White spots on Brain

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susan2009
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/13/2009 2:53 AM (GMT -6)   
A recent MRI  showed white spots on my brain. My ENT specialist just had the report and didnt see the scan and he said scan was normal.
I'm curious as to what the white spots are?
 
I have had headaches for a while which come and go
 
 

 

korbnep
Regular Member


Date Joined May 2007
Total Posts : 326
   Posted 5/17/2009 11:02 AM (GMT -6)   
Whoa, let's not get ahead of ourselves.

First of all, it is true that if you're having headaches that require MR imaging then you probably should be seeing a neurologist.

Most importantly however, you need to know that it takes a good deal of training to properly read a brain MRI. I've had 4 or 5 to date and every image that I've looked at has always shown some stuff that, to my untrained eye, seems out of place but they've still come back normal. The radiologist that read your films is trained to accurately read the films and I assure you that he or she saw the white spots that you mention. Considering how noticeable they are it seems very unlikely that a trained radiologist would miss them or see them and inaccurately conclude that they're normal.

It's not unheard of for someone to miss something in an MRI and it COULD have happened in your case. So having someone who specializes in neurology, especially headache disorders, review the imaging would be a reasonable course of action. He or she can explain the significance of the white spots to you. At this point this is absolutely no reason to panic. Unless you or SmurfyShadow have extensively studied MR imaging of the brain then it's unreasonable to think that you or I are more likely to have accurately read the scan than the radiologist. And it's plain irresponsible for someone who is not a medical professional to suggest, contrary to trained medical opinion, the existence of serious medical problems. While the board is here for us to share our experiences with headache problems, even if you are trained in neuroimaging it's against the forum rules to give medical advice ("Do not use the forum to give professional medical advice") beyond an expression of lay opinion or educated guessing. Furthermore, the image that was posted is one slice of a whole bunch of MRI images that were taken during the scan. Even aside from forum rules and medical training, it's medically unethical to provide such a strong (and worrying) diagnosis or observation without having all of the case materials available.

Susan, do seek a medical professional who can answer your questions and address your concerns. Smurfy, trained or not, your post is inappropriate and achieves nothing aside from frightening Susan.

Keep us posted Susan! I'm sure everything will be okay.

Ben
DX: NDPH, Recovered CRPS
RX: Lamictal, Methylphenidate, Clonazepam, Wellbutrin XL, Namenda, Oxycontin, Oxycodone, Magnesium sup.
PRN: Ketamine nasal spray, Celebrex, Migranal, Haloperidol, Zyprexa, Lodine, Zofran, Phenergan, Thorazine, DHE IM, Droperidol IM, Toradol, Reglan, Ambien CR, Provigil, and all triptans


susan2009
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/18/2009 7:35 PM (GMT -6)   

Hello

I havent seen the reply from Smurfy as its not here was it removed? If so  I would like to read it.

A little background

I had blocked sinuses years ago so had a CT scan recently to see if my sinuses were blocked again hence the headaches possibly

The report showed clear sinuses and when I saw my ear nose and throat specialist he scoffed at the radiologists report as it said my septum was straight  whereas it was deviated years ago. The ENT specilaist was saying not all radiologist reports are accurate.

 

He then sent me for an MRI and I was given the CD and scans. I rung the ENT specialist who told me the report states MRI was normal. I then said I can see some white spots so If I drop off the scans can he check the white spots.

 

So we dropped off the scans to the ENT specialist and waiting for him to tell me if the white spots are anything.

I am not easily scared as I like to know things so smurfy feel free to send me your comments by private message if you like

Thanks Ben for input

Susan

 

 

 


tysmyboo
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Date Joined Dec 2004
Total Posts : 921
   Posted 5/18/2009 11:47 PM (GMT -6)   
Hi Susan,
I just wanted to let you know that I have had white matter lesions as well and they can be a sign of nothing, migraines, stroke, MS etc...there are many reasons they might show up.
 
1) and ENT really probably isnt the best person to explain what your possibilities are
2) mine were a sign of possible stroke but my HEADACHE SPECIALIST also told me that a lot of people have them who have never had a migraine/severe headache
 
I would definitely schedule an appointment with a specialist so they can give you more/accurate information!
Sara-Migraine/Headache Forum Moderator
 
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SmurfyShadow
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Date Joined Dec 2008
Total Posts : 2386
   Posted 5/19/2009 1:16 AM (GMT -6)   
Odd, I know I even responded. Moderators--I DO NOT do research, it aint my fault I have medical training. Please if you remove a post TELL ME.
YOu need to see a neurologist. I dont mean to worry you even more, but it is important you are seen by a person with higher medical training than myself. I had a MRI last year, white spot behid my eye with lots of inflamation. it was a tumor. I now do radiation, completed my chemo. Sometimes tests will be "normal" but need looked into depth. WHy? Tests all have a "normal range" however, you can lean towards a way. FOr example, I got my results from my blood work and urine and other tests, I was told I had "normal readings" but when I pushed a little bit more I found out I have protien in my urine (not good) and I have a elevated thing in my blood. But yet I am "normal." WHen I was diagnosed diabetic I had a "normal" blood reading for it. How it was caught? 6 months later still having trouble, he decided to review my chart and saw it was on the high end of the "normal" range for diabetes. THrough me on a medication for diabetes that would not hurt me if I was not diabetic, but work if I was diabetic. It worked so I was labeled as diabetic. If you dont get answers, keep pushing and get a second opinion. As Sara said it can be anything--not limited to cancer, tumors, begign tumors, auto immune disease, inflamation, lesions, scaring on tissue, etc. Keep pushing and keep me posted
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


korbnep
Regular Member


Date Joined May 2007
Total Posts : 326
   Posted 5/21/2009 2:35 PM (GMT -6)   
Smurfy, the reason it was removed was because I reported your violation of the forum rules and I felt that your post was irresponsible in STRONGLY suggesting that the white spots probably indicated some sort of tumor or cancer. I'm not saying that the scans could not have been read as false-negatives but it's not your place to contradict the report of a medical professional and say that Susan probably has a brain tumor. That's just inappropriate.

Your new post is better, as it mostly just shares your experiences and tells what happened to you. And your experiences are valuable--I'm glad to hear them. I understand that you experienced a false-negative report and then pressed for it to be reevaluated and found out that your tests were read incorrectly. But that is story that should be told to encourage other patients with doubts about their tests to ask questions and even seek other opinions if they're dissatisfied with what they're told. You have valuable story to tell about the importance of having your tests interpreted correctly and explained to you to your satisfaction. But your experiences shouldn't be interpreted to mean that any test that a patient doesn't understand or that looks odd to untrained eyes must have been read incorrectly. These boards are here so that we can share our experiences, not to make medical evaluations.

A more appropriate response would have been for you to say that you've had the misfortune of having a test (or tests) read incorrectly. So you recommend that if Susan has doubts about the evaluation of her scans as being normal then she should find answers for her questions. From your experiences you can share that tests are indeed sometimes read incorrectly. However, it's not your place to say that this test WAS read incorrectly. Susan should know that the spots in her films can sometimes indicate a serious problem so she should be sure that they're looked at by someone who can explain the results to her. As in pretty much all forums, Smurfy, if you break the forum rules or make an irresponsible post it gets deleted. The forum rules are very easily accessed and you're responsible for reading them and following them. Whoever did take down your post was just enforcing the rules, removing content that shouldn't have been posted. These are very busy forums and they can't write an extensive explanation for every action they take.

And I do suggest that you speak to a neurologist Susan. As I said before, it seems unlikely to me that such clearly visible spots would go unnoticed. So, considering that the radiologist almost certainly saw the spots it does seem unlikely that someone trained to read your results would think that they're normal without a good reason to. But if I saw those results you can sure bet that I'd want to talk to someone who can tell me what the spots are. When I injured my foot as a teenager and developed CRPS, a nervous system pain disorder, an orthopedist reviewed my x-rays and, seeing my heel fracture, put me in a cast. But he missed the decalcification of the bone that eventually led to the third doctor that I saw to correctly diagnose me with the nerve disorder. It turned out that casting my leg was exactly the wrong thing to do. So I'm really glad that I sought other opinions, which I did because my symptoms continued and worsened as the treatments that we tried didn't help. But I've had a whole lot of medical tests in my life and one misinterpretation taught me to be cautious but not to distrust my doctors or radiologists. Do be thorough but don't distrust your doctors. You won't get anywhere in your treatment if you do.

Best wishes Susan,
Ben
DX: NDPH, Recovered CRPS
RX: Lamictal, Methylphenidate, Clonazepam, Wellbutrin XL, Namenda, Oxycontin, Oxycodone, Magnesium sup.
PRN: Ketamine nasal spray, Celebrex, Migranal, Haloperidol, Zyprexa, Lodine, Zofran, Phenergan, Thorazine, DHE IM, Droperidol IM, Toradol, Reglan, Ambien CR, Provigil, and all triptans


korbnep
Regular Member


Date Joined May 2007
Total Posts : 326
   Posted 6/9/2009 3:04 PM (GMT -6)   
Hi guys. I had another MR imaging series done and I wanted to post a picture to show how different things can stand out but not actually be problematic. For example, here's one shot from my MRA which did come back as normal (according to the radiologist and my neurologist):

VIEW IMAGE
DX: NDPH, Recovered CRPS
RX: Lamictal, Concerta (Methylphenidate), Clonazepam, Wellbutrin XL, Namenda, Oxycontin, Oxycodone, Melatonin, Magnesium supplements.
PRN: Ketamine nasal spray, Celebrex, Migranal, Haloperidol, Zyprexa, Lodine, Zofran, Phenergan, Thorazine, DHE IM, Droperidol IM, Toradol, Reglan, Ambien CR, Provigil, and all triptans

Post Edited (korbnep) : 6/9/2009 2:08:24 PM (GMT-6)


LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 6/9/2009 4:32 PM (GMT -6)   
With severe migraines I had regular MRI's as a form of monitoring by my Neuro; as the severity and frequency increased, so to did the white matter lesions; we joked that I looked as bright as the tree in Rockefeller Center!

It is true that these spots can be indicative of many things, but they must be read and interpreted by a Neuro and placed into perspective with the condition and symptoms for which you are being seen. I can tell you that over time, since getting a better handle on my head pain, the number of white spots has decreased, but I do remember being quite concerned when I first got the report too.

Please see a Neurologist and have your report and films read and interpreted by them.

Good luck!
Janice

korbnep
Regular Member


Date Joined May 2007
Total Posts : 326
   Posted 6/11/2009 10:24 AM (GMT -6)   
LdyJane said...
Please see a Neurologist and have your report and films read and interpreted by them.


In my opinion that really is the best bit of advice to hear--whatever the circumstances have a trained neurologist work with you, especially before coming to any premature conclusions.
DX: NDPH, Recovered CRPS
RX: Lamictal, Concerta (Methylphenidate), Clonazepam, Wellbutrin XL, Namenda, Oxycontin, Oxycodone, Melatonin, Magnesium supplements.
PRN: Ketamine nasal spray, Celebrex, Migranal, Haloperidol, Zyprexa, Lodine, Zofran, Phenergan, Thorazine, DHE IM, Droperidol IM, Toradol, Reglan, Ambien CR, Provigil, and all triptans


stronglady4me
Regular Member


Date Joined Jul 2006
Total Posts : 470
   Posted 6/11/2009 12:28 PM (GMT -6)   
My husband is a scuba diver and I was recently reading in a dive magazine that divers are regularly found to have brain lesons. The article mentioned migraine related lesions so I did some research part of which was talking to my doctor.

Lesions are commonly found on MRI's for people with migraines. Although recent research suggests a possible increase risk for stroke for migraine sufferers, the lesions are usually not harmful.

Talk to your doctor and get your best information first hand.
Stronglady4me
Walk in harmony


korbnep
Regular Member


Date Joined May 2007
Total Posts : 326
   Posted 6/14/2009 10:47 AM (GMT -6)   
Also sometimes smoky or white spots will show up as a result of harmless plaque, often on the sinuses.
DX: NDPH, Recovered CRPS
RX: Lamictal, Concerta (Methylphenidate), Clonazepam, Wellbutrin XL, Namenda, Oxycontin, Oxycodone, Melatonin, Magnesium supplements.
PRN: Ketamine nasal spray, Celebrex, Migranal, Haloperidol, Zyprexa, Lodine, Zofran, Phenergan, Thorazine, DHE IM, Droperidol IM, Toradol, Reglan, Ambien CR, Provigil, and all triptans


dragonflyand rainbows
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/18/2009 2:05 PM (GMT -6)   

 

Dear susan  get the films or a digital disc and take them to a Neurologist.  The White spots are called lesions and can an indication of MS.  This is how things started for me white spots on a MRI.  Go to the national headache foundation website and www.ms.org  start reading up.


Post Edited By Moderator (tysmyboo) : 10/14/2009 2:23:11 AM (GMT-6)


GhostfireXIII
Regular Member


Date Joined Sep 2009
Total Posts : 27
   Posted 10/8/2009 11:28 PM (GMT -6)   
Were you looking at the MRA or the MRI?, in my MRA MR(angiogram) there where white spots in a certain view I asked my neuro and he said those are your arteries when looking at the MRA so yeah if your looking at arteries you may have just been seeing an angle of your arteries. I dunno thats what i found out. Don't jump to conclusions and have and anxiety attack, that happend to me and those scared me i thought i was dying.
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