they dont know how to help me, Im taking everything from topmax150mg daily plus imitrex, plus midrin, and also given medicine for nausea. (pherergan 25mg). My head hurts everyday. I have what normal people call *regular headaches* daily.  If I cant control them or they have gone on for to long, then my migraine attacks start. i wake up with a headache go to bed with a headache. I keep a headache calender, i dont drink no caffine, i eat 3-6 meals a day. Im 27 and i cant even have a normal life anymore. The sun bothers me when i go outside,sometimes when my head hurts at its worst, i have blurry spots, my equalibrium is off, my temper is like im going crazy. And im having something new. Im getting tingle through my lower arm to my hands. The doctors say its stress, but i could have a good day...all smiles and go to sleep an in my sleep my head starts pounding....it never ends.....im on here looking for any help I can get!!!! smhair

tysmyboo
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Date Joined Dec 2004
Total Posts : 921
   Posted 3/19/2009 4:53 PM (GMT -6)   
whew...Cyn,
Sure sounds like you have a lot of things going on. I am so sorry you are feeling terrible!
 
Topamax has some side effects and the tingling and temper issues are two major ones I had, this is less likely caused by your headaches and more by your medications. (That's good news!!! Its easier to adjust meds than it is to adjust the headaches!)
 
Is the same doctor prescribing all your medications? It sounds like rebound/medication overuse headaches. Im not saying YOU are intentionally taking more meds than necessary-Im just saying that its a cycle. (Im going to post a new thread about Rebound/MOH- please take a minute to read)
 
The headache calendar, and eating regular meals is good- some people have found that *some* caffeine actually helps their headaches. Its definitely time to revisit your doctor. Are you seeing a headache specialist, neurologist or general practitioner?!
 
 
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Cyn981
New Member


Date Joined Mar 2009
Total Posts : 4
   Posted 3/23/2009 9:03 PM (GMT -6)   
I just recently found out there are migraine specialist. I was told that neurologist are the doctor to see to handle the problem. So im very new to this world. I was going to give a couple of calls and go from there. But I do have a questions, what do you know about Comprensive health. I found a program that test your blood very well, do very deep medical history, they build a program of natural vitamins and the hermones your missing from you body. They say they wing you off of all the meds and its a 95 percent success. Its called the Dxugan Method!

AMAZINGOOD
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Date Joined Mar 2009
Total Posts : 3
   Posted 3/23/2009 11:39 PM (GMT -6)   
You should find out if you have a PFO/ASD. My daughter had your same symptoms for 5 yrs - went to every specialist for migraines, holistic/naturopathic, herbals, etc. Did more herbal programs than I can list. Recently found out she has a PFO - which are directly correlated to all of the symptoms you are listing. Wish she would have been diagnosed by the right doctor b/f now b/c it would have saved us a lot of $$$ and grief. It only takes a heart echo to diagnose a PFO or ASD. She had no heart issues, athlete, etc., so it is the last place we would have looked. Just a thought..................

sleepy1
New Member


Date Joined Mar 2009
Total Posts : 1
   Posted 3/24/2009 4:55 PM (GMT -6)   
I also have headaches every day that generally turn into migraines--i have been dealing with them for about 2 years now. I have gone through taking Topamax, Keppra, SSRI's, and am now taking a Beta-Blocker in addition to Frova and Midrin and Vocidin for the pain. The thing that I have found most helpful though is accpuncture. The best thing about that is that it is minimally invasive with little to no side effects.

I have constant pain every day and I was wondering what other people do to manage their pain. I cannot take pain pills every day because i have to go to school.

roshan7
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/27/2009 1:19 AM (GMT -6)   
Here describes how to get rid of Headache or Migraine
visit http://preventmigraine.blogspot.com/

Yukon man
New Member


Date Joined Mar 2009
Total Posts : 1
   Posted 3/27/2009 1:02 PM (GMT -6)   
 
I have been having headaches for over 10 months, everyday. I tried all kinds of medications but none have worked. I currently do not take any medication. I do Yoga, relaxation exercises and workouts. I still have the headaches but I find it helps me cope somewhat.
 
It's been a tough go. There has been no diagnosis on exactly what is causing my headaches. It may be stress and  worry, as I feel my life is full of regrets. Also I did strike my head from a diving accident some years ago. For those of you who are also experiencing constant headaches I know what you are going through believe me.

25BECCA13
New Member


Date Joined Apr 2009
Total Posts : 11
   Posted 4/1/2009 5:56 AM (GMT -6)   

Hello there,

 

I suffer from chronic tension headaches / daily headaches I to feel life my life is on hold - the pain is so bad I miss days off work. Mainly the pain is on my left side and especially in my eye - I have had a headache everyday - some bad some not to pain full for 7 years im now 24. I have tried every single tablet known the nhs - recently I went private and saw a neurologist who has mri scanned me - everything was ok as I thought. I have seen an osteopath with is a REAL BAD THING! I have a straight spine instead of a natural curve with little fluid in the discs which could contribute to the headaches. Recently I saw a doctor who specialises in BOTOX which I have now had done - it takes 4 to 10 days to kick in and has a very high success rate of about 70 - 80 %. The first few days I still had a headache but now 1 week on I have a clearer head than I have done in years. I would highly recommend this - I also see a phycio which really help.

Hope this helps you all

Becca

x


lov2teach
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/5/2009 10:17 AM (GMT -6)   
Cyn,
I am deailng with the same situation-6 weeks of constant pain.  Go to bed, wake up, no relief.  No matter what medication I still have the pain.
My MD finally ordered an MRI and I am waiting for the results.  I will look at some other options b/c I cannot live like this anymore!
I hope you find some relief.  I don't wish this type of life on anyone b/c it is simply miserable.

jfb42
Regular Member


Date Joined Jun 2006
Total Posts : 56
   Posted 4/6/2009 8:47 PM (GMT -6)   
My daughter went through this for over 2 years before she went to a different doctor who suspected Lyme disease.
She was treated with heavy duty antibiotics and after being unable to attend High School etc. is now in first year of college.
She still has some dull headache but is definitely able to function.  When we finally took her to Jefferson Headache clinic they told us they thought she probably had meningitis when it all started.  She had 24/7 intense headache.  When she started complaining of other pains, the nuerologist said it was all because she was depressed.  We took her to psychiatrist who said no, but we kept at it until we finally found something that worked.
Best of care to all.

25BECCA13
New Member


Date Joined Apr 2009
Total Posts : 11
   Posted 4/15/2009 9:33 AM (GMT -6)   
The botox hasn't worked im back to my headaches every day :(

nattielight14
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/21/2009 7:51 AM (GMT -6)   
Well I am new to the headache world!!!! I would say I am so glad to meet all of you under other circumstances but I guess this kind of sucks for us all! I am 24 and my headaches started almost exactly 3 months ago. I am on Topamax, Maxalt and Fioricet. I take a Maxalt as soon as I wake up and then I take Fioricet all day long trying to keep the pain at bay... it is not working very well but definitely better than before. I am just starting a product called MAX and it has been known to help a lot of people so I will keep yall updated! The biggest thing is not to get discouraged... us newbies to the headache world can keep goin out and trying new things and bringing back the results! Best of luck of God bless!

BadKarma
New Member


Date Joined Apr 2009
Total Posts : 1
   Posted 4/23/2009 4:43 PM (GMT -6)   
I've been suffering from horrible daily headaches for years. I take a high dose of Topamax (and lots of other meds and supplements too). I've tried acupuncture and Chinese herbal teas, chiropractic treatments, yoga, and tons of other medications. I see my neurologist every 4-6 weeks. I've had so many MRIs and CAT scans, I've lost count. I completely understand how you feel, because my life too has been overtaken by this frustrating, miserable problem.

I will say that acupuncture did help reduce the intensity of my headaches for the first 9 months or so.

mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 4/28/2009 8:00 PM (GMT -6)   

 

 

  Boy, do I understand your pain!  I have been suffering migraines for years now, but they seem to be getting worse.  I've had brain surgery but that's been almost 7 years now. I had a lesion on the right side of my brain which was causing seizures, so the neuro surgeon removed it and I've been seizure free since!  feel good to be Free from the seizures, now to get a cure for these terrible migraines.

  I am currently on zonegran,firocett, phenegran, and I take lamictal for seziure control, just as a precaution.  I have other pain meds but try not to take them, I take butter bur a herb that my neurologist suggested and I've been taking that for about 2 weeks now. Even as I type I have a bad migraine, sometimes I wonder when will this pain stop, but I know I there is a light at the end of the tunnel.

  Stay well,

  Mercyme

 

 


Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 5/3/2009 8:11 AM (GMT -6)   
I think we can all sympathize with each other, we all know pain.  Co-workers will walk up to me and say, "Oh I know how you feel now, my head is killing me.", then they ask if I have any ibuprofen, they take it and 1/2 hour later, they are fine, telling me how good the med works.  shakehead That just aggravates me, I never have anything work like that.  I go to work with headaches that others would not get out of bed with...people who do not suffer chronic headaches really have no idea how we feel.
 
We have a messenger (similiar to UPS), he has a form we have to sign when he delivers.  He always shakes the form, he doesnt really understand when I tell him to please not do that, it makes me dizzy...he finds it funny.  He isn't a bad person, he just doesn't understand, he would never do it if he realized. 
 
It's little things like this that make us crazy. 
 
I wish I knew what to say to help you all, yet I can't help me, so, we just have to hug each other for now.  I too, beleive there is a light at the end of the tunnel, it's just a very long tunnel! smilewinkgrin
We urge all doctors to take time to listen to your patients...don't "isolate" symptoms but look at the whole spectrum.  If a patient tells you s/h feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!


Lark5
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/3/2009 6:02 PM (GMT -6)   
Hi:
Poor baby!
I don't know how long you have been on topamax but some of the things you are talking about are side effects from the topamax...like the tingling in your hands, nausea, lack of appetite etc.  They will go away after a few months if you stay with it.  Topamax has really tough side effects but if your doctor keeps you on it it did help me with my worst symptoms when nothing else worked.  It made me very forgettful and I lost 20 pounds after about 6 months since I was so nauseous (little meals worked like you said) and soft drinks taste gross so I drink tea, water. But it made my headaches less by far when nothing else did anything.
But... I also take maxalt when I first feel a headache coming on.  If that doesnt stop it I take a pain killer (fioricet) as needed. 
Sounds like you've got the full monty like me but hang in there.  Maybe you should also look at some of the other postings that are up there.  Like the alternative methods.  I haven't tried those yet but they sound promising.
 
Ramona

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/4/2009 2:15 PM (GMT -6)   
Those care side effects of topamax. HOWEVER, you do need to see a neurologist as well. Why? It could be the topamax or arthritis. You need a neurologist and a full body Mri.
 
Smurfy Shadow
 
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olderwomenrule15
Regular Member


Date Joined Oct 2008
Total Posts : 29
   Posted 5/4/2009 5:57 PM (GMT -6)   
I am sooooooooooo glad I read all of these posts. I thought I was the ONLY one who went to bed with a headache and woke up with one. I get little sleep! I have been battling headaches for about 10 years and so far, nothing works. I have tried drugs and acupuncture. I just had sugery for a malignant melanoma and more drugs have come my way. I want everyone here to know that you are NOT alone. I simply want my life back. The only drug that worked was Fiornal, but my retired doctor didn't like the aspirin in it. My new doc is going to try it again. I just want relief. Be careful of Topamax-LOTS of side effects. Fiorcet has a sedative in it and made me groggy.

I will write again. I am being referred to a Headache Clinic. I guess we'll all just sit around and talk about our headaches!

Take care!

Linda
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