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Date Joined Aug 2009
Total Posts : 1
Posted 8/6/2009 3:32 PM (GMT -6)
So I was told that writing about
what's wrong will help you so I've decided to try it out. If any of you have any of the same issues and know what to do, please tell me.
I've been dealing with illness after illness for my entire life, so much to the point that people don't even believe it bothers me anymore. I guess they think I get used to it or something. When I was a week old, I was diagnosed with viral pneumonia. Now of course, being so young and not everything quite developed, the viral pneumonia permanently scarred my lungs. I have bad breathing problems, it hurts to yawn in the morning, I have to breath shallow all day or it hurts, I can't do any strenuis activity. To make matters worse, when I was 9 years old, I came down with chronic broncaitis. So this of course, causes me to feel like I'm sick all the time (with of course, the aid of a mucus retaining cyst in my synuses) and the first thing I want to do in the morning, is cough. But can't do that. A few months later, I slipped on some newspapers and landed on a coffee table, breaking on of my ribs in just far enough that it poked my lungs every time I breathed in. When I was 17 I popped a hole in one of my lungs. I didn't realize what I had done to begin with. I couldn't stop coughing, I heard a little pop, I though maybe my back had popped or something. I wasn't really focused on anything but the cough right then. My chest was hurting but I thought it was because I had been coughing. I went to bed hoping I'd wake up and it'd be gone but I ended up waking up at 4am from snoring (I don't snore) and realized that my chest hurt so bad that I didn't want to move. I got up and noticed that my whole chest was swollen. I stayed up until 6am when my mom got up (and spent my time talking to my sister on the computer telling her I thought I needed to go to the hospital, she thought I was just making it up) and told her what was going on. I ended up going to the emergency room (little late for that) and was told that I had popped a hole in my lung. They told me there was nothing they could do for it and sent me home. Told me to just lay ont he couch for days because doing anything could cause my lung to collapse. It had swollen up because of the air that was released into my body when it popped. They said it would eventually escape through my ears or something but made a great game for everyone because for about
a week, it felt like I had bubble wrap under my skin around my neck. Pushing on it would make it move, creeped people out. about
a year later, I popped another hole but didn't go this time since they didn't do anything for me last time except for take money.
Now I bet you're all wondering "why is she typing all this into the headache forum?" well it's because I think all this has to do with my chronic migraines. See I couldn't just say "I have chronic migraines" without atleast explaining some of the other problems. When I was 12, I started getting headaches in band class. It got so bad that I had to start taking another class. Turned into migraines when I was about
14. Since then they've gradually gotten worse. Up untill about
2 years ago, I could count on getting a migraine once a day by 5pm. Now it's to where I'm lucky if I don't wake up with one. I've been told that a messed up sleep pattern can make these worse. Well when you wake up over and over through the night because you cant breath, it hinders on your sleep. Add your husband 2 new puppies that bark all day, you got a reason for why I curl up in my closet sometimes. Now don't get me wrong, I don't hate the dogs, I don't want to get rid of them, they're going through training classes right now to get them to behave and hopefully stop the barking.
Now most people who see my lifestyle think "she's got the life" but it doesn't feel that way to me. I have a husband who works 9am - 5:30pm to support me and the dogs. I worked that same job he did for a while until the eye infections got so bad that I almost went blind from scarring of my eyes (another problem, not chronic). I can't do that job anymore (there was a lot of sawdust involve). The only reason this job is my only possibility is because of my husbands vacations. Once every 6 months, we go to florida. I can take vacation time at that place whithin the first 6 months. I honestly wouldn't mind skipping 2 trips so I could get a normal job but, he wants to go and doesn't want me to work and hinder his vacation time. Because he's the only one working though, we don't have the money for things like health insurance. We don't have a fancy life, we don't have cable, or phone, or anything really except for the cheap internet, so it's not like I'm neglecting my health for HBO or anything. With the migraines though, it makes me wonder if I even could hold down a job. They're so bad that I just want to sleep all the time. But I don't sleep during the day because I know that if I do, I'll have an even harder time sleeping that night.
So since I don't have health insurance and can't go to the doctor or get prescript
ions, does anyone know of anything that will help chronic migraines that doesn't have to be gotten from a doctor?
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Date Joined May 2007
Total Posts : 327
Posted 8/10/2009 9:19 PM (GMT -6)
There are many non-medical treatments for headaches and some people have done very well with them. I just have time for a short post but I'll list a few.
There are a ton of supplements that supposedly help with headaches/migraines. Some of the more esoteric ones help some people but I'll just list the ones that I know to be directly relevant to headache pathology. Not so incidentally these are the three supplements officially recommended by the Jefferson Headache Center.
1) Magnesium - Typically start around 1000mg/day and slowly increase until you find some relief or start getting loose bowels.
2) Coenzyme Q10 - I'm not positive about
the exact dosage, though I believe somewhere around 200-300 mg/day is recommended.
3) Vitamin B2/Riboflavin - Studies have shown that significant numbers of migraine sufferers found relief (as compared to placebo) while taking a high dose of 400mg/day.
Some other popular ones that are medically relevant, though not necessarily verified in their efficacy, are SAMe, 5-HTP, Tryptophan or Melatonin (similar effects), and really a ton of others.
Of the non-drug variety I recommend trying medication/mindfulness/relaxation exercises, dietary changes (in conjunction with a headache diary preferably), a tolerable amount of exercise (even if you feel tired), a regular sleep schedule...etc.
There's a lot more though I'm blanking a bit. I'll try to get around to a longer and more extensive post about
my specific experiences with alternative therapies if you'd like.
Please let me know if you have any questions.
DX: NDPH, Recovered CRPS
RX: Lamictal, Concerta (Methylphenidate), Clonazepam, Wellbutrin XL, Namenda, Oxycontin, Oxycodone, Melatonin, Magnesium supplements.
Ketamine nasal spray
, Celebrex, Migranal, Haloperidol, Zyprexa, Lodine, Zofran, Phenergan, Thorazine, DHE IM, Droperidol IM, Toradol, Reglan, Ambien CR, Provigil, and all triptans
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